Prolia (Denosumab): My Review

prolia-denosumab-guine-pig

This past June 1st, the FDA approved Prolia ™ (denosumab), a brand new twice-yearly injectable osteoporosis drug by Amgen.

The first drug of its kind, Prolia was designed to treat and prevent postmenopausal osteoporosis for patients considered to be at high risk of fractures. It’s also marketed as an alternative treatment for those who have failed or are intolerant to other osteoporosis drugs.

Is this a time to celebrate, or is Prolia destined to end up in the osteoporosis “Hall of Shame”, along with the rest of Big Pharma’s Superstar osteoporosis drugs? I’ll let you decide, but first, let’s unravel the mysterious and tightly-woven cocoon wrapped around this novel drug.

An Old and Flawed Concept Disguised as Sci-Fi Technology

As if straight out of a sci-fi movie, the Space Agency NASA was involved in several studies related to Prolia. Here’s the scoop: in 2001, Ted Bateman, Ph.D. from Clemson University in South Carolina and Paul Kostenuik, a researcher for Amgen, teamed up to “…use the microgravity environment for evaluation of new pharmaceutical candidates (denosumab) in small mammals. Results may expedite the review of new pharmaceuticals.”1

They conducted studies on 24 female mice that spent 12 days on the International Space Station shuttle flight STS-108. Study findings confirmed that Prolia did prevent increased bone loss and maintained bone mineralization. So there you have it. The medical establishment is more than willing to send mice to space – but would they consider a natural, safe, and easy treatment? Out of the question!

On the surface, Prolia seems to be a breakthrough and fairly innocuous drug. But is it? As the first fully human monoclonal (laboratory-made) antibody and RANK Ligand inhibitor to be approved as a drug, it certainly sounds very complicated. But it really isn’t. Bear with me… I’ll explain.

Antibodies are proteins produced to neutralize “invaders”, such as bacteria and viruses. RANK Ligand (RANKL for short) is a protein that activates osteoclasts and is involved in immune-response regulation.2 As I explain in the Save Our Bones Program, osteoclasts are bone cells that remove old bone by a process called resorption. They make space so that new bone is deposited by osteoblasts, thus replacing old bone. These two processes are known as bone remodeling, the natural way by which bones renew themselves and stay strong, healthy, and more resistant to fracture.

Prolia: Same as Bisphophonates… Only Different

Now back to Prolia. The natural inhibitor of RANKL is osteoprotegerin, a tumor necrosis factor (TNF) cytokine that binds to RANKL, preventing interaction with its receptor-activator RANK on the surface of osteoblasts.3 Cytokines are chemical messengers that help regulate the nature and intensity of an immune response. Remember this for later, because it all ties in together.

So, in plain English, Prolia mimics osteoprotegerin by blocking the effects of RANKL and de-activating osteoclasts. Say “hello” to stalled bone resorption and “good-bye” to new bone deposition. But wait a minute, doesn’t this sound eerily familiar? It should, because bisphosphonates achieve the same end result as Prolia, only through a different biochemical pathway.

At the end of the day, both drugs alter normal bone metabolism, not without potential long-term nefarious consequences. For example, sudden femoral fractures are linked to long-term bisphosphonate therapy, which can be attributed to the lack of bone remodeling. Add to this formula a dose of immune system tampering, and you’ve got yourself a fully assembled health Molotov cocktail.

Studies and Stats

Amgen’s own Press Release states that “Treatment with Prolia resulted in greater bone density, stronger bones, and reduced risk for vertebral, hip and non-vertebral fractures measured at three years.”4 It backs up this statement with a study by Cummings et al. published by the New England Journal of Medicine in 2009, titled “Denosumab for Prevention of Fractures in Postmenopausal Women with Osteoporosis”.

And the same Press Release boasts their pivotal three year Fracture REduction Evaluation of Denosumab in Osteoporosis every six Months or “FREEDOM” study (no, this is not a bad joke) with these results:

– 4.8 percent absolute risk reduction of vertebral fractures
- 0.3 percent absolute risk reduction of hip fractures
- 1.5 percent absolute risk reduction of non-vertebral fractures 
- 8.8 percent bone density increase at the lumbar spine, 6.4 percent at the total hip, and 5.2 percent at the femoral neck.

So far, so good, especially for those who don’t mind being “guinea pigs” in exchange for short-term rewards. Because the biggest cause for concern with Prolia is its potential side-effects.

A Wolf in Sheep’s Clothing

Even though Prolia doesn’t accumulate in the body and has no known esophageal side effects as is the case with bisphosphonates, it boasts a rather long list of undesirable – and sometimes dangerous – potential side effects. In its shadow, bisphosphonates almost seem to be the lesser of both evils, and that’s no small feat. You’ll soon know why.

The most common side effects of Prolia are back pain, arm and leg aches, elevated cholesterol, general musculoskeletal pain, bladder infection, and pancreatitis.5

And as disclosed on the Prolia website (http://www.prolia.com), it can cause serious side effects because it “is a medicine that may affect your immune system” (remember the cytokines?).

These are the main side effects listed by Amgen:

  • Low calcium levels
  • Serious skin, lower abdomen, bladder, or ear infections
  • Dermatitis, rash, or eczema
  • Inflammation of the inner lining of the heart (endocarditis) caused by an infection
  • Severe jaw bone problems such as osteonecrosis of the jaw.

And for dessert, Amgen serves up a cautionary statement: that “it is not known if the use of Prolia over a long period of time may cause slow healing of broken bones or unusual fractures.”

So it looks as though…

The More Things Change, the More they Stay the Same

Like bisphosphonates, Prolia opens the door to a wide array of opportunistic health problems, many of which can (and trust me, will) get covered over with yet more drugs.

And let’s not forget that this drug interferes with the body’s natural immune system, which is the obvious reason for many of its most dreaded side-effects. In fact, roughly one year before its approval, FDA reviewers expressed concerns over Prolia’s activity against an important immune system modulator.6

But evidently, those concerns were shoved to the side and quickly forgotten. It seems as though the medical establishment considers drug side-effects – no matter how terrifying – an unfortunate “numbers game”. Applying its skewed logic, it accepts that there will always be some unlucky patients that will get stuck with irreversible damage, such as osteonecrosis or endocarditis – the latter potentially resulting in heart valve destruction or even a stroke.7 The unsuspecting victims are written off as inevitable casualties of war, losing their battle, but helping win the war against “disease”.

Don’t Get Fooled by Confusing Double-Speak

It almost seems as though well-meaning scientists focus so disproportionately on solving bone health issues using hi-tech tools, that they lose sight of the risk vs. reward ratio. That’s why together at Save Our Bones, we expose the truth and dispel misconceptions, especially as they relate to brand new drugs.

Let’s face it: two injections a year may sound like an appealing solution to finally conquer osteoporosis. But the bad news is the potential high price to pay. So I urge you to consider your acceptable options and weigh the consequences of your decision. Also, please share this review with anyone you think may benefit from it.

And ALWAYS remember the good news: the Save Our Bones community is here for you and your bone health, with proven natural bone health strategies that work with your body… not against it.

References

1 Commercial Biomedical Testing Module: Effects of Osteoprotegerin on Bone Maintenance in Microgravity (CBTM). http://www.nasa.gov/mission_pages/station/science/experiments/CBTM.html].
2 Lacey DL, Timms E, Tan HL, Kelley MJ, Dunstan CR, Burgess T, Elliott R, Colombero A, Elliott G, Scully S, Hsu H, Sullivan J, Hawkins N, Davy E, Capparelli C, Eli A, Qian YX, Kaufman S, Sarosi I, Shalhoub V, Senaldi G, Guo J, Delaney J, Boyle WJ . Osteoprotegerin ligand is a cytokine that regulates osteoclast differentiation and activation. Cell. 93:165–176. 1998.
3 Nakagawa N, Kinosaki M, Yamaguchi K, Shima N, Yasuda H, Yano K, Morinaga T, Higashio K. RANK is the essential signaling receptor for osteoclast differentiation factor in osteoclastogenesis. Biochemical and Biophysical Research Communications. 253:395–400. 1998.
4 http://wwwext.amgen.com/media/media_pr_detail.jsp?releaseID=1433162
5 http://www.centerwatch.com/drug-information/fda-approvals/drug-details.aspx?DrugID=1104
6 http://www.medpagetoday.com/ProductAlert/Prescriptions/15486
7 http://www.nlm.nih.gov/medlineplus/ency/article/001098.htm

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473 comments. Leave Yours Now →
  1. Christine July 16, 2016, 1:27 pm

    I would interested in knowing what Vivian Goldschidt’s T scores have been since the two bone density scans in 2004.

  2. Maigonis Kula July 5, 2016, 8:39 am

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  3. Lee June 13, 2016, 12:54 pm

    I have had 3 shots of Prolia. I was not told of any side effects at all at any time just given the printout of data. Usually I research meds on the computer to see how patients are responding but did not do it this time. Looking back I was having minimal side effects from the start and with each injection they got a little worse. Shortly after the 3rd injection I could no longer get up and down from a sitting position, get in and out of the car without difficulty and pain, pain in my extremities below the waist has been horrible, sitting down or lying down is impossible, pain and weakness in my hands and all of this happened suddenly never having it before. I did have back pain due to several previous fractures but none in my extremities or the hips and legs. My entire life has changed and I feel like I have aged 10 years. The pain is horrible and pain meds barely touch the pain. I can not have another bone density done for another year and a half so I am not sure it is even working. Just had a lumbar MRI last week to check for a cause. Do not have results yet. My Oncologist claims none of this is due to the Prolia and wanted me to take a prednisone dose pack which I declined. I have had way too much prednisone and those side effects for me are serious enough not to take it for a temporary fix. I want to know what is really wrong and happening. I don’t just want to take something like prednisone to see if it might work or help for a short time. I feel it is the Prolia and so does my Physical Therapist. I am seeing my primary later in the week for her opinion and my oral surgeon today. I have dental implants and have had some jaw pain, once thinking I was having a heart attack. Basically I am a mess and my research does not say with any certainty how long this could last, how long the half life of Prolia is to get it out of your system. No drug available to counteract the side effects. I do not want have any more fractures but I can no longer function like this and I live alone and I am 76 years old. This is a horrible situation to be in especially at a time when good medical care is so challenging and difficult

    • Vesna July 21, 2016, 2:52 pm

      Hi Lee,
      Oregano Oil with Vitamin E work wonders for me.
      All this medication is poison. All my bones popped out from medication and I stopped taking it few months ago, as for my doctor she thinks it’s normal for the bones to pop out her words ” It happens sometimes” I have not been sick with flu and feel so much better. Try that trust me it works, also Turmeric is good too, but Turmeric gives me a heartburn. Hope you feel better.

    • Gloria Cummings June 28, 2016, 10:15 pm

      Hi Lee, I, also have had horrible side effects from Prolia shots. I was not informed of the side effects of this drug before I had the first injection, had I known then what I know now, I would never had taken it. I was very strong prior to these shots, not joint pain or muscle pain. I was so strong, I tolerated 7 shots before my body declined. I now live daily with joint and muscle pain. My last shot was Feb. 23, 2015 and I am still suffering from the effects of Prolia. It was originally for bone cancer patients and then Amgen, the drug company that markets this drug, decided it would be good for Osteoperosis and osteopenia! My family doctor was not aware that I was taking Prolia. He agrees that it is a horrible drug, only good for Cancer patients! I was 65 when I took the first shot. I was very strong and healthy. Now I struggle daily with pain all over my body, skin problems, my dentist told me I was fortunate that I had no dental and jaw problems, one of the many horrible side effects of Prolia. I agree with you, this is a horrible situation. My side effects are so bad I have reported Prolia to the FDA. I have added Protien drinks to my diet, i think this is helping some. I tell everyone, because of what Prolia has done to my overall health, never take it. It should be taken off the market except for cancer patients and I am still in contact with the FDA concerning Prolia . I really hope this helps you and I am so sorry that you are experiencing problems and I hope they will eventually go away! As I said before, Prolia has been a horrible drug for me and many others!!

    • Morgan June 14, 2016, 4:53 pm

      I have experienced the same pain and hopeless feelings. I only had one shot of Prolia and I started to get some relief around month 5. It has now been 8 months and I am seeing real progress. I used to fret because my doctor would not confirm it was Prolia but have decided that is wasted energy. The cancer center I consulted said that if you see improvement in the months following the injection then consider it Prolia. I found therapeutic massage (can anyone come to your home?)’ heat, ice and Percocet got me thru the darkest months. I hope you see relief in the coming weeks.

  4. Michelle C. June 1, 2016, 12:09 am

    Here is my history with Prolia and so far all is good and my lifestyle changes must also be given credit.

    In 2013 at age 54 following 2 separate fractures under low impact, my doctor sent me for a bone density scan. I was postmenstrual for over 10 years and my mother suffered from significant osteoporosis.
    2013 T-Score Lumber -1.8 and Femur -2.4 = Osteoporosis (age 54)
    Prolia was suggested and taken.

    No side effects for two years.
    Another bone density scan.
    2015 T-Score Lumer -1.3 and Femur -1.6 = Osteopenia (age 56)
    Now it is 2016 and just finished 3 years on Prolia with no side effects.

    Lifestyle changes have included 15% less body weight and vigorous cardio & weight resistance training min. 3 time per week.

    Another scan is due in 2017 (age 58) and here’s hoping for a continued reversal of the condition.

    cheers, Michelle

  5. Judy M. May 29, 2016, 5:59 pm

    In December of 2015, I tripped over a concrete car barrier and fractured my kneecap in three places. I had surgery and rehab and was told by surgeon to get Prolia injections, twice per year. I read the horrendous side effects and questioned my primary care physician as to whether I should go ahead with it. She informed me that osteoporosis was also horrendous and to take the Prolia. I am 76 years old and in reasonably good health, although I was informed I have “mild” osteoporosis. I have a real dilemma now as the doctor ordered the Prolia; I don’t know what to do!

    • Morgan May 31, 2016, 8:11 am

      I would ask your pharmacy to run a drug reaction scan with your current meds and Prolia. Also, make sure your teeth are in good shape.

      • Gloria Cummings June 1, 2016, 7:09 pm

        JudyM, I had 7 shots and after the seventh shot, I experienced really horrible side effects! For me, the side effects were worse than the osteropina. I was not having any problems prior to taking Prolia. I am no longer taking Prolia and will never take another injection. Not everyone has the side effects, but I have researched reviews on a lot of sites and negative reviews are far higher positive reviews. If I were you, I would do more research, I wish that I had researched Prolia prior to any injection, I trusted my doctor! I hope this helps and good luck to you.

