The year 2009 has just begun, and it looks like it will be a year of big surprises – at least for the makers of Osteoporosis drugs. New information is opening up the door to many unanswered questions and suspicions about the most commonly prescribed drugs such as Fosamax, Actonel, and Boniva.
On December 31st, just on time to herald the New Year, Reuters reported the following:
Diane Wysowski of the FDA’s division of drug risk assessment said researchers should check into potential links between bisphosphonate drugs and cancer. In a letter in Thursday’s New England Journal of Medicine, Wysowski said since the initial marketing of Fosamax, known generically as alendronate, in 1995, the FDA has received 23 reports in which patients developed esophageal tumors. Typically, two years lapsed between the start of the drug and the development of esophageal cancer. Eight patients died, she reported. In Europe and Japan, 21 cases involving Fosamax have been logged, with another six instances where Procter & Gamble’s Actonel or risedronate and Didronel or etidronate, and Roche’s Boniva (ibandronate) may have been involved. Six of those people died.
The article also comments on the known fact that these drugs can cause “esophagitis, which is an inflammation of the lining of the tube carrying food to the stomach…which is why patients are instructed to remain upright for at least a half hour after taking them.”
As if this were not enough, on January 2nd 2009 The New England Journal of Medicine
(Volume 360:53-62) published an article titled “Giant Osteoclast Formation and Long-
Term Oral Bisphosphonate Therapy” by Robert M. Weinstein, M.D., et al., that seems to shatter everything we were told about how these drugs work.
Until this study, bisphosphonates were believed to destroy osteoclasts, the crucial bone cells that remove bone so new bone can be deposited. But now – and I’m quoting from the article’s conclusion – “long-term alendronate treatment is associated with an increase in the number of osteoclasts, which include distinctive giant, hypernucleated, detached osteoclasts that are undergoing protracted apoptosis.” And to make matters worse, nobody knows what these strange cells can do!
And last but not least, even though it is a known fact that bisphosphonates can cause osteonecrosis of the jaw, few expected the definitive study in the January 1st issue of Journal of the American Dental Association stating that “even short-term oral use of alendronate led to osteonecrosis of the jaw.” According to Science Daily (January 2, 2009):
This is the first large institutional study in the U.S. to investigate the relationship between oral bisphosphonate use and jaw bone death, said principal investigator Parish Sedghizadeh, assistant professor of clinical dentistry with the USC School of Dentistry. After controlling for referral bias, nine of 208 healthy School of Dentistry patients who take or have taken Fosamax for any length of time were diagnosed with osteonecrosis of the jaw (ONJ). The study’s results are in contrast to drug makers’ prior assertions that bisphosphonate-related ONJ risk is only noticeable with intravenous use of the drugs, not oral usage, Sedghizadeh said. “We’ve been told that the risk with oral bisphosphonates is negligible, but four percent is not negligible,” he said. The results confirm the suspicions of many in the oral health field, he said. “Here at the School of Dentistry we’re getting two or three new patients a week that have bisphosphonate-related ONJ,” he said, “and I know we’re not the only ones seeing it.”
I am really not surprised that this information is now divulged by mainstream medicine because sooner or later, as in the case of Vioxx, the truth will be known. My heart is with all those who are suffering the horrible consequences of being human guinea pigs. As the list of serious side-effects of bisphosphonates continues to grow, I hope that those who are given a prescription will question its value and at least try to discover the truth about these drugs and seek a safe and natural alternative.
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May 30, 2010
Hi Vivian
I have been taking Fosamax since 2003. I also take a large dose of calcium every day. A dislocation in my back causes me quite alot of difficulty.I cannot exercise and walk as much as i used to.
I also notice difficulty in swallowing, and have to drink alot of water to get my food down!
Is it safe to STOP Alendronate at this stage?
SUJATHA
May 21, 2010
I agree with you re: the potentially negative effects of these pharmaceuticals. However, I would also like to hear your perspective on Forteo which is a different approach. It is a teriparatide developed & marketed by Lily.
My wife has (had) an osteoporosis condition so severe that a minor backyard fall shattered her L1 & did other major damage resulting in 3 surgeries in just a 9 day period. Post surgery her last Dex was 50% WORSE than the previous 6 month scan even tho she has been on mega doses of Calcium carbonate (I now know this is not the “GOOD” calcium) and substantial doses of D3.
She is in such chronic pain & fear of additional fractures that she is bedridden 50% of the time. Please tell me what you know of the functional mechanism & methodology of the Forteo medication, as we are currently trying to evaluate it. She has been taking it for a couple months now. Thank you very much for your work, Viv
Max Bennett
March 30, 2010
I recently had a baseline bone desity at age 50 and the results showed Osteoporosis! My mom has it and my bone doctor has ordered a MVI, Vit D 1000, and continue with my Soy milk and yogurts, as well as strenth training and walking(which I already do). I am confused as what I should be doing in regards to the milk?Yogurt? Vitamins? Any help?
February 23, 2010
I am a rheumatoid arthritis patient, have been receiving Remicade infusions for about a year. just recently I am diagnosed with ostoperosis. the scan showed 4 stress fractures on top of each other.My doctor suggested that I take forteo and I do not agree with his suggestion. my question, in your opinion, am I forming a bad relationship with the doctor, or in your opinion,does this decision make me a “bad person”? I am female, 73 years old, need response.
February 9, 2010
my mother always said ‘you are what you eat’
February 8, 2010
Re: your last paragraph on the “Bad Start for Osteoporosis Drugs”, I did doubt my doctor’s prescription for Fosamax, when he wrote it for me. By questions, searches and luck, I ended up in a clinical trial that compares results between Reclast and Fortero (double-blind study). I will send an update to your website comment list in about 8 months when I am near the end of the study.
People, check your states and local universities for these clinical studies. They may help you.
February 7, 2010
What can you tell me of the shingles vaccination and the pnumonia vaccination that is recommended for elderly people?? Thanks
February 8, 2010
I just received the shingles vaccination this last Friday, because it was offered as part of a TARP program in our state. I had one mild bout of shingles 4 years ago, will not court having another. No reactions. Just like a flu shot.
The pneumonia shot is even more important, especially if the person is older, less active, and on his or her back a lot. Pneumonia is more pervasive in hospitals and care homes than chicken pox or shingles!
Get the shots if you can.
January 21, 2010
I have taken bisphosphonate drug Aredia for metastic breast cancer to the bones for 10 years. I have fractured both femurs in last 3 years and am learning it is the drug use that is causing fractures in other womens femurs. Those were takin Fosamax for osteoporis and there is a support group and all in the group have had femur fractures after long term usage of the bisphosphonate drug.
December 9, 2009
I need to gain weight. I am 5 ft. 4 inches and weigh 106. The wonderful alkalizing diet is great for losing weight. But how can I gain a few pounds?
November 18, 2009
My doctor took me off Fosamax for a year after a diagnosis of colitis. My number was -2.5 at that time. I have since developed growing pain in my shoulder and hip and an x-ray showed no broken bones but a demineralization of the area. He had me taking 4 calcium pills a day during that time. Can that cause the pain? My doctor insisted that I go back on Fosamax this month. He is urging Reclast due to my colitis. I am very nervous about doing this.
November 30, 2009
YOU DO NOT WANT TO TAKE RECLAST
IT CAUSES LOW PLATLETS…I HAVE DANGEROUSLY LOW PLATLETE COUNT SINCE I HAD THE INFUSION.
THIS IS NOT LISTED IN SIDE EFFECTS.
I KNOW SEE A HEMOTOLOGIST BECAUSE OF THIS.
November 15, 2009
Since I’m in a wheelchair & can’t walk, will this program work for me. Drs. want me to try forteo, but this wasn’t tested on someone like myself, only mobile persons were tested.
Thank you
October 23, 2009
Dear Vivian,
I have severe osteoporosis of the spine and osteopenia of the hips and have recently come off fosamax which I took for about 6 years. I have had 3 ops for prolapse so the jumping exercises may not be the best thing for me – also I have spondylolisthesis and a previous spinal fracture.
October 8, 2009
Hi,
why do you citicise the author, her book & her website? Are you a doctor, pharmacist or did you have a positive result with this drug (Reclast) yourself?
I would appreciate some information.
Many thanks! Trudy
August 2, 2009
I live in Australia where the Aclasta infusion has recently become available on the Pharmacutical Benefits Scheme. Thus being given now to the general public.
I was told that after having approx 3 (yearly) infusions I would most likely never need anymore infusions for the rest of my life.
This encouraged me to have the procedure but the after effects I had were quite severe and I wonder if this is ‘normal’.
I was told I may experience flu like symptoms, which began almost 6 hours after the infusion but proceded to make every part of my body sore. I couldn’t even bear the covers on my bed to touch me. Also I had a slight tightening of the chest.
These symptoms decreased over 4 days but I still felt very unwell and proceeded to get a head cold which then lasted another week.
July 24, 2009
THESE DRUGS ARE MAKING PEOPLE SICKER AND TAKING ALL YOUR MONEY. WISE UP PEOPLE! DO WEIGHT WORKOUTS AND LISTEN TO VIVIAN. MY MOM LIVED TO BE 95 TOOK NO DRUGS JUST WALKED A LOT EVERY DAY IN THE SUN AND CARRIED HEAVY PACKAGES ETC FROM THE STORES . SHE WAS STRONG AS AN OX AND HER BONES WERE GREAT !!
May 12, 2009
I was told over 10 years ago I have Severe Osteoporosis. My Dr prescribed miacalcin nose spray, I used it, then was also put on Fosamax with it I took it, had severe esophgeal problems, have had it stretched 2 times now, then was put on Forteo injections, did that for 2 years and hung over the toilet like I was going through chemo treatments it was SO bad, was through with that then He wanted to put me on Actonel, I finally read Vivian’s book and told him enough already and stopped going to him. I treat myself now and feel better. I take calcium, magnesium citrate liquid naturally blueberry flavored walk when I can take 1000 mg of Vitamin D3 and think to myself I’m 53 and I will not be told what to do by a Dr that could care less about how I felt on all that. Thank you Vivian for all your research. My husband would refuse to ever let a Dr treat me that way again and think the getting sick was “all in my head”!! Jane Broderick
May 5, 2009
I cannot BELIEVE the number of people who just take what their doctor recomends without doing any research or even asking their pharmacist about possible side effects! Now, with computers available to anyone, I do not understand why everyone does not google (drug name) side effects and check for themselves.
I get Dr. Mercolas’ newsletter and he had an excellent article relevent to the subject of osteoporosis ” The Miracle of Magnesium” by Dr. Carolyn Dean. Have you seen her research? She recomends starting with a 1 to 1 proportion of calcium to magnesium and my altrenative practitioner verifys that he treats bone density problems with magnesium very successfully. He uses muscle testing to verify frequency and dosage.
Ruth Wilday
January 21, 2010
Ten years ago we were not aware of researching out what the doctor prescribed for us. And once you have the bones that keep fracturing it is little to late for herbs only! I do believe in naturalpathic medicines but there is also a place for pharmeacutical medicine. Depending on your disease. I have breast cancer which has metasized to the bones really don’t think magnesium is the solution to my problem.
April 30, 2009
Dear Vivian
Is it possible that after stopping Actonel some four months ago, on reading your site, that the upper back pain I have developed is a side effect of having taken it for 3 years. The pain is very strong and is mainly neck shoulder to the left and down the left arm, and it is the first time in my life I have suffered any form of back pain. (I guess I am lucky). I have had to visit a chiropractor which has helped, he said it is a joint but that I have muscle spasm which has to be dealt with first. Is this just tension which has built up, or could it be related to having taken Actonel once a week for 3 years. (The pain is unbearable without painkillers). I do thank you so much once again, and hope for a reply to my email address preferably and on line too for others to see. thanks again
April 25, 2009
I have received your book and read it at one sitting. I have been prescribed Fosamax and taken 3 doses, but will take no more. However, I am in a pickle because of diet retrictions (cancer survivor with soy restrictions, also). As I read, it seems this diet is essentially a vegan diet, but without the use of grains (the exception being millet!). The 80/20 recommnedations for a meal seem almost impossible to achieve. Are there any courses or dietitians out there who could help with this? For the time being I am stopping drinking any large amount of milk, using yogurt regularly, and reducing the amount of animal protein and upping my exercise. I have shopped in “Whole Foods” type stores for years now to get rid of additives in our food.
I am 62 with osteoporosis in spine and osteopenia in hip. I have also a compression fracture in spine. Thanks for your efforts to help us all who are living long lives with more problems every day.
March 28, 2009
After being on Fosamax for about 10 years and w/o much improvement in bone density, I am wondering if my bones will ever have any flexibility again if I follow your method. I have suffered 2 broken legs in the last 10 years so I guess I have brittle bones. My spine and hips are -2.4 and -1.5 respectively. Thank you for answering my question.
December 8, 2009
I would appreciate knowing what you replied to these questions.
Thank you
March 4, 2009
Hi Vivian,
Where have you been? We have moved to CO and didn’t know if my emailed followed.
I missed you. Hopefully I will hear from you.
