US consumer advocacy groups are up in arms. New and devastating Reclast side effects led these groups to demand that new warnings be placed on the drug's label.
As I wrote in my Reclast review, the most commonly reported Reclast side effects are fever, muscle, joint and bone pain, flu-like symptoms, and fever. And I also explain how it can cause osteonecrosis of the jaw and its horrific consequences.
But these pale in comparison to the new concern.
Read the full story below:
03/10/2011 | TRUMAN LEWIS | CONSUMERAFFAIRS.com
Does Canada care more about its citizens' health than the U.S.? It sometimes looks that way.
The consumer group Public Citizen wants the U.S. Food and Drug Administration to do what Canada apparently did five months ago – tell Novartis to warn physicians and consumers about a dangerous link between a widely-used osteoporosis drug and serious renal toxicity, which can result in death.
In a letter to the FDA, Public Citizen's Health Research Group said the Canadian government reacted after learning of 265 cases of serious kidney impairment in patients using Aclasta (zoledronic acid). The drug is called Reclast in the U.S. and is identical to the Canadian version.
Five months later, the FDA has done nothing, said Public Citizen's Sidney Wolfe, M.D., in a letter to FDA Commissioner Margaret Hamburg, M.D.
“The Food and Drug Administration (FDA) has failed to take … action requiring Novartis to alert physicians and patients in the United States about the growing evidence linking Reclast to this serious, life-threatening adverse event,” Wolfe said. “We therefore urge the FDA to immediately require that Novartis issue a similar “Dear Doctor Letter” to all physicians in the U.S.”
Reclast is given once a year for treatment of osteoporosis in men and postmeopausal women and once every two years for prevention of osteoporosis in postmenopausal women.
Wolfe noted that more than one million infusions of Aclasta had been administered worldwide as of October 2010. The 265 cases of renal impairment reported in Canada corresponds to a rate of about 20 cases per 100,000 patient-years of exposure. The FDA estimates that no more than 10 percent of adverse drug reactions are reported.
“Clearly, the current warnings and precautions in the FDA-approved label for Reclast about the risk of renal impairment are not sufficient for making physicians adequately aware of this serious, life-threatening renal toxicity associated with Reclast, the very reason that the Canadian government convinced the company to initiate the additional warnings,” Wolfe said..
Source: Consumer Affairs
Against my Advice, my husband had a Reclast infusion 3 posted 4 mths back. He was already in A-fib. Now A-fib is worse. Loose tooth came, with accurate jaw pain 2 weeks ago. He had tooth extraction, Jaw pain is worse. He’s also APHA-1, COPD part of Alpha1, it eats up body fat. Now he’s having trouble esting. I just got him up to 180, he’s 6’6″ 1/2. Doc EP, wants to put him on a med, while admitted to hospital for Afib.
He has a dental appt for his jaw this week.
I feel this Jaw, Pain, needs to be addressed by someone better, than a dentist.
Like we can a ford any of this. Any suggestions are more than Welcomed. I’m at my wits end, adult son is a Stroke survivor, with major heart problems. Enough is Enough.
Thank you for this Board
I had intravenous Aclasta 5 consecutive years. 3 years ago I had a spontaneous fracture of the roots of two molars, when consulting 2 dentist surgeons for the extraction, they told me that because of the Aclasta in my body, which will stay there until I die, the extraction will produce “necrosis maxillary”, which should be avoided. A university professor of dentistry at University hospital have done special treatment and the molars are there.
Hi Martha,
I’m having the same problem that you’ve described. Would you please refer me to your University dentist who performed special treatment? You may call or text me at 754 234 6258.
Thank you so much,
Laurie Vaughn
I wish I had found this thread before agreeing to the Recalst infusion. It was the worst health decision I have ever made. My doctor told me the side effects were negligible compared to the risk of fracture, even though my bone density score was borderline for osteoporosis – not even severe. But when I asked her what would happen if I didn’t do it, she said, “Heaven forbid you should fall” which was enough to scare me into it.
Please note that I am a very healthy, strong, and active 64 year old woman with no pre-existing conditions.
When I first came home, I felt fine so I thought it went well. By that night I started having severe side effects which lasted over a week and am still suffering 2 weeks later. The”mild flu-like symptoms” I read about were anything but mild. I have never had a flu like this in my life. Symptoms included: Dark, almost brown urine and pain in my kidneys, migraines, nausea, severe abdominal cramps, severe joint and muscle pain, shortness of breath and chest pain, extreme fatigue, chills, night sweats, tingling skin, loss of appetite,
I didn’t get out of bed for a week. Still struggling. Today, a urine sample showed “something going on with my kidneys” but I am waiting for more detailed lab results. All of the tests to find out what in the world happen are going to cost me a lot of money. I just hope I can get past this and back to walking my dogs and partner – instead of dragging myself around. I am missing out on everything I love.
