The year 2009 has just begun, and it looks like it will be a year of big surprises – at least for the makers of Osteoporosis drugs. New information is opening up the door to many unanswered questions and suspicions about the most commonly prescribed drugs such as Fosamax, Actonel, and Boniva.
On December 31st, just on time to herald the New Year, Reuters reported the following:
Diane Wysowski of the FDA’s division of drug risk assessment said researchers should check into potential links between bisphosphonate drugs and cancer. In a letter in Thursday’s New England Journal of Medicine, Wysowski said since the initial marketing of Fosamax, known generically as alendronate, in 1995, the FDA has received 23 reports in which patients developed esophageal tumors. Typically, two years lapsed between the start of the drug and the development of esophageal cancer. Eight patients died, she reported. In Europe and Japan, 21 cases involving Fosamax have been logged, with another six instances where Procter & Gamble’s Actonel or risedronate and Didronel or etidronate, and Roche’s Boniva (ibandronate) may have been involved. Six of those people died.
The article also comments on the known fact that these drugs can cause “esophagitis, which is an inflammation of the lining of the tube carrying food to the stomach…which is why patients are instructed to remain upright for at least a half hour after taking them.”
As if this were not enough, on January 2nd 2009 The New England Journal of Medicine
(Volume 360:53-62) published an article titled “Giant Osteoclast Formation and Long-
Term Oral Bisphosphonate Therapy” by Robert M. Weinstein, M.D., et al., that seems to shatter everything we were told about how these drugs work.
Until this study, bisphosphonates were believed to destroy osteoclasts, the crucial bone cells that remove bone so new bone can be deposited. But now – and I’m quoting from the article’s conclusion – “long-term alendronate treatment is associated with an increase in the number of osteoclasts, which include distinctive giant, hypernucleated, detached osteoclasts that are undergoing protracted apoptosis.” And to make matters worse, nobody knows what these strange cells can do!
And last but not least, even though it is a known fact that bisphosphonates can cause osteonecrosis of the jaw, few expected the definitive study in the January 1st issue of Journal of the American Dental Association stating that “even short-term oral use of alendronate led to osteonecrosis of the jaw.” According to Science Daily (January 2, 2009):
This is the first large institutional study in the U.S. to investigate the relationship between oral bisphosphonate use and jaw bone death, said principal investigator Parish Sedghizadeh, assistant professor of clinical dentistry with the USC School of Dentistry. After controlling for referral bias, nine of 208 healthy School of Dentistry patients who take or have taken Fosamax for any length of time were diagnosed with osteonecrosis of the jaw (ONJ). The study’s results are in contrast to drug makers’ prior assertions that bisphosphonate-related ONJ risk is only noticeable with intravenous use of the drugs, not oral usage, Sedghizadeh said. “We’ve been told that the risk with oral bisphosphonates is negligible, but four percent is not negligible,” he said. The results confirm the suspicions of many in the oral health field, he said. “Here at the School of Dentistry we’re getting two or three new patients a week that have bisphosphonate-related ONJ,” he said, “and I know we’re not the only ones seeing it.”
I am really not surprised that this information is now divulged by mainstream medicine because sooner or later, as in the case of Vioxx, the truth will be known. My heart is with all those who are suffering the horrible consequences of being human guinea pigs. As the list of serious side-effects of bisphosphonates continues to grow, I hope that those who are given a prescription will question its value and at least try to discover the truth about these drugs and seek a safe and natural alternative.
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January 7, 2009
Hello Vivian
You are a blessing soul and powerful unconscious mind, who working continuosly with the osteoporosis diseases.
People don’t suffereng from osteoporosis diseases are very blessing.
Thank you for all your powerful interest and enthusiasm to work in this fieal.
I want to ask a question. What kind of bateria or virus is leucocytes or acids.
Thank for you information about it.
My individual opinion is babies need milk, adults need carer and attention which kind of food we eat. what we eat what we are.
My warm regards and the Universe blesses your mind.
Margarita Rodriguez
January 7, 2009
DO YOU HAVE INFORMATION IN THE BOOK REGARDING MIACALCIN ? I AM CURRENTLY WEANING MYSELF OFF OF IT, BECAUSE I AM CONCERNED ABOUT THE SIDE EFFECTS?????
January 7, 2009
I received your book Vivian two weeks ago. I took myself off the generic Fosamax immediately. I was not aware of the dangers of these pills. I was on Fosamax for 7 years when my Dr. gave me a 2 year Fosamax holiday. At the end of the 2 years I was put back on this drug. I called my Dr. She understood my feelings but said she hoped that I would not be breaking any bones in the future.
January 7, 2009
Thank you for the information on Osteoporosis. I am on Pamedronate which I have by I.V. every three months. I have been on it for a couple of years and would like to know if you have any information on it. My Dr. wanted me to go on Aclasta and after reading your Chapter 5 have decided it is not for me. Would appreciate any information you can give me. I also have Chron’s Disease which I have had for 40 some years and have GERD which I am on Sulcrate for. Thanks.
January 7, 2009
After reading your book and online comments of bone health and the dangers of the drugs prescribed to treat osteoporosis, I am terrified of taking an RX for this condition. Due to terrible joint pain from two doeses of Actonel, my doctor prescribed a nasal spray, Fortical, (calcitonin-salmon). The side effects listed do not seem to be as bad as other RX taken orally. I have not used the RX yet and it has been in my frig for 6 weeks. I will try the recommendations from your book and see what my next bone density test reveals in November this year!
Keep the information coming!