Smiles
Jane
February 21, 2009
Thank you very much for this very informative information. I have shared this with the women at the Curves where I exercise. Sincerly, Linda
February 18, 2009
I just recently had a dexa scan and was diagnosed with osteoporosis. The Dr. put me on Fasomax and the first week I felt dizzy off and on,also felt funny when I laid down. By the third week, which was my third dose,my legs from my knees down had a slight warm numbing feeling. Very restless, expecially at night. Headaches, back ache and horrible neck pain. Went back to my Dr. and he wanted me to get off of Fasomax and start Evista, I read the side effects and couldn’t believe it. It mentioned it could cause a warm feeling in the calves,leg pain,chest pain, back aches, which I have already experienced with Fasomax. So I have decided not to take any drugs and try natural means you have suggested. I have increased my vitamin C with D seems to be helping already.
The next thing I need to do is read your book. Can’t wait to see what else I can do to reverse this horrible aging process. Thanks for all of the info and for every comment I have read that has helped me make this important decision in my life. I am an active 62 year old and want to stay that way. Jane
January 20, 2009
For those of you in the UK, there was a piece in the press yesterday which says that according to the Nat Institute for Health & Clinical Excellence, doctors are ONLY allowed to prescribe alendronate, the cheapest drug for osteoporosis, even though 1 in 4 women suffer crippling side-effects or do not respond to it.
The article says ” those who cannot tolerate it must wait untreated until their condition worsens by up to 60% before they are allowed alternative medication, which can take up to 5 years”
Apparently the cheapest form of alendronate costs £2.00 per month, whereas Protelos, which causes fewer side effects costs £1.00 per day!
Not that I would ever take alendronic acid after everything Vivian has told us about it.
Kate
January 16, 2009
To Nancy who is taking acisphex for Barretts esophagus. I see a gastroenterologist in Marietta Ga. who has a system called Halo which he uses to treat the condidion. A slender tube is inserted and the patch off Barretts is burned off. When it heals the normal tissue is restored and the Barretts is gone. There is a lot if info on the internet on the procedure.
January 12, 2009
Comment by Vivian Goldschmidt
2009-01-09 01:04:22
Hi Beverly,
It depends on what type of calcium you are taking.
Best,
Vivian
Reply to this comment
Comment by Elena
2009-01-12 23:33:32
Hi Vivien,
I am a heavy coffe drinker myself, and I keep ‘postponing’ my Calcium intake during the day, because I am having more than one cup of coffe.
You are not really answering Bev’s question: can we have coffe with Calcium, how much do you need to wait? Most of the supplements require that you take the Ca with food. Could you please ellaborate on how to take the Ca, carbonate vs citrate and other types? Is the “Tums” a good alternative to the big pills or we shoud avoid it if we have osteoporosis?
Thanks,
Elena
January 12, 2009
At the presnet time, I am taking “Didrocal” by Procter & Gamble Pharmaceuticals Canada, Inc. In November, I had a bone density scan which showed quite serious bone loss. The same test taken by starting Didrocal was normal. As a result, my doctor has now prescribed Fosamax which fortunately for me, I have NOT started to take and with this news, I will go back to calcium citrate which I was taking when the bone scans were normal. Thanks for keeping we lay people informed. Looking forward to receiving your book.
Heather
January 11, 2009
Hi Vivian, Happy New Year! I love your book. I’ll never take any of these drugs they try to push me. As a matter of fact I’m changing doctors.
Patricia
January 11, 2009
Dear Vivian,
I am so greatful to have found you when I was looking for the side effects on
Actonel, which I only took 1 month and didn’t like the way it made me feel. Before I was on Boniva for around 6 months and was swelling so bad that’s when Dr took me off and then I just took myself off it all. After about 10 months I finally feel like the same person I was before all the medications.I’m trying to get my sister off the Fosomax but still working on that one.
Sincerly,
Bless You for helping Others,
Lottie
January 11, 2009
Thanks very much Vivian. I stopped taking Actonel almost as soon as I had read the first e mails from you, however I have taken it for 3 years up until then. I do have, and it is very, very recent, an aching jawbone on one side only right near the ear. I had major dental restorations in May 2006 and have never felt my bite was right (my occlusion), so am hoping it is more likely this causing the pain.
Once again, thank you so much.
January 11, 2009
Dear Vivian,
I just started taking Alendronate Sodium because of a recent bone density test.
My Rheumatologist put me on it. I have severe Rheumatoid arthritis. I sure do
not need any extra joint pain. I am very confused, please help. I do not like
the things I am hearing about it.
Susan
January 10, 2009
These letters scare me. I have taken Boniva for 2 yrs. My recent bone density test shows it isn’t improving my bones. I just received a shipment of Forteo. My Dr. wants me to use it for 2 years, now I’m afraid to start.
I should tell you I have severe Scelosis in my back, it is quite curved but I still do most things. I am 77 yrs. old
January 10, 2009
Good morning,
received your book yesterday and spent the night reading it. Good stuff! I’m 72 yrs. old and was told I had Osteoporosis by my Dr. 3 weeks ago. He made it sound like I’m gonna die if I don’t take his crummy pills. Obviously, there’s a better way and I’m going to try that. THANK YOU.
January 9, 2009
Thank you Vivian for taking your time to research all this. I’m so happy to know that I have not taking this medication. The doctor prescribed Fosomax to me few years ago but after reading the side effect I decided to research it before I start to take it and that’s how I found your web site. After reading the information you are giving us that was the confirmation I need it to trashed the Fosomax I bought. One more time thank you for doing this and may the Lord bless you mightly.
January 9, 2009
There is something very wrong with the osteophrosis diagnoses. It seems incredible that a bone density scan alone determines the present of weak bones. I do believe that medications also play a part in weakening bones; but this does not appear to be a concern of doctors. When that bone density scan comes back from the lab, it is “Bible” to the doctor. I have refused to take any medication for the bone density report of 2.66 reading. My refusal does not please my doctor. I am 73 years old with no other conditions. I eat sensibly, and I exercise regularly, and I feel just great all the time. I appreciate this reasearch from Vivian and will continue to follow up on findings.
January 9, 2009
WOW!! I am amazed with all the reports and various experpeinces people have shared. And I thank everyone who has. I am in my early 50,s and I too ,have been informed of my lumbar,is very low-.0.3. I was also recommended to take Aclasta, or the actonel tabs. But after reading all the reports,,hm hm Yeah, I don’t think I’ll be heading down to the pharmacy for any of those drugs.Not now, Thank-you for the eye opener. whew! that was close. thank-you Vivian,,,,, Faith
January 9, 2009
Have had compression fractures in my back. Very painful. I have been on sterioids for pulmonary fibrosis. (I believe was caused by chemo treatment for colon cancer. also have neuropathy hands and feet). Think that Prednisone caused my osteo. Now they want me to take Fosamax Don’t I have enough side effects from medication. I am 75 years old and was very ac tive and healthy and strong before chemo. Its been downhill every since. Maybe you should check out some of these other medications they give us. I am following your advice and taking calcium supplements and vit. d i get from health food store. Keep up the good work and go get those drug mfgs Vivian.
Helen
February 23, 2010
Anyone being prescribed chemo should ask their doctor about IPT. Most doctors are not familiar with this therepy, which allows a 10% dose of chem to be as effective as a full dose. Much lower, or non existant, side effects.
For more info check website IPTQ.com. George
January 9, 2009
Hi Vivian,
Have been aware of you and your work for several months now. Feel I should have done my research when starting to take alendronic acid, over 2 years ago. My dentist alerted me to osteonecrosis and at that point I stopped taking it and have no intention of ever taking it again. Have felt fine ever since. Doctor definitely appeared miffed at my going against her advice. Never had a problem taking it – no obvious side effects – however, a over a year ago a tooth split in two and it got me wondering why this should have happened and eventually found a dentist who I felt comfortable with, who, fortunately, alterted me to osteonecrosis, as mentioned above. I believe I have read somewhere that alendronic acid can cause teeth so split. I began to wonder whether other teeth would follow suit. I definitely get some unusual sensations in my teeth but my dentist managed to salvage half the tooth as the remaining half was firm whereas the other half was wobbly and had to be extracted. He said that in view of the alendronic acid I had taken there was even more reason to try and salvage the firm half.
I have tried to take good care of myself and my body over the years and, on the whole, in spite of under active thyroid (for which I have taken thyroxine for the past few years) and some allergies, I feel quite well most of the time, even better since spending a week with my elderly father who is cared for by a Hungarian nurse, who prepares good, wholesome recipes for my dad.
It takes courage to go against the medical profession but I am very glad I have done this. It is sad that they are so obviously at the mercy of the prospering drug companies and that ordinary people are treated like guineau pigs.
I will continue to take much interest in your postings.
January 9, 2009
Hi Vivian
Hope you reply to my inquiry if Actonel can interfere with walking and balance? I have another question–does it cause high blood pressure? I follow a good diet, buy organic when possible–no meat, plenty of vegetables and fruits, home made vegetable/fruit juices, Noni and Pomegranate juices, soy milk light, tofu, raw unsalted nuts, seeds, soy protein, baked salmon, beans, brown rice, egg beaters, extra virgin, cold pressed olive oil, red apple cider vinegar, herbs, garlic, turmeric, ginger, stevia, no salt, high fiber cereal low on sugar, oatmeal, vitamins, supplements and green tea sans caffeine, adequate amount of good water and yet even with 3 meds my BP at times gets dangerously high and have heart arrythmia with supraventricular tachycardia and fibrillation. Almost died last year–pretty scary. Doctors don’t seem to know the cause, and I surely would like to get off BP and arrythmia meds. I seem to be tired all the time and get short of breath and stressed out easily. These problems started before I went off Actonel.
Appreciate other readers’s comments and yours in particular. Thank you very much. Blessings in your path. Maria
January 8, 2009
Hi Vivian. Thanks for your all valuable information about all the killing drugs, Pls keep us inform about any new research, Once more a big thank.
January 8, 2009
For years doctors have been prescribing drugs for my osteoporosis which promptly made me feel so ill that even the doctors told me to stop taking each one before insisting that I try another one. The last was Boniva which gave me severe heartburn, something I was lucky enough not to have before.
What angers me is that the doctors always imply that I have done something wrong, that I don’t give each prescription enough of a trial. They seem to have no concept that their patients are not dummies and in this information age are well-informed about their meds.
In my own family a close relative had a doctor who insisted she take cholesterol-lowering drugs, and keep on taking them even though she developed weakness in her legs, said to be a side-effect of statins. The doctor said that would pass when she stopped taking the drugs. It did not improve even though she stopped taking them, and walking became more difficult, yet she lived to 87 years old. We must insist that the slavish relationship between doctors and the pharmaceutical companies be studied and results brought to light.
January 8, 2009
I was told I have osteopenia after a bone density test. I am 58 and up until I took Fosomex I was very active. I run in races ( 10k or 5k), golf, rollerblade, and life weights. After being on Fosomex I became winded, could not run a mile, could not run up stairs, had a constant cough and mucous dripping down my throat. My doctor thought it was an allergy and tried MANY medications. He finally sent me to an allergist who did extensive tests. After the tests she said to me “you won’t believe this but you are allegic to nothing. The Fosomex is causing your problems. The reflux is causing an irritation, causing the mucous and the cough. All of this was affecting my stamina and breathing. I stopped taking Fosomex and am 90% better. I will never take bone medicine again!
January 8, 2009
I have refused to take the drugs in question because of possible dental problems. I have been told to take calcium with D—1800 units a day; however, I now have still been diagnosed with 50% deficiency in Vitamin D. This must be the latest out in the medical community….what gives???
February 23, 2010
Two comments on vitamin D: 1. Always use vitamin D3, the natural form. 2. The amount needed varies with the individual. Levels up to 20,000 I.U. per day have been required. Do not take high levels without consulting a good doctor.
January 8, 2009
Hello Vivian
Thank you so much for all this information.
Please keep your articles coming as I do appreciate it very much.
I am terrified of the side effects of this drugs for osteoporosis ,I am so
relieved no take any more.
You have actually opened my eyes as to what some medications can cause more harm than good.
I am very glad to read all the comments.
Sincere thanks and appreciation. YOU ARE MY ANGEL.
Best regards
CLARA
January 8, 2009
I go to an ND. He told me even if I have all the calcium in the world it is like having bricks, but without enough hormones – no mortar! He tested my hormones and I was very low in DHEA (a precursor to hormones), and PET (progesterone, estrogen, and testosterone). He also blood tested my Vitamin D (explaining it is more like a hormone than a vitamin)and “loaded” me up, then retested and put me on a maintenance dose. He said bones need 13 different minerals, etc. I have found transdermal magnesium to be an interesting addition to my regiment (taking calcium without enough magnesium is a very bad idea!).
January 8, 2009
Thank you so much for your information on Fosomax, Boniva, etc. The doctor put me on Fosomax about 10 years ago. I have been taking one pill once a week without fail. I have had no side effects and my bone density studies are excellent. I am still 9′ tall and my weight has remained the same. Admittedly your article has scared me as who knows what ugly repercussion can arise for me in the future. I down loaded your article and forwarded it on to my doctor today asking for her comments.
January 8, 2009
Hi, Vivian:
I just ordered your book- I’m excited about receiving it and looking for needed advice. I have RA and am on Enbrel, Methotrexate and Plaquenil, meds which are keeping me in remission and preserving my joint function, but can adversely affect bone health and my exisitng osteoporosis. I have been on Fosomax for 4 years- hasn’t helped but this may be because of the RA meds. My rheumotologis has suggested I read about Forteo- I have and I am petrfied. Is there a way I can balance my RA and osteoporosis( I’m ready to give up the Fosomax)? Thank you!- and a healthy, happy new year to all of us!
