US consumer advocacy groups are up in arms. New and devastating Reclast side effects led these groups to demand that new warnings be placed on the drug’s label.
As I wrote in my Reclast review, the most commonly reported Reclast side effects are fever, muscle, joint and bone pain, flu-like symptoms, and fever. And I also explain how it can cause osteonecrosis of the jaw and its horrific consequences.
But these pale in comparison to the new concern.
Read the full story below:
03/10/2011 | TRUMAN LEWIS | CONSUMERAFFAIRS.com
Does Canada care more about its citizens’ health than the U.S.? It sometimes looks that way.
The consumer group Public Citizen wants the U.S. Food and Drug Administration to do what Canada apparently did five months ago – tell Novartis to warn physicians and consumers about a dangerous link between a widely-used osteoporosis drug and serious renal toxicity, which can result in death.
In a letter to the FDA, Public Citizen’s Health Research Group said the Canadian government reacted after learning of 265 cases of serious kidney impairment in patients using Aclasta (zoledronic acid). The drug is called Reclast in the U.S. and is identical to the Canadian version.
Five months later, the FDA has done nothing, said Public Citizen’s Sidney Wolfe, M.D., in a letter to FDA Commissioner Margaret Hamburg, M.D.
“The Food and Drug Administration (FDA) has failed to take … action requiring Novartis to alert physicians and patients in the United States about the growing evidence linking Reclast to this serious, life-threatening adverse event,” Wolfe said. “We therefore urge the FDA to immediately require that Novartis issue a similar “Dear Doctor Letter” to all physicians in the U.S.”
Reclast is given once a year for treatment of osteoporosis in men and postmeopausal women and once every two years for prevention of osteoporosis in postmenopausal women.
Wolfe noted that more than one million infusions of Aclasta had been administered worldwide as of October 2010. The 265 cases of renal impairment reported in Canada corresponds to a rate of about 20 cases per 100,000 patient-years of exposure. The FDA estimates that no more than 10 percent of adverse drug reactions are reported.
“Clearly, the current warnings and precautions in the FDA-approved label for Reclast about the risk of renal impairment are not sufficient for making physicians adequately aware of this serious, life-threatening renal toxicity associated with Reclast, the very reason that the Canadian government convinced the company to initiate the additional warnings,” Wolfe said..
Source: Consumer Affairs
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May 24, 2013
I am 61yrs old female from Asia origin. Sufering from severe osteoporosis (that’s what my Dr. told me). After reading comments i “Our Bones Community” I had refused to take Fosamax. Recently I had dislocated my right ankle, Xray shows strain ligament no fracture. However, the doctor insisted this time I should take “Bonviva 150mg once a month
Can somebody kind enough tell me whether I should take it? Any good reason? Or is there any alternative?
I would really appreciate the help
May 24, 2013
Jenab, the decision is yours.
But, as I said in the above post, first get some facts! Here are links to several posts I’ve written on Boniva:
http://saveourbones.com/boniva-side-effects/
http://saveourbones.com/taking-evista-and-boniva/
http://saveourbones.com/boniva-what-if-sally-field-told-the-truth/
These articles should help you in making your decision! Best of luck, whatever you decide.
April 16, 2013
Had a bone scan and my doctors nurse called and said it showed osteoporosis and they were going to schedule me for a reclast IV treatment. Since I never got to consult with my doctor I did alittle research.Thank you ladies for all your real life(tragic) stories.Thanks to you all when they tried to confirm my treatment I canceled.I have since talked to a dear friend (25yr RN) who got the same diagnosis 3 years ago.She is treating hers with large doses of Calcium & D3,excercise and diet.Going on 4yrs and so far fracture free.Thank you again!
April 3, 2013
One month after receiving an infusion of RECLAST my husband took me to. The hospital with acute renal failure. It was life threatening and I was unconscious for two days. Dialysis was started immediately and I had ten treatments. It was the worst thing that ever happened to me. I am still under two doctors care, a kidney doctor and a heart doctor which is also a side effect. This happened the first week of November.
April 9, 2013
Shirley, how horrible! I am so sorry you experienced that. I wish you a full and speedy recovery!
March 25, 2013
Arthritis and Rheumatism Associates in Wash DC provides no drug information, not even the medguide.
Women should be informed so they can hydrate and pre medicate with antipyretics
March 12, 2013
I may be the only man posting. Took my 1st reclast infusion on 31 Jan 2013. Have protein M in my system and below number which may label it
multiple myeloma. Had thyroid nodule biopsy before influsion and VA took
endless blood tests. Result of biopsy was hyperplascia. I read up on
reclast before I took it and decided to let them do it. My osteoporosis is
at critical stage. So far I seem to be okay, but my heart goes out to you
ladies and what you are going thru. I have good lady doctor, a good lady
PA, excellent endrochronologist (48 years of experience). My prayers are
with you girls. God bless you all
March 12, 2013
I may be the only man posting. Took my 1st reclast infusion on 31 Jan 2013. Have protein M in my system and below number which may label it
multiple myeloma. Had thyroid nodule biopsy before influsion and VA took
endless blood tests. Result of biopsy was hyperplascia. I read up on
reclast before I took it and decided to let them do it. My osteoporosis is
at critical stage. So far I seem to be okay, but my heart goes out to you
ladies and what you are going thru. I have good lady doctor, a good lady
PA, excellent endrochronologist (48 years of experience). My prayers are
with you girls. God bless you all
February 9, 2013
http://www.news-medical.net/news/20121123/Osteoporosis-medication-Aclasta-now-available-on-Canadian-public-drug-plans.aspx
This indicates that the Canadians do use and pay for this drug, contrary to what is written in the first paragraph of the above article.
January 30, 2013
Thank you Vivianne for this great web site
I have been hearng such horror stories from women who took fosamax and Reclast – its just greedy MD’s pushing these rotten drugs that they know are killing women .