Thanks so much,
Gail
January 7, 2009
I have always been totally against these drugs due to the damage they do to women. The late Dr. Lee was trying to warn all of us of the dangers involved with these drugs years ago. If a woman wants to build bone, the best treatment is bio-identical progesterone. I have a passion for bio-identical hormones. Have been researching the topic for 15 yrs. And this year will publish a book that I have written. I am livid over the control that the FDA and Big Pharma have over the population, especially women. Progesterone could also change our statistics with breast cancer, but Big Pharma is only concerned with medicating reoccurences not in prevention. They only make money with disease. Bio-identical hormones could make such a difference in the rest of the journey for women and men. I urge anyone that wants good bones, good heart, good energy, low body fat etc. to research the wonderful benefits of bio-identical hormones. Or they can also email me at sberkey@teacher.com
Thank you, Susan
January 7, 2009
My doctor wanted me to take the one-year reclast infusion. No way. A friend of mine took it and had a severe reaction – hospitalized for a while and needed physical therapy for a while after. Her doctor blamed it on a flare up of her arthritis. Also, a friend of hers who had the infusion developed a stroke two weeks after. She had a stroke a few years previously but this seemed too coincidental.
When I refused the reclast my doctor suggested forteo. This is injected daily, costs over $4,000 and is not covered by insurance. No thanks.
January 7, 2009
Vivian, You should have been given some credit on this report. How long ago did you reveal this information! E
January 7, 2009
I have osteoporosis, I suggested having a bone density probably 4-5 years ago.Last year I was told my spine is the age of a 80 year old woman. I am 60.I feel great. my spine was -3.4. they want me to do reclast. I bodypump at once or twice a week for an hour straight. I walk at a fitness center. I am a sales rep, so I walk all day at work. I take calcium with D. twice a day. I have not lost nay height. I feel tuned in to my body, I dont want to do the reclast. any answers for me? thanks linda
January 7, 2009
Thank you for your information on bone medications. My history with bones go back into my 30′s with fractures, breaks and pain. I am now 52 (not in menopause) with normal hips, normal upper back and lower back of -2.6. I have broken bones in my feet by my ankle turning over, fractured knee cap, shattered knee cap, broken fingers, toes and fractured legs. Thank goodness I quit horse back riding, rollerblading, powerlifting, marathon running, and gymastics, before all this happened (seriously!) The first thing my doctors wanted to do was put me on Fosamax, or the nasal spray or SOMETHING!.. First I wanted to find out the reason why it was happening.. only to find out that I had Hashimotoes & Vitamin D level of 19. BTW, I am allergic to fish products/seafood/shellfish and oils, so Vitamin D products were at first alittle tricky. Now I am ordering a Vitamin D drop 1,000 iu per drop (lanolin based). I am interested in stronium and other minerals/foods to improve absorbtion. Thank you for giving information and alternatives. My new doc is very open about other options and choices. BTW, using just a few suggestions you had online after I shattered my knee last year (8 pieces), I was back to work in 9 weeks. That would not had happened if I had been on Fosamax)
Thanks again, Lisa
January 7, 2009
I urge everyone on drugs for osteoporosis to have an endoscopy done and see if they have damage. I did and now have a patch of Baretts esophagus that is being watched by my gastroenterologist. He has a treatment called Halo which can get rid of Baretts, kind of burns it off. I’m sure other doctors do it also. I did take didronel for at least a year,now take nothing. My gyn doctor furious with me for refusing treatment. Vivians book does not go far enough. For instance eating grapefruit may cause more breast cancer or what about having vit d levels tested to keep in the range of 50-65 mm/l. Marcia
January 7, 2009
Hi Vivan thankyou for update imformation,i will be never taking these drugs unless a new safe prescribed drug is avaiable, i did have trouble with one tooth a couple of months after i stopped taking Actonel.Regards Steve.
January 7, 2009
i took actonel for 3 years and had no change in my readings now the specialist has put me on evista. after just 2 days i stopped taking it because of the stomach pain ,much the same as actonel i know my dr will be upset with me but like others i don’t think i’ll take any of the drugs
January 7, 2009
I am also not surprised by the recent finding for Osteo drugs.
As you may remember I refused my Dr’s advice(2-13-08) but, pleasantly, when I did, he said I would need extra Calcium and Vita D. He knows I am a very healthy eater with very little meat, lots of fruit, legumes, veggies and a dedicated run/walker 7 days a week. I also use weights & yoga.
It’s always good to hear from you and I appreciate your concern.
Thanks
January 7, 2009
Dear Friends,
What is wrong with those of you who have to get your Doc’s permission not to take Fosamax? This is crazy! After showing up with a diminished bone density, I was given a prescription by my Doc to take Fosamax. Then I went home an read up on it. I decided not to take it and told my Doc I wasn’t going to take it. Then I told him I wouldn’t take the flue shot he was recommending.
He didn’t throw a tantrum. We are still friends. Why is it that you people are so intimidated by your Docs?
Show some backbone! Known medical mistakes are a leading cause of death in the US. It is your life. Take responsibility for it!
James
January 7, 2009
I have taken Fosamax for 6 years. My bone density had not improved. Last test showed it had gotten worse. He wants to put me on Forteo. I read about it and he wants me to continue Fosamax. I bought your book and want to discontinue the medication. I am an RN, and feel so confused.
July 15, 2009
Margaret,
I have the same problems you have. I have been on Fosmax for 8 years and my T scores have gotten worse. My doctor also suggested Forteo, but I refused after researching it. I also stopped the Fosmax.
Lynn
January 7, 2009
My sister took Fosamax for several years. She had heart palpitations from time to time. She died suddenly three months ago, at 87, but full of life.
I have been taking Boniva for 14 months, for osteopenia (but no symptoms).
Just the result of a bone density test. Fosamax was first prescribed, and I asked to be switched to Boniva. After reading the warnings about Fosamax I sent the article to my sister. I am very suspicious that it contributed to her sudden death. I told my doctor I didn’t want to continue taking Boniva (also recommended after a bone-density test 14 months later.) I was told I wasn’t that bad. My eyesight became noticeably blurred just a couple of months ago. This may or may not have anything to do with medication, but it’s on the list. I am not taking any more chances, and am warning everyone I know who is taking either. My doctor concurred with my decision, and said all medications have negatives, and you have to decide whether the good it does outweighs the bad. We do need to be our own decision makers. We know how our bodies feel.