January 8, 2009
I have been diagnosed with osteopenia, but my doctor did not prescribed anything for me (thank God!) I ordered the book for my mom who was diagnosed with osteoporosis after she fell and broke a wrist. She was put on Fosamax for a while but when we found out her doctor was not even checking her liver enzymes since taking it, she took herself off of it.
I am a Christian and take the word of God, the Bible seriously. I find it interesting to discover the our word “pharmacy” comes from the Greek word “pharmakeia” and can also be translated as “witchcraft”! Jesus promised to send the Holy Spirit when He ascended into heaven and the Holy Spirit will lead all who will follow Him into all truth! His word commands us not to have anything to do with “witchcraft” and I for one will not!
I am looking forward to reading your book when my mother is done with it.
November 10, 2009
if this is the case take nothing science give and trust in the lord. At least your mum has tried
January 8, 2009
Thank you so much for the information. I have been advised to take these medications, as the Doctors swear by. I refused after I took one pill and it made me sick for a week.I think you are on the right track. Your information is good to know.
January 8, 2009
Hi Vivian,
Life is so interesting! I was diagnosed with severe osteo in my spine and my hips last year. I am 57 years old, and was told that my bone density is way below the normal level for someone my age. I also have a very high fracture risk in the thoracic area. My doctor prescribed Actonel, which I picked up, but after reading the possible side effects, I just could not bring myself to even taking one pill. I can’t explain it, but my gut instinct was not to take this medication. I was scheduled to have dental surgery last Fall, and because of the effects that Actonel can have on the healing process, and jaw pain, I decided not to take this medication. My dental surgeon was very pleased that I had followed my intuition.
The doctor has done many tests to rule out secondary causes of this low density. So far, nothing has shown up. My mother had severe osteo, and so does one of my sisters, so the doctor said it is probably hereditary. I have a lot of back pain, and have been off work for almost a year. An MRI showed a herniated disk which is pressing on a nerve root, which is probably the cause of my pain. I exercise each day, and try to go for a walk every day. If it is too nasty outside, I walk inside and up and down my stairs.
I am scheduled for a nucluear bone scan in March, but am very anxious about having this done. I am very concerned about the intraveneous injection (tracer) used for this scan, and the risks of expsure from the scan process. I am seriously considering canceling this scan, but am concerned that my insurance will dismiss my claim for not cooperation. However, I am a firm believer that we have the choice about what is done to our body. This type of testing seems very invasive to me and my gut instinct is telling me not to have it done.
Sincerely,
Lynn
January 8, 2009
Vivian,
I have taken fosamax over ten plus years. I have been taking so much calcium that its coming out my ears. My doctor insists I continue the drug. My bone density tests are not the best. I have read many comments. I do weight bearing exercises and walk 5 miles everyday. I am on a vegetarian diet eating very little meat. I am following your ideas in your book about diet. Hopefully, I will see results. I showed my doctor your comments along with others, and he insisted the information is just selling books or meds. MY question is I am a coffee drinker-only one cup. When should I take calcium before or after drinking coffee. I have been waiting an hour before taking it. thank you for your website bev
January 8, 2009
I was diagnosed with osteopenia.
I took Fosamax for appx 4 years,but no more. Lately I have been diagnosed with Barret Oesophagus Helicobacter Pylo. I also have a Hiatal Hernia. My doctor said I should have a scope done every couple of years as sometimes it can go into cancer.
I am taking Prylosec and fear it will interfere with my calcium.
Thank you for your time.
Marlene
January 8, 2009
Very interesting article. I took Actonel for 5 months with increasingly sore muscles and joints. The osteoarthritis I have in my hands got so bad that I could hardly make a fist. When my jaw started hurting, I quit taking the drug. My last monthly dose was 10/16/08. My jaw has quit hurting, and my wrists and hands are better. The neck pain is slowly going away. However, I still have some pain in my shoulders and upper arms. I went to see a rheumatologist last week to see if the pain in my joints is from arthritis (still waiting for test results). This doctor suggested Evista for the osteoporosis since it is not a biphosphonate. Do you have any information on this drug?
I am a very active 66 year old who does a lot of cycling, swimming and some running. My concern is that I will have a bike crash and break my hip/back if I my bones don’t improve. I am taking 1600 mg of calcum daily plus 1000mg of vitamin D and 40 mg of soy isoflavones.
Thanks, Vivian, for your research.
January 8, 2009
Thanks for your good work and info. I have been diagnosed with full on Osteoporosis and took one dose of Actonel which rendered me almost immobile by later in the day… dizzy, nausea … told my Doc about that… said we could do the dosing either daily or a big infusion… I thought why poison myself either slowly or a lot at once… read your book.. doing diet and went to the physiotherapist who KNOWS a great course of exercises to strengthen the muscles and bones…. better treatment for sure!!!
Thanks again….
January 8, 2009
Vivian, spot on. I am an RN. I have been studing nutrition longer than I have been a nurse. This information is great for validation of what I have believed for a long time.
Thanks.
Bobbi
January 8, 2009
I have written before and can’t tell you how much your info and support has helped me. Keep the e-mails coming. My doctor was a little annoyed with me when I told him about five years ago that I refused to take Fosomax. Each time I see him he brings up the subject. I have since given him some of your e-mails, info. etc. and for some reason he is not moved – but I am. I will continue listening to you. I have read your book and it is a life-saver. In addition I have friend who was on Fosomax for about five years and developed jaw problems, heart problems and digestive problems. She was urged by her Cardiologist to stop the Fosomax. She is now getting the Reclast injection which I urged her not to get and I hope and pray she will wake up before it is too late. Thanks again, Vivian. You are a blsessing.
January 8, 2009
hi Vivian, really enjoy all your articles but still remain confused on all this info. I have osteoporosis and choose not to take meds as they have given me problems. I do take calcium and D and try to exercise but my tests still show no improvement. what more can I do to get better? I’m almost as bad as a person can get(density wise) but I feel great. I’m 71 and active but would like to get more density in my bones. thanks
January 8, 2009
I was diagnosed with osteopenia at my yearly examination and mammogram and given the prescription for Fosamax. I took it for about a month and found that my throat felt like it was starting to close up on me. I stopped taking it for about a month and started taking it again to see what would happen. Again I got the same feeling in my throat. I waited again for about a month and tried it one more time and the same thing happened. I gave it 3 strikes before I decided they were out of my life. When I went for my yearly examination and mamogram again I told the Doctor and she then prescribed Evista. After a short while I had such cramps and pain in my legs that I couldn’t stand it. I wasn’t sure if it was from the Evista or not so again I stopped taking them for about a month and then started on them again. The same thing happened with my legs so I quit taking them. I didn’t try them again and have not been on anything since. I will be going for my yearly examination again next month and I refuse to take any other prescription expecially after reading your book. My daughter has been telling me for a few years to follow what Dr. Joel Fuhrman says about health and eating the right foods. He basically says similar things to what you say regarding food for health and not taking medications that could harm you. My mother was diagnosed with osteoporosis and never took anything for it. She fell a few times and nothing ever broke a bone. She was active until she died at age 89 of colon cancer. I think eating right and being active is the key to being healthy.
January 8, 2009
In response to the person who wrote and grapefruit causing breast cancer, I seriously dought that the grapefruit was at the root of the cause but some other personal or dietary habit or environmental influence that caused the cancer. If you eat a 80/20 alkaline/acid diet it is difficult to develop cancer. Through my reading and personal research I have come across a great deal of information that states cancer requires an acid rich environment to develop and flourish. My husband and I began eating a vegan diet about two years ago, after his open heart surgery. He no longer takes any prescription drugs for anything! He exercises daily and I am right there with him. If you want to read about the prevention of cancer get a copy of The China Study by Colin Campbell, PhD.
January 8, 2009
Hi Vivian: Thank you so much for all the research you have done regarding osteoporosis and especially regarding the drugs prescribed to treat this condition. I appreciate immensely your sharing this information with all of us who have this condition. Your work is invaluable! This latest finding about a link between these drugs and cancer is just another reason not to take any chances by taking these drugs.
I would like to be able to eat red grapefruit but because I take Lipitor for my cholesterol, have been warned not to consume this fruit. Is it really OK to take my Lipitor at night and still be able to eat red grapefruit in the morning? I read a comment by one woman on this site who was doing just that and wondered if it was OK. I have yet to see a definitive answer to this problem. I also agree that a natural fruit like grapefruit, rich in Vitamin C and antioxidants should not be harmful when eaten in moderation. I believe this general rule holds for most foods that we consume. Kind regards, Bonnie Holloway.
February 23, 2010
Bonnie’s mention of Lipitor struck a bone. There are natural means of lowering cholesterol without resorting to statins, wich lower CoQ10 production in the body. CoQ10 is necessary for cardiovascular and neurological functions. No one mentions taking CoQ10 when using statins. Best. Don’t use statins.DO NOT stop statins without a doctor’s assistance in weaning off your dosage. The best aooroach is to start with vitamin B3, niacin, not niacinamide. Some folks do not like niacin due to flushing. I was taking 100 mg a day and often would flush. Not good for someone working in a public enviroment. Switched to 250 mg, time released and had no problems. Also, regular oatmeal, once or twice a day will lower cholesterol.
January 8, 2009
Vivian,
I have read all these commnets with much interest…I dislike prescription drugs immensly, however I do take them for BP, Cholesterol & Thyroid. I have had bone density tests & told that I have osteoporosis & osteopenia & prescribed drugs for it. I left my last Doctor, as she was constantly trying to force me to take these drugs. I am with a new Dr, who I like now & am scheduled for a bone density test this month. I know what it will show & I know he too will prescribe a drug. I hope that I don’t lose him as a Dr., when I refuse to take it. I have read pages & pages of testimonies of the horrible side effects from all of them. I have a friend , who felt like she was dying from taking them & another one who has cancer & a hole in her jaw bone, that can’t be fixed from long term use of biophsonates. I am 67. My Mom lived to be almost 86 with osteoporosis & took no drugs. I will never take these drugs. The more I read, the more horrfied I am that they have not been taken off the market!
Thank you for getting the message out!
Eve Levine
January 8, 2009
My doctor wants me to go on the once a year Reclast. I just can’t seem to do it. I have had cancer of the breast and am afraid to do that, I take Calcium and Vitamin D once a day and some supplements. My bones are getting worse. My friends are getting the Reclast and are doing fine so far. Thanks for your articles , I appeciate the advice and letters from others.
Shirley
January 8, 2009
Hi Vivian,
Thanks for the info i try to read them every time i see a emial for you.I am taking Actonel but i have no side effects that i know of,but i am going to talk to me doctor to see what else can i do and get off this medicine my bones does get better when i get my check-up yearly so i’m glad about that .
keep the email coming
Thanks
January 8, 2009
i thank my lucky stars (or my angels) that i listened to my gut reaction that i was not happy taking these drugs. on 2 occasions i was persuaded to try them but after the first dosage my gut reaction was “not for me”. i found vivian’s site when i decided to find out if i could help myself – it has been invaluable.
i have invested in a vibration platform, so will be interested at my next scan to see if my bone density minerals have improved.
kind regards
Larraine
January 8, 2009
Hi Vivian
I have just read in the British press the latest scare about osteoporis drugs, especially in relation to the jaw bone.
I was diagnosed with osteopaenia in my hip a year ago, and was prescribed alendronic acid. I tried one tablet which gave me such severe heartburn for 4 days ( I already have stomach problems with acid etc) that I have not touched it since. I do take the vitamin D and also magnesium tablets. I also go walking/ jogging most days, and keep fit once a week to build up my bone density. I have another bone scan in in a year, so will be interested to see how my bone density has improved.
I have not told my doctor that I am not taking the alendronic acid!
thanks for all your emails and advice and a Very Happy New year to you
Kinds regards
Kate Gubbins
January 8, 2009
I have taken my first treatment of reclast,, with no ill effects last April,, I realize I will be due the nest one soon… I woud llike to now more about it..
I previously took Fosamax and had so many bad effects I was taken off of it. I hafe reflux desease and it kept my stomach up set and I could not swallerwith out choking… thanks for any info on this….
January 8, 2009
The very day I was prescribed Boniva I found this web site, ordered the book and ignored the calls from the pharmacy. I dream about asking my GYN if she would take this, or give it to her mother. I’m even treating a sinus infection holistically why in the hell would I ingest laundry detergent for treating my supposed bone health risk? I will soon be consulting with a naturalpath as well as a DO from this point forward with whatever ails me. All medical doctors want to do is prescribe drugs. The days of treating the symptoms have got to stop. It’s time to treat the cause. Thank you so much for blowing the whistle on this.
January 8, 2009
I was diagnosed after a wicked fracture in my tibia at only 46 years old. It took 2 months for diagnosis because I am too young and active to fit the typical disease disorder profile checklist. I am so grateful to this site for continuing osteoporosis education. You kept me away from these drugs when I was first diagnosed. I also verified your information with some research and interviews on my own. You set me onto a protective path that may have preserved my health. I won a road race in December and expect a lifetime of strength with God’s grace and good nutritional support. Viv is my SHERO!