I was diagnosed with osteopenia 2 yrs ago and now I after doing your advice and doing some serious weight bearing exercise with a weight vest by nyknyc and it is a must for strong bone because it evenly distributes the weight all over the body plus it looks very nice and feels good to wear. I tried one before but did not like the look of it so I got the one by nyk which I love.
Now my osteopenia …. is gone. I am back to normal again – thank you vivian for helping women to have naturally strong bones!
February 28, 2013
Wonderful news, Eve! How inspiring. Thank you for sharing that with the community!
October 21, 2012
My mother received a Reclast infusion Friday Oct 21, 2012. She died 24 hours later with flu-like symptoms, excessive phlegm and a quivering heart. She was in poor health as she has had MS for 40 years so I suspect her reaction to the drug was more severe then most people.
She has had periodic episodes over the last 10 years where she can barely move, becomes delirious and has been in Hospice care 6 times. After she passed away yesterday I got suspicious that her last episode on Sept 29. 2011 was also caused by a Reclast infusion. Sure enough, she had been given the infusion the day before.
STAY AWAY FROM THIS DRUG!
February 28, 2013
James, I am truly sorry for your loss. Such tragic stories as your mother’s are one of the main reasons for my crusade to find drug-free alternatives to osteoporosis drugs. My condolences to you and your family. <3
October 6, 2012
I had an eclast infusion about 3pm yesterday and woke up about 1am, both my legs were hurting so bad I could’nt hardly walk, tooka a pain pill (hydrecodine) and rubbed my knees with icy hot. Didn.t help much so I got up and put ice onmy knees. Seems like that is where most of the pain is. Thats where I am now.
January 7, 2013
My sister had that infusion in Dec 2011. She is having terrible leg pain and coldness in her legs. They have run a lot of tests & cant find anything wrong with her.
How are you doing now?
September 18, 2012
I was just diagnosed with osteo on my spine. My dr. recommended i take reclast infusion. I just read your comments on it and now i see i have to do an alternate route. can you suggest what to do? Yoga? weights? etc….
August 3, 2012
Since my last Reclast treatment I have had severe night time leg and foot cramping. It is getting worse. Could this be from Reclast?
July 2, 2012
I received two infusions starting in 2010. Received useful info regarding checking my density before getting additional infusions…got the BD test and was told that osteopenia had improved but stIll need infusions. Am reluctant thanks to reading your comments to continue. SO sorry to hear about these side affects that many of u had to suffer. Sharing your troubles will help so many. Don’t think I will continue with reclast even though I had no side effects. I walk, do gentle deep stretching daily, sit for awhile daily surrounded by trees and try to quietly speak of all the things that I’m grateful for before I fall asleep. I will also step up my at home strength building exercises. Please know that your sharing comments have helped, I will try to pay it forward and possibly help someone else.
June 29, 2012
I am scheduled to have my first Reclast infusion in July but reading all the comments I have decided to cancel . June
November 14, 2012
I was suppose to schedule a Reclast infusion Also, But not after reading all the comment here. Thankyou everyone for posting.
September 14, 2012
Just had my second dose of Reclast and am feeliing fine. My first infusion did give me flu like symptoms but that only lasted one day. Taking a couple of tylenol exra stength was all I needed. I am in my very late fifties and have other conditions which require me to take other medications but the Reclast did not cause me any problems with med interaction. Make sure your doctor does the necessary blood work and make a list of all those questions you may have about the infusion so that you can go into it with peace of mind. I have gone from a diagnosis of osteosporosis to osteopenia in just one year and plan on continuing with the reclast unless something better comes along. What made my decision even easier was the fact that I could not tolerate oral medication of any kind and was showing a bone density lose of about .6% a year since menopause set in. I had the brittle bones of an 80+ female. No way. Wish you the best and stay positive.
June 25, 2012
i was given recast in aug 2011 against my better judgement. I have been throwing up from sept 1st 2011 till dec 3rd 2011. i take the stongest nauseua pills available usually used for cancer patients as i twice was yrs ago. I can not gain weight. I way 100 pds. When I tried to call my dr about my concerns, i received a very ugly letter in the mail saying i was no longer his patient. One of the things ihave learned about reclast, is it should not be given to people with thyroid problems, I had thyroid cancer. It should not also be given to people with certain conditions. I have them also. I am having so much trouble with my jaw, and bones. Some days it feels like my jaw will lock up. I have to keep movin it. and my gums and throat now hurt. My bones hurt more than ever. I do not know what to do I am trying to find me an attorney but finding it hard to do. Is there any more information you can give me on reclast? thank you christine von senden
June 4, 2012
Hello everyone,
I was recently diagnosed with Pagets disease of the skull and legs and my Endocrinologist has recommended Reclast infusion. I am scheduled to have my first on Fridah 6/8/12 but I am disturbed at some of the side effects of the drugs that you have all mentioned. I am already experiencing the burning pain and swelling in my face, especially around my eyes and the soles of my feet. Whenever I am immobile for long my feet feel like I am being turned to stone. I was actually looking forward to the infusion hoping that it will reduce not only my pain, by my Alkaline Phosphatase levels which have been elevated for the past 5 years. I am now really quite concerned about the possible side effects. I pray that the Lord will give you all strength to endure, its been quite a while since I had a totally pain free day, and I am not looking forward to add anymore discomfort to my life. Good luck to all.
Leonora
March 26, 2012
any new information you can put on the web please send because i am concerned about the side effects of the reclast. i had the first injection on dec. 22, 2011.
March 21, 2012
I was scheuled to have an infusion this morn. I have been aprehensive since my Dr. advised me to have it. After much reading up on it, I decided NOT to do it. I just pray I will not have fractures, or broken bones. I have gone into osteopennia. I feel so bad for those of you suffering from these infusions. It shows we never know what will happen to us, when given a drug the Dr, seems to trust. Good in some cases, and so horrible for others. I hope the FDA nvestigates these dugs with more concern for the patients. Marge.