I feel good about my decision. Thank you for all your good information.
January 7, 2009
I bought your book several months ago and read it with great interest. I immediately STOPPED taking fosomax (despite having just re-ordered a 90 day supply). The risks you’ve described far outweigh the proposed benefits and frankly, I reaped no rewards.Even after being on fosomax for 3+ years….. my my bone density never improved.
It’s been at least 3 months since I am foxomax free ( haven’t told my doctor yet) but most of the muscle aches and joint pains have gone away. Clearly there is a correlation.
Now, after reading the latest medical findings aboutlinks to cancer……I’m so pleased I heeded your advice.
Keep sending updates please. And if you can, would you share your recommendation for the best calcium supplement………….I don’t absorb calcium very well, despite the mix with magnesium and Vitamin D………so I would like to know what you suggest.
January 7, 2009
Thank you. I have also not taken the fosamax that I was prescribed. What about Knox gelatin for building bones. My mother used to take that? But what about mad cow disease from its content?
January 7, 2009
As a 79 year male, I never gave a thought to osteoperosis (after all, that is a woman`s disease),right? At my annual physical last year, it was discovered that I had lost 2 1/2 inches in height. A bone density exam revealed a fractured disk resulting from osteopenia. My doctor wanted to put me on Fosamax (which I refused)then Actonel (wich I refused), then Reclast (which I refused when I found out that it is just another biophosonate (given by infusion). So I have another appointment in a couple weeks and will request another bone density test.
Time will tell,but Vivian`s help and interest in getting the word out is much appreciated.
January 7, 2009
I took Fosamax 5 years ago and had such terrible headaches and sickness that luckily I stopped taking it after about 4 weeks. I take Osteocare and have recently purchased your book. After having a scan (on the same machine as 5 years ago) my bone loss has only been 2.3% over 5 years. This is way below the average of a normal person(which I’m told is between 1 to 2% a year), so hopefully I should be able to catch up with my own age of bone loss. Based on this, I agree with your book, it must be reversible.
January 7, 2009
I have previously been on Actonel and then switched to Fosomax–combined for about 4 years. Over Labor Day in 2008 I was in Omaha at my daughters, when some itching I had previously been bothered by suddenly became large welts and severed itching. Within 10 minutes my tongue swelled up, my face swelled up and my throat shut down in a terrible allergic reaction. I was rushed to the hospital where they were able to keep me breathing and pump me full of drugs to lower the swelling. I was there for 3 days. It was diagnosed by an allergist to be a sudden onset allergy to Fosomax and that I must never take a bisphosphoate again.
I have been searching the internet for natural things and have found a combination of vitamins called “bone builders” that I am going to try. No more “drugs” of any kind for me and my bones! My doctor just suggested Evista and I find that one of it’s side effects could be blood clots that cause strokes! Ah, no thanks. I’ll take my chances with weaker bones.
January 7, 2009
Howdy from DOWN UNDER!
I am a 38 year old woman who is wheelchair bound with several spinal injuries. I do also have early onset osteoarthritis. I have not been medicated I’d treated for this yet. With all this horrible new information about the treatments for osteoarthritis, I don’t think that I would ever want to be treated the normal way, going to the doctor, getting a prescription, going to the chemist, coming home and taking medications that do my body more harm than good.
I am on 22 different medications/tablets per day. I have early onset oesteoarthritis, of which I am not being treated for, spinal spondylisis, scholiosis, multidisciplinary disc degeneration disease, in which I always suffer from prolapsed discs, plus more. The medications that I am on are mostly pain medications and I am like a zombie each day. But, I can’t afford NOT to take them. I am a member of Australias most beloved choirs, THE CHOIR OF HARD KNOCKS and I need my pain medication to bed able to perform. Otherwise, I am bed ridden. I also have depression, celiac disease, hypertension, and fluid retention. I am on the pension and I am not allowed to work. So, my husband and I struggle each week to survive. So I can’t afford all these new medications, treatments and books on how to treat myself.
I am so glad to receive all this information on medicines and you have actually opened my eyes as to what some medications can actually cause MORE HARM THAN GOOD.
Thankyou for all the information that you have been sending me.
I hope that you can continue to inform me and to keep me up to date with everything that’s happening in the world of medcation and treatments.
Thanks again
Karen
January 7, 2009
I had a bone scann about a month ago and the scann showed that I have severe Osteoporosis.I am 63 years old.I have ordered your book as I do not want to take any medication that is available now.I have enroled in yoga classes as I was told this is a good exercise for your bones .I will be glad when your book arrives.I have an appointment with a specialist in about a month to talk to him about what treatment he recommends other than medication. my score on the scann was 2.5 hips and 4.5 spine-back.
Caren
January 7, 2009
My doctor wants me to do the Reclast once a year treatment. I hesitate to do this , but I need to do something. I try to take calcium and supplements, but get kind of forgetful sometimes when I get busy. It is also expensive to take the supplements. I use Shaklee products when I can afford them. I need help to know what to do, I have not broken any bones yet. I have had breast cancer and am afraid of the reclast causing it to come back. The chemo was really hard on my bones. thanks so much for your web sight. I enjoy it and am thankful for people like you. Sincerly, Shirley
January 7, 2009
I was diagnosed with osteoporosis in the summer of 1996. I was given the choice of Fosamax or Miacalcin. I chose Miacalcin and have been taking it ever since. I have not had any problems with it but lately it wasn’t improving my bone density. I now take strontium every day and vit D. My last bone density test had improved so much that the technition was extremely pleased with my progress, and so was I. I cannot take calcium as it gives me kidney stones, and those are no picnic. Do you have any information on Miacalcin, if so please let me know as I never hear anything about it. Thank you. Joan
January 7, 2009
Thanks for your research and information. This is some of the proof I will need when I have to explain to my doctor why I decided not to take Actonel, quit taking Boniva, and then, my very disgusted physician gave me a prescription for Evista – but I have not had it filled – and won’t. I’m taking calcium with D, eating properly and keeping very active. The little bit of Osteopenia I have is probably to be expected at 77 – and I’m too old to ask for trouble that could be caused by these drugs. I don’t expect to have the same bone density as I did when I was 40.