  6. Gloria Cummings May 20, 2016, 10:40 pm

    MyOpinion has no right to question the post of others, including my post. MyOpinion has a right to her opinion, as do I and others that post their personal experience with the drug Prolia, but she should not question others. My post warning others about the terrible side effects that I have experienced from Prolia injections are to try and help others to be aware of the horrible effects of this drug. My Oncologist and my General Practioner agree that my body has been damaged from the Prolia injections I received! I have a close friend that had to take Prolia for bone cancer and she has had the same horrible side effects! MyOpinion do not question others post, please.

    • Vanessa May 23, 2016, 3:54 am

      I am on my 4th year of Prolia without any side effects.

      Gloria, just because Prolia might have caused your symptoms does not mean it caused or will cause everyone else those same (or any) symptoms. You say others have no right to question your opinion, but you state your opinion as fact (for example, “Prolia is not good for anyone”). Well it has been good for me, and I don’t have bone cancer. You have no problem jumping on other people’s comments to dismiss their experiences. You’re even advising people against consulting with their doctors… but it’s ok for you to do so?? (“I must disagree with you, I do know first hand what I am posting and I warm everyone to beware of Prolia. I consulted my Professionals!!!!!”) The word of your 2 doctors is not law for everyone, and maybe people would rather trust their own doctors than one stranger’s experience on the internet… and that should be okay.

      • Gloria Cummings May 24, 2016, 12:04 am

        Vanessa, I had no side effects after taking four injections either, but after seven shots my problems began. I am very happy that you are having no side effects and wish you the best and hope you do not have any problems. I will still post for information to others my experience with Prolia and the horrible side effects that I have from Prolia. I have researched a number of sights with reviews from other patients and the negative reviews from other patients are very much higher than the positive reviews. I still stand on what I feel is correct, beware of Prolia, the side effects can be really horrible and I would not recommend it to anyone. As I said, there are other sights with very few positive reviews about Prolia. I will continue to give my opinion, it is a horrible drug for the majority of people that had taken the injections of Polia! Again, good luck to you.

        • Wilber June 24, 2016, 11:46 pm

          Who are you. To say that you have researched by reading other
          peoples comments is not researching. Also how did you arrive at
          Prolia not being good for the majority. Try reading every persons
          bone density scan, then you could say you have researched. Sorry
          I just dont agree with your method.

          • Gloria Cummings June 28, 2016, 11:53 pm

            Wilber, Who am I? I am a person that has experienced the horrible side effects of Seven Prolia injections. Perhaps you should study all of the side effects listed about Prolia. I will continue to stand on what I have experienced and my research about Prolia. Perhaps you should try reading the reviews of this drug, the negatives are far higher than the positives. There are other options for Osteoperosis and osteropina . Prolia was originally for bone cancer patients! Sorry, I do not agree with you. Prolia is a horrible drug, should only be for Cancer patients. I stand firm on my research and experience with Prolia in an effort to help others!

  7. MyOpinion May 16, 2016, 1:26 pm

    This should not ended up as a reply but it did somehow. I am reposting and hopefully it will end up at the top of this board. Just had my second Prolia injection and no side effects that I can blame on it as of yet. However, I do see that some people complained of side effects the more they took the drug. Of course as with any drug, sometimes the side effects are blamed on the drug itself, when in fact it is something else entirely. Everyone is so different and no two people will react exactly the same way. Here is the thing though. I have said this before and it bears repeating: If we could in fact simply eat enough calcium, exercise enough, take enough supplements (like Vitamin D and extra calcium, etc.), and do EVERYTHING right EVERY day for our health – and that were enough to cure osteoporosis – then there would be no need for Prolia and similar drugs. Everyone could simply make sure they did everything right every day for their entire lives (before, during and after menopause) and osteoporosis would be non-existent. Clearly, we know this is not going to happen. I have always lived a healthy lifestyle: I am tall, normal weight for my build, never smoked, don’t drink, always ate healthy and exercised, took calcium supplements and vitamins long before I ever hit menopause, etc. Unfortunately, I was diagnosed with advanced osteoporosis some years ago. My mother also had osteoporosis, however her lifestyle was not as healthy overall as mine. My point in mentioning this is that sometimes, genetics DOES in fact play a role in our overall health and you do inherit the propensity for certain things from your parents. You can work like mad doing everything thing right for your health and still end up with something, because it’s programmed into you. All this aside, sometimes medical intervention IS necessary and drugs such as Prolia, though they have their drawbacks of course, were developed to try and treat this condition. I took Actonel for some time and it proved to work only partially, thus the switch to Prolia.

    • Gloria Cummings May 19, 2016, 10:06 pm

      My first shots of Prolia did not hurt me, but after the seventh shot, I started having horrible side effects. My oncologist gave it to me for osteopenia and she now regrets ever giving it to me and I regret ever taking even one shot. The reviews on line are more negative than positive. It was originally for bone cancer patients and then prescribed for osteoperosis. As for me and per two of my doctors, it was horrible for me and my body may never be the same! My opinion and a lot of others I have read on line, Prolia is a horrible drug. I have reported it to the FDA and to Amgen,

  8. Sheila slevin April 29, 2016, 5:51 pm

    Hello all,I am a 44 years pre menopausal and now diagnosed with osteoporosis not sure what’s available for my circumstance.

    • Sally Ritchie June 7, 2016, 12:59 pm

      Hi, Gloria,
      I appreciate your comments. I am at the 6-shot mark for Prolia and have my doubts as, after getting my seventh shot am told I should then go on Reclast infusions in order to stay at the level of efficacy achieved from the Prolia injections. I do recall being “offered” Reclast first, and I declined, so we went the Prolia route .. Have you heard of this.
      I do go on WebMD a lot … I will look for reviews there and on rxlists. Thank you … I wish you continued good health.

    • Gloria Cummingsi May 19, 2016, 10:18 pm

      I took seven shots of Prolia before I experienced the horrible side effects of Prolia. My oncologist and my general practioner agree it was a terrible drug for me and if you look up reviews on WebMD and rxlists you will see that there are more negative than positive reviews for Prolia. I wish that I had researched the drug before I ever had the first shot and regret ever taking even one, as I said, my doctors now agree. Beware of Prolia and do a lot of research. The side effects listed for Prolia were real for me. I hope this is helpful for you.

    • MyOpinion May 16, 2016, 1:07 pm

      Talk with your doctor(s). That is the best course of action. No one here can tell you what you should do because no one here is a medical doctor. Every one and every case is different. Seek professional medical advice for your particular case.

      • Gloria Cummingsi May 19, 2016, 10:26 pm

        I trusted my oncologist, per her advise I had seven Prolia shots. After the seventh shot, I had to return to her because the side effects were unbearable! I was having almost every side effect listed for Prolia. I also consulted my general practioner about this, and he agreed that it was the Prolia and per both doctors, I will never take another shot! So I must disagree with you, I do know first hand what I am posting and I warm everyone to beware of Prolia. I consulted my Professionals!!!!!

  9. Martha April 29, 2016, 1:56 pm

    I have received three injections and experienced hip and back pain so bad that it hurts everytime I have to bend, even just to sit down or get up from a chair. They did an xray of my right hip and I have developed avascular necrosis in the right hip. They think that it is due to the prednisone that I take for Rheumatoid Arthritis, but I think it is due to the Prolia injections. One of the side effects is avascular necrosis of the jaw. Has anyone experienced it in their hips from the Prolia?

    • Gloria Cummings May 19, 2016, 9:20 pm

      Yes Martha. I have had many aches and pain from Prolia. I had no joint or muscle problems before I had Prolia shots, now I have major problems all over my body. My family doctor agrees with me. Wish I had talked with him and researched this drug before taking Polia. It was a horrible drug for me. I will never take it again. Hope this helps you.

  10. Sandra April 26, 2016, 4:24 pm

    My T score is -3 which apparently is bad! I opted for Prolia injection since my Mom also had osteo and had difficulty with side effects from Fossamax. I love it! I haven’t had one single side effect! I’m the one that always has side effects to everything! So far! Delighted!

    • MyOpinion May 16, 2016, 1:35 pm

      I’ve had two injections thus far and my experience has been about the same as yours. My mother also had advanced osteoporosis and I do think we inherit some health issues from our parents no matter how much we try and circumvent them.

      • Di July 3, 2016, 9:27 am

        I was advised Osteoporosis is 80% hereditary and 20% Lifestyle. Both my grandmother and mother had it, and I have since my mid fifties, been on Protos, still goung down now on Prolia, so far okay.

      • Gloria Cummingsi May 19, 2016, 10:32 pm

        I did not have any side effects from my first six shots, but as I have stated on this site, after the seventh shot, I experienced really horrible side effects and will never take another one per my doctors and myself. I wish you luck,

  11. Gloria Snow April 21, 2016, 6:19 pm

    Look up denosumab at drugs.com, and look at ALL the side effects of Prolia. If that doesn’t make you want to refuse taking it, I don’t know what will.

    • Gloria Cummings May 19, 2016, 9:31 pm

      Gloria, I agree with you. Prolia has changed my whole body! I trusted my doctor and did not research it before taking 7 shots, and yes, I was so healthy it took 7 shots before the last one almost killed me. Pain everywhere, I have experienced almost all of the side effects. It was a horrible drug for me and I will never take another shot. It was originally for bone cancer patients, then they decided it was good for Osteoperosis!! I hope this helps.

    • MyOpinion May 16, 2016, 1:36 pm

      Look up ANY drug. They ALL have side effects. I gather you will NEVER take ANY drug in your entire life for anything.

      • Gloria Cummings May 19, 2016, 9:47 pm

        Yes, I have taken other drugs with side effects and yes they all have side effects, but for me personally, Prolia was a horrible drug for me! And, yes I have taken a lot of drugs in my life, but have never experienced any side effects like I did from Prolia. Horrible side effects and I may never have the stamina I had before taking Prolia. My family doctor agrees with me, also. And yes I trusted my oncologist and did not question Prolia before taking it. She now agrees with me and is sorry she prescribed to me for Ostepinia. As for me, I say beware of the side effects of Prolia and research other reviews of this drug online! More negative than positive!

  12. Jamie April 19, 2016, 12:59 am

    This has been prescribed for my 79 year old grandmother. She has dermatitis already. I am concerned about her taking this. Any advice or experience with elderly taking this would be appreciated.

    • Laurel June 8, 2016, 6:54 pm

      Did your pain every go away. I am in exchrushitating pain. It has been 3 month. I would like to know if there is a light at the end of the tunnel. Thank You

    • Gloria Cummings May 19, 2016, 9:54 pm

      Prolia is a horrible drug. I have had major side effects and will never take another shot! It is not good for anyone. I was 65 when I took my first shot and did not research it to my sorrow. It has aged me and I no longer have the stamina I had before taking . I will never take another shot. It was so bad that I have reported it to the FDA. Hope this helps you with your grandmother!

    • Aida May 1, 2016, 5:10 pm

      Prolia is not good for anyone. My 86 year old mother was given a one and only injection of prolia and has been very sick ever since. The side effects are unbearable and the suffering is endless. Bone pain, infections, a burning sensation all over the body, confusion and depression are only part of the complaints.
      It’s real poison that destroys the immune system and causes so much harm and damage to the body.
      What makes things worse is the doctors denials. They never admit that the suffering is caused by Prolia.
      .

      • MyOpinion May 16, 2016, 1:32 pm

        Please do not state that Prolia is not good for anyone, based solely on the fact your 86 year old grandmother is having problems. An 86 year old individual is quite different than someone much younger and EVERYONE is different than everyone else. I am not saying that your grandmother did not react to the Prolia, but to tell everyone not to take it is wrong. In addition, 86 year old people often suffer from some of the things you describe and it may or may not be due to the Prolia. And again, an 86 year old woman is quite different on many levels than one who is much younger. I’d like for your grandmother herself to post here instead of your second-hand retelling.

        • Gloria Cummings May 20, 2016, 9:52 pm

          Warning to all who read this, beware of Prolia. Study the horrible side effects before you take an injection! It is a brutal drug! Should be used for only bone cancer patients!

        • Gloria Cummingsi May 19, 2016, 10:42 pm

          I agree with Aida, Prolia is not good for anyone unless they have bone cancer. It was originally marketed by Amgen for Bone Cancer, a wonderful drug for these people. But Prolia is a horrible drug for anyone else!! I repeat, beware of POLIA. It was a horrible drug for me and I will tell everyone “It Is A Horrible Drug for anyone other than Bone Cancer Patients. After what it did to my body, I would feel bad not telling everyone about this drug.

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  14. Wendie Bryant February 22, 2016, 3:22 pm

    I have been having Prolia for about three years and since last June I have a problem with my cheekbone swelling and very painful. It reacts to antibiotics. Now they think this is related to the Prolia has anyone else had a problem like this ? Thanks

    • Gloria Cummings April 15, 2016, 8:41 am

      Prolia is a horrible drug that should not be given for Osteoperosis or osteopenia. I trusted my doctor and took seven shot without research in this drug. I am afraid that I have permenant damage to my muscles, joint and my whole body. It has aged me by at least 10 years!! It is awful and was originally used for bone cancer patients only! Do not take Prolia for Ostepinia or Osteoperosis. It should be taken off the market. Shame on the drug company Amgen! I have reported this tooth FDA.

      • Gena Pavlopoulou June 13, 2016, 5:17 pm

        How right you are! I’ve had 4 Prolia shots, which were recommended by my oncologist in order to prevent osteoporosis, because I had breast cancer and am taking Arimidex. I started gradually having bone and joint pain, which at first I thought were caused by Arimidex, due to oestrogen depletion. I had the 3rd one in October 2015 and after that I started having problems with my teeth (I had to have root canal surgery in an otherwise completely healthy tooth. Then I had another healthy tooth split while eating. In the beginning of April 2016 I had the 4th Prolia injection and all hell broke loose. I’m having pain all over my body, my back, my ribs, my hips, one of my thighs and my heel bones. I’m also having muscle pains and hear cracking sounds all over my body whenever I stretch out or try to turn in bed. Just before having this last shot I had started to feel somewhat normal and was having second thoughts on continuing with Prolia (as I have no osteoporosis and my orthopaedic doctor was strongly against it). The only reason I decided to have it was a research I read that it could help with possible future bone metastasis. Also I read somewhere that initially it was a cancer and not an osteoporosis drug. In any case, I’ve sworn to myself to never come near it again!!!!

      • Gloria Cummings May 20, 2016, 11:00 pm

        MyOpinion, this post is especially for you! You questioned my integrity, saying so you claim. Who are you to question my statement that I had seven shot of Prolia, I have medical records to prove my statement and how dare you question anyone’s post and post to me ” So you Claim!” What is your objective for you post on this site, to needle others or to help others! My objective is to help try to help others, not to belittle and question the integrity of anyone!
        ,

      • MyOpinion May 16, 2016, 1:40 pm

        Aged you by ten years? How so? The FDA approved Prolia so why you are reporting Amgen to them is beyond me! You took seven shots (so you claim) and that would mean you took it for over THREE years, since there are two shots given per year. If it was doing all the things you describe (such as aging you) why did you wait for over three years to stop? And many drugs were originally intended for other health issues and then found to work for still other ones.