March 20, 2013
At least 4 doctors have advised me I have severe osteoporosis and highly recommend that I “do something about it ASAP” but have many doubts after reading about the negative side effect of even the pills. I stopped taking those years ago on my own. I am 65 years of age and have DM, HPT, scoliosis, DDD, and a host of other issues, including leucopenia (low white blood counts), so I am really afraid. They all are pushing me to do it, and I was almost ready to do the Reclast; however, after reading more about it on your website and others’ remarks who feel the same, I will not do it! I just will not call back the doctor who is trying to schedule my infusion–I think they’ll get the message. Thank you for this website, and I will most likely join your saving bones community and followers!
March 16, 2012
Hi! I had a Reclsat IV Infusion last November of 2011. Since then I keep losing weight, where as I am down to 100 lbs. Has this happened to anyone else?
November 21, 2012
I wish… :S
I was on Actonel, extra Calcium & tons of D (especially where I live, in Alaska)after being diagnosed in 2007 with Osteoporosis in all bones at 52 years old (had hysterectomy at 48). Actonel didn’t do it. Dr.put me on Boniva & I had another Dexascan in 2010 & all bones into Ostopenia – yay. In the meantime, I was diagnosed with Barrett’s Syndrome (Barrett’s Esophagus) & had to have Esophogeal TIFundiplication surgery due to my esophogus valve completely burned away. My boss calls me after watching a Boniva commercial & tells me that I am not supposed to be taking Boniva if I have it… Big mistake my Dr. made… I do the research & realize the only thing I can do is have Reclast Infusions to not harm my ‘inner organs’ anymore. First one was 2010 & I still take extra calcium & D but just had another Dexascan & my spine, wrists & ankles are back in Osteoporis & hips in Osteopenia… ugh. Had a Reclast Infusion yesterday (11/20/12) & today I feel like I have the worst cold/flu, eyes hurt, feel like @&%#. My current Dr. does send blood tests to check kidneys/liver, etc. beforehand. It’s all I’ve got besides weight bearing exercises. Hoping to feel better over the Thanksgiving weekend.
September 14, 2012
I doubt the Reclast caused the weight lose. One of the main reasons for the infusion is that it by passses the stomach so as not to cause any stomach prolems. Your best bet is to get checked out by your doctor to make sure it’s not something that can be taken care of sooner than later.
June 25, 2012
yes, its happen to me, and i can not gain a pound. since aug 2011 till june 22 2012 the pain i endure the shocking of my feet the pain joints and muscle spasms and pain and the bone pain is incredible. I think we all need an attorney i’m trying to search for one now, anyone interested?
August 9, 2012
I also had a reclast infusion on june 28 and wound up in ER the next day with horrific symptoms. Have not been the same since. Horrible drug!!!! Have seen a lawyer only to be told I have no case. This needs to be addressed!! Too many people suffering!!
February 18, 2012
I wish there were answers to the questions we all have. I want pain relief and find no one know what to do. Does anyone? I took Reclast June 2011 and still have pain in my hands and feet and knees too! The hands are the worst!
May 29, 2012
Jeannette: I have had two Reclast infusions, one in Feb. of 2010, the other March 2011. During these months I have had growing fatigue, an inability to stand for very long, and chronic pain in various joints. Is there a connection? I sure would like to know. More than any-thing, I would love an antidote to get me back to my old energy level.
January 27, 2012
On 1/27/12 I took reclast . My hands are stiff hurting . is that a side effect that was not mention. i am whating to hear what the Dr. comment will be.
February 20, 2012
yes it’s a side effect-one i’ve had since june 2011 when i had my one and now only-iv infusion. i have pain in my feet too. i was sick the entire summer after i took the infusion. i had severe and sudden pain in my hip a few days after the infusion that led to sciatica that persists still. i went to orthopedist-had an mri and then a rheumatologist-who both told me the pain was from RECLAST and all they could offer me was pain management. I did one round of prednisone just to get a break from the pain-it worked for the 3 weeks i was on it and i had less pain for a few more weeks-maybe even a month or more-but am back with the same amt of pain since then. i only take ibuprofen b/c the prescription pain meds make me feel awful.
paula
May 29, 2012
Paula: Your comments are discouraging. I keep hoping to hear of something positive to alleviate the various aches and pain I feel in my body. Sitting for an hour or two almost disables me when getting back up. Does it ever go away on its own?
Annette
September 14, 2012
Go to a rheumatologist to check out your symptoms. I have RA and your symptoms sound very familiar.
January 12, 2012
By the way, if any of you have solved the problem of pain and burning on the soles of your feet, please post as this is a constant problem. I am using a prescription topical anesthetic which helps some but has not alleviated the pain and burning completely.
May 14, 2012
yes, I had reclast in oct. 2011 and I still have pain in my neck and shoulder, burning in the soles of my feet, gallbladder and kidney issues, elevated PTH. what an awful drug. when do the side effects ever leave? my side effects wax and wane. sometimes are hardly noticeable and then wow for no apparent reason all the side effects come back full force.
February 20, 2012
did you ever get a reply? i too suffer this pain and have not seen any replies?