I agree with the other sufferers, not worth it at all! My body cried out, “Poison!” and even though they say that the next time the symptoms will not be as severe, I am not willing to take that chance. To my body: “I am listening, and I say NO!”
Hi Connie, so sorry to hear about your experience. How are your kidneys now? I have just had the reclast infusion and I am worried that it has affected my kidneys.
Hi Connie K,
How are you now?? I do hope you are better! I felt so sorry for you!
I am 68 and the doc recommended I have the aclasta injection as I was diagnosed with osteoporosis throughout most of my body.
I fractured two lumbar vertebrae in lifting a heavy object and carrying it a fair way. So, he wasn’t being careless, he asked if I’d considered fosamax first..I had in fact, years ago just started fosamax when a friend warned me against it.
Now, I am being warned on this site to not have that rotten aclasta too! I will take note of this site and give it to my doctor to read, in the hope he does not prescribe the aclasta to anyone else.
I feel so sorry for the dear people on this site suffering because of this. I check EVERY thing a doctor prescribes (all contraindications, adverse effects,) and nine out of ten, I refuse their advice on meds.
For the first time – in my life- I did not check out this drug before getting the infusion. I took it on my doctors prescription. I am paying for that for the rest of my life. The damage from this drug is permanent. Canada had black box warnings on it. My nephrologist has put this in writing as it pertains to me. I had no issues at all before taking this. I will be in danger of total kidney failure for the rest of my life. This drug should be banned other than if you may be dying anyway. Don’t take it- ever.
I am 3 yrs in with Iv reclast .I am one of only 250 documented people in the world with a rare pancreatic cancer. I have no choice but to get reclast.lucky to be alive. Just had my third treatment. Die, die, die! It makes you feel like you should be dead already! Yet, after a few months, I’m no longer breaking bones when I wash dishes, or walking my dog. If you don’t have a life threatening condition, I do not recommend. However, if you should be dead already and are lucky to be alive, you may have no choice. Why anyone would choose a deadly treatment and then complain, I’ll never understand. It’s no joke,and it’s the furthest thing from a quick fix. Do your research. …it’s called Google.
My doctor wants to start my infusion soon because of my bone density test showed my bones are bad,after reading the results some of you people have,i doubt ill have any infusion
I had it a month ago. Am fine except
Fatigue. Drink loads of water day before and day of infusion and day after. Also ask for it over 45 min rather than 15
I’m glad l read this before my appt next week to do this. I’m going to cancel it. I’m recovering from 3 spinal fractures, and I have RA & Pulmonary fibrosis (IPF) in 90% of my lungs. There’s also stone in my. Left kidney. My vision is lowered because of the scarring.
I used to be fine until a year of (20mg) of Prednisone rotted my bones, but l needed it to breathe (along with my portable oxygen).
Anyway, the side effects sounds so awful that l guess I’ll have to break more bones!!!
Dear Peggy Fong,
I feel your pain about the prednisone. I also was put on prednisone by a very bad neurologist. I was diagnosed with a rare neurological disease called CIDP. I went undiagnosed for 15yrs. This neurologist who did finally diagnosed me unfortunately did not explain all of my treatment options to me. She could have treated me with an IVIG treatment, made with human plasma-with virtually no side effects. Instead she asked me if I was ready to “bombard” my body with prednisone. She promised it would reverse my condition and I wouldn’t be on it long enough to harm me. I was totally ignorant, just desperate because the CIDP (which causes extreme nerve damage and weakness, numbness in the limbs,feet and hands, and is incurable and progressive although treatable) She started me on 60mgs and said i would be on for 6wks then taper. HAH! She missed several app’ts. and never left instructions to decrease my dose. Long story, short– I ended up being on for 1year. I had all of the most RARE side effects a person can have, like weight loss, vomiting, extreme weakness and flopping over at the waist (cannot keep body erect in a standing position,etc.) Apparently this doctor had never encountered these rarest of symptoms and sent me to many specialists trying to find out what was wrong with me. Most of the time I just lay in my bed half alive. Anyway towards the end of the year she took me off the prednisone too rapidly and caused me to go into adrenal shutdown and was so near death. But this is not about the horrible drug prednisone. This is about Reclast. My bones had been so destroyed by the prednisone that I broke the front of my tibia, fibula,and pulverized my ankle joint so severely that I required an Ankle Fusion Surgery; and that all was caused by just doing an ankle stretch. I had then been prescribed Fosemax and then switched to Boniva (both oral) and after close to 3 yrs, there was absolutely no improvement. I then had to wait 6mos. for an appointment with an endocrinologist who was, at first ,not at all convinced it was the prednisone that damaged my bones,maybe because I had just turned 60yrs. old??? Or because doctors never want to admit the another doctor could be so irresponsible. Anyway I said to her that