January 8, 2009
Hi Vivian,
Thanks for all the info. I had stopped Actonel because of horrible neckpain, couldn’t even turn my head. My doctor told me it wasn’t the Actonel, but after several months of not taking it (it takes a while to eliminate it from the body) the pain stopped. As for the grapefruit, it interferes with some heart medications so I can’t eat it even though I love it. My husband read your info and decided not to continue taking Actonel. He has osteopenia of the back. Do you know if some side effects of Actonel are interference with walking and balance? Would appreciate your comments. Keep up the good work and thanks again. Maria
January 8, 2009
I was prescribed alendronate acid 3 months ago ….I havent started the prescription yet.. and after the most recent research I most definately will not be taking this drug.I hesitated at the beginning because I read about a possible connection between the drug and atrial fibrillation(which I have been diagnosed with!)……Now I read there is no significant connection..However I am working on the basis of ‘no smoke without fire’
Ive also had active stomach ulcers in the past…why on earth would my doctor prescribe me this drug.??
In the meanwhile I have ordered your book and anxiously await its arrival!
Thanks for making me think twice…May(Glasgow..Scotland)
January 8, 2009
It is very interesting to read of all he people who have stopped taking Fosomax. I was also told to take the drug by my doctor just a month ago. However I do not take & never have taken it as I saw bad reports about the drug on the comuter (not your sight though) & also in an article in the Australian Herald. I showed these to my then doctor, who had also seen these articles, so advised me, as I had thought already, not to take Fosomax.
Thank-you for all your information. I just hope that my osteoporosis will not get worse than it is now, & will have it checked once a year
With many thanks for all your articles,
Marion Paul
January 8, 2009
I was taking Fosamax for five years and was told by the doctor to keep taking them even though it has distroyed the stomach lining and i find now that a lot of food i eat irritates it so i have been on a constant testing food diet for years. I have now stopped taking any kind of medicine for the osteoporosis as i am not sure of the consequences of what i take
January 8, 2009
Hi Vivian,
I live in UK. I am 51, had menopause in mid 30s and have Osteoporosis of the Lumbar spine (T score -3.3) but my hips score is +0.4 so I attribute this to the amount of walking I do. My GP rang me with the news of my DXA scan Monday between Christmas and New Year – not a good start to 2009. The ‘Bone Doctor’ wants me to start taking Actonel once a week my GP tells me and could I come in straight away to get a prescription? I said hold on!! I have been doing a lot of reading and told my GP that I felt that there were as many things against taking actonel as there were for it – she agreed(!!!!!) I told her that I am getting married on the 17th and no way am I taking anything new before then. I am so glad I gave myself that breathing space! I found your website Vivian and also did some reading about the benefits of rebounding exercises for osteoporosis and have bought myself a mini trampoline (which is great fun) and means you can do low impact exercise without injuring yourself. I have started taking a multi vitamin and mineral supplemenet (My GP wanted me to take Calceos Calcium and vit D supplement which I agreed to do but got such bad headaches and tummy trouble that I stopped after only four days). I will also be ordering your book Vivian as it is good to hear someone talk sense and not use the scare tactics which seem to be employed to get women who are already feeling vulnerable to take something which is going to make matters even worse! One last point, I have been using ‘Serenity’ Natural Progesterone Cream for the last six months and I have felt great since starting it. My bone density has gone down 2.5% in the last 18 months (since my previous DXA scan) – what are your thoughts about the benefits (or otherwise) for bone density of Natural Progesterone. Kind regards and keep me posted! Alison
January 8, 2009
I have been taking risedonate for 3 yearsw since being diagnosed with oteopenia. I have suffered from severe indigestion including oesphegal problems in the past year and having taken non prescription medication without reusult am now takening pescribed drugs. No connection with risedonate has been suggested I was very intrested to read your website, and will now present my doctor with this informtion and hopefully will throw light on to my problem. I have ceaed taking risedonate and just hope I do not have something really horrible attributable to this drug.
I have undertaken strength exercising for the past few years and benefitted in all ways from it, in fact I wrote a book in 2006 with the exercises I and some friends do as a reult of my research into bone deterioration. I am just about to publish a second edition. I have not had another bone scan but hopefully the exercise has given benefit, certainly the slight osteoporosis diagnoed on xray prior to exercising and dietary improvements has not worsened and I have not needed the surgery forecast.
January 8, 2009
Hi Vivian,
Obviously, a lot of us are concerned with the same situation. Thanks so much for keeping us informed and tuned in. It helps break through the feeling of isolation and hopelessness!
Can’t wait to read your book!
Best,
Norah
January 8, 2009
As a dentist who keeps in touch with dental practices throughout the state (FL), I can tell you the down economy has not touched us. Thanks to
Big Pharma and the biphosphonates (fosamax, etc) dentistry is booming. And yes, the time interval between biphosphonate use and osteonecrosis (death) of the jawbone is right at two years for both IV and oral application.
Sad!!! Yet the TV advertising goes right on unabated (in US only; not permitted in Europe and most other countries). Reports sent to two nationally recognized newspapers were not published, presumably in deference to income streams from Big Pharma ads.
Pete
January 8, 2009
Thanks so much, Vivian, for this article. I took Fosamax for a few weeks ten years ago, but stopped taking it because the side effects were so bad. I had difficulty swallowing, but it was very hard to explain exactly what the effect was and no doctor would listen to me when I tried to describe it. I do read all the information provided with medicines, but don’t remember anything like the effect which I had being described. Maybe the drug was new at the time and they didn’t know this yet.
After stopping taking the Fosamax the worst of the effect disappeared, but every now and then in the years since it has happened again. It is most distressing and even frightening, as I find myself gasping for breath and sometimes this seems to be actually life-threatening. I keep telling my endocrinologist that I still have effects from taking Fosamax so many years ago, but he scoffs at me (so what’s new!).
I have been taking Evista for many years since stopping the Fosamax, and recently thought maybe the specialist was right and the present-day difficulty in swallowing was caused by something other than the Fosamax, i.e. the Evista. So I stopping taking this also some 6 weeks ago and then found your website and sent for your book and read it. So I’m taking no drugs at all now, but still get this distressing condition quite frequently.
On reading this latest article I looked up “esophagus” on the internet and have at last found a name for my condition. It seems to fit the description for “achalasia”, which is a failure of the sphincter at the lower end of the gullet to relax on swallowing, to allow food to enter the stomach, probably caused by damage to the nerves that control the sphincter. I feel sure that in my case this damage was done by the Fosamax I took for quite a short time many years ago.
So thanks again, Vivian. I found on the internet some very helpful tips for managing this condition and look forward to a somewhat easier life in the future because of this.
Something I have noticed is that I used to have quite frequent nosebleeds – once a week or so – but haven’t had one since stopping the Evista nearly two months ago.
January 8, 2009
Hi Vivien:
At 70 years old, I’ve had osteoporosis for many years and been under treatment yea,for many years also. Just recently I was struck by the fact that our bodies (and bones) are in a constant state of renewal – I had forgotten this simple fact, and I started to try to relate this to my own situation.
I have tried many different bisphosponates, went on Nexium for the discomfort from the Fosamax (which really relieves the heartburn but takes considerable effort to STOP taking). Didronel and Actonel brought along really bad bone and joint pain, and at that point I swore off the bisphosphonates, despite my Dr’s urging to try yet another brand name. I was urged to take the infusions, but thought that wouldn’t be acceptable to my body considering the range of pills I’d already taken and had bad reactions from.
After a year or so of calcium citronate and D3 as a maintanance dose, I did daily injections of Forteo, knowing it was still “new”, and feeling like a guinea pig. That I did for a year, until I started having dizzy spells. The benefits were minimal. After Forteo it is now suggested that it be followed by infusions of the Reclast or Actonel. Nuh, huh
Taking a long look at these remedies, I will be looking to your book for guidance. After all, this is supposed to be PREVENTIVE medicine. Obviously, the remedy is no better, or worse than the problem.
I am so glad I’ve found this website, and will be looking for your book when it becomes available.
Margaret
January 8, 2009
Vivian,
Thanks so much for all your articles on Fosamax which I have followed closely.I have quit taking Fosamax even though my doctor thought I should stay on it. Still have heartburn but not to the extent it occurred while on said medicine. It is truly scary that one can spend so much money on prescribed medications that in the end can kill. You are to be commended for seeing that information is getting out to hopefully prevent many people from being harmed while the big pharmaceuticals make millions.
January 8, 2009
Vivian,
I just received a “Worst Pills, Best Pills” flier from Dr. Sidney M. Wolfe, M.D.. It states that Boniva and Fosamax are on their ‘DO NOT USE’ list. I was wondering if you use this organization in any of your research?
Thanks for your research and updates.
January 8, 2009
Hello Vivian, enjoy your mail, and I wish to ask a question about Evista,
I took it for about five years, and in August 2006, I went for my annual mamogram, and they did a second and a biopsy and told me I had invasive breast cancer so I went through radiation but no chemo, after I was reading the side effects of different durgs although I at the time was only taking
Evista. I read that those that have had breast cancer should not take it so I stopped taking it in Dec 2006 so in may 2008 I went to my GBYN and he said are you still taking the evista I answered no, I stopped and I told him what I had read on webmd and he yelled and told me he did not care what I read, evista did not cause breast cancer, and that if I did not get back on it I could fractor a hip and then I would wish I had takenn his advice. I took it again for about 6 months but have stopped. and then I ordered your book, but have not received it as yet, but I want to ask you is evista a harmone drug
is it considered the same as boniva and progestrone estrogen thank you Barbara Houser
January 8, 2009
I have rheumatoid arthritis and my doctor wanted me to take medication for that which I refused. Then after a second dexascan he wants me to take Fosamax. I took it for a month or so and quit. When I told him he convinced me that it was really beneficial for me. After about 2 months I just decided I didn’t want it in my body so I quit again. I will see him in a couple of weeks and will assure him that it is not for me. I am 73 years old and want to keep what is left of me in good shape. I will be ordering your book tomorrow and look forward to reading it. I want to do all I can naturally to help myself. Goodbye Fosamax.
Mary
January 8, 2009
When I went to the Endodontist for a root canal procedure one of the questions, was I using a Bisphosphonate? If so the procedure could not be done. When I asked why. the Endodontist said such drugs hinder healing. I had refused the use of the drug prescribed by my Dr. I am now on a program of vitamins, exercise and a ph balanced diet. My fingernails are growing. I hope to see arrest of bone loss at my next bone scan. C. Rodarte
January 8, 2009
I’m almost 70 years old and was on Actonel for a few years, then was switched to Boniva a couple of years ago. I work out,do wt.training and take a bone formula vitamin. 2 years ago my bone density improved so that I had only -3.0. in my spine, and -2.1 in my femur. Recently my bone density was worse, my spine was -3.4, femur -2.5 so I had osteoporosis in both areas. I told my gyn Dr. I will not take anything anymore, no Boniva. He suggested Evista or fosamax. I laughed in his face. I told him that I will be trying strontium and increasing my Vitamin D3 intake. He said”ok, let’s see how that works for you for a year. I found out his own nurse takes strontium and Vitamin D3 and she’s fine, as well as the friend who is knowledgable in nutrition and another friend who is a nutrition expert. I told my Dr. that after taking these meds for almost 5 years I got worse. I have shrunk in height almost an inch, however, I’ve fallen a number of times over the years and have never fractured a bone[as far as I know]. I will eventually buy your book. Thanks for all the info, vivian. I appreciate it.
January 8, 2009
Hi Vivian,
With a diagnosis in July 2008 of osteoporsis in spine, wrists and ankles my Med doc wanted me on one of these chemical drugs to strengthn the bones. I have a history, earlier in life, of the worst case reaction listed in the literature about the drugs. I said “No thanks. I will take all the natural precautions and help for rejuvination of bones, as possible.
I triped and sprained both writs two years ago. They healed in 10 days with ongoing therapy to keep the tendon in my index finger strong and in place. The doctor never heard of healing that fast. I twisted my ankle a month ago. No break but a sprain ~ healed in 3 weeks. Doctor never head of that either. No borken bones. No pain meds required. Two years ago I lifted my fallen husband the wrong way. That cracked the inside of the 3rd lumbar. It healed in three weeks. So what is all this about osteoporsis?
I ordered your book. It is very encouraging. I am also taking from Progressive Labs in TX, Dr Jonathan Wright’s AM and PM Osteo Formulas and extra sea minerals, exercising, and going to the gym for strength training. Please keep enouraging us women to help ourselves! I am Still working part time. Born in Nov 1930!! I was one whom all the neighbors and relatives wanted my Mom to abort, because of the economic downturn!! She said, “No, this baby~ my fifth, will be my best child!” I followed her footseps as a Teacher and a Nutritionist. She was my heroine! Yours For health and wellness, Dr Dorie Erickson, Ph.D.,C.N.C.
January 8, 2009
Vivian
I’m 60 been on Fosamax 5 years. I been telling my wife that baby it is no good for me then I found your sight. I’m not A reader but will probley need your book. And we have A friend on Fosamax also. We will have to inform her. She is A nun In San Fran. After today I’m taking no more Fosamax.
