Pharmaceutical companies are constantly trying to outdo each other and to come up with new patentable drugs for diseases that already have existing drug treatments.. A good example of this is teriparatide, or Forteo in the US (Forsteo abroad), a new class of osteoporosis drug known as anabolic agents. This daily injectable drug was approved by the FDA in 2002.

Forteo is an incomplete synthetic or man-made form of the human parathyroid hormone (PTH). You see, human PTH has 84 amino acid residues but teriparatide has only 34. Teriparatide has become the osteoporosis drug of choice mainly for patients who can’t tolerate bisphosphonates, have failed to improve with bisphosphonate therapy, or suffer from extreme bone loss.

As touted in the drug’s insert, Forteo “increases bone mineral density and bone strength.”

But the puzzling catch with Forteo is that the way in which it works remains a mystery. This is openly acknowledged by its maker, pharmaceutical giant Eli Lilly and Company. As explained in the drug’s brochure, “the role of PTH in control of bone mass is still not really understood” and that “intermittent spikes of PTH, such as given by daily injection, will cause more increase in bone formation than in bone resorption… This has been shown in rats.”

Unfortunately, what has also been shown in rats is the development of osteosarcoma, a lethal bone cancer caused by an abnormal proliferation of osteoblasts or bone-forming cells. Below, I quote again from Eli Lilly’s pamphlet (http://pi.lilly.com/us/forteo-medguide.pdf):

“During the drug testing process, the medicine in Forteo caused some rats to develop a bone cancer called osteosarcoma. In people, osteosarcoma is a serious but rare cancer. Osteosarcoma has been reported rarely in people who took Forteo. It is not known if people who take Forteo have a higher chance of getting osteosarcoma.”

Because of this serious side effect risk, Forteo is prescribed for a maximum of two years. This is as close as one can get to playing Russian roulette! Who would trade a potential fracture for the awful risk of acquiring a lethal cancer? And as if this were not enough, teriparatide has a long list of nasty side effects such as joint and chest pain, muscle pain and weakness, esophageal problems, nausea, and vomiting. Plus having to inject oneself subcutaneously each and every day is most certainly no picnic.

## Exorbitant price tag leads to exorbitant profits

The unanswered questions don’t seem to hamper Forteo’s skyrocketing success. According to drug-industry analysts, an estimated 600,000 prescriptions were written in 2005, which generated more than $350 million in revenues. And in 2008, Eli Lilly reported$778 million in sales. (http://newsroom.lilly.com/ReleaseDetail.cfm?releaseid=362195).

Indeed, the future looks bright for Forteo. As predicted by Pharmacor’s June 2009 osteoporosis report, by 2018 Forteo sales may reach close to the $2 billion mark. One easy way to explain these numbers is Forteo’s exorbitant price tag. It costs nearly eight times as much as bisphosphonates, running up a tab of about$6,700 a year. That’s a pretty high cost for a drug whose mechanism is not even remotely understood!

## Doctors ignore ignorance?

Another puzzling aspect of this drug is that while doctors openly admit their ignorance regarding how it works, they choose to prescribe it anyway.

Dr. Roberto Pacifici, head of the division of endocrinology at Emory University School of Medicine, comments that “…how intermittent treatment (with teriparatide) works has remained a mystery”. (http://whsc.emory.edu/home/news/releases/2009/09/bone-building-hormone.html).

This is clearly a rather unusual and perplexing situation to say the least.

And it sounds like a job for Agent 4T0…

## Mission: Impossible

Remember the TV series with this name? I used to be a big fan of Mission: Impossible. Each episode began with secret recorded instructions to the brave agents describing a very complex and often dangerous mission. The agents could decide whether to accept the mission or not. Of course, the fearless members of the Impossible Mission Force (IMF) never walked away and in the end, always succeeded. But here’s what happens when a reluctant osteoporosis drug is the agent chosen for the mission… Read my Mission: Impossible spoof below:

“Good morning, Mr. Paratide. Your mission, should you decide to accept it, comes from the top boss, Big P.”

“You can call me Terry… What is my mission?”

“First, from now on your new name is Agent 4T0. Your mission is to strengthen this patient’s bones and report back to us detailing exactly what you did. And you have to report back to us fast, 4T0. Time is running out.”

“Well, I may be able to strengthen the bones, but I have no idea of what I’m doing! Big P knows that we’ve been trying to find out without success. I need written instructions!”

“You’re the ACTIVE INGREDIENT, for crying out loud! Plus Big P has given you a team of helpers…”

“What… you mean the Inactive Ingredients? I don’t see how glacial acetic acid, sodium acetate, mannitol, metacresol, and hydrochloric acid can help me. They’re INACTIVE, remember?”

“Stop acting like a coward, 4T0. Here’s a little secret for you: metacresol is highly flammable and poisonous – even lethal in the right dose. It can help you solve this mystery if anyone gets in your way. So get creative and solve it once and for all.”

“I’m not a fighter! I’m just a synthetic wannabe, I don’t know what to say…”

“Remember our motto: Ignorance is Strength. You don’t have to know anything… nobody has to know anything… that’s our strength, 4T0. Big P’s survival depends on ignorance. Just invent something and Big P will make sure that everyone will take our word for it.”

“Yes, I know that’s the way we’ve been operating in the past, but now people are waking up real fast…Why me, why me?”

“This tape will self-destruct in five seconds.”

“Oh, nooooooo!”

So there you have it.

Were you prescribed Forteo? Even if you weren’t, please share your experiences, thoughts, and comments with the community below.

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671 comments. Leave Yours Now →
1. ac February 11, 2016, 2:20 pm

I stopped this drug after 6 months, felt the risk was not worth the results as five family members had some form of cancer. I currently have trouble sleeping even with a bipap, pain in legs, hips, knees, and shoulders. My fracture at L1 was from lifting a young man from sitting position. Do not think bone density would have made any difference since he weighed 110 lbs and I forgot to lift properly. (Got up in middle of night and did not think of correct lifting measure.)

2. Victor Sardella Jr. February 3, 2016, 3:20 pm

It has has made me think twice about the situation. Lot more research.

• Vivian Goldschmidt, MA February 4, 2016, 11:05 am

That’s fantastic, Victor. It is so important to think and research first before deciding whether or not to take any drug.

3. Catherine January 25, 2016, 7:40 pm

After 5 months on Forteo my bone density tests results show improvement in all categories. I tolerate the medication well and experience no side effects. I am taking a conservative approach and will remain the on Forteo 12 months. This should result in signifiant improvement over what my bone density tests were before i started Forteo.

4. Marion January 12, 2016, 11:11 am

After two separate falls and breaking my arm in three pIaces, I was diagnosed with a T-score -5.4 or similar and was told they had not seen such a bad T-score result in someone my age (65 at the time). Since I have ongoing stomach problems, they ‘offered’ Forteo. I read your book, which was enough for me to reject this drug, much to the disappointment of some of my family members. I take the supplements, follow as much as I can of an alkalizing diet and do the Densercise Exercises as much as possible, I feel stronger and keep hoping that this will help.

• Vivian Goldschmidt, MA January 12, 2016, 11:25 am

Keep up the courageous work, Marion! It’s hard to go against the mainstream, but you can do it!

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7. Christye December 26, 2015, 12:37 pm

I am 45 yo and been very active my whole life. I had a total hysterectomy at 35 due to advanced cervical cancer. I am on inhaled steroids and on/off oral steroids periodically for asthma. I have always been a runner but decided to start running marathons. Last year my first training attempt was aborted due to a stress fracture in my right hip. I had bone density scan done and was noted to have significant osteopenia in my hips despite being on hormone therapy since my hysterectomy. So I started on Boniva. I started training again this year in February but kept my distances low due to asthma exacerbations. I did compete in a couple of sprint triathlons over the summer and did well so I decided to start training for a marathon again. Within 3 months of pushing my distances I developed a fracture in the distal tibia bone (medial ankle). Once again I had a bone density and found my scores were even worse. I have since been started on Forteo at the suggestion of my orthopedic surgeon at the very least to help heal my fracture. We have discussed staying on it even past healing fracture. I have been on it for a month and haven’t noticed any side effects thus far. I almost feel like this is my only hope. I’m 45 and have had 2 fractures within almost a year. All of my dreams of running marathons are likely pipe dreams now but I want to at least stay as active as I can for as long as I can. All the comments and reports on Forteo are rather terrifying. I wonder if there are any other meds in the pipeline that will do the same as Forteo without the side effects? What other choices do I have if Forteo is such a risk?

• Andi December 27, 2015, 1:47 pm

Hi Christye, I just completed 2 years of Forteo injections, I will be 42 next month. I developed osteoporosis after using Depo Provera for birth control, and fractured a vertebra while riding my horse. My endocrinologist put me on a once weekly dose of Fosamax which I quickly decided I couldn’t tolerate – terrible pain in my shoulder into my back, could barely move my arm, and neck got so stiff I couldn’t turn my head. Those side effects went away within a few days, but same results after the next dose. I never have noticed side effects from medication in my life. The endocrinologist decided that since I was only 39 at the time it would be best to try to build the bone instead of trying to just preserve what I had left, and she prescribed the Forteo. As my back fracture healed during the next few months I swore I could tell my back was feeling stronger – it was hard for me to be on my feet very long like standing in the kitchen cooking, etc but slowly I was feeling stronger. After 2 years of Forteo, I am back into osteopenia instead of osteoporosis! I was at -3.5% compared to baseline, and now I checked out at 14.1% compared to baseline. It says an 18.2% improvement. My T score was -2.6, now is -1.4. Very exciting to me! I’m not sure if there is anything else coming along that would have less side effects, but for me I didn’t experience anything more than occasional leg cramps when I tried to ride my exercise bike, which I will not say for sure was from the Forteo. Keep in mind when they mention the bone cancer possibility – the rats were tested at a way higher dosage/ratio than what is prescribed for us. I know people seem to tolerate things differently, but I had success with Forteo.

8. JT December 15, 2015, 7:12 am

I was in perfect health all my life until I broke 2 ribs and had 3 compression fractures of the vertebrae, all non stress related within 2 years. My mom aunts and cousins all have osteoporosis and kyphosis. I am now 58 and just started my 5th month on Forteo and notice swelling in my cheekbone on one side. I went to my internist yesterday who ruled out any infection or sinus problems and told me to stop taking the Forteo until my bone specialist does a scan. She had a patient on Reclast that developed 6 dime sized bone spurs and she is concerned about that.
My bone specialist stopped me from all heavy lifting and exercise, except for walking, a year ago. I feel weaker than ever and want to build muscle. I hope the specialist responds today since she has not returned previous phone calls.
I am thinking I should just stop and start exercising and getting healthy through changes in diet and reducing stress.

9. Donna Baughman November 18, 2015, 2:54 pm

I went on Forteo recommended by my doctor after having a terrible reaction to oral meds for osteoporosis. I experienced terrible muscle spasms in my upper chest to the point where I could not walk and barely breath thru the episodes. I worked in a warehouse pulling orders and would have to stop in my tracks until the pain subsided. I had never had that happen before using this drug. I went off after about 5 months of injections, but to this day (7 years later), I still have the spasms when I am tired or have been upright for an extended period of time. I put the blame on this drug and will never take anything for my bones again. Drug companies are only interested in the , not the patient. Done with giving my hard earned money to exchange one problem for another! thanks for giving me a place to vent! Donna