January 12, 2012
I just found your website. I had my first (AND ONLY!) Reclast infusion December 27, 2010. By the time I went back for my follow-up lab work and appointment the following month my creatnine level was 6.8! The endocrinologist called a nephrologist and asked him to see me, which he did the same afternoon. Diagnosis: Acute Tubular Necrosis. In other words, acute kidney failure! I was just at the point of having to go on dialysis. After that I had many, many terrible side effects, some of which are still with me after a whole year. I am angry and disappointed that at 68 my life now does not even resemble the life I had before the infusion. I was very, very active, working two days a week and volunteering three days a week at my church, plus numerous other volunteer activities. I was (and am) no longer able to do any of those things. I am blessed if I make it to church on Sunday. My blood pressure goes from very high to very low and this has occurred ever since the infusion. For example, yesterday it was 177/84 and within an hour I felt it drop drastically–checked it and it was 72/44. I know this cannot be a healthy thing for my body and it’s been going on a full year. No one has helped me with this yet even though doctors have changed my BP meds many times and I am now allergic to most of them. I experienced muscle pains and cramps, soles of my feet burn like crazy, depression, anxiety, edema, fatigue, exhaustion, palpitations, hair loss, anemia and the list goes on and on. I kept notes on all this because I had a feeling I would not remember all of them. But next to the BP problem, the problem that concerns me most is memory loss which began after the infusion and has not improved AT ALL. I experience, confusion, lack of concentration, inability to focus and my short-term memory is awful. I accomplish almost nothing and it is tremendously frustrating. After finding your site and one other, I feel relieved to finally know I’m not the only one–that there are many of you out there. I have not reported to the drug company as I feel it would be a futile effort. I have also not reported this to FDA although I plan to, and am unsure whether the doctor who administered the Reclast did or not. I know he should have. I never imagined that one infusion of one drug could possibly result in such a drastic change in my life. Thank you for providing this forum for our comments. Perhaps it will save some ladies from going through what we have experienced. God bless you all and I hope and pray that something positive will come out of this. BTW I never had low BP in my life and did not have kidney problems before either. Now my kidneys have healed I guess as much as they ever will and they function at 45% which I can do OK with. But I’d prefer to have my healthy kidneys back! Along with my beautiful life.
May 29, 2012
I appreciated your thorough comments regarding Reclast. I have declined a third infusion since experiencing fatigue, pain in my joints and an inability to sit or stand for very long in the two years since my first infusion. Is it possible these side effects won’t go away? I too have been actively volunteering and participating in many events.
Annette
September 27, 2011
I had a reclast injection in march 2011. I recently was told by a dentist that i had a tooth that needs pulled, I have been to 3 dental surgeons none of them will pull the tooth or do a root canal because of the injections. How long will i have to wait befor the drug is out of my body. Linda
November 8, 2012
I need a root canal today Nov 8, and have had reclast infusion in Septembe. Is this a safe procedure?
April 15, 2012
15/4/2012 – URGENT
I put the ACLASTA injection on 15/3/2012 (third time).
I just learned that I have an abscess inside the upper gum and must do root canal treatment after taking antibiotics for five days to reduce the infection and pain.
DO I AM ALLOWED TO MAKE A ROOT CANAL TREATMENT.
Thank you very much
December 4, 2011
I have taken Reclast on sept 15, 2011, I have
Been experiencing sever swelling, itching, hives,
All over my body, but mostly my eyes where
They swell shot, my hand, arms, legs, it moves
all over my body. I have been taken Antihistamine ,
And Steroids directed by family physician and Alergest.
To date I had no relief !! Please let me know
How long i have to endure such a painful experiense!!
I have lost days of work because of this shot.
May 10, 2012
Did you ever get a reply to your question about Reclast and how long it stays in your body. I, too, am suffering frm hives – been going on for 3 months now. Taking antihistamines steriods etc.
thanks
September 22, 2011
I am very unsure about taking drugs. The doctor’s have advised Raloxifene, as I don’t want to take anything else.
August 10, 2011
I called Novartis today and gave a report on the side effects I’ve had since taking Reclast in June. The woman told me someone from the company would contact me and my doctor. She also said she’d not had a call about these side effects before(she must be new at her job!)
I then called the FDA and that woman told me she’s taken many reports on side effects from Reclast and couldn’t believe the Novartis woman said what she said to me.
So I ask you all the call both Novartis and the FDA!! They need to have this information.
Thanks,
Paula
December 4, 2011
Paula,
Would you please send me the Company and
The FDA phone numbers?
Thanks,
Huda
February 18, 2012
I’m sorry but I haven’t looked at this site for so long I didn’t see your request til now. I just googled the drug company and got the phone number that way, same for the FDA.
I still have the pain in my fingers, less in my feet, but in general i know this drug has hurt me in ways that have made me very sad. I keep trying new ways to feel better. Mostly I just pray that time will heal me too.
August 18, 2011
Paula,
Could you please send me the phone numbers you have for the company and the FDA?
I would really appreciate it.
Thank you
Anne
onthefarm@prodigy.net
August 6, 2011
has anyone found something that helps with the severe pain in feet, hands and generally awful muscular-skeletal pain throughout the entire body from Reclast?? I had my first injection June 24th and I have never experienced pain like this on a daily basis. I just started taking a generic form of Voltaran orally-it’s an NSAID. It relieves some of the pain for a few hours after each dose-but the pain is so depressing. PLEASE-any suggestions???
April 2, 2012
I took Neurontin for my pain issues about 5 yrs and it has many uses, neuropathy is generally related to Diabetes, however the Neurontin is used in pain management settings for patients and I did get relief from my muscle spasms and nerve pain, in addition to having Fibromyalgia now as well. Ask your physician about this med and also, chiropratic/yoga daily/massage therapy can all be useful and helpful. Good Luck, hope this helps. Forgot to mention, Botox injections are used widely now for pain management, & I suggest you find either a D.O.(Doctor of Osteopath) or a physician who is a Doctor in Medical Rehabilitation trained in nerve conduction studies, specially a Physiatrist.
October 29, 2011
I had a reclast IV in late Feb. 2011. After feeling
like I was run over by a train for two days, the pain
did go away but within a few months other aches and
pains started developing that I didn’t realize could
have been connected to the reclast. I had surgery for carpal tunnel syndrome, was sent to P.T. for back related pain, which only made things worse, and diagnosed with anxiety. The Dr. recommended pain
management, my internist recommended me to a Rheumatolgist, and my knee Dr. thinks it could have
something to do with neuropathy and has recommmended a
nerve conduction test. After all I’ve read about the
side effects of reclast I’m thinking that must be the
problem with my body since no Dr. can come up with
any other reason yet. I intend to tell them all about
the “side effects” that I’ve read and hope for some
resolution to my problems.