        • Gloria Cummings May 19, 2016, 9:35 am

          The side effects of Prolia, also known as Xgeva are horrible. I wish that I had never taken any shots. The side effects only get worst, I had my last one in 2015 and I am still having muscle and joint problems! It was originally used for bone cancer patients! As I said, a horrible drug, with horrible side effects!

  15. maureen fadlun February 5, 2016, 9:19 am

    I had a Prolia injection a month and a half ago. Since then i have had the most excrutiating back pain so much so that I couldn’t bend down. Also severe pain going down my left leg from the thigh to just under the knee especially at night. I went to my family Dr. and told him that my Endocronologist told me to take the injection because of a decline in the bone density in my spine. My Dr. said that if I would have told him about it beforehand he would have told me not to take it. Think that speaks for itself. I am still suffering.

    • Gloria Cummings April 15, 2016, 8:47 am

      It is a horrible drug. I have not had a shot since Feb., 2015 and I am still suffering from the side effects of Prolia. A horrible drug! Wish I had known before I had any shots, trusted my doctor! I will never take another shot of Prolia.

    • sheri March 17, 2016, 2:20 pm

      My GP told me the same thing, I took two shots before I realized all the pain and discomfort I was having was from Prolia, now it could take a year before this gets out of my system if I am lucky. The Dr. office that gave me the shot just called to schedule another one. I told her I am done with pills and Prolia. It took away 2 years of the quality of my life.

    • Linda February 23, 2016, 6:19 pm

      I had the shot 5 moths ago and had the worst pain of my life in my hip, thigh, back and groin. My RA Doctor said not Prolia but I was active up to time of shot. I also have bladder and UTI issues. In the last month it seems things are getting better. I still take some pain meds and go to PT but the intensity of pain is slowly going away. I feel like the effects are slowly leaving my body. Never again.

      • Linda April 23, 2016, 10:23 am

        I am getting really angry as my rheumatologist continues to say not Prolia! I have had many side effects and continue to have the groin, thigh pain and bladder, UTI issues. I am now at 6 months and see improvement but I doubt I will ever be back to pre shot. This has been the worst time of my life. Why do the doctors deny rather than work with the symptoms? I would change Doctor immediately but limited RA doctors here. He actually said I just have bad luck!

  16. Nancy P January 21, 2016, 8:02 am

    I was on Prolia for 3 years with good results and no side effects, however, my doctor said I would take it for 5 years and then take a break, I have had bone density issues my whole adult life (not from menopause) Taken several different drugs. I did have an issue with Fosamax which was new at the time, (a small hyetal hernia developed) My question is this: My last injection was 12/14 and I would have had the next injection in June which I did not have now I am having the upper leg muscle issues which were shown to the a possible side effect when on Prolia. I do think it is possible that this is a withdrawal effect and am trying to find an answer

  17. MyOpinion January 9, 2016, 7:00 pm

    Strange, I cannot find my original comment made only a couple of months ago. Others seem to be missing too. Here’s the deal as I see it. If good nutrition and proper exercise could cure EVERYHING or stop EVERYTHING in its tracks, we wouldn’t need doctors, hospitals, etc. We just wouldn’t. We could eat right, sleep tight and exercise like mad, and everything would be just fine. Well, unfortunately that’s not the case. Sometimes we can do everything right and still experience health issues either through genetics or just plain bad luck. Not everything can be fixed on a yoga mat or by eating all our fruits and vegetables and getting enough calcium. Oh, if only it could!
    I have no idea about VG here, and I am sure she undoubtedly promotes good health through eating right, maintaining a proper weight, getting enough exercise and all the rest, but no one – including her – has all the answers. Please don’t assume that if you follow a healthy lifestyle plan that you’re home free. Sure, it helps – sometimes a lot – but nothing should take the place of actually going to your doctor (and second and third opinions are good too) and then weighing all your options. All doctors are not the enemy. And everything on the Web or in a book is always right. Weigh everything and understand we don’t live in a perfect world. And we never will. This is my opinion only and it works for me.

    • Sasha February 23, 2016, 11:39 am

      I agree with you – I would love not to have come to this point where I need to take something to prevent further bone loss – but that’s the reality. I am researching my options but I’m not deluding into thinking that I can treat this with a better diet or more exercise. I’ve been exercising all my life. I am a relatively fit women, small boned and slim. Having said that, I suffer from very high cholesterol and subsequently have started taking medication for that. If it was easy to reduce my cholesterol through a better diet then I would but my doctor said I’m one of those people who need to take the meds to control it. I would be stupid not to, so be careful people about thinking you can control all these things on your own.

      • MyOpinion May 16, 2016, 1:50 pm

        I too take cholesterol lowering meds and feel the same way. Tried to do it by diet but didn’t work. Same thing with osteoporosis. If it were this easy to just take extra calcium and vitamin D (which I have been doing all my life by the way), then we would not need additional drugs for anything, including osteoporosis. We could all just live perfectly every day and do all the right things and live to 100 plus without nary a problem. LOL! Some of the people here who post outlandish stuff are well, a tad outlandish IMO.

  18. Ann Shelley January 6, 2016, 4:04 pm

    I have decided not to take anymore drugs for ortoporitisis. I was on bonvia and i suffered pain and discomfort, I was informed by my doctor that I had arthritis. I have never felt better since I stopped taken the drugs fosamax , & bonvia.

    • Gloria Cummings April 15, 2016, 8:52 am

      Very good decision, do not take Prolia injections. I know first hand about the horrible side effects. I took 7 shots and finally realized that I was having horrible side effects and they may never go away. Prolia is horrible!

      • MyOpinion May 16, 2016, 1:23 pm

        Just had my second Prolia injection and no side effects that I can blame on it as of yet. However, I do see that some people complained of side effects the more they took the drug. Of course as with any drug, sometimes the side effects are blamed on the drug itself, when in fact it is something else entirely. Everyone is so different and no two people will react exactly the same way. Here is the thing though. I have said this before and it bears repeating: If we could in fact simply eat enough calcium, exercise enough, take enough supplements (like Vitamin D and extra calcium, etc.), and do EVERYTHING right EVERY day for our health – and that were enough to cure osteoporosis – then there would be no need for Prolia and similar drugs. Everyone could simply make sure they did everything right every day for their entire lives (before, during and after menopause) and osteoporosis would be non-existent. Clearly, we know this is not going to happen. I have always lived a healthy lifestyle: I am tall, normal weight for my build, never smoked, don’t drink, always ate healthy and exercised, took calcium supplements and vitamins long before I ever hit menopause, etc. Unfortunately, I was diagnosed with advanced osteoporosis some years ago. My mother also had osteoporosis, however her lifestyle was not as healthy overall as mine. My point in mentioning this is that sometimes, genetics DOES in fact play a role in our overall health and you do inherit the propensity for certain things from your parents. You can work like mad doing everything thing right for your health and still end up with something, because it’s programmed into you. All this aside, sometimes medical intervention IS necessary and drugs such as Prolia, though they have their drawbacks of course, were developed to try and treat this condition. I took Actonel for some time and it proved to work only partially, thus the switch to Prolia.

  19. Lucille November 19, 2015, 10:49 pm

    Has anyone experienced a feeling of low blood sugar, unusual fatigue, or just drained? I’ve had three Prolia injections and thought I had NO side effect except that my extreme leg cramps miraculously vanished! Wonderful! HOWEVER, after every injection I’ve had a fainting episode triggering on going brain fog that seems related to diet or diabetes. ( I am not diabetic.) Each time this has occurred closer to the time of the injection. It takes weeks to disapate. Just wonder if this is a coincidence or a connection that others haven’t put together yet? Please comment if this is your experience too.

    • Gloria Cummings April 15, 2016, 10:25 am

      The side effects of Prolia, also known as Xgeva are horrible. I wish that I had never taken any shots. The side effects only get worst, I had my last one in 2015 and I am still having muscle and joint problems! It was originally used for bone cancer patients! As I said, a horrible drug, with horrible side effects!

      • Gloria Cummings April 15, 2016, 5:19 pm

        I had my first shot in 2012. At first I didn’t notice any side effects, but the more shot, the side effects became horrible. Fatigue, brain for, dizzie, but it gets worse. I began having severe joint pain, muscle pain, and more. This is a horrible drug and it has age me by at least 10 years. It was for bone cancer patients and shoul never be given for any other condition because of the effects to the body. And to answer your question about ever going away, mine have not gone away and it is now 2016! I wish I had never taken Prolia and will never take it again. I hope this helps.

    • I just started with my first shot of Prolia and I am extremely fatigued and brain fogged!! Does this evenly go away?? February 22, 2016, 1:08 pm

      I would like any suggestions on how to overcome the overwhelming fatigue from the Prolia shot.

      • MA March 25, 2016, 9:39 am

        My mom developed iron deficient anemia after her first shot. Have your blood checked.

    • laura February 18, 2016, 4:21 pm

      I am experiencing the exact same thing!
      I saw my doctor and he said that the prolia is not the reason for this.
      I still feel like it is. Let me know if you’ve found any way to ease these symptoms or if you’ve found out if it is in fact the prolia causing this.

      • Margaret Hughes March 11, 2016, 12:52 pm

        The Prolia (first shot Aug 2015) has ruined my life . I was admitted to hospital the same day and became an invalid, I could not stand up. Have full time care now. Two Years ago I was still playing table tennis twice a seek- got to doubles final in2014..

        • Gloria Cummings April 15, 2016, 8:55 am

          Stand firm, do not take Prolia, I know, I was stupid and took Prolia for Ostepinia. I believe I have permenant damage to my whole body! Prolia is a horrible drug!

        • Zimexlady March 31, 2016, 6:25 pm

          Dear Margaret,
          Thanks for your honesty. My doc is pushing Prolia. I am standing fast with NO. She will likely not be competent to reverse any side effect I might suffer if she cannot stop my high calcium which is causing osteopenia.
          At 86, no fractures at all, no symptoms, no aches, no pains, DEX levels one tenth into osteo barely off from osteopenia.
          I can only live a few more years with my excellent health so why should I gamble with Prolia?
          I insist on a natural method to lower my calcium.
          PERIOD

          • Mary July 24, 2016, 12:51 am

            Sorry I meant for the following comment to be addressed to Zimexlady

          • Mary July 24, 2016, 12:44 am

            Sorry I meant to address my comment to Zimexlady!

          • Mary July 24, 2016, 12:40 am

            Dear Margaret
            I hope I am like you when I am 86!
            My T-score is -3.5 but I too am refusing meds because I believe they leave you with inferior quality bone.
            To balance your high calcium level you might try supplementing with as much as 1000 mg of chelated magnesium per day.
            You go girl!!!!!! Best wishes!

          • Gloria Cummings April 15, 2016, 9:00 am

            Prolia was originally given to bone cancer patients, marketed under the name XGEVA. The drug is denosumah! I have had horrible side effects from the Prolia shots, have not had one since Feb. 2015 and I am still hurting a suffering from the shots I took. This is a or ruble drug!

      • Catalina March 7, 2016, 8:09 am

        3shots of Prolia so far, and my left hip which never bothered me now hurts. And by the way I ask my Dr. Why when I get the bill from the Insurance it say chemotherapy shots. Well she told me there are some cancer’s that are treated with these shot. WOW 😲. Ladies’ her face turned red. Need to get more answers before I get my 4one next September.

        • Gloria Cummingsi May 19, 2016, 11:01 pm

          Catalina, please research the side effects of Prolia before having another injection. It is used for bone cancer patients. I took 7 shots and my body may never be the same again. The side effects for me were horrible. I have a friend who had to take them for bone cancer and she and I were comparing our aches and pains and they are very similar. I will never take another Prolia shot for osteropina, beware of the side effects . They were and are horrible for me. Please beware before taking another injection. Hope this helps.

  20. Intheknow November 17, 2015, 6:59 pm

    I have thus far had no reaction to Prolia injection. And I am a person who often suffers reactions to many types of prescription drugs. While I am not keen on taking prescription drugs, I am also not keen on the alternative or possible alternative. I was on Actonel for 4-1/2 years and while it did improve my severe osteoporosis to some degree, it did not by any means turn it around. Also, Actonel (a bisphosphonate) was giving me bad GERD, and I mean bad! Since I have gone on the Prolia this problem has been reduced by 3/4. Also, before I found out I even had severe osteoporosis, I was taking calcium and vitamin D supplements by the score. They clearly did nothing, as when I had my first bone density scan about 6 years ago (in my late 50s), it showed severe osteoporosis. My late mother also had severe osteoporosis. I have never smoked, drank alcohol in excess (in fact I am nearly a teetotaler), ate a well-balanced diet, and I am not a small-framed person or slight. I am a normal weight for my height and medium frame and always have been. The list of positives goes on but unfortunately, we cannot always control every little thing when it comes to our health. Sometimes, genetics and the plain old “Fickle Finger of Fate” intervene. It would be wonderful to cure or reverse everything naturally without resorting to prescription drugs. Unfortunately it is not always possible, because if it were, we wouldn’t need doctors or prescription drugs or any other medical intervention. We could merely do everything naturally. Again, I have had no problems with Prolia thus far and will have another bone density test eventually as a follow-up to see if Prolia is doing the job.

  21. Mara Blond November 7, 2015, 3:44 pm

    Hi,

    I have been on Teva Risedronate 35mg, once per week for a few years. My bone density score is and was -2.9. Not even my doctor could explain if that is how much bone loss or if it is the rate of loss, in other words, is the TR doing a good job. My doctor decided to change to Prolia, which he thought would be covered by my Canadian healthcare. The pharmacy says it is not covered. Is it worth spending an additional $700 a year for the Prolia? If it is more effective, I would spend the money.

  22. Carolynn Lown October 12, 2015, 12:38 pm

    I have had 4 injections of Prolia over the past 2+ years. I noticed my hands were tingling and getting severely numb they were also painful which I thought could be due to the work I was doing. Then my feet starting cramping up to the point that I couldn’t straighten my toes. All of these occurred mainly while sleeping or sitting. I then began to experience back and leg pain to which my Doctor said was not caused by the injections-possibly slight back pain but nothing to do with my legs. I then began my research regarding Prolia. These symptoms were all listed. I did not take the next injection which was scheduled for 9/3/15. I was hoping when the Prolia was out of my system these mysterious ailments would stop. The Doctor’s office said the Prolia is completely out of my system 3 months after the injection. My hands and feet are much better but the pain, muscle contractions, burning still exists. Actually the past 4 nights these symptoms have increased and I cannot sleep. I am afraid the injections have done damage which cannot be reversed. Can you please give me your advise on my situation?