January 7, 2009
I wish more doctors would take some of the poisons they prescribe for their patients. Maybe they would refrain from prescribing them so liberaly. In talking to a retired surgeon, I asked him if there were patients out their taking medications who felt miserable but thought it was the ailment not the medications that were causing their misery. His answer was very brief, “lots”. He felt doctors were prescribing far to much medication.
January 7, 2009
Hi, Valerie, What does your title, MA, mean?
January 7, 2009
My bone density test showed my score at -3.1 so my Dr. started me on once a month Actonel. I took 2 pills in total but had extreme chest pains, headache, & nausea. I was researching bisphosphonates when I came across Vivian’s info. & program. I ordered the book & was so encouraged that I could use natural means to help my bones. I am so grateful to be getting truth & it confirms a better way. I so appreciate this news update.I’m so glad I’ve been protected from the damage of the drugs. My Dr. is still trying to convince me to go on an I.V. drip or to take the shots. I’m not going to do it. Thank you Vivian.
January 7, 2009
Vivian, I’m really enjoying your book and feel confident that I’m on my way toward much better bone health than the bisphosphonate solution my doctor was pushing. When I questioned the risks of bisphoshponate with my doctor, the only side effect she seemed to be aware of was gastric distress. I would like to show my doctor research published in leading journals that indicate other side effects. Can you provide me with a list of articles? Links to online abstracts would be great as well.
Thanks for sharing your information,
Laurie
January 7, 2009
I knew it! Doctors have been trying to get me to ingest this poison for seven years. I am only 37 and have osteopenia going towards osteoporosis. I have had every test known to man run on me and still no solid answers. I eat organic foods, see a chiropractor regularly, exercise, don’t drink alcohol and take supplements. I would rather take my chances with a fracture (I’ve had three in the past 5 years) than toxify myself and end up with cancer. My cousin’e husbands mother suffered from a necrotiv jaw from Fosomax. That’s what at least six doctors gave me. The only sensible one was a gynecologist in Montana who was horrified that they would give it to someone my age or at all because he thought it was dangerous medication. Thank you Vivian!!!
Melanie
January 7, 2009
Your research is interesting to say the least. I have osteopenia and have been given Calcium Carbonate Vit D3. Any advice you can offer me will be very much appriciated. I am 34 years of age with three young children.
January 7, 2009
Vivian, I cannot thank you enough for this invaluable information. Please, keep your articles coming as I do appreciate it very much. I forward all your mail to my family and friends in the hopes of educating them also. I am following your lead with respect to the diet and exercise recommended in your book, and hopefully will be able to stave off any progression of this dreaded condition.
Sincere thanks and appreciation,
Marilyn
January 7, 2009
I purchased your book and am so glad I did. I took Actonel for several years
and so far have not suffered any bad effects. Thank the Lord!
I took myself off Actonel last April and told my doctor when I went in August.
My bone density test showed my bones were actually better than when I was on the drug. I will never take Actonel again. I play tennis, exercise and eat right.
January 7, 2009
What is your perspective on the daily injection of FORTEO?
I started the injections several months ago but stopped due to muscle spasms in my legs & extremely painful muscle cramps in my legs.I am very skeptic of any medications. I also was on actonel & fosamax.I experienced stomach problems on those meds.It felt like my stomach was full of concrete.I think Drs
need not be so quick to prescribe drugs without further study on how they react on different people.
January 7, 2009
Thank you for this information. I never took a lot of the oral medication for osteoporosis. But, I took a lot of Forto probably 3 yrs or more. Anyway I will wait on reclast. Keep me posted on the studies.
Gail Sims
January 7, 2009
Thanks Vivian for all of this information. When my doctor told me I had osteoporosi and I should be on one of the prescribed drugs I started checking into them. I am not a person to take prescription drugs and after finding out what I found out I decided not to take them. My mother was put on Fosamax for a short period of time but had to quit because it made her sick to her stomach. She died at eighty-four and never broke a bone. I hope I am that lucky. I am taking vitamin D and calcium as my vitamin D has been low for several years. I’m trying hard, just very bad at remembering to take them. I hope I am doing the right thing by refusing to take these drugs but I have to go with my gut on this as my gut is usually right. Your book is the best and I am so glad to have found your website. Thanks again.
January 7, 2009
Many thanks Vivian for keeping us updated with all the new info on these drugs. It only confirms everything i have thought from the day i was first offered them. I did as much online research as i could and made a decision that no matter what, i will never take them. Most of the doctors i have spoken to seem horrified by my decision, but i know it is the right one.
Apart from osteoperosis i have a healthy happy body and don’t want to poison it with medication. Thank God i am not in pain and apart from three fractures in the past, i would not know i had anything wrong with me.
January 7, 2009
I am so glad to see that the studies are finally verifying what my gut has been telling me for years. About 4 years ago, my ob/gyn wanted me to start taking Fosamax for osteopenia. I refused. A year ago, he got downright angry at me because it had gotten worse. He gave me a prescription for Fosamax-D; I got the prescription filled. Then I promptly threw away the pills without ever taking one. I just couldn’t do it. I am so thankful I stood my ground. There will be more and more articles exposing the dangerous side effects of these drugs. I knew it would just be a matter of time.
January 7, 2009
I’m grateful to have found Vivian after doing research online when my Dr. wanted me to start on these dangerous drugs for osteoporosis. I am reading your book now & I’m convinced I can do it on my own the natural way.
Thanks for your research.
January 7, 2009
Thank you Vivian, for your reserach and sending all of us who read your email the truth about drugs used by the medical association that are very harmful to our bodys
I will be sending this to all my friends.