• Eric Weisman February 8, 2016, 1:49 am

Unfortunatley, I think Donna is absolutely correct about the Drug Companies being interested in $$only. The FDA does not require Chemical Drugs to disclose their ingredient list content, so the Doctor nor the Patient know what they are really using. Sure: There may be package warnings about side effects including cancers and death, but why is the Public not aprised about the Chemical Content of Prescribed Chemical Drugs so they can make an informed decision for themselves before taking Chemical Drug Cocktails. I work in supplement compound technology for internal disease and all the ingredients that are incorporated in the proteins, vitamins, herbs, minerals and enzymes I use are fully disclosed on the labels. Sadly, in my view, the FDA, USDA and the State Depts. of Health work to make it look like they are protecting the interest of the Public, when in reality this facade allows Chemcal Drug Companies to sell products with undisclosed dangerous ingredients that can lead to various forms of Organ Failure, Cancers and Death. The Chemical Drug Industry sells about 80% of its’ Anitbiotics whichinclude other Chemcals along 85% of all the Steroid Growth Hormones made that come to or are made in the USA to The Meat Poultry Fish Dairy Egg Industry. The Animal Slaughter Industry uses the cheapest forms of protein they can to feed Meat Poultry Fish Animals including their own Sewage, Blood and Flesh Parts that can not be used for Human consumption including Eutahnized Cats, Dogs and Roadkill. Meat Poultry Fish Dairy Egg Labels do not disclose ingredients and there is a good reason for this: You probably would not eat them if you knew what was in the feed of these poor Animals. I eat Vegan Veggie Burgers, Veggie Hot Dogs, Veggie Sausages and Veggie Chic’n Patties grilled “Crispy” on the outside. They do not contain Eggs or Dairy. I use Vegan Vegetarian Pet Foods for my Dogs and Cats and woud never trust a Meat Poultry Fish Slaughter Co. to provide my Family with anything, much less the Chemical Drug Industry. I have eaten strictly vegetarian substitutes for Meat and Poultry Products along with salads for over 40 Years. I have no health issues other than a back injury I sustained in a 2014 Car Accident and it has improved. I have no High Blood Pressure, No Hypercholesterolemia, No Osteoporosis, No Cancer and I weigh the same as I was in my 20’s, but my physical performance exceeds and intellectual capacity exceed that of what I had in my 20’s. People tell me I look like I am in my late 30’s to early 40’s, but I am in my 60’s. You can see me, Eric Weisman, speak on u-tube at the World Vegan Summit last March. I will be speaking at the Green Planet Festival in Fort Lauderdale on Feb. 27th, 2016. I hope to see you there. • Tanuel December 25, 2015, 7:58 am I took forteo and almost had to have parathyroid surgery, but refused to have surgery, after being off forteo a long enough time my numbers returned to normal. It caused a high calcium level in my blood stream. Causing me to be very tired ALL the time. I called Eli Lilly and they did not seem interested even though there is a parathyroid harmone in the drug I was told by their pharmacist. I wish we could get it off the market. I have never taken drugs, till I took forteo I will not take any drug again I will stick with healthy foods and water and minerals. Tanuel 10. Eric November 14, 2015, 1:27 pm My T scores after breaking my left leg at the tibial plateau were measured at -1.0 to -1.7 and I predicted my t scores before my Primary Physician even told me what my scores were, would average out at -1.5 due to the fact I was taking Phenobarital for epilepsy for years before I was finally tested for my DEXA scan, which should have occured when my neurologist and primary physician when the put me on Phenobarbital, but I was never tested until I fractured my left knee at the tibial plateau, I have cronic nerve pain now below the ankle, am taking what anyone would call massive daily doses of nuerontin for the nerve pain, and still suffer break through nerve pain that never really ends. Lyrica is out of my financial reach, but works well in dealing with my pain. My observations are that DEXA scans prior to prescribing Dilantin and Phenobartal and all other antiseizure medications is a matter of The Standard’s of Care that all physicians MUST adhere to or risk the facts of being sued for Medical Malpractice, to be filed against you and your practice. Heed this advice, my physicians really did me alot of real harm, don’t let this happen to you, demand a DEXA scan before you let your Dr. ruin your health with antiseizure medications. Unforetunately for me and my Doctors, the damage is done, now it’s time for the lawyers to step in, on my behalf. 11. eryxf November 7, 2015, 11:45 am Forte love – это возбудитель для женщин без цвета и запаха 3 капли в бокал и женщина ваша .. http://www.greatbutik.ru 12. Lisa October 27, 2015, 1:33 pm I am a 55 year old female who has had stage 3 breast cancer, broke my ankle and had surgery five years ago and am going through PT after a femur bone brake that now has a rod and pin. I do have osteopena and have gone through menopause due to the cancer. I also have esophagitis. My orthopedic doctor has stated he wants me on the Forteo. I am not sure that it is the right drug for me. There is the two major breaks in 5 years that is concerning. I am asking for your opinion. Lisa • Elsie November 24, 2015, 1:14 pm I am a 91 year old female who has been very active all my life. I had been taking boneva for several years and when I developed femur pain my doctor took me off it. 2 months later I broke my femur. I think it broke and that is why I fell. I now have a rod and 2 screws in the femur. I have just been taking calcium since then. I fell 5 months ago and broke both bones in my wrist. Recently had a bone density test which showed a lower score. Dr. wanted to put me on prolea, but after reading side effects was the same as boneva. I’m not sure that forteo is any better. All have bad side effects. 13. clemmons October 26, 2015, 8:12 am After 2 months of Forteo experienced extreme joint pain and muscle weakness, debilitating nausia and vomiting. • amc3smith November 19, 2015, 2:21 pm What did you do? Did you stop taking the Forteo? Did the side-effects go away? How long did it take? • Luann December 1, 2015, 10:22 am I was on Forteo for four years. . I had good months and I had bad months. 13percent of my lumbar spine grew back. I am no longer at 69percent. Now at ostepenia. The daily shots were easy to do but many of the side effects were bad. Some days I couldn’t get up and would crumple when I did. I would get nauseated some months for entire month. I would be dizzy often. I had what I call traveling pain. My pain would pop up in a different area each week. Or move from one joint to another in a day. Get into the Bone Girls Club online and on the Osteoporosis blogs. You will find many other people to talk to about all of this. Good luck. I would do it again. • amc3smith November 19, 2015, 2:19 pm What did you do? Did you stop taking the Forteo? Did the side-effects go away? How long did \it take? 14. Lawrence October 10, 2015, 5:51 pm Vivian, I was on Forteo for 2 years and it did help my T-Score. Then the doctor put me on a bisphosphonate – alendornate. He said that if I did not take it I would loose the improvement from Forteo that I got and all that money would have been wasted. Forteo benefits fade away unless you take a bisphosphonate. Is that true. Is that that way to go continue with a bisphosphonate or is your save our bones program with calcium better from here on. Which direction should I take? Please advise. • Christine October 11, 2015, 1:26 pm Thank you for your input. I am on a 3 month trial of Teriparatide injections. I feel ill, sick dizzy heart palpitations and my concentration is poor. I am that close to quitting. Knowledge that medical authorities admit that they do not know how it works is helping me to decide. Your comments are very helpful. • Vivian Goldschmidt, MA October 10, 2015, 7:12 pm Hi Lawrence, Osteoporosis drugs can sometimes bring up a T-score, because they measure bone quantity, not quality. The problem is that the bone may be denser, but also harder, dryer, and brittle because the density came about as a result of disrupted bone remodeling. (Shedding old bone cells is vital for bone integrity, and drugs stop that from happening.) Of course, no one can make the decision about which path to take except you – but you are clearly doing your research, so you can make an informed decision. • Christine October 11, 2015, 12:57 pm Thank you for your thoughts. I am on a 3 month trial and have been injecting Teriparatide every day for exactly one week today. Apart from multiple fractures I am quite fit. Or rather I was. Now I feel quite ILL. You have reminded me regarding quality not quantity of my bones. I also feel sorry for any living creature given bone cancer on behalf of research. I look forward to the day we do not have to do this. Again thank you I feel I might not run the full three months. Everything is telling me this is not for me. The choice of a possible fracture or risk however minimal is making up my mind. Christine. • Vivian Goldschmidt, MA October 12, 2015, 11:27 am Hi Christine, I want to encourage you to listen to your instincts. No one knows your body or your health like you do. • sharon November 5, 2015, 9:20 am I have osteopororis and Paget’s Dr wanted me to take Forteo – said that was the only choice. Had the shots twice a year for two years and Actonel before that. Actonel helps with the Paget’s but not the bones. Anyway after consulting with a couple other Dr’s and reading up on it decided against taking the Forteo and am back on Actonel. Do I have any other choice – if it weren’t for the Paget’s would try your program for the bones. ???? 15. marcella August 30, 2015, 8:33 pm I’m 54 year old female who went through menopause at 34. After 10 years of hrt, started reclast, my bones continued to diterate. This year’s scan was T=-3.9, I was immediately prescribed forteo. I’ve been on it 4 weeks and have bad bone pain and fatigue but worth it if I can go back to jet skiing and being active!! 16. Mark August 6, 2015, 12:32 am Indeed i never new CANNABIS OIL could cure cancer i thought it was the end of the road for me until i met with a friend (Steve) who introduced me to these sellers of CANNABIS OIL. (cannabisoilworldwide@gmail.com) i bought from them it was pretty expensive but had no option cause it turned out to be what i was looking for all along, a week after buying the CBS oil it was like a reborn for me.Am so happy now to share this testimony for purchase or sales partner contact CANNABIS OIL contact: (cannabisoilworldwide@gmail.com). PLEASE LETS SAVE LIVES. 17. Barbara July 20, 2015, 9:19 am I was on Forteo injections for 5 1/2 weeks and that was over two years ago. Since then I have had an acid taste in my mouth constantly. My dentist pointed out that it is ruining my teeth. I have had more dental appointments in the last 2 years than I have in my life. I am going to see my Primary Care doctor asap and then possibly a cancer/bone specialist. 18. cyndy July 18, 2015, 11:44 pm My Mom is 88 and has been taking Forteo for 3 months. She has osteoarthritis, and she has just had a massive flare up. She has not had this level of incidence since she went through menopause. Does anyone else have any experiences like this? She has no other changes in meds or activities or diet. • Nora December 4, 2015, 11:41 pm I was put on a three month trial of Forteo. Although I do not have osteoporosis I had an atypical femur fracture which is still not healed after more than 2 yrs . Also had triple arthrodesis ( fusion) of my left foot in two surgeries at the beginning of the year, also not healed. After one week of Forteo I was taken off it due to a massive flare up of rheumatoid arthritis unlike any I had ever experienced: massive swelling and pain in joints never before affected and particularly my wrists, hands and knees. 19. Dennis July 14, 2015, 12:27 pm 45 year old L1-2 spinal cord injured paraplegic, 30 years post injury. Suffered a right femoral fracture during PT stretching. T Score for left thigh is -2.3. Hip is -1, Spine and Forearm are normal. Dr wants to put me on Forte for 2 years. Dr does not have much experience with SCI patients and this treatment. Mostly works with Post Menopausal Women. Anyone have experience with my type of situation? The mechanism of bone loss in my case is different than age related bone loss. 20. David B. Karpf, MD July 11, 2015, 12:22 am Your blog is an excellent example of fear-mongering and selective choice of information. You may think you are “helping people”, but you are not. Forteo is not the best choice for all patients, but it remains a good choice for some patients, and has a very acceptable benefit/risk ratio if used appropriately. • Camille December 9, 2015, 8:38 pm I have been on Forteo twice for 2 years. The last round was about 6 or 7 years ago. My doctor wants me to use it again but I am just really afraid to. Any advice? You seem to think it is a safe drug. thank you Camille by the way I am 64 years old • Tanuel December 25, 2015, 8:52 am I developed difficulty in swallowing and they wanted to do parathyroid surgery on me I had a high calcium count in my bloodstream which is an indication of parathyroid problems I went off Forteo and the blood calcium returned to normal good thing I did not have surgery. I still have a swallowing problem. Take care to correct any problem with good food ,akaline water and minerals for a start. 21. Deb Ard RN July 3, 2015, 2:26 pm I am a 62 year old woman who 8 years ago was diagnosed with severe osteoporosis after numerous ankle/wrist fractures whose pain I had dismissed and ascribed to “getting old”. I then tried oral alendronate that, after 3 months, nearly killed me from an esophageal spasm that shut down my airway completely, I am a registered nurse and was at work in a hospital when I suddenly could not breathe. Had i not been close by to immediate medical attention I’ve no doubt I would not be writing this now. Also, being an RN, I was careful to take the alendronate exactly as directed—it still nearly killed me. My physician urged me to try Forteo as really, that was pretty much the only other option for severe osteoporosis repair. We reviewed the clinical trials, including info about the common side effects and possible severe adverse effects including osteosarcoma. Longer term use of Forteo increased the likelihood of bone cancer, but, interestingly enough, the most benefit of the drug is within the first six months. The benefits continue a bit afterwards, but the risk increases as well. We already had a baseline bonescan–I had extreme bone density loss despite being an active athlete and equestrienne. I started the daily injections of Forteo and was followed VERY closely by a nurse case manager from that company–had to check in with her weekly. I did have some minor initial side effects–nausea mostly–but they disappeared after the first two weeks as we thought they would. At the four month mark I had another bone scan and had a 4% increase in bone density! The bone pain that I thought was “just arthritis” before taking Forteo was gone and had been gone since the first month of injections. My MD and I decided to discontinue the Forteo at that time–somewhat from a risk perspective, mostly because it had already done what it claimed it would do. If you are prescribed this medication by your doctor as a last resort as I had been, go and try it. Show your MD this post even–you do not need to take Forteo for 2 years! I was lucky in that my insurance covered it, but, honestly if I had known initially that this drug would do what it promised and that I would have no more pain nor have any more fractures, I would have borrowed the money somehow to cover the first four months. You are all correct, it is expensive but very very worth it. • Linda Q October 27, 2015, 2:21 pm I’m glad to know I don’t have to stay on it for 2 years, had some joint pain and muscle spasms, but after 4 months, this seems to have settled down. Just wondering if Medicare will cover second bone density scan at 6 mos, does anyone know? 22. Lailani June 8, 2015, 6:34 pm At 32, I had fractured both hips, multiple times, both feet countless times, other little fractures here and there. I was constantly in some sort of broken state. Since I wanted to have the option to have children, my doctor prescribed Forteo, as it doesn’t stick around in the body for a long time. My doctor personally spoke with and wrote to my insurance company after they rejected the payment for the very expensive drug and they agreed to cover it. I took the daily injection for 9 months. It has been 5 years and I haven’t fractured a bone since. It was worth the risk for me – a tiny chance of horrific side effects for the opportunity to walk around, unbroken for the rest of my life. • Suzi June 14, 2015, 8:17 pm Why did you only have to take it for 9 months and not the 2 years? I just started this week. Never had a broken bone in my life until a boating accident last Thanksgiving. Found out I have osteoporosis and am not having a smooth time remembering to take it or put it back in the frig! • Deb Ard RN July 3, 2015, 2:31 pm You and your doc should discuss this. You do not necessarily need to take it for two years–that is solely the mark where the risk may outweigh the benefit and, actually, the first few months of Forteo gives the most benefit to your bone density. The benefit tapers off from the six month mark the longer you use it though there still is a benefit. 