    • Gayle thompson April 26, 2016, 3:16 pm

      Omg! I ended up in ICU 4 days after my 1st injection!!! I got severe tingling in feet hands even lips. Had muscles cramping swollen face back pain rash in face. Most all the side effects. Went to ER and all my electro lights were messed up but the worse was my calcium level was critically low!!! I was in kidney failure!!! After a week they got me level, I was released with a high chance of re- admission since it stays in system 6 months. Yup, 4 days later back I went. I’m monitored every 5 days now and my life is no longer my own. I cry all the time and am continuelly exhausted. My daughter is getting married in Cali end of May and I’m not sure how I’ll be able to travel. DONT EVER TAKE THIS DRUG

    • Georgie Smith November 21, 2015, 10:28 pm

      Next month would be my fourth shot. Never, ever again. Just got bone density test back, my osteoporosis has worsened very badly. They said,”from test”, my lower spine and hip bones are now crumbling…I’m terrified now, but sure explains lot. I lost about 15 pounds, now 101, and I couldn’t afford to lose any. But HERE’S the pain side effects I’ve been having and destroying my life. My back, arms, legs, especially my lower back, horrendous pain, my arms, legs hurt, tingling in my face, chest pain, muscle spasms and I’m not taking a Charlie Horse. I get woken in middle of night with muscles on outside of both legs starting at the knee, all the way down, solid bulgeing muscles, pain horrible. My toes go numb and curl up. I’m not sure if I’ve even listed it all, but the pain I’ve been through today has been horrible. Especially my back, so bad, I can’t describe it and I’m so exhausted ALL the time. I told doctor right after last injection about six months ago, that my pain in back, etc was worse, he said Not possible!! Well, all I know is the state of my health and its really bad. I’m 61 years old, a strong minded woman, but no pain pill or anything can relieve what I’ve been going through!! Just sharing my experience and wondering what my alternatives are. My first bone density test was T-4.3, horrible enough…..WELL, I’m not sure there is a scale for me now…..-7…….Yes, I’m in serious trouble and worried, can’t survive this much pain!! Thanks for listening. But, I’m NOT taking next shot!
      ..

      • Linda Caldwell July 11, 2016, 7:15 pm

        My Reg doc and my Endocrinologist BOTH want me to take Prolia and have been on me for several years now. I just got my last bone scan back and it’s really bad now so they are both jumping up and down, calling me at home and wanting me to start taking this stuff. I keep refusing…WHY? The first big one is it messes with your immune system. Well, it just so happens that I have 3 immune system illnesses (pomphlox and lichen sclerosis and Fibromyalgia) with the 4th one not verified but most of the symptoms of MS. Do you think I should be taking this? I DON’T. The second big one that I have a problem with is that after 3 years of taking it you have an INCREASED CHANCE of breaking a bone!? Really?? I’ll take my chances without it thanks……Not to mention I have been on heart meds for almost 30 years for a mitro-valve problem. So after reading so many responses to this drug about the side effects that people are having ( and it’s not just this web-site) it’s got to be a BIG FAT NO WAY BUDDY!! They would have to physically force me to take it…..and as far as I know we are still free to do as we please. BTW, I am 60 and my mother had it really bad too.

      • Zimexlady March 31, 2016, 6:30 pm

        Georgie,
        So sorry for your situation. I am refusing Prolia or any of those meds.
        Thanks for you sharing experience.
        May you get some help in the near future.

      • Carol March 28, 2016, 12:23 pm

        I have only had one shot and will not take any more. If I sit down for 15 to 20 minutes and get up to walk the pain is scary to say the least. I wake up at night from the pains in my hips and legs. I will just double the amount of vit.D and cal. I take. My whole system is screwed up, I never was sick and now anything going around I get. Dr. says it leaves our bodies in 4 months, well then why do the give the next shot in 6 months? My choice is to not take anything with such horrible side effects.

      • Gloria Snow February 2, 2016, 7:15 pm

        Saying thank you to you isn’t nearly enough for sharing all the terrible side effects that you have had from taking Prolia. Shame on Big Pharma for how they control everything. If it weren’t that way, maybe medications and supplements that worked and could actually help people could be created and made available. After reading all the problems that arose for each of you after taking the Prolia, I will never take it. I have started taking Metagenics Bone Builder. After many people have had bone scans done after taking it for a year plus, their bones have gotten much stronger and are regenerating. There is nothing on the market like it. I will be lifting all of you up in prayer, and will pray that the symptoms and effects subside. Hang in there. Prayer works!

        • Ben February 18, 2016, 8:23 pm

          Way, am I glad you don’t work in medicine with your crazy ideas and biases.

          • Zimexlady March 31, 2016, 6:34 pm

            Gloria has far better advice than you have contributed, Ben.
            Exactly what is your experience.?
            Perhaps we should listen to your words of wisdom.

    • Gloria Cummings October 19, 2015, 9:44 am

      This drug is horrible. I am not a doctor but a patient or should I say a victim! It was initially for patients with bone cancer, for that reason I can understand it being given, but I was given injections for osteopenia, not even a severe case. I trusted my doctor and took the injections every six months, the side effects are horrible. I wish I had researched this drug before taking it, I am no longer on this drug and will never take it again for osteopenia ! I am not sure my body will ever be the same again, almost all of the side effects I have experienced. Beware of Prolia, it is brutal! Still suffering with pain, last shot 2-23-2015!

      • Aida March 1, 2016, 2:09 pm

        My mother has had the same experience after taking prolia in August 2015. Six months have passed and she’s still suffering terribly from the horrible side effects. The question is will it ever get out of her sytem. I hope someone could answer this question which my mother is so eager to find out.

    • Vivian Goldschmidt, MA October 12, 2015, 8:51 pm

      Thank you for sharing your experience, Carolynn, and I am sorry you are experiencing that discomfort. While every situation is different, and there are too many individual variables to predict precise results in your case, I can tell you that your body is made for health, not disease. In the absence of poison, and given the nutrients and exercise it needs, your body has remarkable healing powers. Hang in there!

      • Gloria Cummings October 19, 2015, 9:51 am

        Hope you are correct, Vivian. I saw my oncologist 10-15-2015. She prescribe Prolia for me, but I am now off of it and she is checking me closely for lasting damages to my body!!

  23. Marcia Stroud October 9, 2015, 8:50 pm

    A couple years ago I was given a 1/2 dose injection of Zometa and ended up in the hospital for 5 days with severe hypocalcemia. Doctor said I should never have injection again. Now another specialist wants me to take a Prolia injection. I am concerned that I will again develop hypocalcemia or other side effects. Not sure what I should do as I have severe osteoporosis.

    • Vivian Goldschmidt, MA October 10, 2015, 3:04 pm

      It’s too bad that your doctor warned you of the dangers after you had the shot. 🙁 I’m glad you are here, doing your research before your next step. Good for you!

  24. Trish September 23, 2015, 11:43 pm

    Don’t let your loved one take Prolea!
    My 72 year old Mother received this shot for her osteoporosis on August 28……since then she has been on a downward spiral of awful side effects (Nasua/vomiting, extreme fatigue, headaches, jaw pain, calcium and potassium crashes leading to low kidney function, loss of appetite, etc). All leading to hospitalisation and numerous tests (MRI, CT scan, spinal tap, ultra sound, etc). The doctors cannot find any answers other than the direct cause of a reaction to this shot without answer for counter measures. 3weeks ago she was a healthy active senior…..Now she is a lifeless soul who has to be forced to eat everyday. I do not know how this will end, but please do not take this shot!

    • Gloria Cummings October 19, 2015, 9:58 am

      Yes, Trish, do not allow anyone you know take Prolia for Osteoperosis . It was originally and is still given for bone cancer patients and should never have been approved for anything else!! I had horrible side effects from Prolia and am still suffering!

      • Trish November 5, 2015, 4:23 pm

        Update: November 5, 2015… My mother has finally been released from the nursing home after 2 months in and out of the hospital. Every indication has been that Prolia has caused the numerous problems as stated on my 9/23/15 post. She will continue to have in-home IV hydration therapy until this stuff is flushed out of her system and hopefully she can resume her normal life soon!

        I cannot state this enough…please do not let your loved one take this shot!

  25. Wendy September 19, 2015, 1:33 am

    So what is one to do when they are a long term breast cancer survivor, so far without recurrance, but continues to have to take an Aromitase Inhibitor that has the potential to cause bone loss? My oncologist listens well and I told her that I didn’t like the way the Prolia made me feel and she said I didn’t have to take have it again but would need to go back to the Zometa. I wonder if there is anyone who needs to take the AIs but choses to not take any Osteoporosis meds.

    • Gloria Cummings October 19, 2015, 10:07 am

      Hi Wendy, I am still on Femara, and was on Prolia. The side effects are horrible, so bad that I will never take another shot for osteopenia. It was originally for bone cancer patients! I just saw my oncologist 10-15-2015. She said no more shots and is monitoring me for the serious complications that I have experienced . She suggested at least 2000 mg of calcium, one in the morning and one at night plus Vitamin D. Will try this but will never that another Prolia shot!!

    • wendy September 22, 2015, 5:46 pm

      I’m not getting a reply

  26. cathy September 2, 2015, 12:32 pm

    do the mds make money by pushing such drugs as Polia? Why do they brush off your side effects? I’ve spent a fortune on tests, md’s and I think its all from prolia, please someone?

    • Gloria Snow February 2, 2016, 7:32 pm

      Look at npr.org, where they confirm that Doctors and big pharma both get paid money every time a prescription is filled. It really is true. Big pharma owns medical schools and hospitals. In medicine, everything happens because of big Pharma. It doesn’t get dirtier than them. Who can trust anything they say? No wonder all these medications are so deadly. My thoughts and prayers are with you,

    • Vivian Goldschmidt, MA September 3, 2015, 11:08 am

      Cathy, have you researched the free information on this site about osteoporosis drugs? I want to encourage you to do so, because it will help answer a lot of your questions! Here are links to a couple of posts to get you started:

      http://saveourbones.com/prolia-pros-and-cons/

      http://saveourbones.com/top-5-reasons-why-you-should-never-take-osteoporosis-drugs/

  27. water purification systems July 24, 2015, 10:19 pm

    we don’t have good water here so the filter system keeps us from buying all of our drinking water every week.

    http://www.pewaterionizer.com/

  28. hal July 9, 2015, 4:25 am

    i was told by my doctor that all side effects would be less because it was an injectable, not a pill that has to go through stomach or body. My mistake was not doing research on my own, now I am paying till this runs out of steam in my body.

    I was in training for a walk/run marathon and after this shot of prolia, can hardly clean my house from day to day.

    Looking for a half life on this drug, it sure would be nice if all the symptoms came in the first 30 days and then let me alone.

    Good luck everyone

    • Maria garcia August 10, 2015, 8:55 pm

      Hi, Iam little nervous myself. Took my first injection today. Didn’t do research either. I’m hoping I don’t get those terrible side effects. Don’t think ism taking anymore injections. Iam scared.

  29. Audrey Aspeling June 14, 2015, 1:54 am

    I’ve written twice before and still believe that some people do not suffer from osteoporosis because they live with very low levels of electromagnetic radiation mainly through low level power lines outside their homes and low levels of radiowaves which is becoming more and more difficult to achieve with the escalation of mobile and cordless phone technology and wireless connections for internet etc. instead of the safer hard wired versions. I finally built my back room away from my high street power lines and rid my home of wireless etc. which I believe has helped both my husband and I stay healthier but unfortunately last year I still broke some more vertebrae but since then I recently discovered that having broken a couple earlier it is more likely that others will go later as the spine is already destabilized. I had already tried Fosamax and had side effects some years before so with the new breaks and my doctors advice I first took Protos and had a cardiac event the second night so I then took my first dose of Prolia last September and the next day was nauseated and had sudden bursts of fast heart rate when sitting down which went on for a number of weeks. The nausea still persists nine months later so I will not be taking any of these drugs again! I didn’t have pain but was on strong pain killers at the time for the recent back fractures so probably would not have known anyway. I understand from research that EMR and RFR interferes with healthy calcium metabolism so I believe one is more prone to both osteoporosis and the side effects from the pharmaceutical drugs if one is over exposed to EMR and RFR as these are unsafe for all of us over time so perhaps we could all look into this angle as well to try to stay well as there is plenty of research about this on the internet. We are electrical beings and our electrics are incompatible with those made by man so alternative treatments for Electrical Hypersensitivity I think can avoid having to take these other unsafe medications. Anyway check out the research for this as it talks of avoiding cancer, diabetes, strokes, heart attacks, dementia etc. if you lower your exposure because you then are more able to make melatonin which we need for healing overnight. so we should try to make our bedrooms safe from all this and then hopefully save ourselves from an unhealthy old age.

  30. Ray May 27, 2015, 10:52 am

    Be careful everyone. You could end up like me with multiple fractures and now permanently disabled. I tried the “natural” route, but my numbers were just too bad. After Prolia, I’ve finally gone a couple years without fracture,.

    Keep in mind, osteoporosis only gives you an increased risk of fracture, but doesn’t mean you WILL fracture. Most people won’t or will go many years without fracturing at all. I could start a website telling people to eat red and blue M&Ms and the majority of people that buy my advice won’t fracture. Is that success?

    Good nutrition, vitamins and minerals are essential, but sometimes drugs ARE needed to assist and not suffer like I have.

  31. Beverly Gainey, Goshen, Indiana April 26, 2015, 11:58 pm

    I Have taken Xgeva a little over four years and have developed a terrible side effect called osteonecrosis of the jaw, The bottom teeth and now starting to be deformed and very difficult to eat. The breast cancer is doing fine. I was never given any information about this drug until I started having trouble with my jaw. No mor xgeva for me, I know have to live with the possibility of having my bottom teeth removed .Nothing can go in there place and a disfigured face. Very unhappy No more of this drug for me.

  32. michelle April 18, 2015, 12:24 pm

    Worst medicine I ever allowed to be given to my mother. Never ever will I do this again. First shot fine second shot not so good. The more I let them give the more side effects she had. It will take forever to get out of her system so now she will feel awful for 6 months! Never again!

    • Sharon Adams June 18, 2015, 12:39 am

      Was the drug Prolia that was prescribed for your mother? It’s been prescribed for me but I’m very skeptical about its safety and potential side effects. I’m curious to know your mother’s age.

      • pauline August 2, 2015, 9:43 pm

        Got the Prolia shot in November and am still paying the price of the side effects. I have such pain in the groin area that I can hardly get out of bed in the morning. Chiropractor said it will get better but it will take a while. I hurt 24/7 and would never recommend this shot to anyone. Good luck

        • cathy September 1, 2015, 3:05 pm

          I took Prolia shot June 12, same Pain in groin area left side really bad, no mds want to address side effects. tell me I have to take shot or risk not walking if spine keeps crumbling. took Forteo for 61/2 months thought I was dying. leg, headaches so bad!!