Jill
January 7, 2009
I was prescribed Boniva (once a month tab) by my doctor in June, 2008, for osteo of the lower spine. After taking the drug for five months, I quit taking it because of increasing “bad press”. I am 73 years old and fear the fracture factor, but fear adverse side effects from this drug more.
January 7, 2009
AFTER TAKING FOSAMAX I HAD SWOLLEN FEET AND ANKLES MY SPECIALIST REFUSED TO BELIEVE IT WAS THE TABLETS BUT WHEN I STOPPED TAKING THEM THE SWELLING WENT NEVER TO RETURN!!
TWO YEARS LATER ANOTHER SPECIALIST PUT ME ON ACTONEL NOT TELLING ME ANYTHING ABOUT ONJ
10 MONTHS LATER AND WITH RAGING TOOTACHE I WENT TO THE DENTIST ONLY TO BE TOLD I HAD TO HAVE TWO TEETH OUT BUT BECAUSE OF THE ACTONEL HE COULDNT TAKE THEM OUT SO I SUFFERED FOR ONE MONTH OF PAIN AND AGONY BEFORE HAVING THE TEETH OUT
WHEN I SAW THE SPECIALIST AND TOLD HIM I HAD STOPPED TAKING THE ACTONEL HE SAID I MUST START TAKING IT AGAIN IN THREE MONTHS OR I WOULD SUFFER I TOLD HIM WHAT I HAD READ AND HE MORE OR LESS REFUSED TO BELIEVE MEBUT I AM GOING TO SHOW HIM THE PROOF OF THESE DRUGS
I NOW REFUSE TO TAKE THESE TABLETS
THANKS SO MUCH FOR YOUR INFORMATION ON THE DANGERS OF THESE DRUGS
January 7, 2009
I have not received you book yet but can hardly wait to get it.. I’m 65 and have had osteoporosus for some time. I took both fosamax and actenol both for a while but was never comfortable with the side effects so I just quit taking them.. but fear my osteo will get worse..so am lookin g forward to natural healing of my bones..
January 7, 2009
I was interested to read this article. I did take actonel for a year but stopped, then tried again. I have not taken it since last April as I just had too many questions. I will not ever take this again. This reminds me of the prescriptions for estrogen years ago – claims of heart protection etc.
I exercise every day, lift weights and take supplements. I will also purchase your book.
Thank you!
January 7, 2009
I did purchase your book (Paypal acct is in my husband’s name, Robin). Am so glad I did. I was just diagnosed with osteopenia and have an appt with my Dr. on Jan 21. I KNOW that he will recommend one of the drugs. But with your info I am now armed with what to tell him about why I will not take it.
Thanks so much, Vivian……………and I am now eating 1/2 of a red grapefruit each day!!!
January 7, 2009
I have been on Fosomax or Actonel for several years. My daughter, a nurse said tio stop it but my Dr. said no. Christmas I went into hospital with stomache and chest pain. I have erosion in esophagus. Just read article saying these drugs can cause it and worse. Worried. Imahes
January 7, 2009
Hi–your work is invaluable. Thank you. BTW, I ordered your book two weeks ago
and have still not received it. Holiday back-up? look forward to reading it.
January 7, 2009
thanks Vivian for making me aware of the dangers of this drug. my doctor wanted me to continue with actonel but now I have proof of the dangers to show her
January 7, 2009
To grapefruit eater, Women who eat grapefruit develop more breast cancer than those who don’t. It seems the grapefruit interferes with some enzyme in the body having something to do with estrogen. It was a scientific study but I do not have the notation.
January 7, 2009
Hi Imah, just wanting to wish you all the best.
January 9, 2009
Thanks for sharing your info I wish I hadn’t taken Actonel even tho I told doctor I had tried previously and didn’t want it. She said take it again to try. WELL, I ended up in the hospital the same day that I took it. Severe chest pain and tremors on left side of body (hands and feet).
I spent 6 days in hospital while they ruled out HEART. They weren’t too interested in following Actonel problems, however, I did have a barium swallow test that showed penetration of esophagus.
I read that doctors are worried about lawsuits if they don’t prescribe, well what about us??
January 7, 2009
It’s a Masters of Arts.
Vivian
January 7, 2009
Hi Marcia,
There is no study that actually proves the relationship between grapefruit and breast cancer. A study discussed in the July 2007 issue of the British Journal of Cancer suggested post-menopausal women consuming at least one-quarter grapefruit per day had a 30 percent higher risk for breast cancer compared to women who didn’t eat grapefruit.
The researchers reviewed over 46,000 post-menopausal women from a variety of ethnic backgrounds, including some who either did or did not use estrogen replacement hormone therapy. Thus, the “control group” is so varied, that it’s practically impossible to come to a conclusion.
Several previous studies demonstrated higher estrogen levels in women who regularly ate grapefruit or drank grapefruit juice. Unfortunately, the British study did not measure the baseline estrogen levels of the participants before they ate the grapefruit, so we don’t know the impact, if any, the fruit had on their hormone levels.
And by the way, there are many other factors that increase the body’s blood levels of estrogen. These include but aren’t limited to: obesity, alcoholism, adrenal and pituitary gland tumors and liver disease, as well as environmental exposures to certain chemicals and pesticides. There is also discussion regarding the potential for processed meats (preservatives, certain food colorings, etc.) and hormonally enhanced food products to increase estrogen levels or impact health.
Common sense would dictate that a natural fruit such as grapefruit, rich in antioxidants and Vitamin C, when consumed in normal amounts, is a great addition to a healthy diet.
Best,
Vivian
Best regards,
Vivian
January 7, 2009
Hi Laurie,
The side- effects of bisphophonates is also available in the pamphlet that comes with the drugs. You don’t need published scientific studies, as the makers of these drugs know about it and have to warn the public. The problem is that most people don’t read the information…
Best,
Vivian
January 7, 2009
Hi Rosemarie,
Knox gelatin has been used in the past to help cartilage, not bones.