Thanks Dan
January 8, 2009
I have been giving myself Forteo injections for a year and should continue for one more year. I was diagnosed with severe osteoporsis a couple of years ago. After reading all this info I am scared that I am doing more harm than good to my body. I have suffered some of the minor side effects like leg cramps,dry tight esophagas and the last couple of days I have heartburn which is something I never have a problem with. I have been a vegetarian for 34 years,do not drink or smoke. Two years ago I fell from a twelve foot ladder while trimming palm trees in my yard, needless to say I broke a lot of bones. I landed on my right foot breaking my calcaneus,ankle, femur ,hip and wrist. I was told those injuries would have happened to a 24 year old in the same situation but doctors still wanted me to go on these meds. Now I am really scared. Should I STOP cold turkey?PS I am 64 and was an avid skier until my accident.
January 8, 2009
Thanks for the article…..it is really scary to hear that….
I was dianosed with Osteopenia at 36. I started taking calcium 1500 mg a day for the next 2 years. After another bone scan at 38 my bones were getting worse so they put me on Boniva. I had alot of problems swallowing and my espophagus was tightening up alot. I stopped taking if for a year and then got back on Actonel 75mg twice monthly. At first I was okay but had to take Prilosec a few days before and a few days after taking Actonel so my espophagus wouldn’t act up. I did this for 3 months and it seemed to be okay and then all of a sudden i started getting severe chest pains for the next 2 months. I then had to stop taking it and since then i haven’t had any chest pains so I know this medication has bad side effects for me. I am scared and worried what is going to happen to my bones if I’m not taking Actonel. My doctor said taking the calcium alone will not be enough. I am trying to eat healthier and walk but I don’t know if they will be enough. I am too young to be going thru this at 41!!!
January 8, 2009
I have auto_immune Hepatitis and take prednisone for the inflamation. I was put on Fosamax because of the prednisone deteriating my bones. My right femur broke in May 2007.Had to have a titinium rod put in femur.Last June 2008 my left femur broke. Titanium rod put in. I did a lot of research and discovered that most of my problems were caused by the Fosomax. I have since quit Fosamax and I now take 1500 mg of calcium and 1000 mg of Vit D. I eat sensibly and feel good. I do not intend on ever taking anything else for my osteoporosis.
January 8, 2009
I’m so happy women (and men) are getting smarter about their own bodies.
I’ve been told by Dr.”You will take this.” Uh Uh. I make that decision.
It only makes sense to me that if I’m small, my bones were never as dense
as a large boned person. Why would I be compared to them?
I’ve never had a broken bone and I am 63. Why would I want to take a chance on something that could cause a much greater condition.
The Dr. referred me to a specialist to be given the once yearly intraveinous
drug for osteoporosis. Get this, one of the side effects is posible atro-fibulation. Folks, this is a heart out of rythum. I’ve seen this condition with a family member, and I don’t want any part of it. It can be life threatening.
God gave me this body and gave me a brain along with it. I happen to believe that He promises to lead me in the path I should go and brings people in my path for the help I need.
February 16, 2010
I am 55, petite, small frame, also. I was devastated when I found out I had osteoporosis. After doing tremendous research, I am convinced that my bone density may never have been ‘normal’
according to scale. I am eating health, exercising every day, and plan to continue living my life with the daily fear of breaking a bone.
January 8, 2009
Vivian,
I received your book last week and read it with great interest. For the past ten years I had taken Fosamax and Evista. In November the results of my recent Dexascan revealed I was at 8 times normal for risk of fracture not to mention the decline of bone mass. Dental/jaw problems caused me to question if the medication could be the problem so I immediately stoped taking the medication. Eating a better diet, weight bearing exercises, walking I hope to reverse the osteoporosis.
Thank you for all you do to keep us informed and telling the truth.
Carol
January 7, 2009
I’m very glad to have more input on the harmful effects of the osteoporosis drugs. After reading the side effects, I really, really didn’t want to take fosamax or boniva or injections. But doctors have put the fear of god into me, telling me “it wasn’t about now, but about 10 years from now, when surely I would be in a wheelchair without the medications.” I am 58 and have been diagnosed with osteoporosis of the spine. Except for what I feel are normal aches and pains for a woman my age, I’m fine. My grandmother had a very slight hump, but walked upright and regularly into her mid-80s and led a normal life without a wheelchair or even a cane. My mom is 97 and only just recently broke a hip. My dad’s hip crumbled in his late 80s but was perfectly OK until then. If my fate is the same is theirs, I would be grateful. Ignorance is bliss. None of them had bone density tests so they didn’t spend any time worrying about their fragile, aging bones. They just lived–as we all should, doing what we can to be healthy and forgeting about this!
January 7, 2009
Okay now you have me, I’ll order your book and try it your way. I am now 59yrs old and had taken fosamax about 6 years ago. I got nervous when I had gotten barretts so I stopped for a few years. A year ago we moved and my new doctor did a bone density and put me back on the fosamax. When I had another endoscopy my new gasto doctor says the fosamax did not cause the Barretts disease nor will it harm me. I just do not believe him and am very uncomfortable taking the medication. I am going to stop again and hope for the best as osteo does run in my family. I have been following your e-mails for several months now and hope to thank you in the future.
January 7, 2009
Thank you for your emails, am waiting the arrival of your book. I started Boniva 2 years ago although I was very suspicious of what side effects would be from a once a month pill. Following a gut feeling, I stopped taking it for about 3 months. My bone density test improved, I thought due to the boniva, so took it for another year, next bone density test was worse, showing full blown osteoporosis. I decided to stop taking it, then when doing web research, found your website, ordered your book, and now know that I did the right thing in stopping the drug. Just hope I haven’t done too much harm to myself. I am 66 years old.
January 7, 2009
My doctor wanted me to go on one of these drugs (he said the choice was up to me, as I am “borderline osteopenia.” I am so thankful that I had already read your book, and was able to say no with absolutely no misgivings. I take 1500 mg of pharmaceutical grade calcium with D, magnesium, +++, and have upped my weight-bearing exercise regimen. Thank you so much for your very important work – I tell every woman I meet about your book and about the dangers of these drugs and the choices we have in caring for our own bodies.
January 7, 2009
I’M 47YRS OLD AND MY DR. STARTED ME ON FOSAMAX WHEN I WAS ABOUT 27/28YRS OLD
I READ YOUR WEB SITE GOT THE BOOK AND HAVE STOP TAKING THE MEDS COMPLETELY I HAVE ADJUSTED MY DIET INWHICH I DID ANYWAY BUT HTE DR’S WANT ME NOW THO DO THE INFUSION INWHICH I WON’T MY TRUST IS IN GOD NOT MAN HE’S THE CHEIF PHYSICAN IN ALL OF THIS YOUR BOOK VIVIAN THANK YOU WAS VERY INFORMATIVE I HAVE NOW LEARNED ABOUT MORE BALANCING OF THE ACID VS ALKALINE FOODS JUST TRYING TO GO THAT ROUTE BUT CONTINUE TO TAKE MY CITACAL AND MY MULTIVITAMIN DAILEY IF THERE ARE ANY CONCERNS OR ANY THING ELSE THAT I CAN DO PLEASE BY ALL MEANS LET ME KNOW I NEVER REALLY TOOK THE DRUG LIKE I WAS SURPOSE TOO ANYWAY AND I M ALL SO GLAD THANKS AGAIN FOR SHARING
January 7, 2009
I have just been diaganosed with osteoporosis and after talking to my doctor was all set to have Alcasta (brand name) intervenously. I came home from my appointment and started looking up information on the different drugs used for this and have learned so much more about these drugs that I have made an appointment with a Naturopath and am going to try and treat this naturally. Thank you for providing all the information that somehow our doctors don’t seem to be interested in passing along to us.
January 7, 2009
I have recommended “Kangen Water” made from an electrolysis machine
manufactured by Enagic Corp. (Japanese)
My wife had significant improvement in her bone density scores.
Our good friend has an advanced case of osteoporosis, and in just four
months, he has “gained” not only greater bone density but increased his range of mobility. (Just from drinking this water….but lots of water.
Brian Quinlan
January 7, 2009
Thank you, Vivian. However, as a nurse, medicine always waits until we are in crisis mode. What is so sad is that these drugs have become the standard of care, and every physician is mandated to prescribe them. I have been off fosamax now for over a year after being on it for 8 years. My bone scan became worse a year ago, but no one could answer my question when I asked if these drugs retard new bone growth. Yes, I feel like a guinea pig, and so many of us are as long as we continue to take prescription drugs. WE ARE THE ONLY ONES WHO CAN CHANGE IT BY DEMANDING NATURAL MEANS FOR ALL OUR PROBLEMS. Conventional medicine rarely cures…it only treats symptoms. It is time for a paradigm shift. Thank you, Vivian for a unique approach to these issues. You are moving in the right direction. Keep on keeping on!
January 7, 2009
Having read bad things about osteoporsis meds for 3 evenings now. I only wish I’d found out all of this sooner. First I was on Fosamax for a couple of years.Then on Actonel about a year. Now I’ve had the infusions of Boniva for over a year. I am very upset, my chest burns like fire a good part of the time. My thighs and hips hurt. I had a hip replacement 2 yrs. ago. the muscles act up and I tire very easily.I SHALL not have another infusion of Boniva and I am DONE with all bone drugs, accept for supplements.
I can only hope and pray that I haven’t already done permanent damage to myself.
January 7, 2009
I am pleased that I have not taken any of the drugs for osteoporosis, after reading the comments about how dangerous these drugs are!!
I could not tolerate any of the drugs I was prescribed. They made me very sick!!
Thanx for all the information, Vivian.
Elaine Langdon
January 7, 2009
My doctor insisted I take Actonel. He said it was a drug made from natural sources. (?) The drug made my stomach hurt real bad and it gave me horrific Migraines.I stopped taking it . The doctor was surprised to hear that it bothered me.
I don’t think the Doctors care about the side effects of these drugs. I have been to 3 different doctors and they all want me to take either Actonel or Fosteon. Now I am taking a blueberry flavored liquid Calcium/ Magnesium Supplement made by Country Life. It is great . It is so easy to take. I drink 2 capfuls twice a day and it never bothers my stomach. I am also drinking a soydrink mixed with a banana once a day. I walk 5 hours a week as well.
January 7, 2009
Hello Vivian
You are a blessing soul and powerful unconscious mind, who working continuosly with the osteoporosis diseases.
People don’t suffereng from osteoporosis diseases are very blessing.
Thank you for all your powerful interest and enthusiasm to work in this fieal.
I want to ask a question. What kind of bateria or virus is leucocytes or acids.
Thank for you information about it.
My individual opinion is babies need milk, adults need carer and attention which kind of food we eat. what we eat what we are.
My warm regards and the Universe blesses your mind.
Margarita Rodriguez
January 7, 2009
DO YOU HAVE INFORMATION IN THE BOOK REGARDING MIACALCIN ? I AM CURRENTLY WEANING MYSELF OFF OF IT, BECAUSE I AM CONCERNED ABOUT THE SIDE EFFECTS?????
January 7, 2009
I received your book Vivian two weeks ago. I took myself off the generic Fosamax immediately. I was not aware of the dangers of these pills. I was on Fosamax for 7 years when my Dr. gave me a 2 year Fosamax holiday. At the end of the 2 years I was put back on this drug. I called my Dr. She understood my feelings but said she hoped that I would not be breaking any bones in the future.
January 7, 2009
Thank you for the information on Osteoporosis. I am on Pamedronate which I have by I.V. every three months. I have been on it for a couple of years and would like to know if you have any information on it. My Dr. wanted me to go on Aclasta and after reading your Chapter 5 have decided it is not for me. Would appreciate any information you can give me. I also have Chron’s Disease which I have had for 40 some years and have GERD which I am on Sulcrate for. Thanks.
January 7, 2009
After reading your book and online comments of bone health and the dangers of the drugs prescribed to treat osteoporosis, I am terrified of taking an RX for this condition. Due to terrible joint pain from two doeses of Actonel, my doctor prescribed a nasal spray, Fortical, (calcitonin-salmon). The side effects listed do not seem to be as bad as other RX taken orally. I have not used the RX yet and it has been in my frig for 6 weeks. I will try the recommendations from your book and see what my next bone density test reveals in November this year!
Keep the information coming!
Thanks so much,
Gail
January 7, 2009
I have always been totally against these drugs due to the damage they do to women. The late Dr. Lee was trying to warn all of us of the dangers involved with these drugs years ago. If a woman wants to build bone, the best treatment is bio-identical progesterone. I have a passion for bio-identical hormones. Have been researching the topic for 15 yrs. And this year will publish a book that I have written. I am livid over the control that the FDA and Big Pharma have over the population, especially women. Progesterone could also change our statistics with breast cancer, but Big Pharma is only concerned with medicating reoccurences not in prevention. They only make money with disease. Bio-identical hormones could make such a difference in the rest of the journey for women and men. I urge anyone that wants good bones, good heart, good energy, low body fat etc. to research the wonderful benefits of bio-identical hormones. Or they can also email me at sberkey@teacher.com
Thank you, Susan
January 7, 2009
My doctor wanted me to take the one-year reclast infusion. No way. A friend of mine took it and had a severe reaction – hospitalized for a while and needed physical therapy for a while after. Her doctor blamed it on a flare up of her arthritis. Also, a friend of hers who had the infusion developed a stroke two weeks after. She had a stroke a few years previously but this seemed too coincidental.
When I refused the reclast my doctor suggested forteo. This is injected daily, costs over $4,000 and is not covered by insurance. No thanks.