  33. Elizabeth Hill April 15, 2015, 4:15 am

    Hi there

    I have been taking Bonviva for 9 years and after reading your blog have decided to nt take it anymore.

    What damage have I done to my bones and is there any hope to get my bone osteoclasts and osteoblasts making REAL bone again?
    I am in the United Kingdom. Can’t find any info which is not unusual over here.

  34. Carole March 16, 2015, 9:27 am

    How can I get statistics on the likelihood of having a bone fracture (female, aged 69)? It seems to me that should enter into a decision on taking medication?
    Are there statistics on whether the risk increases when you stop using an osteoporosis drug?

  35. Katy February 20, 2015, 4:22 pm

    I went through early menopause at the age of 38 and was diagnosed with osteoporosis at 42. I am now 58 and have been taking Evista safely (touch wood) for the past 16 years. I have recently had a Dexa scan and my results showed that the osteoporosis has retreated and is now osteopenia. Although I try to eat healthy and exercise, the drug has certainly helped. This may be a consideration to someone.

  36. Britney Alis December 26, 2014, 10:35 pm

    My battle with Breast cancer started 2 years ago, after so many Chemo, Radiation and other natural therapy treatment that i took just to cure my Breast cancer, it all did not work for my condition. I have been treating this disease for the past 2 years, but today i am here telling the world about my final victory over Breast cancer with the help of cannabis oil medication. This is a breakthrough in my family with so much Joy in our life today, i do really appreciate all the help and contribution from every member of my family for all they did for me. And if you have any kind of cancer diseases, there is no need to waste money on Chemo or Radiation, go get cannabis oil from Rick Simpson ( cancerresearchcentre@chemist.com ) this is a medication that totally kill cancer cells.

    • Aida February 10, 2016, 12:50 pm

      DO NOT TAKE PROLIA. IT IS WORSE THAN POISON. My mother, 85, was given her first and only Prolia injection in August 2015 and has been very sick ever since. She’s been having bone pain, muscle pain, stomach pain abdominal pain, back pain leg, arm, shoulders, neck and eye pain. Burning all over the the body. I am so sad and feel helpless seeing her suffer and unable to help ease her pain. I just hope after 6 months it wiil get out of her sytem and the damage won’t be irreversible.
      DON’T TAKE THIS HORRIBLE PROLIA DRUG.
      I WISH we had someone to advise my mother before taking Prolia.

      • Aida February 10, 2016, 1:00 pm

        Prolia also causes endless bladder infections and flu like symptoms that do not respond to medications. My mother’s blood pressure has been going up ever since she had Prolia.

  37. john russell November 11, 2014, 3:05 pm

    my partner died on 20th oct this year after reading some of the coments I think her doctor and hospital have made a big mistake in giving her 3 injections of prolia from july last year she had all the simptums cold sore hands and legs and needing the toilet all time sometimes doin it in bed through the night,,she died in her sleep.post mortem inconclusive so its 4-6 week wait for blood tests,,,,,

    • Lisa December 5, 2014, 8:41 pm

      My mother, my twin sister and myself all have osteoporosis. My mother was advised to go on prolea by her doctor as her osteoporosis is bad. I had done a lot of research and felt that this drug was not the best for my mother. Against my research and suggestions my mother had the first injection in the spring and her second a month ago. She has numerous medical issues and recently was diagnosed with stage four breast cancer and bone cancer in her back. She had a very aggressive breast cancer about four years ago and it has came back. Now my sisters feel the Prolea has something to do with her new cancer. I really don’t know. Personally I wouldn’t go on the drug but what to you do when your osteoporosis is so bad. As for me I had a recent bone density test and within a year my bone density improved. My doctor had recommended Fortero. I did my research on this drug and no, no, no, I was not going to take this drug. It was taken off of research after two years due to cancer in laboratory mice. There is a FDA black box warning on this drug. Why would a doctor recommend this drug with these findings? What I have done in the last year was buy a weight vest and wear it as much as I can, I am taking liquid coral calcium from a company called Genius Pure, I take my calcium and D3 and my diet has improved to include natural foods. Also my husband and I installed a Reverse Osmosis water filer on our kitchen sink and we drink pure water. I believe you can improve your bone density the natural way but it takes a lot of work. But then us women are worth it. I also pray and depend on my Lord and Savior, Jesus. He is my true Physician. God Bless everyone.

      • Debbie July 19, 2015, 5:28 pm

        HELP I have secondary breast cancer in my bones I have had denosumab injection monthly until I said no more excruciating pain in groin hip thigh bones my body trembles with the pain 1 week after really bad second week it eases of to the point my palliative nurse put me on 15 mg oxycotin 2 times daily and oral oramorph every hr when needed the first week after I have my injection I am on the oral ever couple of hrs I’ve refused this now and they started me on a drip one beginning with z which is also doing same thing I am honestly scared of this drug and thinking very hard about not having anything IS THERE ANYTHING ELSE OUT THERE THAT won’t damage my body and soul any ideas plz

        • Debbie July 24, 2015, 10:00 am

          Debbie, Believe it or not my name is Debbie too. i have Breast Mets, stage 4 in the bone and I was on Xgeva injections monthly for 7 months and the bone pain was so bad I refused to take it any more. I told the doctor that “the cancer maybe killing me, but the treatment is making me want to die”. I had no quality of life for three weeks after the injections. I could not walk or even barely sit on a toilet. I was taking so much pain meds that I could not function or even remember conversations that i had with people. Now, my life is much happier WITHOUT Xgeva injections. I do not know what other medication to suggest to you because I have choosen not to take any of the bisphosphonates.

      • sandy June 12, 2015, 1:49 pm

        Lisa, I have just read your comment and I was wondering how you are doing now with your natural approach. My doctor wants me to use Prolia and I have done heaps of research and am leaning in the no direction. How is your mom?

        • Aida February 10, 2016, 1:04 pm

          Stay in the NO direction.

  38. evie October 28, 2014, 8:52 am

    I have had shots now for 3 months…how do I get it out of my system?

    • Deborah McDonald August 20, 2015, 5:40 am

      Hello -My mother had 3 shots as well and seemed to have almost all side effects-of course we are not going to continue the shots -but if you ever get the answer to how long it will take to get out of the system I would appreciate learning what you find out Thank you

  39. Kathi October 27, 2014, 7:10 am

    I have had osteoporosis for a number of years now and could not tolerate Fosamax or Actonel as caused esophagus issues. I’m scheduled for a Prolia injection tomorrow, Tuesday October 28, 2014. After reading over the number of side effects common and serious, I’m seriously backing away from getting this. Can anyone recommend another type of med like the Boniva i.v. solution or Reclast? I had read that either one of these would be better. I need some answers fast. I am going to cancel this appointment until I have some better answers in the direction I need to go. The thought of having my immune system compromised with Prolia scares me… Thanks.

    • Vivian Goldschmidt, MA October 27, 2014, 9:00 am

      Good for you, Kathi – you’re doing your research before taking the drug! You’re miles ahead of the majority. 🙂 I encourage you to research the other osteoporosis drug options – you will find information on all of them at this site. Type the drug name into the Search box and you’ll find a wealth of information! The bottom line is, your bones don’t need drugs to thrive and improve. 🙂

      • Kathi October 27, 2014, 9:33 am

        Instead of Prolia I’m leaning towards Boniva iv solution. I had taken osteoporosis meds by mouth before and always had issues. Right now my osteoporosis is pretty bad. I have it in my spine, hips, neck and who knows where else, so I need to find something to stop this and get my bones back in shape. Does anyone have any thoughts on Boniva iv solution? I also thought of Reclast but am not too sure about this one. Thanks.

        • Kathi October 27, 2014, 10:13 am

          Also, my osteoporosis is too far gone so I’m wondering if a natural approach is going to help me in reversing the bone loss.

  40. Paula August 12, 2014, 10:28 pm

    My mom is 79 and has severe osteoporosis and has recently had 2 fractures in her lower back. She is in a lot of pain. Her doctor is telling her that taking Provlia is the way to go and is safe so she is considering the drug. I am concerned with everything that I am reading that this is not a good idea. Unfortunially older people put to much trust in the doctors today.
    I don’t know what to do…she is in a lot of pain and not able to function in her everyday life in the state that she is in now. So it sounds like she is damned if she takes the drug and damned if she doesn’t because she can’t fountain the way she is.
    Any suggestions…Thanks for listening.

    • susan February 10, 2015, 7:37 pm

      I am 69yrs old and have tried alot of Bisphonates and am now on Prolia 2yrs. I have fractured 4 lumbar verts and 3 thoracic verts and I had 2 kyphoplasties done on my lumbar spine which immediately took the pain away> Have you heard about this proceedure? I think it is great for someone who is in alot of pain from lumbar fx’s. but it has to be done within 6 weeks of the fx to help.

    • Vivian Goldschmidt, MA August 14, 2014, 8:00 am

      Paula, do you have the Save Our Bones Program that you could share with your mother? Maybe she would appreciate if you’d direct her to this site or print out articles and information that might be helpful to her. Then she can make a truly informed decision!

  41. Nick August 7, 2014, 6:09 am

    My wife is on her 4th Xgeva injection. She had one dose of Zometa prior to Xgeva but shifted when she experienced body pain. She did experience mild pain on her first dose of Xgeva & none on her 2nd & 3rd. She will have her 4th tomorrow. She has bone mets & recently underwent radiation which lessened the pain by at least 50%.

    Question:

    For how long should she be on Xgeva?
    Would lab tests show if Xgeva is effective or MRI?

    We are from the Philippines.

  42. Audrey Aspeling July 6, 2014, 5:12 pm

    I wrote before in 2012 with my belief that our continued and increasing exposure to low dose electromagnetic radiation from wifi, mobile and cordless phones and their masts and all the other modern electrical and wireless gadgets may be affecting our bones so looking to reduce this may help you all and even prevent cancer and many other diseases. I built my new back bedroom to get away from excessive power lines I spoke of before and then needed grounded shielding paint and curtains for the radio waves and have had some improvement without any bone density medications. I still cannot avoid exposure in the day but the night is most important because we need to produce melatonin then to heal us and cannot do so with electricals in the bedroom. If you don’t believe me just look up EMR and Health!

    • JudyAnne October 13, 2014, 6:31 pm

      Hello Audrey, This sounds very interesting. Thank you for sharing this info with us. Much good luck and I hope you get on your way to good health!
      I’m 71 and just had a horrible bout with 1 injection of Forteo, Friday October 10 2014. I have severe rheumatoid arthritis, fibromyalgia, and severe osteoporosis, plus lung and heart health issues.

  43. Doris June 30, 2014, 10:49 am

    I got my first and only shot of Prolia in May 2013. Four to six weeks later, I developed fever (101), chills, and flu like symptoms. Several weeks later I began having bad heart palpitations. When I called my doctor, she did not think my symptoms were side effects from the Prolia, but I refused to take more shots. My doctor did order blood tests. These tests showed my thyroid and pituitary gland readings were way off. At first she had me cut my thyroid medication in half and then took me off of it as the second blood test was even more skewed. She had been treating me for low thyroid. I am still having an irregular heart beat which can leave me weak at times. So far EKGs have been inconclusive as to heart issues. I wish I had researched Prolia a little more before agreeing to the infusion.

  44. Ramona June 24, 2014, 3:34 pm

    Glad to find this thread. I live in Georgia and was fortunate to find a pharmacy that works closely with the company who makes Prolia. The regular price through my local pharmacy was way too high $$$ for me and it was a mission getting the insurance to pay for it. South Miami Pharmacy helped obtain the prior authorization finally AND they also have a copay assistance program that helped with my high copay. The staff was great. They didn’t charge to ship it to me next day. Hope this helps.

  45. Rina June 15, 2014, 5:22 pm

    I had a Prolia injection November 2013. By March 2014 I started feeling cold spells, not flue, but just feeling cold, shivering when others felt warm. I met the specialist that prescribed the drug and he said it’s o.k., it’s not the drug. I was stupid to take his word and not do the research myself. So, May 21, 2014 I did my next injection. 2 weeks after I started feeling so cold that it felt as though my bones are in the freezer and a week after that, bones in my hands and legs started hurting. I can say with surtainty that all these side effects are from Prolia.
    My advice to people: NEVER TAKE ANY MEDS that last longer than 24 hours. At least if you get a side effect you can stop. I don’t know what will happen until Prolia will go out of my system by November 21, 2014. I hope there won’t be any permanent damage and I won’t die.

    • Vivian Goldschmidt, MA June 16, 2014, 8:17 am

      Rina, your body is remarkably adept at removing toxins, including medications! The process is greatly enhanced if you support your cleansing organs (kidneys and liver). I encourage you to check out OsteoCleanse – you can read about it here:

      http://saveourbones.com/rapid-cleanse-sale/

      Take heart! Your body is designed for health, not disease. 🙂

      • DQ May 22, 2015, 7:09 pm

        regarding osteocleanse book: Why does everything have to include weight loss? Is this just a selling point? I can’t afford to lose any weight

  46. orit May 11, 2014, 7:20 am

    my mother got prolia and after 3 month got something like mycosis fongoids/eczema
    T cell .
    do someone know the conection between prolia and Tcell?

  47. joy April 10, 2014, 2:26 pm

    Vivian granted that your stuff is that good why not share it with the suffering people,we are already paying with our bab bones, let your knowledge come out athe world will be gratefull at you.

  48. Tricia April 6, 2014, 7:58 pm

    Doc telling me I have to take prolia. Bone density of -2.8. I’ve never had fracture, in good health, and follow good diet. I don’t want these prolia side effects at age 88. They say my hips are in red zone Help! Please! Any suggestions or advice. All I read about prolia and friends say it’s bad. Docs won’t hear of anything else

    • Joyce June 5, 2014, 7:30 pm

      I took Prolia shot 6 months ago. I have severe arm pain. I canceled appointment for second shot. I will not take it again and would not recommend it to anyone.

      • Vivian Goldschmidt, MA June 6, 2014, 8:55 am

        I am sorry you experienced that kind of pain, Joyce! Good for you for not being afraid to say “no” to more treatments. 🙂

  49. mavis March 12, 2014, 8:01 am

    Vivian you are a disgrace
    can you please show me one bit of clinical evidence about your money spinning garbage that you are selling. Please women listen to your dr not some hack trying to sell books. She won’t be here in 10 years when you have a hip fracture and end up immobile she will be in the bahamas enjoying your money.
    shame on you Vivian

    mavis -76yo

  50. Rita March 8, 2014, 2:13 pm

    I have week bones. In 3 years the scan showed that my bone density went from -2 to -3.6. I had 2 fractures last year: Patella and ankle. I tried all natural remedies (bought Save our bones book few years ago) and it is not stopping my bone loss. The doctor suggested to take Prolia and I read many articles available on this drug.
    I have to do something just not sure what. Any suggestions?