I hope she didn’t mind being wrong. I don’t think she liked that remark, however, after all the tests were done and analyzed, she had to admit that the severe osteoporosis WAS indeed due to the prednisone. So now I can tell you the reason I am writing a reply to you. The endocrinologist I was just telling you about recommended the Reclast infusion. I must digress and inform you that after just a few months on the prednisone I had become so weak I was barely able to walk anymore. This was also partially due to the advanced condition of the CIDP having gone so long without diagnosis and proper treatment suitable for me. Soon after, the prednisone made me so ill that I became bed bound. It has been 5 years and i am still bed bound. I am desperate to get out of this bed and out of this room and out of this house. I live in a walkup apartment building and cannot go out without the EMT’s carrying me down and up the steps and only for medical appointments. I am trying to relearn how to walk. It’s so difficult and incredibly painful as I have bone on bone osteoarthritis in my knees, left shoulder, other joints, and both my hips are prosthetic (before prednisone). So as you see I am a mess! The endocrinologist who recommended the Reclast did explain there might be some side effects , similar to the flu. I was o.k. with that because of all the hell I been through in recent years. So, January 3rd 2018, I had my infusion of Reclast. It took only a half an hour. I must tell you that I did not experience any discomfort or illness or side effects. Granted, it was almost a year ago so I don’t recall exactly, however I DO know that if I had any serious side effects or sickness due to the Reclast, I would have remembered. As a matter of fact I am going for my second Reclast infusion this upcoming January. I hope all goes well ,and the same day I will also have another bone density scan and see if there is any improvement since last year’s infusion, my first one. I am lucky that I have no bad experiences with Reclast. I am blessed by this because I need to get well and resume my life. I will never be the same after the prednisone and it’s so sad because if I had been started on the IVIG infusions right away instead of the prednisone, none of this tragedy would have befallen me. I am happy to say that I been on the IVIG for a little over 3 yrs now and I am actually am improving from the CIDP neuropathy. Now I just have to pray to the Universe for the healing of my bones. So Peggy, not all people have horrific experiences with Reclast. Maybe you should think twice about refusing it. It’s an option to consider. Whatever you decide,I wish you much Luck, Light, Love and Laughter!
Don’t get the infusion!!! Received my infusion 3 weeks ago and it has been nothing short of a nightmare. My varicose vein burst in my leg, I have had sudden hives throughout my body.
, aches and pains worse than before the infusion. I’m 55 yrs old and I have seen the doctor more in a few weeks than a whole year.
Alex coco, that’s crap. People take this wretched poison bc they trust their drs to tell them what is suitable for their specific problems. I’m no stranger to cancer, RA, and many other serious health problems, but when my dr said I had the bones of a 98 yo woman at 48, and needed Reclast, I took it. Now I cannot function. I have every symptom on the list. No one believes that I’m in this much pain. The ambulance driver and ER staff treated me like dirt. My dr said he’d never heard of such a reaction as mine, but when I was able to finally sit up, I searched the internet and have found hundreds and hundreds of bad reactions and even deaths nc of this medication. The fault does NOT LIE W THE PATIENT BUT W THE PRESCRIBING DRS AND THE COMPANY THAT DISTRIBUTES THIS POISON. I truly believe I will be dead inside of a year, and for what? To avoid the possibility of a broken bone? You are out of line putting that on the patient.
First of all I want to say how sorry I am for all of you and me too
I unfortunately wasn’t in good health (I’ve had 3 strokes,2 caused by Docter’s but this tops it I thought I couldn’t be in more pain than I was already from not being able to walk, boy was I wrong!, my teeth hurt so bad it’s not even worth eating although cuz of the nauseating pain I’m in I don’t want to eat What happened that I trusted my Docter?, they all must get a cut to push it!! Well I think we should start a class action against this I had “Reclast” a few months ago and I feel like a Zombie, how can they get away with this????, I’m glad I ran across this site I thought I was going crazy, I don’t know if I even have the stength anymore, Mary
Shannonlyn: I could not have said it better then you !
I just finished another round of chemo and still recovering.
However, this Reclast is the worse ever exprienced, and I have exprienced lots…….
Hi!
I have Addison’s Disease, Polyglandular Autoimmune Disease, Hashimoto’s, and Osteoporosis. I’ve done several pill form treatments and have a lot of bad drug reactions. I’m scared to death to do the Reclast Infusion!!! There is no antidote to counter react the symptoms. I’ve talked to others with Addison’s who have had debilitating reactions to this medication. No thank you!!!
Thank you for all the feedback on Reclast. My doctor suggested that I take this drug. However, I had horrible side effects when I took Fosamax. Why should I risk a stronger drug. She also lied to me about my test results in order to convince me to take the drug. How much kick back was she getting?