May 16, 2013
Hi I too am suffering from side effects from reclast. I had my third injection in December of 2012, had the normal cramping in the back of my legs for 24 hours, but this time I started having back pain a few weeks later, never thinking it could be related to this injection. I literally could not walk for about 6 weeks without help, dragged my legs by my pants to get them to move. It went from there to my arms where it has been for more than 2 months now. Thank goodness I had a doctor that listened to me She ran every test possible to try and find out the cause and finally agreed with me it had to be the reclast. The only thing she could find is inflammation in the muscles. Not much helps. It gets bearable once in a while and then hits hard all over again. Not to many pain meds seem to help. Hoping this will go away as the reclast clears up
May 16, 2013
Linda, I am so sorry to hear that you’ve experienced those effects.
If you want to get the Reclast out of your system sooner rather than later and start your path to healing, I encourage you to look into Rapid Cleanse. 
You can read about it here:
http://saveourbones.com/rapid-cleanse/
I wish you health!
July 30, 2011
I used to take fosomax and actenol at that time no body say any thing about it,but my doctor prescripet for me again because the bone density is bad now after I took prednisone for 8 months. I like to use natural things for bone density now, if you have any suggestion let me know, thanks.
April 2, 2012
Sorry to hear about so many things going on for you..You asked for natural bone density, take Vitamin D3 1200 at least 2 x daily along with drinking Milk that is Calcium fortified, like Lactaid brand for Lactose intolerant people, also drink Coconut milk which has even more calcium than regular milks…In addition to your D3 supplement, a regular routine of Calcium 1,500 mg daily should be most helpful. I have had osteoporis for almost 6 yrs and Fibromyalgia, these are the natural things I do daily and have been given the blessing from my physicians…Bless you and good luck, hope this was helpful!
July 1, 2011
I had bone density test today; told I have osteopenia. I am royally confused! I have a hard time believing all this negativity, most written by people who have NO skills in writing and punctuation as to seem like made-up tales supposedly by poorly educated ‘common people’ rather than educated persons who have done their homework. Where my health is concerned, I prefer the educated comments.
May 22, 2013
I just had a heart attack 4/8/13. What a shock as I have no family history of heart disease & my cholesterol, blood pressure, etc. were normal or below normal.
I have read all the comments up to this point & was very surprised that I have just about every side effect people have listed
Had my one & only infusion about 2 years ago & am still suffering with hip,bone & muscle pain. The extreme fatigue is unbearable. If i’m lucky my laundry & house cleaning gets done once every 4-6 wks. I’ve become a recluse which is causing depression.
Most recently I am experiencing A-FIB which starts every evening, so i am now taking flexeril at night to relax the heart muscle along with all the new cardiac meds. that I am now on so I can get some sleep. I now am convinced that I will never be the same since the reclast infussuion.
To those of you whom have had no lasting side effects I am elated for you, but please keep your negative comments to those of us who continue to suffer.
January 23, 2013
The “common people” who have written here are in deep anguish from pain associated with their reclast infusion..perhaps their hands hurt, maybe they feel awful all over and can barely think straight..severe pain has that effect on some. I think I’m intelligent enough to know you shouldn’t be on this site putting people down who are hurting. Good for you,you only have ostopenia, try osteoporosis and then a potent drug reaction, then slip into our shoes. I believe I had good diction, punctuation and spelled everything correctly. Shame on you! Beverly, 64 and suffering with the others…
May 22, 2013
Writing & punctuation have nothing to do with side effects from medications
You truly are an ignorant person!!!!!!!!!!!!!
September 14, 2012
Sorry I don’t see it your way about the people writing on this site but what seems really suspicious about all this is that this site promotes the sale of other meds and methods and all the posting is negative. ? I use it and feel fine. I did a lot of research and have doctors that did the same before they recommended the Reclast infusion and my decision was based on that. We just love to blame our doctors and pharmaceutical companies when things don’t go well for us. We must do the work and be very clear about our selections in therapy or medication for our individual conditions.
August 25, 2012
Pain has no respect to the educated or uneducated . Some just know how to express it more clearly.
January 23, 2013
Amen Patricia…
June 25, 2012
sorry if the people who are suffering from this is not trying to use there perfect writing skills. I tell you what smart ass. go get the reclast, Then use your writing skills to tell us how you feel. I can’t wait. I am 52 yrs old, beat not one but two types of cancer, raised 2 children in the mist of all this and lost my husband. So, i truly don’t have much to complain about. Except the poision i let this dr put in my body and lied to me about it. Please Please go get it done. i’ll give you my e-mail address christinelebeouf@gmail.com I can no longer live day by day, not even hour by hour, more like minute by minute. You wanted an educated comment, bitch you got it.
June 3, 2012
I AM an EDUCATED person! You say there is so much negativity in all the comments! You should listen to these people, they took the time to warn others. I had the reclast done in 2011, and have lots of unexplained pain. I am 53, and feel like I should be 73! I can’t hardly walk anymore. It has ruined my life. So go ahead “Miss Educated”, take the stuff. In about 6 months or so, see if you haven’t aged 20 years.
January 23, 2013
Lena, I applaud you, you told her way better than I did!
June 25, 2012
i agree, just wrote her a piece of my mind. body and soul. takes alot to get me upset, but this b…. did
April 4, 2012
These are exactly the people I want to hear from. Who cares if they punctuate, spell or say things as precisely as you. They are living this apparent nightmare.
I want to read these stories because my sister who is sickly and weighs only about 70lbs was told to get this treatment, and I want her to be aware of what she might have to cope with. I personally turned it down several years ago because of the stories I read, but I wanted to see if there was any change or improvement since then. Obviously there isn’t.
Okay, is my punctuation correct……you pompous A__!
Keep going real women…..