    • meela March 17, 2016, 6:39 pm

      Do it.

  51. Glenda February 26, 2014, 11:21 am

    I am almost 63 yrs old and just went for my annual physical to my gyno. I told her about my Dad who’s almost 85 who has been diagnosed with mini strokes 4 yrs ago and in November he finally fell just the right way and broke his hip. I was only telling her this to update her on my “family history”. She immediately applied that to me that this incident makes my “likelihood” of breaking a hip up 3xs. I was shocked to see that as a correlation to me with his age and his condition being the “cause” of his hip breakage. She said it doesn’t matter unless he fell off a 3 story building. She was adamant about that. She knows that I have refused further “medical treatment” that the drug industry offers for years now. I have previously been on Fosamax, then Boniva, then Fosamax again. When my bone density tests proved that I had osteo. she then recommended Reclast intravenous injection or Forteo. That was a few years ago. When I realized that this is an injection, I said “Whoa” let me check this out. So I went online and saw all the negative reviews that people had to these drugs and also found Vivian’s site. I was highly impressed that someone had put so many years of research into this one area and had come to these conclusions. I have bought the Save Our Bones program, but quite honestly did not “get around to reading the book”, a downfall of mine with good intentions. So I’ve just trudged on, waiting to see how things go without using drugs. This time when I asked her about when is it time for my next dexascan, she said what’s the use of getting one if you’re not going to take a medication, those are very expensive. So that surprised me, because she feels that no “natural” method is going to improve your bone density therefore there’s no use in having the test. (Besides, my insurance has always paid for it, so is she implying that she wouldn’t even prescribe it for me?) I decided not to argue with her, she asked me to reconsider taking the Provia, which is the latest “best” bone drug in her opinion. I said I would reconsider. I asked her if there were any side effects, and her reply was, “why yes, there’s possible side effects to any drug you put in your mouth, even Tylenol”. I thought that was a pretty “glib” answer. DUH! Yes, but what are the side effects and how severe can they be and do I want to be a guinea pig to see if I’m the unlucky one of a “few” that get these terrible side effects or look elsewhere. I think that doctors are “pushing” drugs, because that’s all they know to do. She said, believe me, if there was a natural alternative that would work, I’d be all over that. When she first tried to get me on Reclast, and I did all that research, I forward this info to my doctor and she met that with some resistance. I don’t know what to do at this point. These medications scare me, but she scares me of a hip breakage too.

    • Catrina Arnold November 20, 2014, 2:21 am

      It sounds like the same pharmaceutical sales rep visited both my doctor and yours. It’s the “best” bone drug there is, “look up Tylenol if you’re concerned about side effects.” Funny thing is the insurance company pays the doctor for doing the injection at his/her office, unlike prescriptions that get filled at a pharmacy or (yikes) supplements and exercise. Prolia may turn out to be an excellent treatment for osteoporosis but it seems to be a bit early to tell. The FREEDOM study looked at patients over a 3 year period yet many of the problems with bisphosphonates didn’t show up until after 5 years? Haven’t totally ruled Prolia out, but am certainly giving it a hard and thorough look.

    • Vivian Goldschmidt, MA February 27, 2014, 7:22 am

      Glenda, it’s clear that you are thinking through your choices and doing your research. Good for you! I want to encourage you to make your own health decisions; no one can “make” you take a drug you’re not comfortable taking, period. It’s not your doctor, but YOU who will experience any side effects from medication! So empower yourself with knowledge, and don’t be afraid of taking the “road less traveled.” 🙂

  52. Kay February 21, 2014, 1:50 pm

    Was diagnosed with osteoporosis 4 months ago. Had a tooth removed so could not take the Prolia injection for 2 months after the “site” had healed. Got the Prolia injection exactly 2 months ago (12-21-13) About 4 days ago started having horrendous low back pain – went to the Ortho dr and he gave me pain pills – Trama-dol (that don’t even take the edge off) and he has ordered an MRI that I am to have next week. Also have just started experiencing some dizziness in the last couple days. After reading all the comments I am now wondering if a 2 month long struggle with bronchitis and lung infection in which 2 different antibiotics didn’t even phase it that my immune system has been compromised. I have contacted (today) my family physician and the ortho dr in writing telling them all this and am waiting to hear from them. I won’t be getting the next Prolia injection in June.

    • Clarisse August 15, 2014, 1:16 pm

      Eu tomei Prolia a dois meses atrás e também senti sintomas parecidos. Começou com uma dor nas costas e dias depois muita tontura, náusea, dormência nos braços e falta de apetite. Agora estou melhor, relatei esses sintomas para minha médica, mas ela me disse que não tem nada a ver com Prolia. Ela disse que se fosse algum efeito colateral teria aparecido nos primeiros dias. Outro médico me recomendou que eu tomasse a vacina de meningite ACWY, mas estou preocupada em ter alguma interação medicamentosa com Prolia. Alguém tem alguma informação sobre isso?

  53. Mimi January 24, 2014, 1:20 pm

    IV boniva??? I am 55 y.o. diagnosed with osteopenia in my mid 30’s. Now at the age 55, I have severe osteoporosis with past spinal fx. cervical and spinal surgery, with R/A fibro, bla, bla, bla… lol.. I have been on vioxx, forteo and prolia with extreme side effects just as all of you, flu like symptoms, fatigue, pain throughout, inabilty to eat properly, weight loss of 60 lbs due to dental pain and my teeth are twisting with jaw bone pain. After receiving an injection of prolia I had so many side effects, I called and left my Dr. 4 messages, 2 times I walked in and left msgs. he never returned my call. 2 mos. later when I finally had an appt. he said to me he did not have 15 min. to call me (very sad). He refuses to do any labs on me except for a vit. D. Once I saw him he assumed I was still doing well on the prolia, at the time he denied the issues I was having were due to prolia he said it was anxiety lol. I saw him 4 mos. later this past Wednesday and he admitted that my issues indeed were from the prolia since they happened during the time I was on this med and have let up while off. He now wants me to try another posion called iv boniva. People, I am so frieghtened because if I have issues he does nothing about and assumes I am still doing well on what ever the last oste drug he sugggested, NOT, ther is no one to turn to. I requested he put me on miacalcin and he laughed and said “that was pulled off the market because we have these other great Osteo drugs”. I called the pharmacy to see when this miacalcin was removed from the market and the Pharmacist said we still have it and it is used by many with great results. I can’t stand someone that lies to me, especially my rhuemotologist. The rhuemotolgist prescribes these bad drugs then WE must pay our dentist to go above and beyond what was initially required prior to receiving these poisons. Help any input would be helpful. thx

  54. Ray January 13, 2014, 9:29 pm

    I realize bisphosphonates aren’t completely safe, but they do help some and don’t harm everyone or even a high percentage of people. I have pretty severe osteoporosis with multiple spine fractures prior to taking Fosamax and now Prolia. Of course if you didn’t exaggerate the amount of people that have side effects with these drugs and use the scare tactics that you do, you wouldn’t be able to make money selling all of your “Save your Bones” products.

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  56. Beth Vandesteene November 2, 2013, 2:14 pm

    I am scheduled for my second shot November 11th, however I have decided not to get it. I have had aches and pains like I never have had before. I lost 10 lbs and I am a small person already weighing only 110 my normal weight. I figured its just the way it is for some time now. I can barely walk the past two months because of foot, back, and neck pain. I go to a chiropractor which worked great till my first shot. I am only 58! I have tried Actonol, Reclasp, which did nothing to improve my bones. I went to the podiatrist, who gave me inserts, which crippled me in just 6 hours. Turns out he says I guess that’s not you’re problem . SO he gives me a series of shots between my toes. Provided only some relief for a short time. Its back. OMG I even went to my Primary because I felt I was not breathing right. These guys knew I was on Prolia and never mentioned it could be related. Because I am a former smoker he says I have COPD! Guess what he prescribed! I believe I do not have COPD because it made no difference in my breathing symptoms.
    I think I have finally smarten up!!!! I know my body and it says enough. Thanks for listening. I will be checking out you’re website for sure.

  57. Marie C Tona November 2, 2013, 6:27 am

    I have had terrible! headaches! ever since I had this shot. At first I thought I was havering a Migraine took an Imatrex and figured it would pass. It did and I slept, when I work up it was back. I have had headaches, day in, day out for over a week 10/24/13 now from morning till night. Goes from from mild to severe, but never goes away. Take a sleeping pill to get to sleep.Have had gastric pain every day. I can only get nine Imetrex pills a mo. Insurance won’t pay for more. I have Fibromyalgia. Can’t tell if all the aches and pains that never go away are from my Fibro or the shot. I feel awful. Taking a pain pill will only cause severe abdomenl pain. See my pain specialist next week, and hope to get some relief. Right now she has been treating me for my sciatica hip pain, again insurance will only pay so much, her hands are tied. I can’t believe I will have to live with these constant! headache for six mos. Very diffecu;t to watch any T.V. if at all.Constipation is a problem. Had Botox for Migraines couple mos ago. Have had Botox the last couple yrs, with great success. I will never, ever, have a Prolia shot again. I am so tired. I’m hoping these nasty headaches will soon go away. Going to use my Restasis for Dry eyes now and go to bed, hoping for a better day tomorrow.

    • Vivian Goldschmidt, MA December 31, 2013, 12:57 pm

      Marie, it saddens me so much to hear what you are going through. 🙁 I really hope your pain specialist can help you find some relief, and if you are interested, you are welcome to check out OsteoCleanse (in Products) to get the Prolia out of your system faster. Hang in there!

    • Marie C Tona November 2, 2013, 6:37 am

      Has anybody had this problem, if so how did you handle it. Did it eventually go away. I’m at a lose what to do. My Primmery Doctor said this Med was not for me. Meanwhile what do I do, if anything. I am hyper sensitive to all Meds. It sounded so good when the nurse explained it to me. Not so. Did you get my comment?

  58. Lowana October 28, 2013, 8:40 am

    Hi Vivian, I went off Actonil for almost a year, then unfortunately fractured my sacrum and Dr. talked me into having an injection of Prolia one month ago. Could I start the cleansing diet now or do I have to wait until the 6 months is up?

    • Vivian Goldschmidt, MA October 28, 2013, 7:33 pm

      Lowana, you can start the OsteoCleanse program or the Save Our Bones Program any time! 🙂

      • Sunny December 31, 2013, 7:52 am

        I don’t trust people like Vivian. If her research is so great, then why isn’t she publishing a peer-reviewed study? Why doesn’t she have an MD? Why is she instead trying to make a profit by selling her precious info? Anyone who thinks Vivian has your best interests at heart is foolish; she’s trying to make a buck and is no better than any other huckster.

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  60. Donna September 19, 2013, 1:59 pm

    I read your book and have adhered to the dietary guidelines as closely as possible for a couple of weeks. I think I may turn into a vegetable! Only twice in that time has my urine testing showed alkaline. What else can I do? Also I am losing weight which I don’t want to lose! Help! Donna in Georgia

    • Customer Support January 7, 2014, 7:09 am

      Hi Donna! Please send us an e-mail at Customer Service by clicking on the smiley face icon at the bottom of the page, or sending a message to support@saveourbones.com. We look forward to hearing from you, and are glad to help answer your question.

    • Rebecca Minier December 31, 2013, 7:47 am

      Interesting that Vivian hasn’t bothered to respond to your question. I think she’s a quack. Anyone who advises me to ignore my doctors’ advice, yet has no MD of her own doesn’t deserve the time of day.

  61. Patty September 10, 2013, 5:35 pm

    I’ve had two Prolia injections and am due for my third.
    I am 63, fell 10 years ago, fractured three vertebrates and began taking
    Daily injections of Forteo.
    I was achy the first three months, which passed. During these two
    Years I began to have thumb pain in both hands. I went to a doctor
    Who gave me an injection of cortisone in each thumb and I was fine.
    However since taking Prolia I’ve found my hands and finger tips are
    Increasingly painful and when lifting weights or using my elliptical
    The pain is becoming very difficult to live with. I just received another
    Set of cortisone injections into my thumbs. On occasion I get shooting
    Pains in my elbows and lower arm.
    It could be a coincidence, age or Prolia.
    I am wondering g whether I should Fodor my third Prolia injection
    Or discontinue. It is a real concern.

    • Lisa May 2, 2015, 10:46 am

      Patty,
      I have been taking Prolia injections for 2 years. I also have bad pain in both thumbs and I believe it is due to the Prolia. I will NOT be taking the next injection! I also get numbness in my little fingers when I lie down for a while. I am hoping that this problem will get resolved soon.

    • Vivian Goldschmidt, MA September 11, 2013, 3:03 pm

      The decision is yours, Patty. If you do decide to stop the Prolia, I am sure you’re aware that there’s a drug-free alternative available! 🙂

      • Dael Segar March 11, 2014, 2:55 pm

        I had my first shot of prolia last November. After about four days I woke up stiff and in pain all over. This subsided into stiffness in my hands, feet and knees. I will not be going back for my second shot and am hoping the pain goes away as the drug leaves my system. Dael S.

  62. lorna hayes September 2, 2013, 12:38 pm

    I am a female age. 67 and have low blood calcium so bad I can hardly walk for the past three weeks and did not realize it was all due to Prolia and the muscular lower back pain that came with it.I trusted my rheumatologist because I complained about lower muscular leg pain and he says I am not buying the right shoes.He knew I have osteoporisis and I was on no medication due to other medicine not working like Boniva. I could not take Fosamax because of esophagheal reflux. Yet he recommended Prolia and now on my second injection it almost killed me with low blood calcium.I am not going to take anymore fancy medicine except calcium and vitamin D. Anybody thinks that is bad also?

  63. lorna hayes September 2, 2013, 11:08 am

    My second time taking this injection because I was afraid of osteoporosis and had three previous bone fractures in my life so far. I had parathyroid surgery in 2011 and informed my rheumatologist of this and could not take any other medicine like Boniva. He recommended this. The first year I took this injection it was not painful. Just noticed some arm pain and jaw pain. Now I have been confined to home for a month and missed church and went to the emergency room and they diagnosed me as having a sciatic nerve problem up and down my lower back and left leg.Put me on Prednizone and celebrex and still 10 days laterhave the same symtoms.Thank God I kept the prolia brochure and recently read it and now realize it was due to this injection. I have low calcium blood level and fatigue and can barely walk.Its labor day week-end and no way to help myself until my doctor opens office. I am considered intelligent and didn’t want anymore broken bones,but guess what? These side effects and pain is so great,its not worth it. I don’t know how to get rid of this serum in my body and I took my second shot in May of this year,I am totally disgusted.