Best,
Vivian
January 7, 2009
Hi Mary,
The issue with Myacalcin (calcitonin) is that, like the bisphosphonate drugs, it alters the bone remodeling process, making bone thicker but brittle and therefore more prone to fracture. Remember, all we’re trying to do is to prevent fractures.
And calcitonin may have some side effects:
* runny nose
* nosebleed
* sinus pain
* nose symptoms such as crusts, dryness, redness, or swelling
* back pain
* joint pain
* upset stomach
* flushing (feeling of warmth)
Some side effects can be serious and are fortunately less common:
* hives
* skin rash
* itching
* difficulty breathing or swallowing
* swelling of the tongue or throat
Best,
Vivian
January 8, 2009
Hi Cathie,
Check out the Free Chapter on this website to read about Forteo. Just click on the Get Started button and then Free Chapter.
Best,
Vivian
January 8, 2009
Hi Barbara,
There is information about Evista on the Free Chapter section of this website. It’s subtitled: “Double duty and double trouble”.
Best,
Vivian
January 8, 2009
Dear Melanie
I read your comments with interest mainly due to your age. I thought I was very young to have been diagnosed with oestoporosis in my late 40′s. I am now 51.
I too refused the medication – the potential side-effects terrified me and now I now far more about these drugs I am so relieved I went with my instincts.
I have been taking calcium and vit d supplements for a good few years now but have just taken myself off of those too as I worry they too may cause problems in longer term.
annie
January 8, 2009
I have osteoporosis – worst reading being lower back – 2.8
Was prescribed Boniva once a month and when I saw the pill and read the details, did not take it, and fortunately saw Vivians website at the exact same time.
I think that in addition to taking care of your diet it is important to do gentle excercises that strengthen the muscles around the vulnerable areas. I have not yet spoken to anyone professionally about this as obviously incorrect excercise can cause more damage (which I intend to do/any suggestions will be gratefully received) – but I do walk regularly and also swim breast stroke and back stroke which is not too vigorous, once or twice a week. Good Luck.
January 8, 2009
I too, started on Fosomax last May – after taking 2 of the weekly pills I was sick for 3 days with chest pain and couldn’t eat anything that didn’t seem to sit in my throat. Doc switches me to Boniva – after the first monthly dose, milder symptoms 2 weeks into the month. I quit them all but have not told my Dr. as yet. I’ll take my chances with ostepenia and stay on a healthy diet.
January 8, 2009
Vivian: Thank you for doing all you have to expose what these drugs really do (and don’t do) and sharing it with the public.
I was prescribed the generic version of Fosamax about six weeks ago after suffering a fractured tibia while doing intervals of walking/jogging. I had a bone scan and my T-score was -2.2. Dr. said I was “in between” and radiologist recommended I start oral treatment. Dr. said it was up to me.
I figured because I had had the fracture doing something that normally shouldn’t cause it, they must be right and took my first dose. Within just a few days, I had burning stomach pain, constipation, and a headache that lasted for 3 days that no pain reliever would touch. I felt like I was coming down with something and didn’t immediately relate it to the aldendronate. I took a second dose, and all of my symptoms worsened, with the addition of pain in my hips and back and markedly increased fatigue.
This was very alarming to me, so I Googled Fosamax side effects and found you.
I immediately ordered your book, and was appalled at all that was revealed, including the information about Merck’s multi-million dollar legal defense fund for Fosamax. I thought about it, spoke with my husband and decided to take my chances and stop the drug. I am an active 58 year old with no other health problems. I am very careful about what I eat and take vitamins and supplements and exercise every day. Thanks to the information you provided, I have decided to manage my “bone disease” with calcium, vitamin D and K, and balancing my diet between acid and alkaline foods, keep exercising, and not let anyone scare me into doing anything different.
When I found out about this and decided to stop the drug, I emailed my physician and told him what I am telling you here. No response. My experience has been that doctors hate it when patients gain more information and knowledge about something than they have and always try to pooh-pooh it. When I have spoken to friends and acquaintences who are my age about this, they are aghast but are afraid to go against their doctor’s
orders.
The evidence is piling up…it’s only a matter of time before this story blows sky high!
January 8, 2009
Hi Jean,
You can read about Evista by clicking on this link:
http://saveourbones.com/free-chapter.html
Or simply click on the Get Started button of this website and then “Free Chapter”.
It’s subtitled: “Double duty and double trouble”.
Best,
Vivian
January 8, 2009
Here is new information on Vit D:
Go to the http://www.vitaminDcouncil.org for more information:
Noteworthy NewsVitamin D Expert at UC Riverside Leads UC Scientists’ Call Recommending Increase in Daily Vitamin D IntakeSeventeen researchers join Anthony Norman in declaring that the government’s current recommended daily allowance for the vitamin is inadequate.
Anthony Norman, a distinguished professor emeritus of biochemistry and of biomedical sciences at UC Riverside, is co-leading the UC group along with Cedric Garland, an adjunct professor of family and preventive medicine at UC San Diego, in its “call to action” recommending that the daily intake of vitamin D for adults be revised by the government to 2000 international units (IU).
January 8, 2009
Go to the web site: http://www.vitaminDcouncil.org
It looks like most of us have not been getting enough Vit D, with our avoidance of the sun and all the sunscreen we have been using. Also it is important to know what kind of Vit D to take. Vit D3 is the type you want to take. You can also get a Home Vit D test now, where you can determine how your current blood levels are before you start a serious vit D consumption.
Good Luck.
January 8, 2009
What is Hashimotoes?
January 8, 2009
I am interested in knowing: Have you been retested? Has the exercised improved your density? Thanks
January 8, 2009
Hi, I am 57 and have just been diagnosed with osteoporosis in my spine of -2.7 but with a hip measurement of 0.6.
I have no idea why this has happened because i have always had a high callcium diet and loads of walking especially over the last three years.
I spoke to a nurse at the osteoporosis society and she said that T scores are measured against a norm of young people and that i must remember that there is no way of knowing what my T score would have been when that age. It may always have been low.