23. Caroline May 11, 2015, 4:32 pm I am a 75 year old female. About 2 years ago, I fell and broke my hip/femur (or broke my bones and fell). After surgery and during recovery in hospital/rehab centers, I was prescribed forteo. The price of this medication is now out of sight. My medicare supplement insurance will not pay since I am in the”coverage gap” and the cost is over 2000. The gap is not just financial but also a barrier to getting this medication. An important side effect of taking this medicaton that needs to be listed is POSSIBLE BANKRUPTCY. What options do I have? • Tanuel December 25, 2015, 9:04 am Be glad you did not have the funds to take it, the side effects are worse than they say. I take minerals and try to eat properly and have excess energy now and I am 74 years old. Still have the swallowing side effect. Hope to keep working on it and hope the swallowing improves as time goes by. Sorry I took it. First time I ever took a drug. Last time I will do it hopefully. Tanuel • Luann December 1, 2015, 10:29 am There are outside agencies that will help with your expense. In fact Eli Lilly paid the largest percentage of my 2 year use. Get a hold of them. Or have your doctor call them to say you have to use this drug. I couldn’t have afforded the 1800 a month use. But 2 years was covered completely. • Linda Q October 20, 2015, 3:15 pm Caroline, I’m 65, at last count, had 39 fractures in my body, was averaging 3 a year. I’ve been on Forteo about 6 months, no fractures yet, but too early to tell if it’s due to Forteo or just being more careful. Just about all the major pharmaceutical companies have Patient Assistance Programs, in which they get you the medication free or at a reduced rate. You might want to check with Lily and see if this is available. I’m very low income, so copays are not a problem for me. But, back when I was still working, I was able to get Celebrex, which was very high when it first came out, for free. • Vivian Goldschmidt, MA May 12, 2015, 4:29 pm Dear Caroline, I am sorry to hear about your hip fracture and the pain you are experiencing. Remember – you always have options! Whether you choose to take Forteo or not is entirely your decision. It’s you, not your doctor, who will be paying a great deal of money and experiencing any side effects. No one can “make” you take a drug you aren’t comfortable with! 24. Nancy N May 1, 2015, 7:29 am I am a 62 year old active female. In January 2015 I was diagnosed with severe osteoporosis in my spine and right hip. Doctor prescribed Forteo. My insurance company (Florida Blue) has denied coverage twice, so I am now self paying 2000.00/ month. My husband and I are both retired and I am not eligible for Medicare. Forteo Connect will only help with reimbursement after what my Florida Blue pays. But because my insurance has denied coverage twice, Forteo Connect will not help with any reimbursement. Where is the sense in this?? My T score is -3.6 and I have broken ribs and toes just thinking I was clumsy. I am now on a weight lift and activity restriction which has dramatically effected the quality of my life. Anyone else have trouble with insurance or Forteo Connect?? 25. A F April 30, 2015, 2:57 am I’m an early 40’s male that had 2 Parathyroid Adenomas removed. The Parathyroid condition left me with multiple spine fractures and Osteporosis -3.5 T-Score. Been taking Fosamax for 6 months and only saw a 0.2 point increase in hip/spine density. Forteo has been recommended. Not sure what to do. Also have intractable bone pain. • Vivian Goldschmidt, MA April 30, 2015, 9:52 am Dear A.F., You are already on the right track – you’re doing your research! I encourage you to take full advantage of the free information on this site, and look carefully into Forteo and Fosamax, and gather all the information you can. Good luck! 26. Jenny April 6, 2015, 7:12 pm I took Forteo about 4 Years ago, since then, I have been diagnosed with Vasovagal Syncope Syndrome, which is a slowing of the heart which can be triggered by just about anything. I have had about 6 episodes and have been in the hospital on all those occasions. When the heart slows, your blood pressure drops low and you go unconscious, not a fun thing to live with. I have read that there have been other Forteo users that have been diagnosed with heart problems since taking it. I am curious what the data is. • Christine October 11, 2015, 5:42 pm Hello this evening I decided after only a week of taking Forteo, that the side effects are unacceptable and one of these effects is the increased rhythm of my heart. I am not going to inject tonight. The un-natural way the bones get ‘stronger’ I don’t like. Dizziness sickness and generally feel ill. 27. Mahendra March 27, 2015, 10:02 am My T score ios -4.2, started taking Terifrack by intaas. 3 fractures in spine, one shoulder dislocation, and other minor fractures at some places. advise 28. Danny March 9, 2015, 9:08 pm I am looking for some ideas for my wife who has osteopososis (t=2.8). This is caused by taking the blood thinner warfarin for 21 years because she has a mechanical replacement heart valve. Many people may find themselves in this same dilemma. Vitamin K is at the root of it. In order for the blood thinning to work, vitamin K must be in scarcity, so you can’t eat a lot of healthy greens. When the warfarin puts vitamin K into scarcity, the liver makes less of the clotting chemicals so the blood is thinner, but it also makes less of the proteins needed to bring calcium into the bones, so they get progressively weaker. All the normal prescriptions for exercise and healthy living will not work to maintain bone health if the calcium bearing proteins can not get to the bones. What to do? I thought Forteo might be an answer, but it looks bad. • Vivian Goldschmidt, MA March 10, 2015, 9:02 am Hi Danny, First, I commend you for doing this research on behalf of your wife, and gathering as much information as you can before ingesting osteoporosis drugs. Warfarin can be considered one more acidifying drug, so following the 80/20 balanced diet (as described in the Program) is a perfect solution. Believe it or not, even people taking bone-depleting drugs like corticosteroids have been successful while on the Save Our Bones Program. You and your wife can check Real Life Success Stories here: http://saveourbones.com/program/results/ 29. Kim March 8, 2015, 11:51 pm Know that I’m going to be given Forteo as a solution. Seeing endocrinologist tomorrow due to major bone issues caused by Actonel 8/10-4/10 took Actonel as osteoporosis preventive. Medical issues: 1/12–fell, fracturing L3 4/12–left jaw dental work 8/12–fell, breaking left shoulder 10/12–left jaw, dental work 11/13–spontaneous fracture of right femur 4/14–removal of all molars in lower left jaw due to jaw deterioration 7/14–spontaneous fracture of left femur 2/2-left hip began aching as leaving airport. Approx 2/18–spontaneous left hip fracture. 2/27–3 pins inserted into left hip 30. LynnCS March 8, 2015, 12:09 am I took it for two months. I was surprised to not have any side effects as I am really sensitive, usually, to medications. I do worry about the cancer concern. I am exercising more than I was and found that it helps in so many ways. I’m on a whole food, plant based diet, so I feel I’m doing the right things now. I have taken Actonel in the past and I’m a bit angry about having had the wool pulled over my eyes then, but glad to have stopped it. I’m sure it did a lot of damage. I’m still not sure what to do. My doctor supports the healthy diet and is more alternative than many docs. Because I have broken some bones over the years, as recent as a broken ankle last year, where the surgeon said my bones were “soft,” he says that it’s more risky to continue to break bones than the “outside chance” of getting cancer. The C word is scary. I’ll keep reading your reviews, but need to decide soon. Wish me well. Lynn. • Vivian Goldschmidt, MA March 8, 2015, 3:14 pm Hi Lynn, Good for you for asking questions and doing your research. Personally, I can’t imagine risking cancer to take a dangerous drug that, ultimately, won’t be good for my bone health – especially when there are effective, drug-free options like the Program. • LynnCS March 21, 2015, 3:23 pm Hi Vivian. Thanks so much for the reply. I used it for 2 months but can’t afford it. He has given me some forms to apply for help from the company and says…get this…”You have more concern over broken bones than cancer, at your age.” I am concerned about the bones, but am trying to up my exercise and keep an alkaline food plan. I hope it is good enough. Scary! • Vivian Goldschmidt, MA March 22, 2015, 2:48 pm I’d say both are important health concerns! Kudos for sticking to your beliefs, and choosing to go drug-free. • Christine October 11, 2015, 5:46 pm I agree 31. Danielle February 19, 2015, 6:18 pm I am a 29 year old registered nurse and currently nursing my 9 month old daughter. 5 weeks ago I fell down the stairs, fracturing my T8 vertebrae. The official diagnosis was a 27% compression fx along with several other injuries including 2 bulging disks. I was put in a brace preventing me from bending. At my 2 week follow up appt the fracture had worsened to a 30% fracture. My neuro surgeon recommended I see a bone health specialist. I saw her today and she has recommended I take Forteo for a month to try and avoid surgery. The issue at hand is I have multiple bilateral kidney stones and have had these for the past 2 years. She is not sure if I can start this medication due to these stones and the possibility of making them larger or even multiply. I will have lab work done tomorrow to assess the risk. I’m also nervous that it may harm my child therefore I will have to stop breastfeeding. Now reading about the cancer risk scares me. I’m only 29 with a new family…not sure it’s worth the risk. • Vivian Goldschmidt, MA February 20, 2015, 10:52 am Danielle, my heart goes out to you – it sounds like you have a lot on your plate! The decision to take drugs or not is, as always, entirely up to you. I can tell you that drugs do not heal; they artificially mimic the healing process and/or manage symptoms, and there is always a price to pay. You don’t mention whether or not you have the Program, but here’s a note on healing fractures. It’s important to make sure that sufficient bone and collagen building minerals are available, such as calcium, magnesium, zinc, boron, manganese, and copper. Vitamin K and D3 are also very important, as well as B12 (preferably taken with the rest of the B complex) and Vitamin C. Also, some antioxidants (lycopene and polyphenols) help build new bone. Maintaining an alkaline body pH is also very important. All these recommendations are also applicable to the prevention and reversal of bone loss. 32. Lindy January 31, 2015, 10:48 pm I have been on Forteo for 18 months. No side effects, no problems. My first bone scan after a year was status quo (-3.3 in the hip), but no deterioration either. I am 52, and my doctor, who is in contact with another osteo specialist, highly recommended forteo for 2 years. I am small, thin, & physically active with a family history of osteo. I will follow through with treatment in the hopes I can keep what I have and maybe even ski again. 33. GEORGE January 21, 2015, 4:47 am I am 25 and suffered a intracapsular femoral head fracture on my hip. It has been 3 months and it is still of nonunion despite my femoral head being alive.I visited another doc for a second opinion and he recommended Forteo for 1 month. Hopefully it will heal it right up or i will need hip replacement. Does anyone have their hip healed thanks to this drug? 34. Richard January 17, 2015, 9:23 pm I am a 55 yeard old hypo-gonadal male with osteoporosis. I have been on Forteo for almost two years now. I have had no side effects except pain and swelling at the injection site. Prior to starting Forteo I had fractured 9 vertebra. Anything from bumping my head getting in the car to walking would fracture one. Since that time I have gained some height back and to my knowledge have not broken any more. I am due for a scan soon. At that time my rheumatoligist and I will decide how much longer to continue treatment or consider alternatives. • Andre May 16, 2015, 5:55 am Hello. Are you serious? Did Fosamax help you restore height you lost due to vertebrae fractures 35. Mary January 15, 2015, 9:20 pm After 2years on Forteo my COPD has disappeared,no more steroids,or antibiotics. Thanks to my Doctor for a new life • Sarah February 26, 2015, 12:42 pm please tell me more! 36. bonnie wegener November 27, 2014, 12:08 am Send study information on how many people were in the study & how mow many people developed cancer • Fred April 21, 2015, 5:02 pm You won’t see that from this site as it is designed to scare you away from a drug. What this site fails to convey is that the rats studied have open epiphysis which allow the bones to grow unopposed and that humans have closed epiphysis. The site also fails to mention how high the dose to the rats was…like 60 times the human equivalent. You should all ask as many questions of this site as you do your doctor. No drug is right for everyone and no website driving you away from a specific medicine is without agenda. 37. Hannah November 9, 2014, 10:43 am My mom has taken Forteo for 18 months now and plans to finish to the two year limit. She has not had any major side effects and is wondering if there’s a way to take a maintenance dose past the 2 years. Her reason for choosing to take Forteo in spite of the risks was very well researched as she is an CRNA/RN. She opted to give up her other medications and their potential side effects for this one because she has had 3 spontaneous fractures of vertebrae and ribs from simply bending over. She is a care taker for my father and is a very active 77 year old. She has not had any further fractures and feels she would rather take the medicine than live Life as an invalid. The incidence of sarcoma is rare and everyone reacts to medicine differently. While this may not be for everyone, It is working well for her. I’m thankful she’s been able to retain her quality of life and has not had to slow down or live in fear of daily life. • headdr23 November 10, 2014, 10:45 pm I have been taking forteo for over a year and a half and have yet to ever experience a side effect. I am not taking the drug for complete osteoporosis reasons, but rather due to a bone disease called hypophasphatasia – causes me to have numerous bone fractures (you can look it up if interested but to long & detailed to get into). There is no cure for my disease and this has been a Godsend in my experience. I got no new fractures while taking the drug. I realize all medications come with risks but IMO its been worth it. • Ron April 19, 2015, 9:44 pm headdr23, I am so glad to see your post. I am 56 and have recently been diagnosed with hypophasphatasia. I am currently trying to heal stress fractures in my left foot and an acute fracture of the 4th metatarsal in my right foot. They don’t seem to be healing and the offer for using forteo may come soon. I would love to know more about your experience. Please let me know if you would care to share. I won’t take up too much of your time. Gratefully, Ron 38. Barbara October 4, 2014, 3:55 pm I started taking Forteo. The first week I felt fine. Then I starting getting very constipated. Then it went to extreme tiredness, muscle weakness, a fuzzy brain. I was having trouble walking, and trying to cook dinner was a joke. I felt I had to hang on to things to keep upright. I was sleeping too much. Driving was hard, as I was afraid that I would fall asleep. I was actually afraid that I would go to sleep and not wake up. As soon as I stopped taking the drug I was back to myself! 39. Angela R. September 20, 2014, 5:19 am CAUTION!!! MY MOTHER TOOK FORTEO FOR 2 MONTHS AND NOW HAS A HUGE, AGGRESSIVE SARCOMA ON HER THIGH, RIGHT WHERE SHE INJECTED FORTEO. She has never been ill, is 72, 120 pounds at 5’2″, and had NONE of the supposed RISK FACTORS. Her doctor did not tell her of this risk. PLEASE DO NOT TAKE FORTEO!!! • Helen November 21, 2014, 4:34 pm OK. This drug MAY cause OSTEO sarcoma. The Forteo probably has NOTHING to do with a sarcoma..big difference. She may coincidentally have a soft tissue tumor that had NOTHING to do with the injections. I’ve been in medicine long enough to understand cause and effect. It used to be whenever a woman (or man) developed breast cancer they would link it back to a bruise, hitting your breast on a corner of a table..etc. With enough clinical research we realized that the contusion had NOTHING to do with breast cancer. Read the clinical findings. Not anecdotal experiences. 40. Hadar September 8, 2014, 1:41 pm My mother is a 54 year old woman with osteoporosis. After breaking her hip bone earlier this year, she was advised by her doctor to inject Forteo once a day for the next 18 months. Today was her first injection, and the side effects she described were.. bizarre.. nowhere to be found on the pamphlet that came with the drug (and of course her doctor was too busy to take her calls) so I’m asking you guys: did any of you experience severe nerve pain after taking Forteo? She described it as starting from her lowest vertebrae and advancing through her spine until her mid-back, starting approx. 15 minutes after the injection, and weakening until disappearing about an hour later. She has injected herself many times before so she probably did not just hit a nerve while giving herself the medication. Anyone? Thanks a lot • Linda Q October 20, 2015, 3:34 pm Hadar, it’s really unlikely that forteo is causing the problem since it is hormonal and works very slowly and gradually, which is why you have to take it for so long to get the benefits. There’s a possibility that it might be due to a sensitivity to one of the inactive ingredients in the solution. I would suggest keep using it for awhile, see if this doesn’t just settle down by itself. Ask the doctor if reactions to the other ingredients could be the problem, if not, it may be psychological. 