February 24, 2012
I have taken Fosamax, and Although I may not be as educated as you, I can asure you, that the pain is real, I took myself off the medication and the bone loss accelrated. I am fighting back with the gym and plenty of calcium, vitamin D3 and K. Sorry if my punctuation isn’t correct but these happen to be TRUE FACTS and I don’t care whether you choose to believe or not.. Uneducated in Missouri
July 15, 2011
First of all, we could try kindness and compassion. Many, many people here are elderly and do not have the benefit of education -outside of their life experiences.
I prefer to hear what they are going through, and am educated enough that I am quite capable of deciphering their effort, their words.
Thank you.
P
May 26, 2011
According to a Johns Hopkins’ health alert Reclast also increased the incidence of atrial fibrillation in women.
May 26, 2011
well its over 3 mo now & iam still in thw worse pain you could emagin ,all from the reclast infusion i had on feb.3 2011. iam so scaired moor things will pop up. my hair is fallinout,brest pain ,{xtreme pearcing head pAin witch comes & goes usualy followed by a headach. & once & a while a breef second ofa black flash where the eye witch experanced the stabing pain accured in. iam tired & if i try to move around to much ,>y pain increes tpo the point all i can do is hope for a bit of sleep. the pain in my long bones witch feels like the bones Are about to explode has now travled to my joints . all & all my life is just not of any quality worth anything… iam at my wits end reading all sots of info on reclast & others reactions . sick of the runaround from the reclast co. dissapointed they will -r cannot help my dr. help me. and so angry iam about to blow up…. iam only posting this becouse i feel as a human to human my reched experance will not happen to any one else.any one with help? reclast was BAD for m
June 25, 2012
same here, where r u from? i live in ms. i am facing all this alone. I am 52. i feel like 80 Ihave been trying to find a lawyer to help all of us. Maybe u can do the same. my e-mail address is christinelebeouf@gmail.com hope to hear from you soon
April 7, 2011
vivian i took the reclast shot for one year i was suppose to have another one last october well i read all of your information and i said no way will i ever take it again well now i want to have two theeth implantsand because of the reclast i dont know rather to have it done or not . do you know how long this stays in your system ?also i am on zocor do you think i should get off of that also my ldl is 65 iwant to get off all my meds because i want my bones to get better please answer my question. thank you bea
April 7, 2011
Hi Bea,
Please check out my blog post about what happens when you stop taking osteoporosis drugs: http://saveourbones.com/stop-taking-osteoporosis-drugs/. And if you’d like to cleanse your body of the Reclast more quickly, check out my 7 Day Rapid Cleanse.
I can’t comment on Zocor specifically, but all drugs are acidifying. And although drugs may help temporarily in some situations, unfortunately there’s always a price to pay.
March 31, 2011
Today I took particular notice of the advertisement for Reclast. I coldnt believe the side effects. thankfully I have never taken any drugs. I try to follow the Save Our Bones program and do my strengthning exercises. Kathleen
March 20, 2011
Hi Vivian
You sent me an e mail on March 17/11. How to Test Your Bone Health At Home.I lost that e mail so could you please send it to me again..
Thanks for all the e mails they are very helpful. Ruth
March 18, 2011
I had reclast last year and suffer from extreme pain. My life has not been the same since taking it last Spring. I have been quite upset and tried to get someone to take it seriously, but to no avail. I tried talking to the drug company them selves, even my doctor has. I sent a complaint and have no response from the complaint. I spoke with a woman who took my information and this company soes not take any responsibility what so ever. I wish I knew before I took it. Thank you for all you do. Elizabeth
April 27, 2012
I took my infusion of Reclast on Feb. 18, 2011. It was the worst decision of my life. It is know 14 months later and there is no let up on the pain it has caused my body. My legs are the worst. They ache and burn all at the same time. It has also caused joint pain that has been migratory. It also caused popping in my jaw that I never had before. I have all my doctors scratching their heads not knowing what to do for me. My internist has ordered numerous blood studies that come up negative. Although one showed a concern for my kidney function the next blood panel was normal. I was truly concerned when I read about the problems some people were having from Reclast. My endocronologist wants me to be seen by a neurologist and have a nerve conduction test done. I said hell no! My nerves are fine this is all from the Reclast. When the weather is threatening to rain it is even worse. This drug has caused me unending pain that does not let up even if I take asprin or Tylenol type drugs. My biggest concern is that it is permanent. The cherry on top of the agony is that my last bone density reflected no improvement from the Reclast. I have never wanted to sue anyone as much as I do Novartis. I called several times with no help or advice from them. Maybe its time to form a class action suit against them. I’d be in favor of that.
April 7, 2011
had a reclast infusion on feb.3 & have spent the last 2 months in constant unbarable pain . no meds have helped. my dr. is frustrated. the co. refuses to do anything to help me &all they respond with are request for moor test. they dont even give the curt. of calling my dr.back. he has chased them down & so have i ,but receive NO HELPFROM THE RECLAS CO. all i can do is rest & hope for some resolve. my life has come to a brick wall of pain. feeling like a big lab rat at the expense of my life , $ spent on testing ,dr. apts &~drugs witch do not give any relief. the reclast co. is shamefully unresponsable to my need for help with this problem caused by there bad drug. louise
April 7, 2011
I’m so sorry you’ve been a victim of this drug, Louise. You might want to take a look at my 7 Day Rapid Cleanse, which is designed specifically to speed up the elimination of the osteoporosis drugs from your system.
March 17, 2011
Now, I don’t take any drug for osteoporosis,
just fllow the Save our bones program, the nature way. Thank you for your information.
March 15, 2011
Will oral Hyuronic Acid make me too acidic, or does it become alkaline through digestion? I find it helpful for my joints.
Thanks
March 15, 2011
This information is so one sided it should be considered propaganda. What was the kidney function of the patients before they were infused. I wouldn’t trust information from someone selling competing products such as this book. Beware of where your information comes from. Reclast is a good drug, helping many many people if given correctly.