January 7, 2009
Vivian, You should have been given some credit on this report. How long ago did you reveal this information! E
January 7, 2009
I have osteoporosis, I suggested having a bone density probably 4-5 years ago.Last year I was told my spine is the age of a 80 year old woman. I am 60.I feel great. my spine was -3.4. they want me to do reclast. I bodypump at once or twice a week for an hour straight. I walk at a fitness center. I am a sales rep, so I walk all day at work. I take calcium with D. twice a day. I have not lost nay height. I feel tuned in to my body, I dont want to do the reclast. any answers for me? thanks linda
January 7, 2009
Thank you for your information on bone medications. My history with bones go back into my 30′s with fractures, breaks and pain. I am now 52 (not in menopause) with normal hips, normal upper back and lower back of -2.6. I have broken bones in my feet by my ankle turning over, fractured knee cap, shattered knee cap, broken fingers, toes and fractured legs. Thank goodness I quit horse back riding, rollerblading, powerlifting, marathon running, and gymastics, before all this happened (seriously!) The first thing my doctors wanted to do was put me on Fosamax, or the nasal spray or SOMETHING!.. First I wanted to find out the reason why it was happening.. only to find out that I had Hashimotoes & Vitamin D level of 19. BTW, I am allergic to fish products/seafood/shellfish and oils, so Vitamin D products were at first alittle tricky. Now I am ordering a Vitamin D drop 1,000 iu per drop (lanolin based). I am interested in stronium and other minerals/foods to improve absorbtion. Thank you for giving information and alternatives. My new doc is very open about other options and choices. BTW, using just a few suggestions you had online after I shattered my knee last year (8 pieces), I was back to work in 9 weeks. That would not had happened if I had been on Fosamax)
Thanks again, Lisa
January 7, 2009
I urge everyone on drugs for osteoporosis to have an endoscopy done and see if they have damage. I did and now have a patch of Baretts esophagus that is being watched by my gastroenterologist. He has a treatment called Halo which can get rid of Baretts, kind of burns it off. I’m sure other doctors do it also. I did take didronel for at least a year,now take nothing. My gyn doctor furious with me for refusing treatment. Vivians book does not go far enough. For instance eating grapefruit may cause more breast cancer or what about having vit d levels tested to keep in the range of 50-65 mm/l. Marcia
January 7, 2009
Hi Vivan thankyou for update imformation,i will be never taking these drugs unless a new safe prescribed drug is avaiable, i did have trouble with one tooth a couple of months after i stopped taking Actonel.Regards Steve.
January 7, 2009
i took actonel for 3 years and had no change in my readings now the specialist has put me on evista. after just 2 days i stopped taking it because of the stomach pain ,much the same as actonel i know my dr will be upset with me but like others i don’t think i’ll take any of the drugs
January 7, 2009
I am also not surprised by the recent finding for Osteo drugs.
As you may remember I refused my Dr’s advice(2-13-08) but, pleasantly, when I did, he said I would need extra Calcium and Vita D. He knows I am a very healthy eater with very little meat, lots of fruit, legumes, veggies and a dedicated run/walker 7 days a week. I also use weights & yoga.
It’s always good to hear from you and I appreciate your concern.
Thanks
January 7, 2009
Dear Friends,
What is wrong with those of you who have to get your Doc’s permission not to take Fosamax? This is crazy! After showing up with a diminished bone density, I was given a prescription by my Doc to take Fosamax. Then I went home an read up on it. I decided not to take it and told my Doc I wasn’t going to take it. Then I told him I wouldn’t take the flue shot he was recommending.
He didn’t throw a tantrum. We are still friends. Why is it that you people are so intimidated by your Docs?
Show some backbone! Known medical mistakes are a leading cause of death in the US. It is your life. Take responsibility for it!
James
January 7, 2009
I have taken Fosamax for 6 years. My bone density had not improved. Last test showed it had gotten worse. He wants to put me on Forteo. I read about it and he wants me to continue Fosamax. I bought your book and want to discontinue the medication. I am an RN, and feel so confused.
July 15, 2009
Margaret,
I have the same problems you have. I have been on Fosmax for 8 years and my T scores have gotten worse. My doctor also suggested Forteo, but I refused after researching it. I also stopped the Fosmax.
Lynn
January 7, 2009
My sister took Fosamax for several years. She had heart palpitations from time to time. She died suddenly three months ago, at 87, but full of life.
I have been taking Boniva for 14 months, for osteopenia (but no symptoms).
Just the result of a bone density test. Fosamax was first prescribed, and I asked to be switched to Boniva. After reading the warnings about Fosamax I sent the article to my sister. I am very suspicious that it contributed to her sudden death. I told my doctor I didn’t want to continue taking Boniva (also recommended after a bone-density test 14 months later.) I was told I wasn’t that bad. My eyesight became noticeably blurred just a couple of months ago. This may or may not have anything to do with medication, but it’s on the list. I am not taking any more chances, and am warning everyone I know who is taking either. My doctor concurred with my decision, and said all medications have negatives, and you have to decide whether the good it does outweighs the bad. We do need to be our own decision makers. We know how our bodies feel.
I feel good about my decision. Thank you for all your good information.
January 7, 2009
I bought your book several months ago and read it with great interest. I immediately STOPPED taking fosomax (despite having just re-ordered a 90 day supply). The risks you’ve described far outweigh the proposed benefits and frankly, I reaped no rewards.Even after being on fosomax for 3+ years….. my my bone density never improved.
It’s been at least 3 months since I am foxomax free ( haven’t told my doctor yet) but most of the muscle aches and joint pains have gone away. Clearly there is a correlation.
Now, after reading the latest medical findings aboutlinks to cancer……I’m so pleased I heeded your advice.
Keep sending updates please. And if you can, would you share your recommendation for the best calcium supplement………….I don’t absorb calcium very well, despite the mix with magnesium and Vitamin D………so I would like to know what you suggest.
January 7, 2009
Thank you. I have also not taken the fosamax that I was prescribed. What about Knox gelatin for building bones. My mother used to take that? But what about mad cow disease from its content?
January 7, 2009
As a 79 year male, I never gave a thought to osteoperosis (after all, that is a woman`s disease),right? At my annual physical last year, it was discovered that I had lost 2 1/2 inches in height. A bone density exam revealed a fractured disk resulting from osteopenia. My doctor wanted to put me on Fosamax (which I refused)then Actonel (wich I refused), then Reclast (which I refused when I found out that it is just another biophosonate (given by infusion). So I have another appointment in a couple weeks and will request another bone density test.
Time will tell,but Vivian`s help and interest in getting the word out is much appreciated.
January 7, 2009
I took Fosamax 5 years ago and had such terrible headaches and sickness that luckily I stopped taking it after about 4 weeks. I take Osteocare and have recently purchased your book. After having a scan (on the same machine as 5 years ago) my bone loss has only been 2.3% over 5 years. This is way below the average of a normal person(which I’m told is between 1 to 2% a year), so hopefully I should be able to catch up with my own age of bone loss. Based on this, I agree with your book, it must be reversible.
January 7, 2009
I have previously been on Actonel and then switched to Fosomax–combined for about 4 years. Over Labor Day in 2008 I was in Omaha at my daughters, when some itching I had previously been bothered by suddenly became large welts and severed itching. Within 10 minutes my tongue swelled up, my face swelled up and my throat shut down in a terrible allergic reaction. I was rushed to the hospital where they were able to keep me breathing and pump me full of drugs to lower the swelling. I was there for 3 days. It was diagnosed by an allergist to be a sudden onset allergy to Fosomax and that I must never take a bisphosphoate again.
I have been searching the internet for natural things and have found a combination of vitamins called “bone builders” that I am going to try. No more “drugs” of any kind for me and my bones! My doctor just suggested Evista and I find that one of it’s side effects could be blood clots that cause strokes! Ah, no thanks. I’ll take my chances with weaker bones.
January 7, 2009
Howdy from DOWN UNDER!
I am a 38 year old woman who is wheelchair bound with several spinal injuries. I do also have early onset osteoarthritis. I have not been medicated I’d treated for this yet. With all this horrible new information about the treatments for osteoarthritis, I don’t think that I would ever want to be treated the normal way, going to the doctor, getting a prescription, going to the chemist, coming home and taking medications that do my body more harm than good.
I am on 22 different medications/tablets per day. I have early onset oesteoarthritis, of which I am not being treated for, spinal spondylisis, scholiosis, multidisciplinary disc degeneration disease, in which I always suffer from prolapsed discs, plus more. The medications that I am on are mostly pain medications and I am like a zombie each day. But, I can’t afford NOT to take them. I am a member of Australias most beloved choirs, THE CHOIR OF HARD KNOCKS and I need my pain medication to bed able to perform. Otherwise, I am bed ridden. I also have depression, celiac disease, hypertension, and fluid retention. I am on the pension and I am not allowed to work. So, my husband and I struggle each week to survive. So I can’t afford all these new medications, treatments and books on how to treat myself.
I am so glad to receive all this information on medicines and you have actually opened my eyes as to what some medications can actually cause MORE HARM THAN GOOD.
Thankyou for all the information that you have been sending me.
I hope that you can continue to inform me and to keep me up to date with everything that’s happening in the world of medcation and treatments.
Thanks again
Karen
January 7, 2009
I had a bone scann about a month ago and the scann showed that I have severe Osteoporosis.I am 63 years old.I have ordered your book as I do not want to take any medication that is available now.I have enroled in yoga classes as I was told this is a good exercise for your bones .I will be glad when your book arrives.I have an appointment with a specialist in about a month to talk to him about what treatment he recommends other than medication. my score on the scann was 2.5 hips and 4.5 spine-back.
Caren
January 7, 2009
My doctor wants me to do the Reclast once a year treatment. I hesitate to do this , but I need to do something. I try to take calcium and supplements, but get kind of forgetful sometimes when I get busy. It is also expensive to take the supplements. I use Shaklee products when I can afford them. I need help to know what to do, I have not broken any bones yet. I have had breast cancer and am afraid of the reclast causing it to come back. The chemo was really hard on my bones. thanks so much for your web sight. I enjoy it and am thankful for people like you. Sincerly, Shirley
January 7, 2009
I was diagnosed with osteoporosis in the summer of 1996. I was given the choice of Fosamax or Miacalcin. I chose Miacalcin and have been taking it ever since. I have not had any problems with it but lately it wasn’t improving my bone density. I now take strontium every day and vit D. My last bone density test had improved so much that the technition was extremely pleased with my progress, and so was I. I cannot take calcium as it gives me kidney stones, and those are no picnic. Do you have any information on Miacalcin, if so please let me know as I never hear anything about it. Thank you. Joan
January 7, 2009
Thanks for your research and information. This is some of the proof I will need when I have to explain to my doctor why I decided not to take Actonel, quit taking Boniva, and then, my very disgusted physician gave me a prescription for Evista – but I have not had it filled – and won’t. I’m taking calcium with D, eating properly and keeping very active. The little bit of Osteopenia I have is probably to be expected at 77 – and I’m too old to ask for trouble that could be caused by these drugs. I don’t expect to have the same bone density as I did when I was 40.
January 7, 2009
I wish more doctors would take some of the poisons they prescribe for their patients. Maybe they would refrain from prescribing them so liberaly. In talking to a retired surgeon, I asked him if there were patients out their taking medications who felt miserable but thought it was the ailment not the medications that were causing their misery. His answer was very brief, “lots”. He felt doctors were prescribing far to much medication.
January 7, 2009
Hi, Valerie, What does your title, MA, mean?
January 7, 2009
My bone density test showed my score at -3.1 so my Dr. started me on once a month Actonel. I took 2 pills in total but had extreme chest pains, headache, & nausea. I was researching bisphosphonates when I came across Vivian’s info. & program. I ordered the book & was so encouraged that I could use natural means to help my bones. I am so grateful to be getting truth & it confirms a better way. I so appreciate this news update.I’m so glad I’ve been protected from the damage of the drugs. My Dr. is still trying to convince me to go on an I.V. drip or to take the shots. I’m not going to do it. Thank you Vivian.
January 7, 2009
Vivian, I’m really enjoying your book and feel confident that I’m on my way toward much better bone health than the bisphosphonate solution my doctor was pushing. When I questioned the risks of bisphoshponate with my doctor, the only side effect she seemed to be aware of was gastric distress. I would like to show my doctor research published in leading journals that indicate other side effects. Can you provide me with a list of articles? Links to online abstracts would be great as well.
Thanks for sharing your information,
Laurie
January 7, 2009
I knew it! Doctors have been trying to get me to ingest this poison for seven years. I am only 37 and have osteopenia going towards osteoporosis. I have had every test known to man run on me and still no solid answers. I eat organic foods, see a chiropractor regularly, exercise, don’t drink alcohol and take supplements. I would rather take my chances with a fracture (I’ve had three in the past 5 years) than toxify myself and end up with cancer. My cousin’e husbands mother suffered from a necrotiv jaw from Fosomax. That’s what at least six doctors gave me. The only sensible one was a gynecologist in Montana who was horrified that they would give it to someone my age or at all because he thought it was dangerous medication. Thank you Vivian!!!
Melanie
January 7, 2009
Your research is interesting to say the least. I have osteopenia and have been given Calcium Carbonate Vit D3. Any advice you can offer me will be very much appriciated. I am 34 years of age with three young children.