  64. Sunny Nelson August 8, 2013, 10:16 pm

    Thankyou for your most informative article about “Prolia” I have an endocrinologist who keeps pushing me to take this drug! I already have a comprimised immune system resulting from severe R.A. and medications I need to take for that to function. I am age 70 now and I will not risk anymore damage from drugs.

    • Vivian Goldschmidt, MA August 9, 2013, 1:48 pm

      I am so glad to hear that you’re making your own health decisions, Sunny!

      • SuzyQ January 2, 2014, 10:01 am

        Really, Vivian? Don’t you mean you’re glad this woman might buy your cure as opposed to listening to an actual doctor?

        I’ll bet you are.

  65. Rita August 4, 2013, 3:40 pm

    I have been prescribed Denosumab to counteract bone loss from the breast cancer drug arimidex. I was previously osteopenic before the breast cancer. Having read the side effects from this drug I am now very concerned. My first treatment is scheduled for Friday.

    • Jean November 28, 2014, 6:19 pm

      Rita, I’d sure like to hear what happened next. Nine years post-surgery (lumpectomy) followed by radiation and 5 years of Femara, it’s unexpectedly been discovered that my CA has returned, now in my spine. I’m back on Femara, but my oncologist wants me to agree to every 4-week injections of Xgeva (Denosumab). I’m very reluctant to agree to it, but am having trouble finding a clear cut answer. My first injection is scheduled for Dec 30 because I’d refused it earlier. What did you do?

  66. sandra June 22, 2013, 1:39 pm

    prolia is a dangerous drug causeing more problems than what it is suposed to treat!iv had one injection of it and to say the least alot of side effects drs dont want to hear! i weigh the same now but look heavier isthat water in the tissues? more muscle pain.and i have fibro ,cfs and injuries so its not good for all of that either!
    now my blood work is showing inflmation and have to see another dr if its inflamation of the heart? well think your company is in big trouble.
    !
    im so sorry i took it and will not take it again, im useing a good calcium
    and vit d magnisum and will take my chanches rather than more health prolems from a drug they are useing us woman as gini pigs!!!!!!!!!
    and thats the real truth!
    sincerely
    sandra

  67. Eugenia Kayiannis May 28, 2013, 6:11 am

    Hi there!
    I’m an SLE patient since 11 years old (42 no). I take medicine all my life. Due to big doses of prezolon, when i was 18, we discover that I have osteoporosis (-2,6 hip) 6 yearsago. Since then I’m on actonel, no side effects, but because of my nephritis the doctors said that I will soon go on prolia. Do you think that I can try the non-osteoporosis’ drugs program? For 20 years now I’m on 5mg prezolon.
    Thank you!

    • Maggie August 31, 2013, 2:38 pm

      Dr. Charles E. Price has published a book titled “Can you Feel It In Your Bonces? and developed a supplement to treat osteoprosis. I have refused Prolia, even with
      the scare of a broken hip, and lack of medical treatment. I refused the injection required by my Physician, and have been using the supplement from the institute for Better Bone Health, Check this out.

    • sandra June 22, 2013, 1:40 pm

      id use the program rather than andy of these injections drs push on you

    • Vivian Goldschmidt, MA May 28, 2013, 8:07 am

      Eugenia, I want to encourage you to make your own decision regarding your bone health! You’re already on the right track because you’re part of the Save Our Bones community and are clearly doing your research. Good for you! The decision to go off of osteoporosis drugs is entirely up to you. If you do choose to take the drug-free route, remember that the Save Our Bones Program is risk-free! You can return it for a full refund within 1 year of purchase – no questions asked. I wish you excellent health, whatever you decide!

      • sandra June 22, 2013, 1:41 pm

        way to go!

  68. D Nick Bonardy May 24, 2013, 10:36 pm

    I want to thank you for responding to my Query on ” Prolia ” Why do these drugs get approval from the FDA ? They will kill you quicker that you can get well . No I don’t use drug/prescriptions I use natural/Holistic supplements instead . I saw this Prolia being advertised on TV and also noticed the side effects ! Do doctors who prescribe, this know about the side effects ?

    • meela March 17, 2016, 6:45 pm

      It’s useful to do more research than just reading sites like these. I’m reading these and also going to the National Institutes of Health and reading the research on this particular drug. It’s not easy reading, but just because someone had a terrible experience doesn’t mean you will too. It also doesn’t mean you won’t but what I’ve been reading here makes for more questions : are you taking the extra calcium and vit d that you must take? for example. Just sayin’

  69. Konnie May 21, 2013, 8:59 am

    I had my third Prolia injection one week ago and am having many of the adverse symptoms. Short of breath, rash/hives, muscle, joint and bone pain that doesn’t allow me to sleep. What can I do? This poison will continue being released in my body for six months!
    Any thoughts are appreciated.

    • Sharon Wilson June 23, 2013, 9:58 pm

      I am having the same adverse effects after having this injection 1 1/2 months ago. I have Rheumatoid and well as Osteo Arthritis and Osteoporosis. I have infusions of Remicade for my RA and it was helping a lot before the Prolia. Now I need to know how to get this stuff out of my body. I do not recommend this medicine. I can barely walk and have so much pain in my back, my legs and now my left arm is really hurting- therefore no sleep. My skin is flaky dry. It was all ready dry but now much worse. I had my Remicade two weeks early because of a flare up but have not had any relief and that was 5 days ago. I hate to think what will happen if something isn’t done soon to reverse this. Any help would be greatly appreciated. I am a 65 yr. old woman. Thank you and God Bless.

      • Vivian Goldschmidt, MA June 25, 2013, 8:18 am

        I am so sorry to hear that you’re experiencing those issues, Sharon! I hope you’ll take a look at Rapid Cleanse, the 7-Day Cleanse that’s designed to remove those toxic drugs from your system. You can read about it here:

        http://saveourbones.com/rapid-cleanse-sale/

        Remember, your body was designed for health and wellness!

  70. Judy May 20, 2013, 1:25 am

    Hi,
    I feel that Prolia is the only way that I will be able to save my bones. I have tried other meds. but I couldn’t take them, they made me sick.
    Would really like to try a natural way so that I wouldn’t have to take meds.
    I am scared to death of the side effects.
    Judy D.

    • Observer July 14, 2013, 4:36 am

      Judy you are not listening! If you read the e-mails in this forum and you still think that Prolia is the solution to your problems then no doubt dear you deserve what is coming to you.
      Open your eyes and refuse to become another experiment.

  71. Judy Summers May 16, 2013, 12:02 pm

    Hi, I had one shot of Prolia. No one warned me about these serious side effects. The shot was given to me in March of 2012. Meanwhile my jaw began to bother me so much that I have a hard time opening my mouth. I also was diagnosed with lose bottom teeth at my last dental check up. I do have more muscle aches than before and my 2 bouts with the flu this year lasted a few weeks instead of a few days! Also I still have pain in my left arm at the injection site! I can still tell where they gave me the shot when I press on the muscle. I did know about the jaw issues with Actenol as I had to quit taking it when I had a dental implant to replace a dead tooth! I am a stroke survivor so I do question why my doctor prescribed it to begin with! Please continue advising women about these drugs. Oh my mother had been on Fosemax for years before she fell and broke her femur. She is now wheel chair and walker dependent! Sincerely, Judy Summers

    • Observer July 14, 2013, 4:40 am

      Judy, are you really saying that your mother broke her leg after being on Fosamax for years? Shouldn’t her bones have become unbrakeable by now?

    • Vivian Goldschmidt, MA May 16, 2013, 1:12 pm

      I am truly sorry you and your mother have experienced those issues, Judy! 🙁 Thank you for sharing, and I hope with all my heart that you are able to nourish your body and build your health and bones.

  72. Dee May 4, 2013, 1:40 pm

    I took Alendronate (generic for Fosamax) for 4 years and my bones went from osteopenia to osteroporsis in that time. I then got off the drug and on to Prolia shots. Have had 2 the past year and my results improved from osteporsis back to osteropenia. I have had no side effects. I’ve read all comments made and the best one is: All drugs have side effects. Some people get them and some don’t. If you had cancer, you wouldn’t reject treatments knowing the side effects beforehand. And as one of my doctor’s told me..try it. If it works, great, if it doesn’t then stop. Yes, I’m concerned about the drug. But some people are afraid of planes and some aren’t. It’s mostly the negative remarks that get written up…

    • Lone November 25, 2014, 6:56 pm

      Hi Dee, my endocrinologist has also prescribed Prolia for me. I’m concerned. I’m 52, have coeliac disease and t score -2.7 spine and -2.5 hip. Not sure what to do after reading about all these side effects. Due for my first injection in a couple of weeks, in the mean time I have been put on Thyroxine 50mg due to slightly underactive thyroid. Glad to hear you have seen improvements.

    • Observer July 14, 2013, 4:48 am

      Aren’t medicines suppose to make us better?
      We are not supposed to sample everything the doctors hand us on the basis that it may work or it may not. This is not how the health of people should be handled. This is good for playing games of chance like Lotto or blackjack but definitely bad where it concerns our health!

    • sandra June 22, 2013, 1:42 pm

      no its not mostly negative reports iv taken it and the side effects are REAL!

  73. David Helms April 27, 2013, 10:41 am

    I am uncomfortable with the prospect of Prolia but I am being told that because I have hyperparathyroidism coupled with osteoporosis I must take the drug.

    I am also told that my bone density score is 5% less each time I take the test which is yearly.

    The problem with this assesment is I never know what my starting density was or a t score so without knowing what I am deducting from I don’t know my risk. I do know I have gone from osteopeni to osteoporis over the last couple of years and this last test showde incredible spine whiteness on the film attributed to arthritis. Finally in all of this I had one bone density reading of + 3.5 bone desity which no one talks about or seems to use in the bone loss calculations. Where Can I get more information on my situation.

    • Observer July 14, 2013, 4:51 am

      Why don’t you get a second opinion without mentioning what the first doctor told you? Try it as you may get pleasantly surprised!

    • Vivian Goldschmidt, MA May 16, 2013, 1:14 pm

      David, please remember that bone density is just one aspect of bone health! Mainstream medicine focuses so much on density because it needs numbers (i.e. fixed parameters) to prescribe drugs, so most doctors follow the same protocol.

      While density is an indicator of bone metabolism, the main focus of bone health is simply to prevent fractures, and as Vivian explains in the Program, less dense but healthy and renewed bones have better tensile strength than thicker, denser, older bones.

      Best wishes moving forward, whatever you decide! And please continue to read and contribute. 🙂

  74. Inez Morley April 25, 2013, 12:14 pm

    In 1987 was the first collapse of a vertebrae, #12 then diagnosed with osteoporosis. I’ve taken various drugs for this ailment but in 2012 in March #s 1 and 5 collapsed. I’ve never been without back pain since 1987 but in June 2012 had a vertebroplasty injection and since that date have been pain free. Had my first Prolia injection October 2012 in my stomach, no reactions and in April 2013 had my second Prolia injection felt a bit under the weather but don’t know if from Prolia. After reading all the above comments am due in October to have another injection and don’t know what to do. I also take D3 and calcium but would like to dispense with all pills but am 85 so perhaps I should just continue and hope for the best.

    • Observer July 14, 2013, 4:54 am

      Whatever you decide to do do not stop taking D3 and in large doses.
      I wish you to be a hundred and pain free.

    • Konnie June 10, 2013, 12:30 pm

      I had reactions to my first and second Prolia shots, including chronic pancreatitis but, within two hours of my third, I went into full anaphlaxis (sp) shock and had depleated calcium levels. It has been a progressive reaction. I’m on seven different medications, including steroids and a home nebulizer, to manage the side effects. The shot will be active until November 2013. I am now having severe abdominal pain that I’m thinking may be related as well.
      I will never accept another dose and cannot wait until this one is out of my system.

      • Lone November 25, 2014, 6:59 pm

        Konnie, your reactions make me really worry about whether I should go on Prolia or not. I sincerely hope you’re better. Take care.

      • Observer July 14, 2013, 4:56 am

        Try Vivian’s method to clear the effects of the injection. You do not have to suffer until it wears out.

      • sandra June 22, 2013, 1:45 pm

        WOW YOU SHOULD HAD SUED THEM!
        HOPE YOU ARE DOING WELL NOW,
        AND NO WAY WOULD I OR AM I GOING TO HAVE
        ANOTHER INJECION WE ARE GINI PIGS AND YES IM VERY ANGRY ABOUT THE DRUG AS IM SURE MOST OF YOU CAN TELL!

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  76. sandra April 12, 2013, 6:45 pm

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  77. Charlotte April 10, 2013, 5:56 pm

    What are we suppose to do if all the drugs your doctor reccomends have all these terrible side effects, and there don’t seem to be any other sort of treatment. I guess we have to just accept the disease and learn to live with it. Calcium does not help either. I have been taking AlgaeCal for 6-7 months and my new dexa is worst than the last.

    • Jan April 17, 2013, 7:42 pm

      Have you been tested for Celiac? Once I went on a gluten free diet, my bone density increased by 10% in just the first year. It’s a simple blood test. It’s best to get to the root cause of your osteo before taking any medication.

      • Lone November 25, 2014, 7:02 pm

        Hi Jan, I’m also coeliac and interested in knowing if you have osteoporosis and if so, which medications are you taking? Even after diagnosis about 5 yrs ago and changing my diet my bone density has worsened. Thank you.

        • Waqas Khan March 24, 2016, 5:58 am

          hi jan and Lone!
          im also suffering from osteoporosis, so what should i do now??

  78. mabia February 14, 2013, 3:53 pm

    About chronic diseases, could you imagine if people got off the bad vegetable fats, and the
    bad carbs, plus processed foods, you may have a population that may be almost disease free.
    Look at the start of the twentieth century, There was pockets of communities that were still
    isolated from the modern world. These people grew their own crops and slaughtered their own
    meat. They were disease free, till roads and shipping were linked to them. Shops were soon
    set up. They sold things like white flour, sugar, jams and condensed milk. The rest is
    history, we have generations brought up believing in the “lipid Hypothesis”, saturated fat
    causes cholesterol. Cholesterol causes heaart disease. That is crap. Saturated fat is
    essential for metabolism, growth and fighting disease

  79. Jude Telford January 24, 2013, 6:38 pm

    I take Prolia ( newly prescribed for me ~> osteoporosis ) . I am 67. … I now have concerns . I have dramatic prickly pains in my right upper arm , my jaw hurts at night then recovers in the day , knees hurt , left shoulder very sore when I try to sleep …. and generally I feel grumpy . I get really tired and fall asleep in the afternoon (maybe because I sleep so badly at night due to neck and shoulder pain … ) … my eyes look creepy . I used to have nice big brown eyes now they are slits … I can`t lift heavy stuff … I have a feeling there is a better way to deal with this stupid ailment (thin bones ) . I have an identical twin sister who does not even have my ailment ~~ this is unfair ! and I shall be reporting to the folks who devised twindom …. hmmmmmf ! I would like to punch someone but I do not wish to hurt my fragile fist .. (weak joke , half true ) …

    • Vivian Goldschmidt, MA January 26, 2013, 1:47 pm

      Jude, you are right – there is a better way to deal with osteoporosis, and you’ve found it! 🙂 I hope you will check out the Save Our Bones Program. I do hope you recover your health and bone strength fully.