August 31, 2012
I don’t know how Reclast could be given incorrectly but since my infusion,July31,2012,I have been in horrible pain. It started out as a sore throat then my ankles ,feet,hands ,fingers,wrist, elbows.knees ,shoulders,neck and on each side of my head. I guess that includes my whole body.I have an appointment with my Rheumatologist next week,Sept.2,2012.This pain is real and doesn’t seem to be going away.I hope There is relief in sight for all of us. God Bless !
February 25, 2012
my husband lies in ICU on life support 6 days after being given RECLAST, had to have exploratory surgery due to side effects of stomach and intestinal distress…now has developed ARDS and in critical condition…ARDS IS ACUTE RESPIRATORY DISTRESS SYNDROME, some call it ADULT RESPIRATORY DISTRESS SYNDROME. this is a secondary infection or devastating condition of the lungs…GOOGLE IT AND BE PREPARED TO BE SCARED after reading the info available on this. oh, by the way, my husband developed kidney trauma also, got down to 27 percent function only. my husband also had severe pain thru out his body in all muscles and bones and joints…all the way down the hall while being wheeled to emergency surgury to relieve the distress in his gut. AND BECAME SEPTIC AND WENT INTO SEPTIC SHOCK!!! THERE IS MORE TO HIS STORY, BUT ALL HE WANTED WAS STRONGER BONES BECAUSE HE COULD BARELY WALK ANYMORE..I PRAY, AND EVERYONE THAT KNOWS AND LOVES ALBERT DOES ALSO, GOD HELP ALL MEDICAL PEOPLE INVOLVED IN SAVING HIS LIFE FIND THE WAY TO DO SO QUICKLY…”WE LOVE YOU ALBERT, BLESS YOUR HEART, BLESS YOUR LIFE, BLESS ALL THOSE HELPING…” THANK YOU, JENI………..
June 8, 2011
you my friend sound alot like a co. plant from reclast! YES you do ,Or perhaps a plant from the FDA? they realy shouldent have allowed this reclast drug on the market. i know we ,The people with life changing reactions, are only a # to you,perhaps just the cost of doing biz. but let me tell u my pain is real ,it is every day all day all night with NO RELIEF. the pain only gets moor intense & now along with my long bones its in my joints. i havent been able to do a thing since my reclast infusion feb 2011. thats a lot of life to lose… if you serach around on any sights out there u will find so many people with even worse reactions than mine , so many it will make you sick to think our gov. allowed this tragic drug to happen. you may read alot of bad reactions here becouse we need help. we are searching for any answer. i for one m so mad & so terrified i will look at almost any straw of hope to rid my body of this . just hope you arnt a plant . that would make me realy sick. if u r. ell them iam still in pain
March 27, 2011
Interesting response, did you say that you worked for that drug company. Just make sure you do your own research on this drug before you go ballistic about conflict of interest bias.
We are all capable of making our own minds up on things not taking just one side of things.
March 18, 2011
I have nothing to sell. Never had any signs or complications with my kidney or liver and within 10 hours after this drug infusion, it felt like someone was twisting my bones without relief. I can not say anything about other people and the use of this drug, but I can say that this drug drastically changed my life for the worse. I have had chronic pain for almost a year now. The last month I have finally started to tolerate the level of pain compared to months of extreme pain where the swelling, bone pain and muscle aches were unbearable. I think that yes, it is true some people do use propagana, but I will do anything in my power to NEVER use this drug again.
March 15, 2011
It is one thing to question the efficacy of certain reports but it is another entirely Not to question how drugs, which have at the heart of their very constituents the same stuff which is in Tide washing powder etc., could possibly do a human body any good whatsoever. Unless that is if one is used to consuming dregs from sludge as in some of our foodstuffs such as trans fats, soya protein from GM, glucose syrup etc., in which case one can always find a justification to suit an argument!
March 14, 2011
Hi! Vivian,
Thank You VERY MUCH For Telling Us About This New Caution With RECLAST. I’ll Let My Doctor Know About It, And Get Him To See That Warning Labels Be Put On This Product!
LOVE, MS. L.
March 14, 2011
I also took Atonel a long time ago and it made
my wrists hurt so bad I could not drive and
only took it for 3 weeks but it was in my system for several months. I am glad I stopped.
I also took fosomax last year in 2009 for about
3-months and it made my hair fall out and made
real big parts so I had to get a wig and it was
right before my sons wedding that my hair was
starting to grow back in becdause I had stopped
taking it 4 months before that and it took almost a year before my hair got strong again. The atonel also gave me neck pains especially
at night when I was sleeping. My doctor who was
a RH at the time who prescribed it to me the
fosomax because I had osteoporsis did not care
when I told him I read and researched it and
found out that the fosomax was the cause of
thinning hair.I also had chest pains and just
stopped taking it and he did not comment when
I told him I had chest pains also. My hair
Thank God did come back to full strength in
about a year with expensive shampoos that even
the nurses buy due to side effects from certain
drugs.Women cannot be bald like men,I am sorry.
My new RH doctor wanted me to take reclast and
I told him that I did not want to take any more
pills for the bones. I will take my changes with just calcium & vit-D and as much as my
doctor tells me to take. I also eat the right
foods and I drink a lot of milk and yogurt. I
was also on Prednisone heavy doses for almost
2-years and had 3-replacements of joints because I listened to the doctors. I ended up
getting Avascular Nercrosis from the steroids
the orthopedic surgeons told me.
You can’t get worse than that for replacing all
3-joints in 2 years plus the 2-hips were 5-mo’s
apart.
I am just weaning off steroids (Prednisone) now.
I am down to 3mg.
Carol Malesky
March 14, 2011
Has this been found in women who only had it once? I had it in 2008 but nothing since.
March 14, 2011
I am currenty on Forteo (injections). I am getting so concerned about all these medications and side effects. I really want to trust my doctor but..I just don’t feel good anymore.