41. Jane E. August 23, 2014, 11:32 pm I have had several fractures in my spine. I was on Fosamax for 2 years and was getting progressively worse. My rheumatologist recommended Forteo. I just finished my two years of it on 8/21/14. I am scheduled to have my BMD test this Thursday. I will let you know if it helped me. I’m not sure if I had any side effects from Forteo or from something else. I had extra anxiety (I’m an agoraphobic so I’m anxious anyway). I would have days where I was tired (I’m also 68 so that could be part of that). I’ve had a few days of depression but nothing too bad. As I understand it, after your first year on Forteo a BMD will not give you an accurate reading of what it is really doing. It can be very misleading. I just broke my little toe less than two weeks ago and it is healing faster than I ever expected. My doctor told me they give Forteo to patients who have broken bones as it helps them heal faster. I have to think that’s what went on with my toe. The bone cancer scares me a bit. I’ve already had cancer once. But laying in a home waiting for a broken hip to heal scares me also. Best of luck to all of you with osteoporosis! • Lora February 17, 2015, 2:02 pm My doctor wanted me to take Foreto for two years because of osteopenia – not osteoporosis- in my left hip. (None in right hip or spine). I’d rather risk a fracture than a deadly form of cancer. • Vivian Goldschmidt, MA February 17, 2015, 2:53 pm I couldn’t agree more, Lora! • Fred April 28, 2015, 1:55 pm Vivian, how many osteosarcoma a have been associated with this drug in the decade or so it has been in the market? Why don’t you share that information with this websites audience. • Renee B November 4, 2014, 6:52 pm Jane E. – any update? How was your BMD testing? Do you think the treatment was worth it? Thanks 42. Andrew Barovick August 1, 2014, 12:11 pm There have been a few instances in which Forteo caused Guillain-Barre Syndrome (GBS), or so the patients believe. Anyone know anything about this? • Allen May 31, 2015, 4:13 pm In 2006 and 2007 I had daily Forteo injection. Halfway through the treatment period I had most of my teeth removed due to necrosis in my jawbone. The day of my final injection I had numbness in all fingertips. The next day I was diagnosed with Guillain-Barre Syndrome, paralyzed from feet to face. Can’t say for sure Forteo caused GBS but I believe it did cause the jawbone necrosis. I wish I had not been so quick to accept the Forteo treatment. • maa November 14, 2014, 9:32 am I had Guillain Barré syndrome shortly after starting Forteo this year? Have you heard anything? 43. Anonymous May 14, 2014, 8:47 pm I was on Forteo for 4 and a half months in 2013. From start to finish, it was a nightmare. Severe asthenia (fatigue) from day one, sleeping in excess of 12 hours per night. Brain fog developed from the onset. Affected my memory, could not work while taking the drug. After 2.5 months, Forteo triggered onset of thrush and candida, followed by pelvic rash and burning that spread to welts and lesions on pelvic floor. It has taken nearly 6 months for the rash to subside. I stopped the drug for a couple of weeks while fighting the thrush and candida but doctor recommended trying to continue as long as I could. Eventually I advised my endocrinologist that the side effects were so severe that my quality of life had been impacted. One of the most disconcerting aspects of this situation, is that the endocrinologist did not have any idea how to treat the side effects, and 2 of the 3 OB/GYNs I saw were also ignorant of the drug or its effects. I am still suffering from extreme fatigue and a severely weakened immune system as a result of this drug. Would not recommend it to anyone. While some individuals appear to be tolerant of the drug, others are clearly not. My brain fog has been clearing up as I put myself on a full body homeopathic detox program. I am now following a mediteranean diet, with Vitamin D, K2, and dietary calcium intake. I wound up with calcium deposits in soft tissue as a result of Forteo and it is not clear when this will clear up. • Gigi November 3, 2014, 4:37 pm I am 60 years old and started Forteo in March 2014. I thought everything was going well, until I began to get weak and couldn’t cross the room without stopping to catch my breath. My weakness has increased to the point that showering has become tricky. I have dizziness, feel faint, very week, have yeast infections on my skin that won’t clear up, my hands are shaking so bad that I can hardly sign my name. I stopped taking Forteo about 10 days ago (it is now Nov. 3rd) and have seen no improvement in my health. My doctor has run a number of tests on me and finally is sending me to a cardiologist because some of my symptoms mimic heart failure. I’m at the point that I almost hope it is heart failure, because that can be treated and I have the possibility to return to my much more active self. This is horrible and I know in my heart that this is caused by the Forteo. Please don’t take Forteo. It can ruin your life. • Vivian Goldschmidt, MA November 4, 2014, 8:04 am Gigi, I am truly sorry to hear about your experience. I want to encourage you, though – your body was made for health, and if you want to get the Forteo out of your system faster, you might consider doing a cleanse like OsteoCleanse to give your recovery a “jump start.” Hang in there, and nurture your body with plenty of pure water, healthy Foundation Foods, and whatever exercise you’re comfortable with! 44. Lynn May 12, 2014, 6:07 pm I am 63, began taking Forteo in Jan. 2013. I’ve had no side effects. I broke a finger in March 2013 and it healed faster after surgery than was predicted due to the Forteo. My doctor sees me every 6 months for bloodwork. I take calcium and Vitamin D-will have bone density test in Dec 2014. I did not want to take it in the beginning but my doctor said that my risk was very high, as I had already had a broken wrist and small break in my lower back. No one mentioned that the manufacturer will call periodically to monitor all side effects. I signed up for that the first year. They are VERY thorough in helping the patient. Medicine does have a lot of unknowns. That is why they call it “practicing” medicine. Everyone is different, what works for one will not work for another. Deciding if the risks are worth it is what is important. When my doctor told me that someone else would have to take care of my handicapped daughter for 6 months if I broke a hip made me decide to take the injections. Sometimes the circumstances in our lives make the decision for us. Please keep in mind that ALL Medications we take can have terrible side effects for some people. Thanks to all who shared their stories. I wish you all the best because it’s not fun making these decisions! • Vivian Goldschmidt, MA May 13, 2014, 11:49 am I am glad you’re doing your research, Lynn, and are comfortable with your health decisions. • Terry September 5, 2015, 11:44 pm I have purchased your book Vivian. I will say, it was encouraging. However, I have followed the program and my bones have become so much worse. I am sitting here reading all the good and bad about Forteo. I was told by two different physicians to take Forteo. I told them about the horrible things I have heard from your book. They feel that I need to do something since I have severe scoliosis and cannot have surgery because the past two years I have been reading all the negative reviews and became too frightened to take the drug. I am now in tears not knowing what to do. I just know if I don’t take something soon, I am slowly getting worse and I cannnot have any surgery with my condition as it is. I wish everyone the best and if you have had any luck with bone growth, please let us know what you took and if it worked at all. I really need some good advice since surgery is needed in the near future, but not without a strong foundation for the screws to adhere to. Thanks for reading and any help you can offer. Terry 45. jane broderick February 25, 2014, 2:13 pm My STUPID Dr, gave me Forteo for 2 years. Each and every day after injection I hung over the toilet , like a Chemo patient. My first injection put me in the ER with a very rapid heart rate, vomiting, and horrible sick feeling, sweating, etc. He told me it was ALL in my head ? Really ? I would love to sue him!!!!! For what he put me through. After I finished 2 years of Forteo, the dexa scan was done, it did NOT help at all ! These drug companies are so crooked and what they put patients through ! Now years later, I am suffering with all this bone/muscle pain, autoimmune diseases, and I blame FORTEO ! think twice before you even think about using this HORRIFIC drug !! • Vivian Goldschmidt, MA April 17, 2014, 8:36 am I am so sorry you had that experience, Jane! I am glad that you now know you do not have to take any drug that you do not want to. It’s your health and your body – your doctor is not the one who suffers any side effects…YOU do! Now that you’re off Forteo, your body can heal and your bones can build themselves naturally. I am glad you found this Save Our Bones community! • Terry September 5, 2015, 11:49 pm Why are you telling people that bones can heal naturally? Vivian please share advice on dexa scans and information to really help people. I notice you only answer the posts when it concerns the bad experience people have had with the drugs. If there are good experiences out there, you don’t comment. I am not saying I am for the drugs, but I think since I have purchased your plan and it didn’t work for me, I believe we should hear other options as well and comment on them. Thanks, Terry 46. Mike February 2, 2014, 7:08 pm Forteo is a good drug. Using now for nonunion. The rats in cancer study were poor models for humans and intensive tracking of humans has turned up nothing. Same with monkey tests. A little knowledge is a dangerous thing. Listen to your doctors, not bloggers. • Simone July 13, 2015, 7:45 pm I have a non union of my tibia. I’ve been dealing with this since 2012. I just had a rod put into my leg and the surgeon wants me to take 3 months of Forteo. I’m a bit concerned about the side effects. How are you feeling now? Any problems since you stopped taking it? Thanks for any info you could provide. • Mike March 10, 2014, 12:24 am Update: Have been taking Forteo for six weeks. A hip fracture caused by a bicycle crash was only 30 percent healed after four months. The hip was painful, particularly with full load bearing (standing on one keg). Not only can I stand on the injured leg w/o pain, I spent the weekend running around theme parks. Limp is gone. This drug has incredible potential for bone nonunion and speeding up fracture healing. • Terry September 5, 2015, 11:51 pm Thanks Mike for the feedback. Did you have any bad experiences with the drug Forteo. I am worried about taking it, due to the side effects. • jane broderick February 25, 2014, 2:15 pm Mike, Are you kidding ? Some Doctors do not know the first thing about Drugs, the PHARMACIST’s are the ones to listen to ! 47. Cindy January 2, 2014, 9:18 pm Comment: 2 Jan 2014 – My Doctor put me on Forteo in January 2004 after much consideration. I did the injections for 18 months. The Doctor told me I could never take it again after that, even though it was recommended for two years. It was a desperate attempt to put some of my bone mass back. My Dexxa scans showed I could expect a broken bone anytime. I gained about 30% of my bone mass back!! I do continue to take calcium. I did not experience any side effects. My recent Dexxa scan Sept 2013 shows my bone mass has still remained stable since 2005. I did not know about the bone cancer aspect of the drug when I was taking it. I chose to take it for two reasons. 1. My Mother suffered with severe osteoporosis for 30 years before passing. I was my Mother’s caretaker for 20 of those years. 2. In 2002 I became my husband’s caretaker. I offer no answers for others. I do have a question. Does Forteo keep working long years after finishing injections? It seems it might considering what others have said. What have others experienced? Thanks for letting me have my say. • Vivian Goldschmidt, MA January 4, 2014, 8:14 am Hi Cindy, Great news about getting 30% of your bone mass back! I do understand your concerns about the Forteo staying in your system after finishing the injections. According to a comprehensive data sheet on Forteo, the resorption and elimination of teriparatide (Forteo) are quite fast (which is why the injections are daily), and it is not likely to accumulate in bone or other tissue. You can read the entire data sheet at this link: http://www.medsafe.govt.nz/profs/datasheet/f/forteoinj.pdf 48. Gayna Ryan December 3, 2013, 1:02 am My mother has been taking Forteo app. 3 months. Has anyone had a memory problem from this drug? It has come on very fast and severe and we are trying to figure out why this is happening. She was fine before the drug and I don’t know if the drug is the problem..stumped • Sam December 12, 2013, 2:49 pm Girl friends 90 year old mom took it for a month and all sorts of mental problems ensued. Taken off Forteo at 1 month ( 1 month ago ) she IS doing better. The doc said it was the excess calcium – ( and I wonder why and what do you expect from a 90 year old? Why why subject someone at such an advanced age to all the drama of Forteo? And agreed, why trade potential bone fractures for potential cancer? As wee, All the data shows people at 90 have the largest percentage of reactions by any age group – maybe the doctors get a kick back? 49. Mary November 26, 2013, 12:06 am My mother took Forteo for two years. She has now been off of it for about 6 months. What we have discovered in that time is that it not only lays down new bone it also will form bone spurs, and kidney stones. She is 85 years old and never had any problem with kidney stones. We have no history of kidney stones in the family. She was recently admitted to the hospital and discovered a 6-7 mm kidney stone. Most kidney stones are between 2-3 mm. She has a boulder which she will need surgery to get rid of. We can only attribute the stone to Forteo. Our doctor never discussed this possibility with us. If we would have known this side effect we would have done more research on this drug. I am not sure that the “cure” was worth the side effect. 50. Charlaine November 21, 2013, 5:02 pm Hi, I à ma french canadian ( so excuse me if my english is not as well it shoud ne…). My doctor suggestion me to use forteo cause i have problem to control calcium in my blood. I do hypocalcemia. The thing is that i would use forteo longer than 2 years’s as recommended, it would be for the rest of my Life. I am very anxious cause the risk of cancer bones. Also, my mother as myeloma multiple, i Wonder if the risk would be stonger for me. If you have any answer just let me know ! 51. Helena October 28, 2013, 8:45 am I started Forteo a few weeks ago, I am a 35 year old female who is taking it post spinal fusion for a fractured vertebrae with spinal instability after an injury. I am taking Forteo to encourage bone growth for the fusion. I have mild osteopenia in my hips, as well as a rare genetic condition that effects my collagen. Essentially, in layman’s terms I make defective collagen and collagen is an important part of bone formation. I had a lumbar fracture, and during surgery my physician noted that that bone was slightly soft – common with my condition. My mother and I are both nurses and discussed the pros and cons of the medication before I started it, additionally I discussed it with a couple of my physicians. I made the decision to take Forteo. I will only be doing a short course of it, and considering the risks of not having a positive outcome of my fusion should I not form a solid fusion the benefits outweighed the risks. For me the injections are not a big deal, no different than a diabetic really. The needle is tiny, and painless. I can not speak to joint pain as my genetic condition causes widespread joint pain. I haven’t noticed any side effects outside of it making me sleepy the first few days I took it. Overall I am confident in my decision and I am thrilled that there is a medication that encourages bone growth given my current post surgical status, and risks of a poor fusion. 52. Patricia October 8, 2013, 2:47 pm This week I should be starting my third round of Forteo. I’ve been very tired since starting and have cramps in my legs off and on. I have had 2back surgeries 3yrs ago. I have back pain. Last week I started with horrible, horrible pains in my back. I need assistance in getting up from bed or chair. I think this grabbing severe pain is muscular. Never had it before. I stopped Forteo on Saturday. I’ll see my Dr. next week. Has anyone had this problem or other muscular problems? I don’t think I’ll be goin back on this drug. 53. Terri Leffler August 23, 2013, 1:30 pm I was just diagnosed with osteoporosis , what is the natural way of treatment ? 54. Mary Sheets July 29, 2013, 10:01 am I have been using Forteo for 3 months. The first month i experienced joint and muscle pain in the 3rd and 4th weeks. Since then I have not experiencied any pain outside my usual aches. I did have a dental implant done and my periodontist noted that bome had grown over the implant during the 4 month waiting period. I am taking Forteo because of previous bone lose in my jaw. I now have osteporosis in the neck of my hip that continued to progress with calcium and D use. I have never used bisphosphomates because of the bone loss in jaw. I am guilty of lack of regular exercise. When i do vigorous exercise i have a two day recovery time. I am 59 years old 5’4″ and 144 lbs. I do not have any other health problems except for skin cancer removals due to over exposure to the sun as a youth. I think I should be monitored more closely by my doctor while using this drug. 55. Sandra Hardy June 4, 2013, 6:24 pm I have been using Forteo for almost 2 years and my bones have gotten much worse. I want to stop the Forteo but my doctor won’t hear of it. Said I have to take it until mid September to get the full effects. Before taking it I had broken both collar bones, left worst and right hip. Since on Forteo I now have osteoporosis in my lower spine, right forearm and left thigh bone. This meds has only made it worse. On the Forteo site it says that if your bones worsen to stop taking it immediately. • Jim Evans August 25, 2013, 7:11 pm I broke my right hip at 43 years old. That’s when they discovered severe osteoporosis. I was on Fosamax for 12 years, when I broke left hip. I was taken off Fosamax, and put on Forteo. I’ve been on Forteo for 14 months. The bone density scan done two months ago showed that my T Score in my lumbar spine had dropped from minus 3.1 to minus 3.7 during that first year of Forteo, yet the doctor tells me to continue the injections…. • Darlene February 18, 2015, 2:25 pm In my opinion, you both should seek new physicians. Sounds like the doctors may be “bought” by the perks they are receiving by placing patients on forteo and other drugs for the “companies studies”. I have a friend who worked “the other side”, and he said doctors “win” cruises and other trips for pushing their new pills, thereby using you in the blind study. You are the only one blind to that fact. IF you are having any doubts about your doctors motive, seek care elsewhere asap!! Doctors are pretty easy to replace now-a-days. 56. Sandra Long April 25, 2013, 5:38 pm First and most importantly I would like for everyone making comment here to be assured that I believe in freedom of choice. Having said that, please let me share with you what has happened to my Mother since her doctor put her on Forteo. Although it is very expensive, she able to acquire this drug for free because of being on a fixed income. Anyway, since taking this drug she has had more fractures, aches and pains and now the doctor is telling her that her heart is of a concern. (Heart disease does not run in our family, that is, not until the doctors start prescribing pharmaceuticals.) Further, when she fell and broke her arm three years ago, she had been taking some other osteoporosis drug. Even though she was put on Forteo, her arm looks no different than the day she broke it. When she faithfully took Fosamax, I was taking her to the hospital every six months to a year for a procedure to put medication on the inside of her esophagus at the opening to her stomach. So, now y’all tell me . . . are these drugs worth all that? And now I ave read that this Forteo can cause bone cancer?? So, then isn’t Forteo an oxymoron? Will I take these drugs????? I think not! TY for letting me share. • tony hauptman April 20, 2014, 5:37 pm there is a big picture most people are missing, and that is that drug companies are big businness in the u.s. more than anywhere. the u.s. is #1 in the world in spending in health care, yet is like #20 in actual care. so that tells you the u.s. is doing something wrong. You are lucky to find a SMART doctor who actually gives a damm about you and not his income, those are few and far between. 