As I am in the middle of dental implant surgery I have decided not to take the biphosphonates prescribed by the doctor but to up the ante. More weight bearing exercise, nuts, seeds, soya products etc. I hope this will help.
What really annoys me is that there is very little information about this condition given to pre menopausal women.
I was unable to take hrt and has an early menopause (45) which my doctor knew about but i was never given advice about osteo….
I have also felt that there is no one in the medical proffession to address my concerns to. For exammple may i have another DXA scan in twelve months after i have tried self help to improve bone density.
January 11, 2009
Sorry, was obviously too stressed about the whole thing when I wrote this comment – it is the dreaded ALENDRONATE (not Actonel) that my Doctor wants me to start taking – NO WAY! I would welcome your comments about my other query Vivian. Thanks and keep the emails coming, I need all the ammunition I can get! Alison
January 8, 2009
I have know that Actonel and the like are not good, but what can we take in it’s plac? I have upped my vitamin D intake and Calcium, but the doctors say that it is not enough. What if anything have you done?
January 8, 2009
I was pressured by my OB/GYN to start Fosamax even tho I already had reflux, hernia, & trouble swallowing. When the heartburn, reflux, & bloating became intolerable, my PCP changed me to Actonel. It was several years before there was enough credible data to prove that all my joint stiffness & pain was related. I dropped ALL drugs, symtoms immediately disappeared, but unfortunately, it was too late to avoid Barrett’s Esophagus a precancerous ulcer condition that now requires expensive Aciphex to heal (hopefully.)
Now I find that I must fight my drug company who wants me to change to a generic drug with 15-20 side effects vs the 5 of Aciphex….meaning I would have to take several more drugs to counteract the side effects making the costs about the same…smart companies!!
I now take double calcium w/D, magnesium, boron, lpriflavone, concentrated Vit D/K, and work out with weights. My bone density test is due soon, so it will be interesting to see the results. I refused to take hormone therapy due to the cancer in my family….I wish I had paid more attention to these new dangerous bone drugs!
N. L.
January 10, 2009
i too, take calcium with vit d and magnesium , it is called osteomatrix ,omega 3 by shaklee : and glucosamine synergy, calcium lactate,cod liver oil, cataplex c,vitamin butter oil which is made by standard process,inc. i still have stiffness every once in a while but i have pain relievers for that…….. i also do exercises, ones i know my body can handle,. or soak in a jet tub with hot water & olive oil about 1/4 cup, it is good for the skin, plus it soaks in the skin and helps my joints.. i don’t take fosamax or boniva, i believe in vitamins and herbs….. i rub eucamint on my joints, kinda of like ben gay, muscle rub, get this from botanic choice….. best of luck to you………..
January 8, 2009
Karen,
I know how hard it is to survive on the Australian pension. I’m a single parent in Sydney supporting all 3 of us on a pension of $10,000 a year – and life in Australia is NOT cheap, so it’s equivalent to about US$5,000 buying power a year for a family!!! That has to cover my high medical needs too.
I did save up to buy Vivian Goldschmidt’s book, so if you want to borrow it after I’ve read it, please contact me directly on ruthevaw@hotmail.com
Hang in there, and enjoy your choir sessions.
Ruth
January 8, 2009
To Deborah, you might want to try Pilates. It is more of a gentle, therapeutic exercise using different spring-loaded apparatus. Pilates’ instructors are very knowledgeable and tailor the workouts to your individual needs. I have been doing it for two years and it has helped me grow stronger.
I too was given a prescription for Fosamax which I took for 9 months until I couldn’t take the daily stomach aches any longer. Of course the Dr. said my stomach problem plus extreme constipation and diarrhea were not caused by the drug. Because I had digestive problems to start with, I should have never been given the Fosamax.
I sought the help of a homeopathic practitioner who prescribed supplements and diet changes. Also, it is possible that Celiac, unable to digest wheat and gluten, can cause osteoporosis. My tests came back negative but I went on the Gluten Free Diet anyway and feel so much better. No more IBS symptoms, gas, bloating, stomach aches.
January 8, 2009
Your doctor should know that the use of Fosamax will reduce the effectiveness of Forteo.
The bone built by Fosamax is of poor quality and very brittle. Forteo is parathyroid hormone and creates a better quality bone tissue.
January 9, 2009
Hi Marilyn,
You feel great, are active, and are taking the right supplements. You’re on the right track, but what about your nutritional plan? Are you trying to maintain an alkaline pH?
And remember, bone flexibility is more important than bone density to prevent fractures (and that’s the main goal anyways). The huge focus on density is because it happens to be the only aspect of bone health that we can measure…
Best,
Vivian
January 9, 2009
Hi Marlene,
Prilosec is a Proton Pump Inhibitor which, as the name denotes, inhibits hydrochloric acid formation in the stomach. While it does help relieve acid reflux, GERD, and other hyperacidity conditions, we do need HCl to properly digest food and absorb certain nutrients.
In a study published by the Canadian Medical Association Journal titled “Use of proton pump inhibitors and risk of osteoporosis-related fractures”
researcher Laura E. Targownik, MD MSHS, et al. comment that:
“The ability of the small intestine to absorb ingested calcium salts is dependent on solubility, and the solubility of calcium salts is pH dependent. Calcium carbonate, which is the most common calcium salt found in dietary supplements, is relatively insoluble at high pH levels, which could potentially hinder its absorption.”
The study concludes as follows:
“We detected an association between long-term (≥ 7 years) exposure to proton pump inhibitors and osteoporosis-related fractures. We also found an association between hip fractures and 5 or more years exposure to proton pump inhibitors. However, short-term use did not appear to increase fracture risk.”
Best,
Vivian
January 9, 2009
Hi Beverly,
It depends on what type of calcium you are taking.
Best,
Vivian
January 9, 2009
Hi Lynn,
A bone scan is a nuclear scanning test that identifies new areas of bone growth or breakdown. If you feel uncomfortable about the test, I suggest you discuss this with your doctor. He might recommend another test instead of the bone scan.