Thank you ,
MeMe
June 7, 2012
I got an acute gastritis/esophagitis from Fosamax after 9 months though I did everything right. I did the Forteo injections for the maximum two years and I never had a problem. I never had any side effects.It stopped my bone density decline and actually did some rebuilding of my bones. I would take it again if the FDA allowed a longer period of time on it. Then I took Evista and had an allergic reaction after 6 weeks- it has blue dye in it which I am allergic to[the dye is considered to be an inert substance so I didn't even know it had it in it until I searched the Web when I started having mouth sores and other symptoms]. I have been off any drugs for almost 3 years. Now my bone density is declining again and all they can offer in Reclast [or a new drug-denosumab, which has no track record because it is new]. I am grateful for the information supplied by women on this Website as I try to figure out what to do. I am already doing all the non-drug recommended activities.
April 8, 2013
Did you see my response if January and February 2013?
What have you done? . You and I have similar skepticism about taking Reclast after the Forteo. Like you, I had no side effects that were serious or long lasting with Forteo and it did have some beneficial effect., but this Reclast seems to have prolonged and in some instances, quite severe side effects. I am still wondering what to do.
April 9, 2013
Hi Charlotte,
Are you not sure about whether or not to take osteoporosis drugs? That’s what I am getting from your post. The Save Our Bones Program is all about drug-free options to treat osteoporosis, and I hope you will take some time to look into the alternatives before choosing to take drugs. Of course, the decision is yours, and the information you need to take the “road less traveled” is available on this site and in the Program! Best of luck to you regardless of your decision.
February 27, 2013
What have you decided now to do? It’s been over eight months since you wrote?
I am still undecided as to whether now to take Reclast -(highly recommended by my physician and endocrinologist.). As I said in my posting, a continuing degradation if my bone density continues, since my Forteo course of two years .. Completed end of June 2010. …… And my refusal to “lock-in” the minimal improvement with the injected bisphosphenate, Reclast.
January 24, 2013
What has been your decision re Reclast?
I have taken the maximum Forteo two year course. Results were mixed, but overall a slight improvement. Due to reluctance to follow up and “lock in” the slight improvement with Reclast ( due to very discouraging side effect info) I let two years pass, until now. New bone density exam reveals worrying degradation of spine particularly. No other drug with large scale use is available except Reclast. Dr. has been forthcoming about possible fever like symptoms, pain in joints,etc. “all will go away with Tylenol” and” don’t plan giving a party for 4oo that night”!
I was on Fosamax for seven years,and stopped after problem with minor jaw locking. My decision entirely- medical practitioners seemed unperturbed and unwilling to look at Fosamax as possible cause.
What other things have you looked at? Do nothing, and wait for further degradation? Exercise judiciously, but regularly…. What else is there that
is not without risk? The horrific side effects suffered by people on this web site are extremely discouraging, no?.
In joints
March 14, 2011
I take prednisone daily for A auto-immune disorder ,how do I get awary from the side efects,and save my bones. please help me if you can ?
March 14, 2011
Just wondered if anyone else had seen on TV an annoucement that women on fosimax lived a long life. Wondered what Vivian thought about this announcement
May 24, 2011
I took Fosomax for only 3 weeks.. those 3 weeks i cried everyday because i hurt so bad… I’m scheduled to have a reclast infusion later in the week.. I need something that is gonna work…
January 30, 2013
dont take these drugs they are deadly they will even make bone worse .
check out reverseosteopenia.com
try weight bearing exercise it helps very much
May 25, 2011
Hi Mimmy,
I’m sorry you’ve had such a rough time with Fosamax, but I’m glad you’ve stopped taking it. Before you get the Reclast infusion, you might want to read my recent posts about it: http://saveourbones.com/new-reclast-side-effects/ and http://saveourbones.com/reclast/
March 15, 2011
What would you consider a long life? This drug hasn’t been out long enough for anyone to declare that people live a long life from taking it.
March 15, 2011
I read in the first comment here, questioning someone being concerned about a statement made and who wrote it. Now, don’t you just wonder who wrote an announcement about living longer, taking Fosamax.
My guess is that it came from the drug company.
You might believe it; not me!
March 14, 2011
I did shots daily of Forteo for 28 days and I started getting nausiated every evening at the same time. I quit them and became ok gradually. I just tryng your diet and vit. and herbs. I am 64 and doing fine without the drugs. Brenda
March 14, 2011
Thanks, Joan; I guess we both learned something today! Funny, I never even thought to google the acronym. Now to find the shoes…. Probably costlier than I’d like, if I can find them.
March 14, 2011
My doctor tried to convince me to take Reclast – SO glad that I didn’t. I’m trying to keep osteoporosis under control with diet, exercise, and vitamins. It is so disgusting that doctors mislead their patients.
March 14, 2011
I received reclast injection 2009,2010. I have suffered from all the side effects except jaw problems. I have had kidney problems ever since. The Doctor ignores the cause and can’t help me.
March 14, 2011
OMG! I was given Reclast as treatment for osteoporosis just before finding your website, Vivienne. I had horrid flu-like pain that traveled through my body for 5 days. The final pain was behind my eyes which was the most severe. For 5 days this injection put me in bed. My ob-gyn, family doctor, two parathyroid doctors, and an osteo/rheumatologist doctor all gave me thumbs up. I switched to your vitamin practice and I am presently using diet to help me. I am praying this works; between your Save Our Bones website and book and Dr. Joel Fuhrman’s eating philosophy/books.
March 14, 2011
OK, someone tell me, what are MBTs? I’m clueless, always willing to learn.
March 14, 2011
Jean, I googled this Acronym. It means
Masai Barefoot Technology. The company states it was born in 1996 when they discovered that natural instability can have positive effects on the human body. They made this discovery by observing the Masai people walking barefoot on natural, uneven ground. Seeing these people in action made them realize that the human body is simply not designed to walk or stand on the hard, flat surfaces of modern society. So they set out to develop a new kind of footwear, one that would mimic walking on soft, uneven ground. The results were dramatic. MBTs are now sold in more than 55 countries around the world. The company is based in the United Kingdom. I don’t know the company’s name. Even on their website. It’s uk.mtb.com.