57. Mary April 21, 2013, 11:23 pm Should I spend the  (which I don’t have) on it? My mom had amazing results fro this med.. I am going down the same road and DO NOT want to suffer as she did before she received Forteo – but I don’t have the requisite 10,000.00. I am otherwise a young 54 year old. My daughter is 10 years old. What should I do? • J December 15, 2013, 9:25 pm Hi. To respond to your question, please note that all pharmaceutical companies offer financial assistance for their expensive medications. All you have to do is ASK. If you qualify, they could pay up to 100% of your treatment as long as you need it. Try, worth a shot. Most people qualify for at least 50% coverage. • John April 25, 2013, 12:10 pm If you have severe osteoporosis, you need to look at your risk factors for vertebral fracture or hip fracture. These both come with extreme costs associated with surgical repair and after care. The cost of Forteo is a small price to pay considering the fractures it prevents. 58. linda sickora April 17, 2013, 1:28 pm i am to begin forteo treatments on friday. my concern is that i have both myasthenia gravis and asthma. how will this affect me or should i not even think of starting forteo injections? • Vivian Goldschmidt, MA April 17, 2013, 7:23 pm Linda, your health is in your hands – the decision is up to you! Armed with information from this site, you are free to choose whatever you think is best for your body. The important thing to remember is that you do not have to take Forteo – you do have a choice! 59. mary ann March 16, 2013, 10:22 pm i am 80, been on forteo for 7 months. i have alot of aches and pains but i had them before forteo. i will continue forteo and hope that no more pains occur. if they do i will deal with it. 60. Pilar March 7, 2013, 7:33 pm Well, I am a 58 year old, I was diagnosed with osteoporosis back in 2002, my primary doctor recomended Foxamas, took it 2 years, the disease didn’t improved or got worse, then I think took actonel for another 2 years, no results, not getting better or getting worse. Then in 2009 I was offered Forteo. Something very important my primary and I we had a very trusthful relationship. She laid all the side effects of forteo but also maybe the benefits. So we weight in was was the best route for me, and we choose to go for Forteo. I was very pro-active so I find out that you have to have a thyroid test done, and a parathyroid which the results shown me that it was low with the hormones.My treatment went by, my result for the oesteoporosis shown an improvement in 2011 when I finished it. I didn’t have any side effect knock on wood, and I really would like to go back with Forteo, the reason being is that if you have any side effects you can stop the treatment right there. There is other treatments that they give you one injection per year and what happens if really you get sick with it? Since the other medication didn’work on me I really would like to find a way to go back with forteo. I haven’t been taking forteo almost for 2 years know and the results of my last test show that again the disease is not getting worst. 61. Cecile February 20, 2013, 12:57 pm My good friend, Anne, has been taking Forteo for less than a month. She is only 50 but just two days ago she suffered an aneurism and nearly died!!! She has never had anything like high blood pressure, etal. yet her bpressure went up to 170 over 90. Anne is a very slight, underweight woman. My immediate thought was this had something to do with Forteo. Anybody know anything on this? Thanks • Dee Allison October 9, 2014, 5:07 pm Re BP: this med can cause swift bp changes with change in position. I am always the canary in the coal mine, and have had almost every side effect. I have autoimmune disease and chmical sensitivities. I fear this drug is not for me. To top off the headaches, the entire days of severe nausea, the diarrhea…80 lbs now, yesterday my bp began spiking…158/?? Can’t recall the bottom no….along w terrible headache. My cardio tells me that if my bp is over 100 Systolic at bedtime, am to take extra half of bp med. the last time I was 158/ I was in an ambulance, going to rule out MI. (hrt attack).good luck, all, and thanks. 62. Vivian Goldschmidt, MA February 5, 2013, 4:24 pm Remember, density tests do not measure tensile strength or flexibility. That’s more important in preventing fractures than high density scores. Mainstream medicine focuses so much on density because it needs numbers (i.e. fixed parameters) to prescribe drugs, so most doctors follow the same protocol. While density is an indicator of bone metabolism, the main focus of bone health is simply to prevent fractures, and less dense but healthy and renewed bones have better tensile strength than thicker, denser, older bones. I explain this in detail in the Save Our Bones program! 63. John H. Douglas January 19, 2013, 5:01 pm Generally speaking Forteo is supposed to be taken for 18m months to two years. I took itg for ten months and got curious as to what effect it was having on bone dxdensity.i read and was told that an improvewment of 1 to 2% is expecteed after two years.Whdn i asked for a bone density test after 10 months i wsaS ALMOSYT LAUGHED AT..AFTER all IT TAKES two years to even see the slightest improvement,AND MEDICAREwill not pay for a test done in less than two years because the Forteo would not have had a chance to work in that short a period of time. eI told them i would pay for the test myself and insisted on taking it. I took he test and found that bone density had improved not one or two% but 22%!!!!!!!i went from severe Osteoporosis to Osteopena. Granted i exercised daily and Drank and ate DAIRY PRODUCTS but 22% in 8 MONTHS!!! • Jim October 1, 2013, 3:42 pm I am 70 year old male and my endo doc wants me to start with Forteo in November. I have severe ostop. in my hip and spine….no other medical problems so far…… Your comment almost seems “to good to be true.” I have been excersising and taking loads of vit. and mineral suppliments and eating dairy for the first time in 30 years since i was told I have osteop 9 months ago. All side and lower back pains are gone now (two rib bones were broken). My vit D and parathyroid numbers are all in the normal range now. I wonder if I should take the drug at all. {Please comment…… • timi fl July 1, 2013, 6:19 pm hi hi so i have been reading most comments about forteo and does any body have the bone creaking ? I feel and i hear sounds like my bones cracking from all over my body. tips of toes to up and out to fingers and up to the shoulders and neck with a few aches in my skull. these are all random. but sometimes intense enough to wake me. i have very tired spells, and then i can go a couple days with no problems what so ever. my bone scan was 3.4 or 4.3 approx. and it must come up to qualify for lung transplant. i lost most of my bone density in one year probably due to the prednizone for the lung problems my lungs were ok in jan 12 and oct 12 to much osteopourus to qualify I thought forteo was the only bone building drug. I thought i was told that fosomax and all the others that we have all been on were medications to prevent bone loss. but could not build bone once it was lost. i eat lots of green vegetables cheese beef chicken water I would like to hear what other people’s experiences have been Thanks and have a Great Day. Timi • Dee September 27, 2013, 1:17 am Hi Timi, I’ve been on Forteo for two months now and also experience the bone creaking and cracking. When I first start with a fresh batch at the beginning of each month I experience 3days of severe headaches and fatigue and joint stiffness. The rest of the month tends to fluctuate with days of normality and days of fatigue. My kidneys seem to be working overtime and I have to urinate frequently. This can vary with the odd day being so extreme tha I don’t know where all the water is coming from and I feel really dehydrated. I’ve partially solved that problem by mixing coconut juice with the water I drink. I live a very healthy diet with lots of fresh vegetables and fish, minimized the sugar and other toxic substances out of my diet and I think it’s this that’s helping me. Foreo is my last hope since nothing else has helped so I’m determined to continue. • Dee August 17, 2014, 4:06 am It’s now 12months since I started with Forteo. I found I had to stop the calcium supplements to reduce the frequency problem. My dexa scan showed an improvement in my spine from -3.7 to -3.1 and slightly less improvement in the hip. However my wrist has worsened to -4. Will continue for final 6 months but a bit disappointed by these results, was hoping for more. It’s the only osteo medication thatI’ve been able to tolerate. • cathy November 19, 2014, 11:02 am 6 months on and feel all the same effects, tired!!! headaches, creaking am praying this works, age 61, legs hurt every day, how did your final come out? please let me know 64. marymyers January 2, 2013, 2:40 am It has been 1 year since I had forteo…for 2 years I had the shots every day..I had no bad reaction during that time and my bone scan showed a 22 percent improvement .I had had no luck with the medications I had taken for several years previous..so I am very grateful for my Dr prescribing forteo Mary 65. Dale December 18, 2012, 9:59 am I used Forteo for 2 years. My T score for my hips went from -3.4 to -2.8 so the drug seemed to increase bone during that time. Because of a problem with reflux— I cannot take any other type of osteoporosis medication orally and I did not want an infusion drug. Forteo was my only choice. 66. Bettyanne December 17, 2012, 5:30 pm OK, I’ve been on Actonel for as long as I’m allowed (4.5 years), Reclast for 2 years and Forteo for 2 years. According to my doctor the only two things left for me to go on are Evista or Prolia because she will not recommend I return to any of the others I’ve tried. Since my T scores have continued to look bad (now – 3.4), what are my other options? Can I just eat right, take calcium, etc. without fear of further deterioration? 67. Kathy December 17, 2012, 9:59 am I have been taking Forteo for 6 weeks. Side effects have started such as muscle cramping and numbness around my mouth. This is such a highly recommended drug for the severe osteoporosis I have, but these side effects scare me. I am also a cancer survivor and the warnings about cancer this drug can cause is very concerning to me. Has anyone else had these side effects? • Donna February 8, 2013, 9:39 am I too am a cancer survivor, and have had the same side effects as you…muscle cramps, pain behind knees and knee joints. I also got extemely itchy after taking Forteo after 6 weeks. By 2 months I was so itchy I couldn’t even sleep. Pharmacist and dr, said to stop for a few day…the itchy part stopped alost immediately, but the joint pain lingered. So I stopped for 2 months! Now I face the delemia…do I take it again and face joint pain, itchy nights and days, and possibly cancer? Or do I give it the old “college try” just one more time? My numbers were also -3.4 Any input would be appreciated • chana December 30, 2012, 9:38 pm Decided against Forteo because of “black box” and went on Prolia. I hardly felt the pinprick in my arm and have had no negative reaction. Continuing to drink 3 glasses of milk per day. FYI • John January 8, 2013, 5:40 pm I should also note that the black box warning refers to rats, which have VERY different bones than humans, and even the rats had no problems when given normal human doses…read the warning…osteosarcoma was dependant on dose and duration…not seen in rats until 3 to 60 TIMES the normal human dose….suprised osteosarcoma is the only thing they got at those levels…lastly, rats were injected with forteo which is a human hormone. • BadToTheBone April 14, 2013, 8:50 pm This is a great point and often missed in the scaremongering. What is even more problematic is that rat bones grow over the course of their life while humans do not. The high levels of Forteo given to them resulted in a small percentage of rats getting cancer in only those new growth areas at the ends of the rat’s bones. I was on Forteo for a year and had 12% increase in bone density but it stopped working after that. • John January 8, 2013, 5:26 pm Prolia works by turning off a natural process of the body…bone turnover…long term effects of this can include additional fractures. BMD or bone hardness is only one contributing factor to overall bone strength…the most important factor is bone quality. Prolia can be a good option only after bone quality is addressed. 68. Elizabeth December 13, 2012, 1:12 pm I have just completed 2 years on FORTEO, and my bone scan reveals no improvement in my bone density. Having paid approx. 25,000 of my own money on the understanding from the doctor that my body would receive a “real boost” from taking this expensive medication, I feel very annoyed and disappointed. Annoyed because I would never have agreed to taking FORTEO on the basis that it ‘might work’. The story line given to me 2 years ago by the doctor, contradicts in every respect the explanation offered this week after my bone density results. I was told that FORTEO does not in fact have an effect on bone density, but rather strengthens the bone itself. However, there is absolutely no evidence to support such a claim. As of this week, I am told by the same doctor, that there is no test to the effectiveness of this very expensive medication. It is all guess work – very expensive guess work. • John January 8, 2013, 5:09 pm Forteo forms new bone as collagen… If your looking for a BMD increase, you must have proper vit-D levels and take supplemental calcium. 69. Katie Lefebvre December 12, 2012, 2:00 pm My Dr. has suggested that I start Forteo & I’m having a difficult time in deciding. I have had an upper arm fracture and there isn’t any change with the aclasta injections that I’ve had two times. Help ! • John January 8, 2013, 5:20 pm Understand that all osteoporsis drugs other than Forteo, have a warning stating that they can actually inhibit or slow fracture healing…just FYI. 70. Jason Welisch December 9, 2012, 2:28 pm I am looking for testimonials from people who have been prescribed teriparatide forteo for osteoporosis and knee bone degeneration. • connie January 18, 2013, 6:59 pm I was on Forteo 2002-2004 (2 years which is the maximum). My t-score did improve while I was on the injections. Prior to that I hadn’t had improvement with any other drugs. I didn’t have any side effects at the time. However, in 2008 I developed Hypothyroidism. I have no family history of this, and I don’t know if it could be related to the forteo or not…. Now I have a large mass in my thyroid. I just had an ultrasound today so I don’t even have the Doctor report yet. Again, I don’t know if it could be a side effect or not. 71. Barry Dorning December 5, 2012, 5:50 am So true! Just love that humour! 72. Joyce November 28, 2012, 8:36 pm I turned 70 this year. I had been on fosamax for 15+ years. My Gyn said my bones would be ok with this. I feel I should not have taken it so long. I was active (did Zumba) and tripped over my dog August 4 and fractured my hip. Bad break with the ball being fractured. The Dr put 3 screws in since it was in place. He wanted me to do Forteo because it helped bone to heal. I am on my 3rd round of shots and I am quitting. i have had so much pain I find it difficult to walk. I want to get my life back to normal and I feel Forteo bringing me down. Before this I was active and now I hurt all over. By the way my bone density of my hips looked good and showed osetopenia in my back. 73. Harlee Jenkins November 21, 2012, 11:38 am I’m 59 yrs young, hx of osteoporosis,with 3yrs on Fosamax and continued loss of bone density. I was put on Forteo last year and I have had NO…as in ZERO side effects or complications from this “horrible secret agent” med! I’ve not had another Dexa scan yet, because of$$, but I have had 5 major falls in the past 6mos (cause by my loss of sight and “ghosting” vision in my sighted eye)…the last 2 falls in the past week…one off a step ladder down 6 stairs onto a concrete porch. NO FRACTURES TO REPORT!, so the Forteo must be doing somehing positive for me! I ABSOLUTELY WILL CONTINUE TAKING THE FORTEO FOR NOTHER FULL YEAR! I am healthy, happy and walk daily for 10K steps, and watch a toddler and a newborn 4 days/week. I can only share MY outcome, but after lots of research, and MANY prior fractures throughout my active life (10+), I continue as a happy Forteo user!