      • Dee Gebert August 11, 2013, 4:38 pm

        Vivian,

        I have recently been diagnosed with Osteoporosis, and was given a script for Alendronate. I took 3 doses, during which time I began experiencing gastrointestinal problems, and general aches and pains. I stopped it and began researching my options. What I found was alarming. Like others who have posted, I am not interested in benefiting big-pharm at my expense. They seem to be concerned about profit, not the health of people. I am interested in learning more about the Save Our Bones program, however I’m skeptical. I do not intend to be disrespectful in any way, nor do I think that you shouldn’t be compensated for the research and hard work you put into this program, but like big-pharm you appear to be making a profit from this. I understand that we all have to make a living, but how do I know that this isn’t just a gimmick? I am serious about finding an acceptable treatment, and I don’t want to waste time and money if this is not going to benefit me. Again, no disrespect intended. I am skeptical by nature. I thought this program sounded interesting until I saw that I have to pay for the book to benefit from this treatment. Any comments, opinions, suggestions would be helpful. Thanks.

  80. Danielle January 23, 2013, 12:11 pm

    On the year(2011) I received the injection of Reclast because the doctor said I had osteoporosis. I did well, no side affects. This past year (2012), my doctor said I had osteopenia, and asked me to take Prolia that was even better than Reclast. So I agreed. In late August I received the shot in the arm. A few weeks after, I noticed my muscle where I received the shot was so sore it was hard to put the car in park lifting that arm. I thought it would eventually go away, maybe it was something I did that caused the soreness, maybe a wrong move. But the arm got gradually worse and had to go to the ER a saturday moring in early Nov. The doctor there gave me a shot and pills for inflammation and some pain pills. It did get better for a couple of weeks, but then the pain came back worse. I had never had trouble with this arm before, but it got where I could not sleep the pain was forever keeping me awake even with the pain pills. Then one day I had a terrible jaw pain right on the bone, which I never had jaw problems before, and all my toes on both feet and both of my hands went numb, it scared me. I know now it’s from that Prolia shot. All the numbness on both of my feet and left hand have passed and the jaw pain, but I’m still plagued with numbness on my right hand and my arm. I called Prolia and told them about my side affects and they told me to talk with my doctor. I have an appointment on Monday and hope he can help me with the pain and numbness, and hope that will wear off. I’ll be due for another shot in March, but I will not have any more shots for my bones. I eat a yogurt everyday and take Osteobyflex for the joints that helps me.

  81. mary rizzardi January 21, 2013, 3:14 pm

    I do have the save our bones program. But I need help as how to proceed daily to help me. It is difficult to process ALL THIS INFORMATION WITHOUT
    assistance. Can Vivian help me ?

  82. sodie January 21, 2013, 11:05 am

    I have had Osteopenia for nine years. I was on Fosamax for the first five years with no improvement or worsening but went off it when hearing after five years it can have a reverse affect and cause the bones to be more vulnerable to fractures. I have had two fractures, ankle and wrist. A bone density test in April, 2012, indicated decreased bone density. In July, 2012, I was placed on Letrozole which is a hormone receptor, due to being diagnosed with breast cancer. My oncologist suggested I use Prolia to counteract the side affects of Letrozole, which can cause bone thinning. A few weeks after the first injection my jaw began to hurt and it was difficult to chew food, and drink or eat hot or cold foods. I have always had excellent teeth, the problem wasn’t with them. For the most part that discomfort has gone away, but I don’t want to test it anymore and possibly make it worse. I plan not to have any more prolia injections. I am concentrating on a natural approach to increasing bone density.

  83. kcr January 18, 2013, 1:22 pm

    My doctor did a bone density test on me and said if it didn’t come back good, she was going to suggest I go on Prolia. Well my density came back fine so now I have the choice to stay on the generic Fosomax or take the injections twice a year. thank you for all your comments. I’m in a position to say “if it ain’t broke, don’t fix it”. I’ll just stay with the pills. I’m just getting over a broken foot but it did heal nicely. I’ve read too many negative comments about Prolia. Thanks for all the comments.

    • Vivian Goldschmidt, MA January 26, 2013, 1:40 pm

      KCR, you may not have realized it, but regardless of the results of the density test, you always had (and still have) the choice to stay on Fosamax, get the Prolia injections, or go off of drugs entirely. 🙂 It’s your health and your decision!

  84. Marilyn Havens January 6, 2013, 1:09 pm

    Just wanted to bring to someboy’s attention, Some of the side effects I have had with the prolia!!!! On going rash for 10 wks now being treated with prednisone. 1st shot 4 wks later had phnuemonia, 2nd shot the rash horrible!!! I’m refusing to have anymore, & they say well its a drug reaction but we are not sure if its the prolia. Well i have decided I’m not going to be a statistic you file away somewhere. I do take vit d & calcium every day along with a good multi vitamin & omga 3’s hopefully that will help my imnume system. If anyone else has any info on this I would greatly appreciate it.

    • Vivian Goldschmidt, MA January 26, 2013, 1:37 pm

      Marilyn – and everyone else who has written in about side effects from Prolia – I am so very sorry you’ve had to undergo so much discomfort! But I am so glad you’ve come to the right place. 🙂 Please feel free to gather as much information as you like on this website. I wish you health and strong bones!

  85. angela January 5, 2013, 3:24 pm

    I am 58 had my 1st shot of Prolia in March 2012. A couple of days later I had back pain for a few days. Nothing else, dr. said it wasn’t from the prolia. 2nd shot October I’ve been noticing for about the past month I have bone, leg and hip pain. It’s not tragic just uncomfortable. I’m unsure if its a side effect but after reading some of these posts I’m thinking it is possible. Does anyone know if side effects can occur a couple of months later?

  86. loistassello December 11, 2012, 8:39 pm

    thank you for this information. I was on the verge of using Prolia until now. I now have serious second thoughts.

  87. Legs December 6, 2012, 9:33 pm

    Hi Viv: so can a person that refuses to take prolia get their bones in
    greater shape without drugs. (I had taken reclast and other drugs without any improvementfor the past 5 years. I had a doc try to scare me into talking this to prevent broken bones. “What ever you do don’t fall” was his most frequent comment. I did hard yard labor all summer and feel like I am in good shape and stand on my feet 8-10 hours a day on my job and feel strong and I don’t have any wobbles…:-)

  88. Audrey Aspeling November 30, 2012, 10:03 pm

    I too have osteoporosis now after early menopause and some years of osteopenia. I tried Fosamax with severe reflux problems so stopped that and also refused HRT because of cardiac warnings. I have now been offered Prolia but after reading most of the above comments have decided not to have it. Meanwhile from my research after becoming Electrosensitive about 3 years ago apparently low dose electromagnetic radiation is capable of draining your bones of calcium and adversely affecting your immune system and the body’s well-being in general so as I have relatively high output from street power lines outside my bedroom window for the past 30 years I am building a new bedroom at the back where I hope my bone problems will improve. If I can find this site again after I move to the new room I’ll let you know how I go but I am sure we should all be looking at our exposure to both electromagnetic radiation and radio waves and trying to reduce that before we start taking tablets or injections to keep our bodies healthy.

  89. carol November 29, 2012, 6:41 am

    This stuff is lethal..i know i have had it..i did not recommend it all….i regret that i ever had the 2 injections that i have had..the side effects ate horrendous…pain swollen ankles that big i have to wear eee fitting shoes!!!!! never in my life have I had big ankles before like this…..I was in a wheelchair as it gave me inflammation in my thigh muscle, so bad I could hardly move…so please do not say that i recommend it…..
    I DON’T

  90. carol November 3, 2012, 11:54 am

    I have had the injection of Prolia twice now…the doctors assured me that I needed it badly as I have osteoporosis..and I was only 60yrs old! so sorry i did…..I was in a wheelchair for months as I had an inflammation in the top of my leg…in so much pain…nor i have had swollen feet for 9 months and only just found a pair of shoes to fit me in a “EEE’ fitting…I had really thin ankles before!!!! and Its made my IBS so much worst…I have to take 6 immodium tablets to stop going!!!!!!!!

  91. Eileen October 19, 2012, 8:30 am

    I am currently on Evista for two years for osteoporosis since I was afraid to take the other drugs and my bone density showed I was getting a little worse. The doctor now wants me to take this injection of Prolia – I have numerous things wrong with me and yes, I am a smoker which is a big no-no and I also have anxiety and depression issues. I stopped taking my calcium due to reading how too much can build up in the arteries and I have a very physical job so I was not exercising. My theory is that I need to cut back the smoking since I know I can’t stop “cold turkey”, exercise and start the calcium up again – I have faithfully been taking Vitamin D3 and my levels went up. I now find myself stressing over this Prolia – I do not want to take it due to side affects that can affect my jaw and I have TMJ already along with sjogren’s syndrome, IBS and arthritis in different parts of the body. I don’t have the exact T scores – waiting to hear back from the doctor if my insurance will cover the shot – but I would love to hear from other people – am I my own worse enemy with my smoking, not exercising and stopping the calcium – Evista has not given me any side affects and my gyno said it was the best one to take since the others have serious side affects.

    • Observer July 14, 2013, 5:12 am

      Eileen, what other people do you want to hear from? Aren’t the people in this forum enough? The least of your worries are whether your insurance will cover the cost.

  92. Pam October 17, 2012, 1:29 pm

    I have a multitude of health problems including panhypopit from a brain tumor. Was just diagonosed with Diabetes also. After trying all of the above menioned drugs plus calcitonin, i suffered a hip fracture while on Boniva infusions last year. My endocrinologist ordered Prolia. I get my 3rd shot today and have had no side effects with the other two. All of my previous bone density tests kept going down so I was willing to try something else. I will repost after I have the next bone density in June. So far thought I am very happy not to have any side effects and not have the gastro problems I had with the oral meds.

    • Observer July 14, 2013, 5:15 am

      You should be very happy as you are one of the 2-3% of users that have no problems. However, I would wait a little longer before the final verdict.
      I hope you remain trouble free.

  93. Kathy October 14, 2012, 12:27 am

    During the last six years I have broken six bones. I was on Actonel for five years to treat osteoporosis in both hip and spine. The osteoporosis got worse during the time I was on Actonel…..some of my broken bones occurred during this time. Then I was switched to Forteo. You can only stay on Forteo for two years but for me it did wonders because after two years I was in osteopenia in both the hip and spine. Three months ago I had my first shot of Prolia and have had no side affects. I’ve had type 1 diabetes for 42 years, have thyroid and heart issues. The thyroid and heart conditions tie into the diabetes as does the osteoporosis. I do what I have to do to stay healthy…so far so good.

  94. Margaret October 5, 2012, 1:38 pm

    I had adverse side effects including bone and joint pain, headaches, digestive problems, itching, weakness, and other problems. I went to another medical professional for help and was given steroids to help with itching. Nothing else could be done. During a follow-up visit, I was told that the Prolia drug rep came and was promoting Prolia. When told about two patients will serious side effects, the drug rep said she was unaware there were any side/adverse effects. When asked if she was aware the shot was a long lasting shot and the side/adverse effects could last 6 months or longer, she was not aware of that.

    Who paid for the studies of Prolia? Did the studies rate severity of back pain and other reactions in both groups? Who educates the doctors on Prolia safety and side/adverse effects?

    My comments….if you have no side effects, you are very lucky. People going on radiation and chemo are told and treated for side effects. The specialist and hospital involved in my injection knew of 4 conditions I have that were red flags. Both denied anyone ever had a reaction to the injection. The pain and suffering and loss of health is not worth it for me. Any drug that causes this much for this long a period of time should be reconsidered by the FDA. By the way, the other doctor to whom I went told me to report my experience to the FDA.

    • Observer July 14, 2013, 5:26 am

      The answer to your question as to who educates the doctors on the drugs they subscribe is the drug rep ofcoarse who are not medically trained and have a vested interest in the sale of the products. Besides, all the information required is printed on the paper enclosed in the box and composed by a most impartial and independent source, the manufacturer of the drug!

  95. NancyCleary October 2, 2012, 6:46 pm

    I have been on prolia for almost 3 and1/2 months and it has not be pleasing. I have suffered many of the side effects
    I am due for another shot the end of December, but at this juncture I do not think so. I would never believe what could
    Happen while on this drug unless you experienced same. Not a big fan at this time.

    Nancy Cleary

  96. Mary Ellen Smith September 26, 2012, 2:34 pm

    Am curious to know how many doctors (esp. female) are on prolia or have prescribed it for a family member.

    • Observer October 16, 2012, 6:09 pm

      A very good question.

  97. Bonnie September 20, 2012, 10:18 am

    I have Sjogren’s Syndrome as well as GERD. I have already used all the other med for my Osteoporsis My bone scan this year was not good at all. Dr. recommends that I have the Prolia shot. I’m very leary because of having the Sjogren’s Syndrome which already give me many problems that they list as a serious side effect to having the Prolia shot. So..what else can I do to keep from breaking by back, bones?

    • Observer October 16, 2012, 6:08 pm

      Certainly not to take prolia. But do not take my word, just read all the entries here and decide for yourself.

  98. Faye September 10, 2012, 10:44 am

    Hi,
    My Dr. put me on Fosamax about 5 weeks ago. After taking the first “once a week” pill one Sat morning, I woke at 3 am in the worse pain ever. It felt like someone had beat me with a baseball bat in my ribs. Just breathing was difficult. I had to stay in bed for 3 days as the pain progressed to my neck and other areas. The neck pain is still here and hopefully it will go away. I had to actully support my head just to move or lay down. Today he suggested Prolia. I told him after Fosamax I was unbsure if I wanted any meds. He said the scan showed I have Osteopenia? and since two years ago it is a little worse.
    I am on HRT for 4 years now, and would hope that would help I have had a gatric bypass years ago and know things are not absorbed well.
    I am glad I have read people’s experience about Prolia before taking it. I evidently had what they called a “rare” side effect. After seeing many who had the same, I am not sure it is so rare!

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  100. Mary Lynn Porcaro August 13, 2012, 4:24 pm

    Prolia was recommended by my rheumatologist. Upon calling my cardioloist with a request for his input, his assistant called me to advise that he had set aside a special time to see me to discuss this med (I have two leaky heart valves.) I am seeing him on Thursday.

    I found your site by Googling “Prolia and heart issues.” Thank you for the information presented on your site!

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