January 7, 2009
Vivian, I cannot thank you enough for this invaluable information. Please, keep your articles coming as I do appreciate it very much. I forward all your mail to my family and friends in the hopes of educating them also. I am following your lead with respect to the diet and exercise recommended in your book, and hopefully will be able to stave off any progression of this dreaded condition.
Sincere thanks and appreciation,
Marilyn
January 7, 2009
I purchased your book and am so glad I did. I took Actonel for several years
and so far have not suffered any bad effects. Thank the Lord!
I took myself off Actonel last April and told my doctor when I went in August.
My bone density test showed my bones were actually better than when I was on the drug. I will never take Actonel again. I play tennis, exercise and eat right.
January 7, 2009
What is your perspective on the daily injection of FORTEO?
I started the injections several months ago but stopped due to muscle spasms in my legs & extremely painful muscle cramps in my legs.I am very skeptic of any medications. I also was on actonel & fosamax.I experienced stomach problems on those meds.It felt like my stomach was full of concrete.I think Drs
need not be so quick to prescribe drugs without further study on how they react on different people.
January 7, 2009
Thank you for this information. I never took a lot of the oral medication for osteoporosis. But, I took a lot of Forto probably 3 yrs or more. Anyway I will wait on reclast. Keep me posted on the studies.
Gail Sims
January 7, 2009
Thanks Vivian for all of this information. When my doctor told me I had osteoporosi and I should be on one of the prescribed drugs I started checking into them. I am not a person to take prescription drugs and after finding out what I found out I decided not to take them. My mother was put on Fosamax for a short period of time but had to quit because it made her sick to her stomach. She died at eighty-four and never broke a bone. I hope I am that lucky. I am taking vitamin D and calcium as my vitamin D has been low for several years. I’m trying hard, just very bad at remembering to take them. I hope I am doing the right thing by refusing to take these drugs but I have to go with my gut on this as my gut is usually right. Your book is the best and I am so glad to have found your website. Thanks again.
January 7, 2009
Many thanks Vivian for keeping us updated with all the new info on these drugs. It only confirms everything i have thought from the day i was first offered them. I did as much online research as i could and made a decision that no matter what, i will never take them. Most of the doctors i have spoken to seem horrified by my decision, but i know it is the right one.
Apart from osteoperosis i have a healthy happy body and don’t want to poison it with medication. Thank God i am not in pain and apart from three fractures in the past, i would not know i had anything wrong with me.
January 7, 2009
I am so glad to see that the studies are finally verifying what my gut has been telling me for years. About 4 years ago, my ob/gyn wanted me to start taking Fosamax for osteopenia. I refused. A year ago, he got downright angry at me because it had gotten worse. He gave me a prescription for Fosamax-D; I got the prescription filled. Then I promptly threw away the pills without ever taking one. I just couldn’t do it. I am so thankful I stood my ground. There will be more and more articles exposing the dangerous side effects of these drugs. I knew it would just be a matter of time.
January 7, 2009
I’m grateful to have found Vivian after doing research online when my Dr. wanted me to start on these dangerous drugs for osteoporosis. I am reading your book now & I’m convinced I can do it on my own the natural way.
Thanks for your research.
January 7, 2009
Thank you Vivian, for your reserach and sending all of us who read your email the truth about drugs used by the medical association that are very harmful to our bodys
I will be sending this to all my friends.
Jill
January 7, 2009
I was prescribed Boniva (once a month tab) by my doctor in June, 2008, for osteo of the lower spine. After taking the drug for five months, I quit taking it because of increasing “bad press”. I am 73 years old and fear the fracture factor, but fear adverse side effects from this drug more.
January 7, 2009
AFTER TAKING FOSAMAX I HAD SWOLLEN FEET AND ANKLES MY SPECIALIST REFUSED TO BELIEVE IT WAS THE TABLETS BUT WHEN I STOPPED TAKING THEM THE SWELLING WENT NEVER TO RETURN!!
TWO YEARS LATER ANOTHER SPECIALIST PUT ME ON ACTONEL NOT TELLING ME ANYTHING ABOUT ONJ
10 MONTHS LATER AND WITH RAGING TOOTACHE I WENT TO THE DENTIST ONLY TO BE TOLD I HAD TO HAVE TWO TEETH OUT BUT BECAUSE OF THE ACTONEL HE COULDNT TAKE THEM OUT SO I SUFFERED FOR ONE MONTH OF PAIN AND AGONY BEFORE HAVING THE TEETH OUT
WHEN I SAW THE SPECIALIST AND TOLD HIM I HAD STOPPED TAKING THE ACTONEL HE SAID I MUST START TAKING IT AGAIN IN THREE MONTHS OR I WOULD SUFFER I TOLD HIM WHAT I HAD READ AND HE MORE OR LESS REFUSED TO BELIEVE MEBUT I AM GOING TO SHOW HIM THE PROOF OF THESE DRUGS
I NOW REFUSE TO TAKE THESE TABLETS
THANKS SO MUCH FOR YOUR INFORMATION ON THE DANGERS OF THESE DRUGS
January 7, 2009
I have not received you book yet but can hardly wait to get it.. I’m 65 and have had osteoporosus for some time. I took both fosamax and actenol both for a while but was never comfortable with the side effects so I just quit taking them.. but fear my osteo will get worse..so am lookin g forward to natural healing of my bones..
January 7, 2009
I was interested to read this article. I did take actonel for a year but stopped, then tried again. I have not taken it since last April as I just had too many questions. I will not ever take this again. This reminds me of the prescriptions for estrogen years ago – claims of heart protection etc.
I exercise every day, lift weights and take supplements. I will also purchase your book.
Thank you!
January 7, 2009
I did purchase your book (Paypal acct is in my husband’s name, Robin). Am so glad I did. I was just diagnosed with osteopenia and have an appt with my Dr. on Jan 21. I KNOW that he will recommend one of the drugs. But with your info I am now armed with what to tell him about why I will not take it.
Thanks so much, Vivian……………and I am now eating 1/2 of a red grapefruit each day!!!
January 7, 2009
I have been on Fosomax or Actonel for several years. My daughter, a nurse said tio stop it but my Dr. said no. Christmas I went into hospital with stomache and chest pain. I have erosion in esophagus. Just read article saying these drugs can cause it and worse. Worried. Imahes
January 7, 2009
Hi–your work is invaluable. Thank you. BTW, I ordered your book two weeks ago
and have still not received it. Holiday back-up? look forward to reading it.
January 7, 2009
thanks Vivian for making me aware of the dangers of this drug. my doctor wanted me to continue with actonel but now I have proof of the dangers to show her
January 7, 2009
To grapefruit eater, Women who eat grapefruit develop more breast cancer than those who don’t. It seems the grapefruit interferes with some enzyme in the body having something to do with estrogen. It was a scientific study but I do not have the notation.
January 7, 2009
Hi Imah, just wanting to wish you all the best.
January 9, 2009
Thanks for sharing your info I wish I hadn’t taken Actonel even tho I told doctor I had tried previously and didn’t want it. She said take it again to try. WELL, I ended up in the hospital the same day that I took it. Severe chest pain and tremors on left side of body (hands and feet).
I spent 6 days in hospital while they ruled out HEART. They weren’t too interested in following Actonel problems, however, I did have a barium swallow test that showed penetration of esophagus.
I read that doctors are worried about lawsuits if they don’t prescribe, well what about us??
January 7, 2009
It’s a Masters of Arts.
Vivian
January 7, 2009
Hi Marcia,
There is no study that actually proves the relationship between grapefruit and breast cancer. A study discussed in the July 2007 issue of the British Journal of Cancer suggested post-menopausal women consuming at least one-quarter grapefruit per day had a 30 percent higher risk for breast cancer compared to women who didn’t eat grapefruit.
The researchers reviewed over 46,000 post-menopausal women from a variety of ethnic backgrounds, including some who either did or did not use estrogen replacement hormone therapy. Thus, the “control group” is so varied, that it’s practically impossible to come to a conclusion.
Several previous studies demonstrated higher estrogen levels in women who regularly ate grapefruit or drank grapefruit juice. Unfortunately, the British study did not measure the baseline estrogen levels of the participants before they ate the grapefruit, so we don’t know the impact, if any, the fruit had on their hormone levels.
And by the way, there are many other factors that increase the body’s blood levels of estrogen. These include but aren’t limited to: obesity, alcoholism, adrenal and pituitary gland tumors and liver disease, as well as environmental exposures to certain chemicals and pesticides. There is also discussion regarding the potential for processed meats (preservatives, certain food colorings, etc.) and hormonally enhanced food products to increase estrogen levels or impact health.
Common sense would dictate that a natural fruit such as grapefruit, rich in antioxidants and Vitamin C, when consumed in normal amounts, is a great addition to a healthy diet.
Best,
Vivian
Best regards,
Vivian
January 7, 2009
Hi Laurie,
The side- effects of bisphophonates is also available in the pamphlet that comes with the drugs. You don’t need published scientific studies, as the makers of these drugs know about it and have to warn the public. The problem is that most people don’t read the information…
Best,
Vivian
January 7, 2009
Hi Rosemarie,
Knox gelatin has been used in the past to help cartilage, not bones.
Best,
Vivian
January 7, 2009
Hi Mary,
The issue with Myacalcin (calcitonin) is that, like the bisphosphonate drugs, it alters the bone remodeling process, making bone thicker but brittle and therefore more prone to fracture. Remember, all we’re trying to do is to prevent fractures.
And calcitonin may have some side effects:
* runny nose
* nosebleed
* sinus pain
* nose symptoms such as crusts, dryness, redness, or swelling
* back pain
* joint pain
* upset stomach
* flushing (feeling of warmth)
Some side effects can be serious and are fortunately less common:
* hives
* skin rash
* itching
* difficulty breathing or swallowing
* swelling of the tongue or throat
Best,
Vivian
January 8, 2009
Hi Cathie,
Check out the Free Chapter on this website to read about Forteo. Just click on the Get Started button and then Free Chapter.
Best,
Vivian
January 8, 2009
Hi Barbara,
There is information about Evista on the Free Chapter section of this website. It’s subtitled: “Double duty and double trouble”.
Best,
Vivian
January 8, 2009
Dear Melanie
I read your comments with interest mainly due to your age. I thought I was very young to have been diagnosed with oestoporosis in my late 40′s. I am now 51.
I too refused the medication – the potential side-effects terrified me and now I now far more about these drugs I am so relieved I went with my instincts.
I have been taking calcium and vit d supplements for a good few years now but have just taken myself off of those too as I worry they too may cause problems in longer term.
annie
January 8, 2009
I have osteoporosis – worst reading being lower back – 2.8
Was prescribed Boniva once a month and when I saw the pill and read the details, did not take it, and fortunately saw Vivians website at the exact same time.
I think that in addition to taking care of your diet it is important to do gentle excercises that strengthen the muscles around the vulnerable areas. I have not yet spoken to anyone professionally about this as obviously incorrect excercise can cause more damage (which I intend to do/any suggestions will be gratefully received) – but I do walk regularly and also swim breast stroke and back stroke which is not too vigorous, once or twice a week. Good Luck.
January 8, 2009
I too, started on Fosomax last May – after taking 2 of the weekly pills I was sick for 3 days with chest pain and couldn’t eat anything that didn’t seem to sit in my throat. Doc switches me to Boniva – after the first monthly dose, milder symptoms 2 weeks into the month. I quit them all but have not told my Dr. as yet. I’ll take my chances with ostepenia and stay on a healthy diet.
January 8, 2009
Vivian: Thank you for doing all you have to expose what these drugs really do (and don’t do) and sharing it with the public.
I was prescribed the generic version of Fosamax about six weeks ago after suffering a fractured tibia while doing intervals of walking/jogging. I had a bone scan and my T-score was -2.2. Dr. said I was “in between” and radiologist recommended I start oral treatment. Dr. said it was up to me.
I figured because I had had the fracture doing something that normally shouldn’t cause it, they must be right and took my first dose. Within just a few days, I had burning stomach pain, constipation, and a headache that lasted for 3 days that no pain reliever would touch. I felt like I was coming down with something and didn’t immediately relate it to the aldendronate. I took a second dose, and all of my symptoms worsened, with the addition of pain in my hips and back and markedly increased fatigue.
This was very alarming to me, so I Googled Fosamax side effects and found you.
I immediately ordered your book, and was appalled at all that was revealed, including the information about Merck’s multi-million dollar legal defense fund for Fosamax. I thought about it, spoke with my husband and decided to take my chances and stop the drug. I am an active 58 year old with no other health problems. I am very careful about what I eat and take vitamins and supplements and exercise every day. Thanks to the information you provided, I have decided to manage my “bone disease” with calcium, vitamin D and K, and balancing my diet between acid and alkaline foods, keep exercising, and not let anyone scare me into doing anything different.
When I found out about this and decided to stop the drug, I emailed my physician and told him what I am telling you here. No response. My experience has been that doctors hate it when patients gain more information and knowledge about something than they have and always try to pooh-pooh it. When I have spoken to friends and acquaintences who are my age about this, they are aghast but are afraid to go against their doctor’s
orders.
The evidence is piling up…it’s only a matter of time before this story blows sky high!
January 8, 2009
Hi Jean,
You can read about Evista by clicking on this link:
http://saveourbones.com/free-chapter.html
Or simply click on the Get Started button of this website and then “Free Chapter”.
It’s subtitled: “Double duty and double trouble”.