• Carol July 25, 2014, 3:14 am

I am 71 with severs osteoporosis. I have been on Forteo for three and a half months. Last week I tripped and fell on my back…..and nothing was broken!! I am very pleased about this.

• Marlin October 19, 2014, 10:23 pm

I am 55. On Sept 2013 Dr told me I have osteoporosis an a really high risk of fracture. my to score is -3.4 I refused to take medication since I am afraid of the side effects, I have been taking calico AlgaeCal, strontium and walking. I was helping my daughter in her apt and fell down 3 times, also I felt down in my bath and nothing breake. I never have a breake bone in my life. And I do no take medicaments. Now my Dr told me that I need to take forteo for the Hight risk since I. Did no taking other drugs. I am really undicided if I take it or not. The only thing I am doing is walking and taking my calcium, eating better, everything that improve bones is the only thing I ate, I neend to wait till Sept 2015 for my next Dexa. I would let you all know if with exercise and calcium and eating the right stuff is enough, if not I will start forteo. But a least I want to take the risk of getting better without the risk of getting cancer or other health problems due to the medicaments. I am really scare, but at the same time say to my self, my mother have osteoporosis felt down many times and never fracture a bone why it should happen to me? It is not God how will know what happen. No the doctors?

74. Faye November 15, 2012, 8:42 pm

Four years ago I began FORTEO injections. After a month my body begain to hurt all over, then came the upset stomach, after 6 months I carried a paper bag all the time because I gagged so bad. AT Seven months I quit. I made about 5 calls to Lilly at this time. All they did was ask me all kinds of questions, each time the same questions. I could not get any answers from them. Before starting forteo my kidneys were fine, 3 months after I stopped I still had upset stomach and passed out 3 times. Had doctor do enascope and blood work. My HGB was 9.6 and other blood work showed Kidney Failure. Since, I have go for injections, every 4 – 6 weeks to keep my blood count up to 11. IS THERE ANY ONE ELSE OUT THERE THAT MAY HAVE GOTTEN KIDNEY DISEASE TOO FROM FORTEO ???? PS my bone density never changed in 7 months.

• John January 8, 2013, 5:30 pm

The half life of Forteo is less than an hour. Any lasting nausea is usually caused by the anxiety of injecting something into your body. Understand that forteo is biologically identical to the first 34 amino acids of the PTH your body produces naturally.

• Carry November 23, 2014, 2:12 pm

John what is your experience with Forteo? Do you prescribe it?

75. Dennis October 26, 2012, 8:47 am

What are your thought about Magnesium Infusion™ is a ‘Pharmaceutical Grade’ Magnesium Chloride Hexahydrate derived using a critical extraction method from Dead Sea Minerals
This is a spray that you spray your skin with to improve your bone health they claim that magnesium is need to move calcium from tissue to your bones. This spray is found at Nature City Products

NatureCity

• chanapollack January 30, 2013, 2:10 pm

This sounds like witch doctor medicine–

• Lisa April 25, 2013, 6:22 pm

Witch Doctor medicine? How absurd! The magnesium works! Do your research.
You think it makes sense to fix a mineral or vitamin deficiency with a drug instead of with vitimins and minerals, which all work together inside your body to give back what it lost, causing the condition in the first place? That’s insane.

76. Nicole Jean October 8, 2012, 12:13 pm

What is the best alternative to Forteau? I can’t spend another winter afraid I will slip, fall, and end up with several broken bones. The doc keeps pushing the Forteau. I would like an option, something to compare it to.

• Angela May 28, 2013, 2:41 pm

My mother who has broken her hip. Now has broken her clavicle and ribs. The doctor wants her to take Forteo. She also has Croans diesease

• Wanda Drake January 10, 2013, 1:29 am

Every one take my advise don’t ever take Forteo i took it 1 year now it has been 3 years. July 2012 i got 1 fracture in my right foot and my lower back.In September 2012 both feet started hurting at the same time.October the MRI showed 10 fractures in my right foot the fracture in July did not heal my left foot i had 8 fractures in it.I had 6 fractures in my lower spine,memory loss and weight loss.I can’t walk 5 feet without more fractures.I do have osteoporosis after the sever pain i have had i will never take anything for it again.

• Pat Skipper November 14, 2012, 9:55 pm

I have been on forteo for about 8 weeks now and my pains are getting worse each day. So much that tomorrow at my GP’s office I am going to tell him that I am coming off this terrible drug and not going to see my specialist anymore. I have severe bone loss but at 68 I would rather risk a fracture then continue taking this drug, maybe it would be worth it if I were much younger, but I promise you the pain is so bad and I have enough to deal with pain due to bone spurs in my neck and surgeries in my neck and back…Just saying it is not worth it to me as of tomorrow I hope to stop destroying my body with Forteo….

77. Harold Kinney September 29, 2012, 8:39 pm

Are these adverse events being reported? Your doctor should contact the Lilly Pharmacovigilance Department at 1-800-Lilly-RX (800-545-5979).

78. Steven Bidelman September 28, 2012, 6:15 pm

I have been to the Save Our Bones site before. On behalf of my wife, whom is 59 years old, I need to tell this story. Please be patient.

Prologue:

She has had about everything imaginable happen to her during the 12+ years we have been happily married. She lost her spleen due due to a complication of surgery in 2003, she suffered loss of vision due to Optical neuropathy in 2001. In 2010 was diagnosed with pancreatic cancer. Thankfully she survived all the horrible chemo, and radiation, and underwent a 7.5 hour surgery, in 2011, where 80% of her pancreas was removed, along with the remnants of the cancer. She is cancer free. But was also diagnosed sometime in 2010, with severe osteoporosis.

1st she was put on Fosamax, which caused her to neck to hurt and indigestion. The Dr. said not to take it because of the reaction. Whatever other alternatives there were, she could not do, due to one or another contradictions with other health problems or conflicting medications. Which brought her to the Forteo choice. We were even given a grant for the $2000 worth of meds still in our fridge. The truth: Wednesday Sept 26th, 2012 in a instructor led classroom, she, along with others administered their first shots. The nurse/instructor told them that if they were going to have an adverse reaction, they would know in 10 minutes or so. After 15 mins, everyone left, apparently nobody had problems. HOWEVER, after about 5 minutes more when Maggie (my wife) went downstairs to wait for her ride, she was overcome by what she can only describe as the back of her head wanted to explode, this coming in waves , like birth contractions. Followed by the same intense and unbearable pain, in her calves. Luckily, this site is located near both our local hospital, and a walk-in clinic. She got the nurse within 5 minutes and went to the clinic. The doctor she recants, sort of took this in stride and he looked up some info on his iPad, and maintained that it was indeed a side effect. DUH….. I got the call at work after she went home. The intense pain waves in her head and calves subsided. But she still had a headache. She described it as the pain you have after a migraine (yes she takes meds for those too). That was yesterday. Today she awoke early in the am, headache just as it was yesterday. I took her to our GP and although he is not an expert, and obviously knows the injection was the cause. He wants to know why or how, himself. He believes that the injection caused a metabolic imbalance. Hence the reason he sent her to the lab, for a blood draw, to check on calcium, magnesium, and I can’t remember the third component. All in the hopes of finding what went wrong. We’ll know the results Monday or Tuesday. Anyone wanting to know know more about this, you will be able to email me directly. Epilogue: Maggie is 59. Takes several different Rx’s. Oh, by the way, one of the drugs that it said to avoid taking it with, is Advair. Yes she takes that. Whether it’s found out that it was a drug interaction, or that the shot caused an unnatural or unstable metabolic reaction, that trigged the very horrible adverse reaction, she won’t take any more. I would hate to see almost$2k worth of Forteo be destroyed.

Sincerely,
Steve (bidelmanst at yahoo dot com)

• Jane July 20, 2014, 4:13 pm

How was Forteo prescribed when the company states that nobody who has received radiotherapy should get this drug. I ask because I have had radiotherapy and have been refused Forteo.