Best,
Vivian
January 9, 2009
After doing some research on ipriflavone, I stopped taking it. Before you continue it’s use, please do the research. My doctor even commented that I should be as concerned about it as I am about the fosamax. Just a word of caution.
January 9, 2009
I didn’t start taking meds for osteoporosis, because I already have a hiatus hernia and have had trouble with reflux. It is now under control and I did not want to cause problems with that again. Several yeas ago, the antacids that were prescribed for me caused problems with my memory. Acid blockers, reduce the absorption of B vitamins which are helpful for memory. I now see a D.O. who is trained in enviromental medicine. He treats primarily with natural supplements. He recommended Rhizinate otherwise known as DGL, which is derived from licorice. It is most effective in a chewable form, used before eating, it coats the esophagus and protects it from the acid. They say the licorice can elevate your blood pressure, but mine did not change much. If anything, it went up 5-6 points.
January 9, 2009
Hi, I am so surprised with everyones comments. Especially yours, because yours descibes what I was told,my lumber is the same as yours.I was just wainting to get on my husbands h/i, but thanks so much for sharing your experience, I am not even going to try the drug. all I can really say is WOW!!! thank goodness , we are all able to share,,, ,thank-you. And huge thanks to Vivian,,
January 9, 2009
Hi Jane,
Hashimoto’s is an autoimmune disease that attacks the thyroid gland and causes an underactive thyroid.
Best,
Vivian
January 9, 2009
Hi Susan,
I tried taking natural progesterone a few years ago and it gave me really bad headaches like most things seem to. My osteopath gave me a booklet which Dr Lee wrote so I thought I’d try it.
I would be interested to know which progesterone is the best one to take and if anyone else has tried it with success?
Best Wishes
Sandra (from England)
January 10, 2009
Hi Susan,
Just read your article and very interested in building bone. I have been on Actonel for a number of year. I don’t seem to have any problems and my bone density has apparently improved. I have noticed lately I am very stiff in all my joints and I was putting this down to just pains but maybe its something to do with the tablet. I have not discussed it with my doctor as yet but would prefer to be off the medication incidently I have an under active thyroid too, and I cannot tolerate calcium in any form.
Maybe you have some answers for me.
Thanking you in anticipation/
Hester
January 9, 2009
Hi Delores,
A method called FRAX™ was recently developed by the World Health Organization (the same organization that set the diagnostic parameters for Osteoporosis and Osteopenia). It can be used to assess the individual risk of fracture of patients as an algorithmic calculation that integrates the clinical risk factors with the bone mineral density at the femoral neck.
The FRAX™ algorithms give the 10-year probability of hip fracture and a major osteoporotic fracture (clinical spine, forearm, hip or shoulder fracture).
In an article dated February 5, 2008 the Cambridge Biomedical Research Group writes that:
“An individual’s risk factors such as age, sex, weight, height and femoral neck BMD if available are entered into the FRAX™ website, along with information on prior fragility fracture, parental history of hip fracture, current tobacco smoking, long-term use of glucocorticoids, rheumatoid arthritis, other causes of secondary osteoporosis and daily alcohol consumption.”
The Washington, DC-based National Osteoporosis Foundation recently released the Clinician’s Guide to Prevention and Treatment of Osteoporosis, which also instructs physicians on how to incorporate the FRAX tool into their practice. It seems that very few doctors are implementing this calculation, maybe because the algorithm can only be applied to previously untreated patients.
I wonder when the WHO will create a system to predict the personalized risk factor of suffering untold consequences from the Osteoporosis drugs administered based on the fracture risk prediction.
Just some food for thought…
Vivian
January 9, 2009
Brian, very interested in your comment about Kangen water. I have osteopenia and
in reading on the internet have found articles about structured water. I then was
in my Chiropractor’s office and she gave me this water. I do not like water, but I
like the water. It is a very expensive system–do you think it is better than other
ionized water systems. What ph is your wife using and is she still happy.
January 9, 2009
Joan,
I’m encouraged to read that you are taking a strontium supplement. I started taking one about a month ago along with vit. D and calcium which includes minerals. I read an article written by the Denver Naturopatic Clinic regarding their use of Strontium in osteoporosis patients with good results. I am hopeful that it will improve my bone density.
Sheryl
January 10, 2009
Hi, I take Alendronate acid once a week. I have been on themfor about 8 months, so far i have no side effects. However i am concerned about this drug.I have asked my Dr. about the side effects that could happen and she told me that rarely their are any problems. I am at a very high risk position for fracture’s therfore i don’t feel i have a choice. I do take the recomended calcium. I want to forward to vivian as well. Karen fr. Canada
January 12, 2009
A nutritional consultant, where we buy our vitamins, suggested that I sip slowly, (3 to 5 minutes,) a tablespoon of apple cider vinegar in 6 to 8 oz. of good water, after meals, and not drink any liquid with the meal. This is to combat the bloating caused by unbalanced hydrochloric acid. Also that with the unbalanced acid, my system is not getting the full benefit of the calcium and minerals which I am taking, and that the unbalanced acids could be leaching calcium from the bones.
What is your take on this?
Thank you Vivian!
Judy
January 12, 2009
Hi Vivien,
I am a heavy coffe drinker myself, and I keep ‘postponing’ my Calcium intake during the day, because I am having more than one cup of coffe.
You are not really answering Bev’s question: can we have coffe with Calcium, how much do you need to wait? Most of the supplements require that you take the Ca with food. Could you please ellaborate on how to take the Ca, carbonate vs citrate and other types? Is the “Tums” a good alternative to the big pills or we shoud avoid it if we have osteoporosis?
Thanks,
Elena
January 21, 2009
Please tell me the name of your book and where it can be purchased and the price. Thanks
Sherry
February 11, 2009
Hi Sherry,
Did she ever send you the information on where you can purchase the book. If she did I would appreciate if you would share it with me.
I need to start the exercise program.
Best Regards
Cathy