Best,
Vivian
January 8, 2009
Here is new information on Vit D:
Go to the http://www.vitaminDcouncil.org for more information:
Noteworthy NewsVitamin D Expert at UC Riverside Leads UC Scientists’ Call Recommending Increase in Daily Vitamin D IntakeSeventeen researchers join Anthony Norman in declaring that the government’s current recommended daily allowance for the vitamin is inadequate.
Anthony Norman, a distinguished professor emeritus of biochemistry and of biomedical sciences at UC Riverside, is co-leading the UC group along with Cedric Garland, an adjunct professor of family and preventive medicine at UC San Diego, in its “call to action” recommending that the daily intake of vitamin D for adults be revised by the government to 2000 international units (IU).
January 8, 2009
Go to the web site: http://www.vitaminDcouncil.org
It looks like most of us have not been getting enough Vit D, with our avoidance of the sun and all the sunscreen we have been using. Also it is important to know what kind of Vit D to take. Vit D3 is the type you want to take. You can also get a Home Vit D test now, where you can determine how your current blood levels are before you start a serious vit D consumption.
Good Luck.
January 8, 2009
What is Hashimotoes?
January 8, 2009
I am interested in knowing: Have you been retested? Has the exercised improved your density? Thanks
January 8, 2009
Hi, I am 57 and have just been diagnosed with osteoporosis in my spine of -2.7 but with a hip measurement of 0.6.
I have no idea why this has happened because i have always had a high callcium diet and loads of walking especially over the last three years.
I spoke to a nurse at the osteoporosis society and she said that T scores are measured against a norm of young people and that i must remember that there is no way of knowing what my T score would have been when that age. It may always have been low.
As I am in the middle of dental implant surgery I have decided not to take the biphosphonates prescribed by the doctor but to up the ante. More weight bearing exercise, nuts, seeds, soya products etc. I hope this will help.
What really annoys me is that there is very little information about this condition given to pre menopausal women.
I was unable to take hrt and has an early menopause (45) which my doctor knew about but i was never given advice about osteo….
I have also felt that there is no one in the medical proffession to address my concerns to. For exammple may i have another DXA scan in twelve months after i have tried self help to improve bone density.
January 11, 2009
Sorry, was obviously too stressed about the whole thing when I wrote this comment – it is the dreaded ALENDRONATE (not Actonel) that my Doctor wants me to start taking – NO WAY! I would welcome your comments about my other query Vivian. Thanks and keep the emails coming, I need all the ammunition I can get! Alison
January 8, 2009
I have know that Actonel and the like are not good, but what can we take in it’s plac? I have upped my vitamin D intake and Calcium, but the doctors say that it is not enough. What if anything have you done?
January 8, 2009
I was pressured by my OB/GYN to start Fosamax even tho I already had reflux, hernia, & trouble swallowing. When the heartburn, reflux, & bloating became intolerable, my PCP changed me to Actonel. It was several years before there was enough credible data to prove that all my joint stiffness & pain was related. I dropped ALL drugs, symtoms immediately disappeared, but unfortunately, it was too late to avoid Barrett’s Esophagus a precancerous ulcer condition that now requires expensive Aciphex to heal (hopefully.)
Now I find that I must fight my drug company who wants me to change to a generic drug with 15-20 side effects vs the 5 of Aciphex….meaning I would have to take several more drugs to counteract the side effects making the costs about the same…smart companies!!
I now take double calcium w/D, magnesium, boron, lpriflavone, concentrated Vit D/K, and work out with weights. My bone density test is due soon, so it will be interesting to see the results. I refused to take hormone therapy due to the cancer in my family….I wish I had paid more attention to these new dangerous bone drugs!
N. L.
January 10, 2009
i too, take calcium with vit d and magnesium , it is called osteomatrix ,omega 3 by shaklee : and glucosamine synergy, calcium lactate,cod liver oil, cataplex c,vitamin butter oil which is made by standard process,inc. i still have stiffness every once in a while but i have pain relievers for that…….. i also do exercises, ones i know my body can handle,. or soak in a jet tub with hot water & olive oil about 1/4 cup, it is good for the skin, plus it soaks in the skin and helps my joints.. i don’t take fosamax or boniva, i believe in vitamins and herbs….. i rub eucamint on my joints, kinda of like ben gay, muscle rub, get this from botanic choice….. best of luck to you………..
January 8, 2009
Karen,
I know how hard it is to survive on the Australian pension. I’m a single parent in Sydney supporting all 3 of us on a pension of $10,000 a year – and life in Australia is NOT cheap, so it’s equivalent to about US$5,000 buying power a year for a family!!! That has to cover my high medical needs too.
I did save up to buy Vivian Goldschmidt’s book, so if you want to borrow it after I’ve read it, please contact me directly on ruthevaw@hotmail.com
Hang in there, and enjoy your choir sessions.
Ruth
January 8, 2009
To Deborah, you might want to try Pilates. It is more of a gentle, therapeutic exercise using different spring-loaded apparatus. Pilates’ instructors are very knowledgeable and tailor the workouts to your individual needs. I have been doing it for two years and it has helped me grow stronger.
I too was given a prescription for Fosamax which I took for 9 months until I couldn’t take the daily stomach aches any longer. Of course the Dr. said my stomach problem plus extreme constipation and diarrhea were not caused by the drug. Because I had digestive problems to start with, I should have never been given the Fosamax.
I sought the help of a homeopathic practitioner who prescribed supplements and diet changes. Also, it is possible that Celiac, unable to digest wheat and gluten, can cause osteoporosis. My tests came back negative but I went on the Gluten Free Diet anyway and feel so much better. No more IBS symptoms, gas, bloating, stomach aches.
January 8, 2009
Your doctor should know that the use of Fosamax will reduce the effectiveness of Forteo.
The bone built by Fosamax is of poor quality and very brittle. Forteo is parathyroid hormone and creates a better quality bone tissue.
January 9, 2009
Hi Marilyn,
You feel great, are active, and are taking the right supplements. You’re on the right track, but what about your nutritional plan? Are you trying to maintain an alkaline pH?
And remember, bone flexibility is more important than bone density to prevent fractures (and that’s the main goal anyways). The huge focus on density is because it happens to be the only aspect of bone health that we can measure…
Best,
Vivian
January 9, 2009
Hi Marlene,
Prilosec is a Proton Pump Inhibitor which, as the name denotes, inhibits hydrochloric acid formation in the stomach. While it does help relieve acid reflux, GERD, and other hyperacidity conditions, we do need HCl to properly digest food and absorb certain nutrients.
In a study published by the Canadian Medical Association Journal titled “Use of proton pump inhibitors and risk of osteoporosis-related fractures”
researcher Laura E. Targownik, MD MSHS, et al. comment that:
“The ability of the small intestine to absorb ingested calcium salts is dependent on solubility, and the solubility of calcium salts is pH dependent. Calcium carbonate, which is the most common calcium salt found in dietary supplements, is relatively insoluble at high pH levels, which could potentially hinder its absorption.”
The study concludes as follows:
“We detected an association between long-term (≥ 7 years) exposure to proton pump inhibitors and osteoporosis-related fractures. We also found an association between hip fractures and 5 or more years exposure to proton pump inhibitors. However, short-term use did not appear to increase fracture risk.”
Best,
Vivian
January 9, 2009
Hi Beverly,
It depends on what type of calcium you are taking.
Best,
Vivian
January 9, 2009
Hi Lynn,
A bone scan is a nuclear scanning test that identifies new areas of bone growth or breakdown. If you feel uncomfortable about the test, I suggest you discuss this with your doctor. He might recommend another test instead of the bone scan.
Best,
Vivian
January 9, 2009
After doing some research on ipriflavone, I stopped taking it. Before you continue it’s use, please do the research. My doctor even commented that I should be as concerned about it as I am about the fosamax. Just a word of caution.
January 9, 2009
I didn’t start taking meds for osteoporosis, because I already have a hiatus hernia and have had trouble with reflux. It is now under control and I did not want to cause problems with that again. Several yeas ago, the antacids that were prescribed for me caused problems with my memory. Acid blockers, reduce the absorption of B vitamins which are helpful for memory. I now see a D.O. who is trained in enviromental medicine. He treats primarily with natural supplements. He recommended Rhizinate otherwise known as DGL, which is derived from licorice. It is most effective in a chewable form, used before eating, it coats the esophagus and protects it from the acid. They say the licorice can elevate your blood pressure, but mine did not change much. If anything, it went up 5-6 points.
January 9, 2009
Hi, I am so surprised with everyones comments. Especially yours, because yours descibes what I was told,my lumber is the same as yours.I was just wainting to get on my husbands h/i, but thanks so much for sharing your experience, I am not even going to try the drug. all I can really say is WOW!!! thank goodness , we are all able to share,,, ,thank-you. And huge thanks to Vivian,,
January 9, 2009
Hi Jane,
Hashimoto’s is an autoimmune disease that attacks the thyroid gland and causes an underactive thyroid.
Best,
Vivian
January 9, 2009
Hi Susan,
I tried taking natural progesterone a few years ago and it gave me really bad headaches like most things seem to. My osteopath gave me a booklet which Dr Lee wrote so I thought I’d try it.
I would be interested to know which progesterone is the best one to take and if anyone else has tried it with success?
Best Wishes
Sandra (from England)
January 10, 2009
Hi Susan,
Just read your article and very interested in building bone. I have been on Actonel for a number of year. I don’t seem to have any problems and my bone density has apparently improved. I have noticed lately I am very stiff in all my joints and I was putting this down to just pains but maybe its something to do with the tablet. I have not discussed it with my doctor as yet but would prefer to be off the medication incidently I have an under active thyroid too, and I cannot tolerate calcium in any form.
Maybe you have some answers for me.
Thanking you in anticipation/
Hester
January 9, 2009
Hi Delores,
A method called FRAX™ was recently developed by the World Health Organization (the same organization that set the diagnostic parameters for Osteoporosis and Osteopenia). It can be used to assess the individual risk of fracture of patients as an algorithmic calculation that integrates the clinical risk factors with the bone mineral density at the femoral neck.
The FRAX™ algorithms give the 10-year probability of hip fracture and a major osteoporotic fracture (clinical spine, forearm, hip or shoulder fracture).
In an article dated February 5, 2008 the Cambridge Biomedical Research Group writes that:
“An individual’s risk factors such as age, sex, weight, height and femoral neck BMD if available are entered into the FRAX™ website, along with information on prior fragility fracture, parental history of hip fracture, current tobacco smoking, long-term use of glucocorticoids, rheumatoid arthritis, other causes of secondary osteoporosis and daily alcohol consumption.”
The Washington, DC-based National Osteoporosis Foundation recently released the Clinician’s Guide to Prevention and Treatment of Osteoporosis, which also instructs physicians on how to incorporate the FRAX tool into their practice. It seems that very few doctors are implementing this calculation, maybe because the algorithm can only be applied to previously untreated patients.
I wonder when the WHO will create a system to predict the personalized risk factor of suffering untold consequences from the Osteoporosis drugs administered based on the fracture risk prediction.
Just some food for thought…
Vivian
January 9, 2009
Brian, very interested in your comment about Kangen water. I have osteopenia and
in reading on the internet have found articles about structured water. I then was
in my Chiropractor’s office and she gave me this water. I do not like water, but I
like the water. It is a very expensive system–do you think it is better than other
ionized water systems. What ph is your wife using and is she still happy.
January 9, 2009
Joan,
I’m encouraged to read that you are taking a strontium supplement. I started taking one about a month ago along with vit. D and calcium which includes minerals. I read an article written by the Denver Naturopatic Clinic regarding their use of Strontium in osteoporosis patients with good results. I am hopeful that it will improve my bone density.
Sheryl
January 10, 2009
Hi, I take Alendronate acid once a week. I have been on themfor about 8 months, so far i have no side effects. However i am concerned about this drug.I have asked my Dr. about the side effects that could happen and she told me that rarely their are any problems. I am at a very high risk position for fracture’s therfore i don’t feel i have a choice. I do take the recomended calcium. I want to forward to vivian as well. Karen fr. Canada
January 12, 2009
A nutritional consultant, where we buy our vitamins, suggested that I sip slowly, (3 to 5 minutes,) a tablespoon of apple cider vinegar in 6 to 8 oz. of good water, after meals, and not drink any liquid with the meal. This is to combat the bloating caused by unbalanced hydrochloric acid. Also that with the unbalanced acid, my system is not getting the full benefit of the calcium and minerals which I am taking, and that the unbalanced acids could be leaching calcium from the bones.
What is your take on this?
Thank you Vivian!
Judy
January 12, 2009
Hi Vivien,
I am a heavy coffe drinker myself, and I keep ‘postponing’ my Calcium intake during the day, because I am having more than one cup of coffe.
You are not really answering Bev’s question: can we have coffe with Calcium, how much do you need to wait? Most of the supplements require that you take the Ca with food. Could you please ellaborate on how to take the Ca, carbonate vs citrate and other types? Is the “Tums” a good alternative to the big pills or we shoud avoid it if we have osteoporosis?
Thanks,
Elena
January 21, 2009
Please tell me the name of your book and where it can be purchased and the price. Thanks
Sherry
February 11, 2009
Hi Sherry,
Did she ever send you the information on where you can purchase the book. If she did I would appreciate if you would share it with me.
I need to start the exercise program.
Best Regards
Cathy