• Randa October 17, 2013, 2:56 am

Hello,

My name is Randa, I suffer from a very severe osteoporosis. This morning was my very first injection and I had exactly the same wavy pain in my neck, head, lower back. Same as contractions that were leaving me with such a shortness of breathing. My head was exploding. Was rushed in ambulance to hospital. The symptoms occurred after exactly 15 minutes of the injection, the teaching nurse was still at my place. I’m back home now with a terrible migraine but reading and googling about it, found your testimony, flabbergasted because of the similarities in the adverse reaction, decided to drop you a note. Please did you know better of what happened to Maggie, if it was an metabolism imbalance or a medication interaction?
Thank you so so much for giving me some feed back. Did she use it again?

• Indian user February 8, 2016, 1:37 pm

The medicine costs 7000 INR in India. You can buy it from India, but I don’t know about the legal aspect.

79. LazyJ September 27, 2012, 4:20 pm

I started Forteo in February 2012. This website has been very helpful in hearing other people’s stories, since February my overall health has really deteriorated. I have an extreme lack of energy,my wrist and hands ache, and
I have a lot of flim build up in my esophagus. I have lost about 15 pounds and have little appetite. I have gone from a healthy man to extreme feeling of being unwell. I’ve also suffered from shortness of breath which I haven’t seen other people complain of , but I had my heart checked completely and it’s very healthy! it’s been so helpful to know that others have these side effects. I’ve been relating them to other possible causes. I called my doctor and he was very defensive but did say to stop the
Forteo. I’m going to stop it today and will let you know if my good health returns.
Sincerely, Lazyj

• linda sickora April 17, 2013, 1:42 pm

please let me know what happens. i have myasthenia gravis and asthma and i am to start forteo in 2 days. i am scared to death of it.

• DebV October 20, 2012, 6:23 pm

I have been on Forteo for one month and have shortness of breath, loss of appetite and extreme fatigue. I haven’t had any factures in the past month which is a big improvement because I had 7 spontaneous fractures in 4 months after being treated with steroids for Crohn’s Disease. I see my doc on Monday and will probably stay on the Forteo as long as the symptoms don’t get worse. I’m going to try pilates for osteo now that I am stabilized.

80. Megan Osborne September 21, 2012, 11:16 am

My GYN has prescribed since my bone density test revealed -3.5 on my hips. I am 53. Thought I was healthy. Never broke a bone, have one crowned tooth in the back. No pain (not even Advil in my med cabinet) I do need to eat better, and exercise more. I am little 5’5 115 lbs. which comes naturally. After reserching the internet on this drug I say NO WAY! I wiil clean up my diet, excercise and take more vitamins and supplements. I am not a guinea pig!

• linda sickora April 17, 2013, 1:44 pm

good for you. i think i will also clean up my diet and take my chances. i drink ovaltine several times daily in soy milk. forteo scares me and i do not need any more problems added to the ones i already have. thank you for your input.

• Kim March 11, 2013, 10:18 pm

I am the same. I am 54 and was diagonised wit severe osteoporsis in my spine with a t score of -2.8. I have esophogus problems and therefore can not take any Fosomax etc by mouth. My doctor said Foreto is my only option. I am totally surprised by this diagonsis – I have never broken a bone. I am really afraid to take Forteo because of the side effects but wonder if I should because I of my age. I am terrified of needles (still cry when I get a shot) and then recently read that people can lose their hair – not to sound vain, but I have beautiful hair. I don’t like to do any research on what to do, because I feel lik my options are limited and I start to get discouraged when I read anything about osteoporosis. My husband is self employed and I pay for my own insurance – I am terrified of fracturing a bone and losing everything I have to be in a state run nursing home! Any suggestions would be great!

• Jane July 20, 2014, 4:18 pm

That t-score is surely not even mild osteoporosis.

• linda sickora April 17, 2013, 1:48 pm

i drink ovaltine every day several times a day in soy milk. i too have significant bone loss, but i think i am better off taking my chances with an altered diet, and using natyral, possible remedies, and skip the osteocsarcoma. i have 5 fractures in my spine, have never broken a bone so i think forteo is a bit extreme for me. i am 63 years old.

• Beth March 21, 2013, 1:52 pm

I am 55 and have been taking Forteo for almost one year. I too had osteo in my spine (-3.5) I have seen a marked improvement in my spine which is now at -2.6. I have had no ill effects from the drug and have been religious about giving myself the shot every day, along with Ca and Vit D. I will continue to take Forteo for another year and then switch to Reclast (most liekly) to preserve what I have gained back. The needle feels like barely a pinch. I have gotten used to it. Yes, it’s a pain in the rear, but it’s worth it to see such a dramatic change. Best of luck to you!

• Bev. February 3, 2013, 4:37 pm

Me too – same age. Gyno gave me the option for Forteo – read the reviews and I think I’m going to pass. 5’3, 116 pounds (petite). I walk daily but I’ve now increased my walks, started taking calcium and vitamin d (never did – I’m a very healthy eater – just can’t drink milk – makes me sick). I think I’ll choose Boniva and then get another bone density test next year.

I HATE the fact that I would be taking a medicate that if I’ve ever lost my job (husband is self employed so we depend on my health insurance) then what? I can’t pay 600.00 a month for a medication that may or may not work.

Glad to see that others have the same doubts as I do.

• linda sickora April 17, 2013, 1:51 pm

my ins. co. was billed $1100.00 for my first dose of injections. how can they justify that? and it may or may not work. i think i will opt not to use the forteo. too many adverse side affects. i already have myasthenia gravis and asthma. don’t need any more problems. 81. NANCY JEFCOAT September 3, 2012, 6:25 pm I WAS STARTED ON FORTEO LAST SUNDAY (ONE WEEK AGO). I STARTED OUT WITH 1 FX RT. WRIST> FX PELVIS >ANOTHER FX PELVIS> 6 FX RIBS, FX FINGER, FX ANKLE> ONE MORE FX PELVIS AND FX ANKLE. THEN FX TO BACK IN 2006 AND ANOTHER BACK FX IN 2010 THEN 3 MORE BACK FX THIS MARCH TO L AND T-SPINE. DOCTORS SAID THAT FORTEO MAY HELP. WHAT WOULD YOU DO. • Jo Getter September 6, 2012, 5:33 pm As I wrote just before your entry…forteo worked wonders for me!!! It greatly improved my T-scores and obviously strengthened my bones enough to endure a horrific fall without any fractures! I, personally, am so grateful for the invention of this medication. For the most part, I do not like to use pharmaceuticals and look for other healing/treating modalities; however, there are times when a medication is beneficial. Forteo literally saved my life. If you chose to maintain this course of treatment, may it help you as it did me. Jo 82. Jo Getter September 3, 2012, 12:37 pm I don’t think anything is 100% good or bad. Forteo saved my life! When I started taking Forteo in 2006, my T-score was -5.3 and my ribs were fracturing literally from rolling over in bed. After the 5th rib fractured (I thought I was just having muscle spasms until a PET scan proved otherwise) my endocrinologist recommended Forteo. At that time, after forteo had been available for 4 years, there had not been one documented case of osteosarcoma in a human. I felt it was “take the forteo or risk my lower spinal column crumbling”. I took the forteo injections daily for 2 years until 2008 with absolutely no side effects. In 2009, my dexascan score was -3.1. At that time, I had a very serious fall while holding something in each hand. I landed directly on my chest and chin requiring 6 stitches in my chin. My chest was bruised from the falls impact and very painful. And…nothing broke!!! If not for the forteo, I would have ended up like a 1000 piece jigsaw puzzle with bone fragments ripping into my heart and lungs. My belief is: saying something is always “bad” is the same as saying something is always “good.” I’ve been maintaining stable T scores. Also, I’m VERY grateful for this SaveOurBones program. I stopped fosamax 6 months ago, made significant changes in my diet (I had no idea about alkaline/acidic foods and learned I had been eating about 80-90% acidic foods) and feel empowered and wonderful! Yeah to us all for taking care of ourselves!…and thank you to Vivien! • timi fl July 1, 2013, 3:46 pm pls tell me how the last year has done with the forteo ? especially regarding your statements about acidic food . 83. Used Cisco Reseller August 12, 2012, 5:32 am hi!,I like your writing very a lot! share we keep in touch extra approximately your post on AOL? I require a specialist on this house to solve my problem. May be that is you! Looking forward to see you. 84. myrtlebarker@shaw.ca August 6, 2012, 3:55 pm HIGH VIVIAN; THANK YOU FOR YOUR INFO. ON FORTEO.MY DOCTOR SUGGESTED A NEEDLE CALLED PROLIA. HOWEVER, I WENT ON MY COMPUTER & FOUND OUT THAT I SHOULD NOT TAKE IT & MY PHARMASIST AGREED . SHE ALSO MENTIONED FORTEO –NOT TO TAKE IT EITHER. 85. Patricia Fister August 3, 2012, 4:55 pm I am suffering from serious osteoporosis because no doctor bothered to find out WHY I had osteoporosis. They just wanted to prescribe Fosamax. This went on for several years until I went to a good Endocrinologist who found out using 2 simple blood tests that I have parathyroid disease. I am awaiting surgery. In the process of researching parathyroid disorders, I came across some interesting things about FORTEO. There are some other very mysterious things about this drug also. For instance, why was it approved by the FDA for osteoporosis when it was developed specifically for a very rare disorder called hypOparathyroidism? In addition, why do the foremost experts in the world on parathyroids and PTH NOT RECOMMEND FORTEO for the treatment of osteporosis? It appears that FORTEO was approved for osteoporosis AFTER it was developed and approved for hypOparathyroidism, which is very rare. Oh and how do over 99% of people with hypOparathyroidism get it in the first place? By being operated on for hyperparathyroidism by a clumsy general surgeon, who accidentally removed all traced of parathyroid tissue, leaving the hapless patient not able to regulate calcium in their bodies. • Darlene February 11, 2013, 1:19 am Thyroid cancer also removes your parathyroid glands. They try to save two of them, but ?? Depends on the surgery. I have one, and they lost sight of the other. They are real small. 86. Sherry July 26, 2012, 1:07 am I feel for the people that go to doctors & follows orders without hesitation regarding pharmaceuticals. It’s like sheep being led to slaughter. One should research & educate themselves at least to a certain extent. I would never be put in a position to be used as a guinea pig like that & for that amount of money?! I was diagnosed with osteo years ago, had some symptoms show up but w/checking out all my options on alternatives (I am taking 50,000 units a mo. of Vit.D3, & K2.) Do other supplementation of the best available along with tonic herbs & bone strengthening exercises. I’m back at Risk now. I’m feeling fine. I believe in what I’m doing because it resonates with me. I could never believe in toxic synthetics put into my system. • Suzanne October 24, 2012, 5:21 pm I’d sure love to know what all you’re taking. I am seriously considering starting Forteo this week. • Me July 29, 2012, 3:34 am You really are smart, aren’t you? But do you really feel you need to deride other people? After all, everyone has different backgrounds, and you can’t possibly know what made a person take osteo drugs. I think this forum would be a lot nicer if we stayed away from mockery and tried to support each other instead. 87. Sandra Hardy July 16, 2012, 3:33 pm I started Forteo 14 months ago. Had a bone density test in June and was expecting good results. Instead I found out that my osteoporosis is worse and had shown up in more places. Left femur T-score of -3.3, spine -2.5, forearm -3.1, plus what showed up in 2010. The dr.s comments are that my fracture risk is high, and bone density has declined significantly in spine and left hip since the baseline test of 2010. She advised that I continue Forteo until at least Sept. 2013. It makes no sense at all to me. • Vivian Goldschmidt, MA August 3, 2012, 8:15 pm Orwellian, to say the least… 88. V B July 9, 2012, 3:13 pm My wife took Forteo for 2 years for her bone density from June 2007 to June 2009. 2 months ago, she had shingles @ age 54. Can it be the side effect of this medicine ? • linda sickora April 17, 2013, 1:56 pm shingles is listed as one of the possible side affects of forteo. but lots of other things can cause shingles also. i had them and they said it was triggered by stress. i wonder if they really know…. • phil January 21, 2013, 9:40 pm No • Sweet tweet November 30, 2012, 1:00 am No 89. Sofia June 30, 2012, 9:15 am I´ve been on Forteo since August, and want to stop taking it, but worry about the consecvences, since I´ve read that immediately after quitting, your bone density will deteriorate badly (if you don´t proceed whith bisphosphonates or Prolia afterwards, which I won´t do). So I would really appreciate if anyone who knows more about this could comment or give an advice. 90. Alan Brezin June 10, 2012, 9:21 pm Just started my third month of Forteo and I still am having joint pains in feet, ankles, shins, hands and elbows. They weren’t supposed to persist this long. I would like to think they are bone “growing pains” but I refuse to put up with them anylonger. I stopped the Forteo for now to see if I feel better. I am physically active but the pain is bad enough to discourage me from exercising sometimes. I don’t think there is anything better for building strong bone than weight bearing exercise! Maybe quality of bone is more important than density of bone as measured by a DexaScan? • Joan September 5, 2012, 8:44 pm i have all the same symptoms…..pains all over and I have decided to stop because I can’live like this. I don’t have osteoporosis…., but bones in arms are disinter grating Due to elbow. Replacement surgery. • Vivian Goldschmidt, MA August 3, 2012, 8:14 pm You bet! 91. FC June 1, 2012, 2:54 pm I worked for Lilly’s Forteo Connect support program. Everything with this drug is a scam, including the “support” program used to try to keep patients on the 2 year therapy. Side effects they don’t tell you about are hair loss, shingles, thyroid problems, along with the normal muscle and joint aches, constipation, racing heartbeat, etc. Lilly was so worried about what we said to patients everything was scripted. You could be punished if you went off script to try and help a patient. Also bear in mind Lilly has a Corporate Integrity Agreement with the FDA currently for deceptive marketing practices. Don’t get me wrong, I did speak to patients that this drug has helped, however it seems that many more were sickened by it. Hopefully the once a year IV treatments will become more popular than the Forteo. I would never recommend this drug to any family member or person I cared about. • Wanda Burns May 30, 2013, 12:59 am I took Forteo for a month, actually last July, injections in my stomach every day for 31 days. Then woke up with severe pain around my middle or waist going thru to my back. Went to my orthopedic doctor who had prescribed Forteo, this was two days later when I could see him. Now I am not only in pain but I have started drawing to the right. I see my doctor, he tells me it’s not the Forteo doing this, sounds like my kidney. Go to a urologist, have test, not my kidney, two weeks go buy, by now I am twisted, my navel is under my left breast. I have to use a cane to walk and hold me up or I lose my breath. I been going to Dr.after Dr. My primary Doctor wanted to send me to the Mayo Clinic right off, I wish I had went then. I’m a go person, I love to do things for my husband, dad, children, 10 grandchildren and 2 greatgrand children, but I can hardly do things for myself, my husband, has top do practually everything. Before I started taking Forteo in July, my family and all the grand and great children, went to Florida in June on vacation and I ran on the beach and walked forever on the beach and played with my family and then a month later I’m cripple. Anyoneelse with similar reaction. • Pilar March 7, 2013, 7:48 pm I really dissapointed with your comment. I would not trust you with what you said. Where is your integrity if you found out that everything is a lie you should left your job or contact the FDA? and you are promoting a new medication now? I have been in the treatment for 2 years and never had any side effect. Actually I am trying to go back to get the medication again. YOu should delete your coment you are making good to no one with it! • Maryann September 6, 2012, 11:37 am I have been on Forteo for one month now. Unable to take bisphosphonates. I have noticed some hair loss in the past week. In your studies, how serious did this side effect become? I had alopecia many years ago and do not want to go through that again. • cs June 12, 2012, 10:48 am I cannot tell you how glad I was to read the 6/1/12 comment frm fc who was part of the “support grp” for Foreto. Forteo made me very sick after 3 weeks & I have not used it since. One of the main reasons I stopped was all the phone calls from the “Forteo support grp.” Whenever I mentioned a side effect, I was immediately transferred to someone who records “side effects.” My fear re this drug started to rise since these people were calling me so frequently. No other drug company has ever called me to ask how I was doing w/their drug. The price is exhorbitant! The cost is$1132 a mnth! While I do have insurance, I would quickly go thru the “donut hole,” & w/ins co-pay, it would still cost \$60 a mnth. That aside, it made me sick, (vomiting, headache, bp so low I could barely get out of bed to walk across the room. I decided if this was how I had to “live,” I wld rather be dead! I had no social life, barely had the strength to even talk on phone. And all the “support” from Lily made me leery of continuing even w/out side effects.

• Alan Brezin June 10, 2012, 9:34 pm

I wonder if you ever contacted me from Lily’s Forteo Connect? I’ll bet it ruined your love life constantly hearing yourself repeat that insipid script even when you were away from work!

• Diana July 25, 2012, 10:05 am

Great roundup! The Eventlet bcnahmerk could benefit from a little tweaking. I used the following code and achieved significantly better performance.from eventlet.green import socketfrom eventlet import api,hubshubs.use_hub(“pyevent”) def handle_socket(sock): sock.sendall(“HTTP/1.0 200 OK\r\nContent-Length: 5\r\n\r\nPong!\r\n”) sock.close() server = socket.socket()server.bind((‘localhost’, 8030))server.listen(500)while True: try: new_sock, address = server.accept() except KeyboardInterrupt: break # handle every new connection with a new coroutine api.spawn(handle_socket, new_sock)The major difference here is that makefile() and its consequent object creation cost are not called. This alone makes a big difference, and has the side benefit of being more readable and closer in spirit to the other tests.Also, this code uses pyevent for event dispatching. Pyevent is disabled by default within Eventlet because it is not compatible with threads, but in this sort of test, it provides better performance.

92. catherine May 23, 2012, 7:50 am

I am 29 yrs old and started forteo today as prescribed by my doctor due to my -2.5 dexa scan on my spine lower lumbar. I have also low vitamin d and my urine test came back that my body isn’t holding on to any vit d. Bc of my age and with me not knowing about anymore kids in the future my doc would not put me on any other meds which could ruin that possibility. I unlike the others here hope this works bc i have had three serious foot fractures in the past 4 years and the last one has taken the longest to heal. For me this is my only shot right now for things to either turn around or come to a stand still.

• Kathleen November 13, 2012, 9:40 pm

I took Forteo for two years every night. I also have fibro so I was used to aches and tiredness.
I had a reclaspt infusion last Friday and became really sick like a bad flu for about six days.
I am 56. I have not broken anything and take my Citracal calcium citrate and D3 petites twice a day. I have difficulty sitting too long as my tail bone hurts, feels like a cyst. I take Tramadol for pain. I also take an antidepressant for chronic depression. I have had weeks of being bedridden and then will be okay and energized for a few days.
My mother who died at age 86 last March was in the original test group for Forteo with no bad side effects. She also was in the Enclaspt test group without bad side effects.
This has been my experience with these medicines.
I truly hope the women who have not been helped by these drugs will not give up and continue to search for the best remedies for them. I am so sorry for your pain and unpleasant experiences.

• Evelyn June 5, 2014, 6:01 pm

How old was your mother when she was in trial program?

Evelyn

• Jose L. Suescun December 28, 2012, 11:18 am

I want you to know that there is a successful treatment (practically unknown) for fibromyalgia since the mid 1990’s, developed a Doctor from UCLA. I know all about it, if you are interested. You contact me at fibrocan@hotmail.com

• Jennifer July 20, 2012, 11:12 am

Hello Catherine–I’m curious to know if you are still on Forteo and if it has been successful for you. I am 39 years old. After years of pain at a tibia fracture site (broken 17 years ago) and numerous doctor visits, I finally found the right doctor and learned that the break never healed. I have been working with several doctors for 2 years to heal this nonunion. They now want me to start Forteo next week. I’m a bit concerned to say the least.

93. Colette Markey (do notpublish) May 19, 2012, 2:06 pm

I wrote a history of my osteoporosis and my prescribed Forteo history. I asked that My name and email not to be printed but I wanted my comments printed. Where are my comments

94. Colette Markey (do notpublish) May 19, 2012, 10:29 am

History of many stress fractures feet,age 51.
Diagnosed Osteoporosis 1995. Started on Fosamax 1995-2007
2000-2001 Developed numerous vertebral fractures (Several Kyphoplasties performed 2001-Life Saving)
2003 Forteo was implemented for 18 months
2006:Vertebral Fracture.
2007: L. femoral Fracture.
Dec 2010: L.Sacral Fracture.
Dec 2010: Forteo re-started for an additional 6 months.( FDA Total usage 24 months.)
Feb 2011:Rt. Sacral Fracture
May 2012 Rt. Sacrum re-Fracture -Forteo recommened . Present Meds for Osteoporois: Calcitrical with D
Calcitriol.
Decision is not made regarding continuation of Forteo.

• Colette Markey (do notpublish) May 19, 2012, 2:32 pm

I have made a decision not to take Forteo. I have used prescribed dosage of 24 months. Which is the total amount allowed by the FDA. However, my bone issues are present and troublesome-to say the least. The site of my recurrent fracture, Rt.Sacrum, S1-S2 is most disturbing. Prolia was suggested by another renonwned MD last year. I have to consider this. Any other participant with a similar history to mine?

• Jo Getter September 3, 2012, 12:54 pm

I have just joined this online community and not exactly sure how it works. I just finished typing my very positive forteo story. As I’m reading comments, I came upon yours and just want to say “Bless your heart!”. I have no personal herstory that has the extent of fractures that you do. From what I understand, tho the recommendation is 2 years of forteo, IF needed, i’d be able to have a short “booster” of it for 3-4 mo. Forteo was a totally positive and beneficial experience for me tho I read that that is not the case for everyone. How are you doing now? What have you decided? My heart is with you. Jo Getter

• Colette Markey (do notpublish) May 19, 2012, 2:08 pm

I would appreciate a reply from the Website.

• C.Markey May 19, 2012, 2:38 pm

Again, what is required to hear from the community please?

• Jose L. Suescun December 28, 2012, 11:34 am

If you have not, why don’t you try “Save Our Bones Program”?

95. Beth May 8, 2012, 1:15 pm

I recently learned that I have low blood calcium and was diagnosed at 40 with osteoporosis. Though premenopausal, they put me on Fosamax from 1997- 2005, which did nothing. My doctor, an early tester of Forteo has ignored my other illnesses and focused on the osteoporosis ( 2-point bone density scan), told me yesterday, when I expressed concerns about the drug, that I will die without Forteo. I do not think that he has done any testing to explain what is wrong with my parathyroid, nor is he interested in having me try anything but Forteo, which is sitting in my refrigerator like a lurking monster. In 2007, I had a tumor that was related to over-exposure to radiation removed along with half my thyroid, but this doctor hasn’t touched my neck. I am 55, with a BMI of 20.4 and little fat to inject the Forteo into. This situation has me extremely concerned.

• Dee February 28, 2013, 10:49 pm

One of the contraindications for use of forteo according the packet I received was prior exposure to radition therapy. I think that means it’s not recommended for those people. You might want to check on that.
Good luck. Hope you do well with what ever solution you choose.
My Dr. has recommended it for me and I too am doing my research before I decide what to do.

96. Larry April 24, 2012, 11:18 am

In 1997, I had back surgery with a spinal fusion. During this operation, my surgeon found that my bones were soft and were of a person in their 80’s. I was sent to an endocrinologist and he determined I had osteoporosis. I am a male and was only 47 years old. I was given Fosamax and then Actonel but my stomach could not tolerate them. I tried dietary changes but apparently those did not work because in 2004, I sustained a compression fracture in the vertebra above my fusion from coughing during a bad cold. From this my endocrinologist put me on Forteo which I took for 24 months. Upon completion of Forteo my bone density started to rise. It apparently kick started my body. I then was put on Zometa for a year and one half. Then went to Reclast, since I would only have to get a yearly infusion. I have had three of those yearly infusions and at my last Dexa scan my bone density is where I no longer have to take any drugs and can just use diet now. After reading the posts on this site, I have been recalling some joint pains the last several years and have been told these are just some bone spurs which older people get. I will continue to monitor and will follow directions in the Save Our Bones Program.

• Mombi August 22, 2012, 6:38 pm

Thank you for sharing. I’m a 50 year old lady with the bones of an 80 year old, and after doing some research and speaking with a former FORTEO rep (whose own mom and grandma have used it with success), I insisted on FORTEO over biphosphonates.
I am hopeful, and I am not afraid of pharmacueticals; I research the heck out of any med I might need to take. Other than vitamins, FORTEO is all I take.
I am hopeful. Also, I a little “achey” and a little tired. It’s been a month. I’ll try and post again, as time progresses.

• Suzanne October 24, 2012, 5:36 pm

Hope you will post an update very soon!

• Jo Getter September 3, 2012, 1:02 pm

I just posted my very positive forteo story. It literally saved my life! I certainly hope the same will be true for you!

• Vivian Goldschmidt, MA August 3, 2012, 8:09 pm

Of course, the medical establishment blames “aging” for many of the nasty drug side effects. But we know better

• Beachladyblues May 8, 2012, 7:27 pm

Here goes… My 19 yo son was Dx with IJO at age 12 after he fell and Fx a hip. On Fosamax since. Dexa scans climbed slightly the dropped. After 4 surgeries in hope to delay replacement (due to AVN) he now needs the replacement. Plus Scan results are at a new time low. MD insisted on Someta (No way). So I took him to Boston childrens hospital for info followed today by an appt with the local childrens hospital’s bone health team. It was suggested today to consider Forteo. There are posts here on both sides of the fence. IJO had so far left my son with a life time of issues with his hip,back and feet. Plus now he is in pain. As a parent its a difficult position to decide for your child. Unrelated.. my son also has Aspergers syndrome (autism).

97. rhonda australia April 13, 2012, 11:08 pm

Dear Johanita, no I don’t beleive that the Dexa-scan machines would be rigged,however I don’t know who produces them or who subsidises the cost of these machines?but, I do beleive that you don’t always get the same results from each scan machine and, that different machines,makes,and models ect, can produce difference outcomes. Every person has some story as to pathology test result ending up when thoroughly investigated and re-done to be less than perfect showing up as, not as bad as first thought, or more severe than expected, or even “no problem at all everything all ok” so there can be large discrepences in all pathology and testing. For me, I would want multipul testing on all different scans before I would be prepared to make a full and contious decision about my health. ( of which I have done with other health issues and with excellent results,and without medical assistants and against the advice of my MD)

“To each his own” Rhonda

• Jose L. Suescun December 28, 2012, 11:51 am

General Electric produces one model called Lunar. There are other manufactures. And yes, different machines give different results

98. Dorothy Openshaw March 14, 2012, 6:23 pm

I was on the Forteo for four months approximately and it did me no good at all that I could tell. I became very fatigued and finally went to the doctor and found that my calcium level was extremely high. I then got kidney stones and had to deal with that pain. I would not recommend this treatment to anyone. I feel lucky I didn’t end up with bone cancer.

99. Velma Sturm March 3, 2012, 1:04 am

Vivian: Hi. Thank you for your serious and light approach to a very interesting topic

• chana March 4, 2012, 12:13 pm

LIGHT approach???

100. Marjorie Holman February 27, 2012, 11:57 pm

I have been allergic to practically every med I ever took for the last 60 years! I moved to Dallas in 2007 and found a new Dr. I told him of my allergies. Then he promply told me to attend a class where I would be taught to give myself a shot of Forteo every day for 18 months! Needless to say, I did not attend the class and I changed doctors!! I am now 88 and other than painful arthritis in my left hip, I am in excellent health. I am considering prolozone therapy, however. Do you have an opinion about that treatment? Thanks, Margie ^o^

• Jose L. Suescun December 28, 2012, 11:55 am

I know about Prolozone. It is effective. I could give you more info, if you email me at fibrocan@hotmail.com