I have MS and severe osteoporosis. I have improved my bones and my MS symptoms by a gluten free diet. NO DRUGS…NO SIDE EFFECTS FOR ME!!
I had reclast in Oct 2016and one week later ended up in the icu with angioedema. After 2 days of treatment I was released. I now have bone pain thruout my body but especially having issues with my right foot/heel and right elbow. These 2 places are new pain and not getting any better. My rheumatologist suggests I see an orthopedic and when I called, they all specialize in one area so I actually have to go to one for my foot and another for my elbow!
I wanted to thank you all for the information. I have always been a healthy person and then began have problems with my teeth developing cracks, had to have 2 pulled while the dentist is trying to save the others by placing caps on them. Then I began having pain in my right hip, running down my leg, then felt a muscle tear in my right shoulder with pain increasing each month, then having the pain run down my arms, then developing muscle pain in my right leg, behind by knee, know have pain in my back running up my neck. My physician feels it because of my age, late 50’s. That is unacceptable, I’ve always been healthy and active. Now i am miserable and could not figure out why. I’ve had my second reclast therapy around 10 months ago. That has to be why I am so uncomfortable and in pain. I haven’t had a good nights sleep in months because of all the discomfort, including rapids heart rate for no good reason. I am trying to get by with taking mega doses of ibuprofen 3x times a day but that only dulls the pain. I now know I am not losing my mind and will not be going for anymore treatments. I cannot thank you all enough for sharing. I’ve never done this before but needed to provide you reinforcement. It’s a shame big money wins over human life.
Susan, I am serious when I say I am glad you realize you were/are not crazy. For years I complained of severe jaw pain. After almost four years, I was essentially written off as a crazy lady. I wasn’t. I now have bilateral artificial jaw joints. It wasn’t due to Reckast or similar. I tell you this 1) so you keep fighting/stand up for yourself! and 2) no way in hell will I ever go near these drugs! NO way!
I had flu like symptoms for 2 days. Had elbow pain, burning, tingling through forearm and into hand for 2 days. Woke me early 2 days in a row. Extreme fatigue too. I’m hoping side effects taper off soon.
I am from Denmark . I had Reclasta the 29 of August 2016. Two days after I had pain and burning feelings in both of my elbows and a swollen bump in the left elbow joint. Further then my fingers on both of my hands were swollen, painful.
After two weeks I called the hospital and spoke to a nurse and she told me it’s not normal to have the symptoms more than 4 days. She told me to contact my doktor , she thought I had arthritis ( I have never had that before). I went to my doctor and she send me to a rheumatologist at the hospital and I got a lot of blodtest. They were all normals. The conclusion : side effects from Aclasta.
Now 5 months after I still have pains daily in my fingers and elbows and sometimes burning feelings. The first of December I got three lumbs on my left leg, they are not sore, but they are still there. I haven’t been to my doctor yet. I still hope it will disappear. I hope the best for you.
Susanne H.
PLEASECONTACT ME DUE TO RECLASPT I HAD IN 2014 AND REACTION WAS BEYOND HORRIBLE WAS SEEING 8 SPECIALIST TO TRY TO SAVE MY LIFE AND NOW HAVE HORRIBLE REACTIONS AGAIN THAT R MUCH WORST IT IS SHUTTING MY ORGANS DOWN AND MAJOR HEART PROBLEM I NEVER HAD BEFORE I WENT TO GET THIS SHOT HEALTHY AND NOW IM WORRIED AS WELL AS MY DOCTORSTHAT IM DIEING SO SICK I CANT’ HOLD MY HEAD UP
Fosamax destroyed my stomach, so the doctor prescribed a Reclast IV infusion. I reluctantly agreed, and almost died later that night. The bone pain was so severe, I could not expand my lungs to breathe because my rib age and back hurt so much, and nearly suffocated to death because I was unable to pull in enough oxygen and too weak to move. My fever was 105, and I have never smelt that sick in my life. That was 5 years ago and I have not fully recovered. I now have hair loss, unexplained itching on my arms with no visible rash, and chronic pain in my neck, hips and excruciating jaw pain which I did not have prior to the treatment. I am petite … 5′ tall and 100 lbs, yet they gave the same dose to me that they would give to someone 3x my size because they said size and body weight don’t affect dosage. Please don’t take this drug. It ruined my life.
My mother used aclasta last evening but today at 4pm she is shivering and feeling heavy cold. Is it adverse effect. What to do.Please reply fast.
My 79 yea old mother had the infusion 3 days ago and now she has the flu symptoms!! She is miserable. She just got over the real flu!! How long can we expect this to last?
Flu like symptoms last 48 hours. Just had it and it took that long. Hope she feels better soon!
That happened to me and I waited 3 days before I went to the ER and found out I was severely dehydrated, 102 fever and BP of 90/40. I could barely move. GET YOUR MOTHER TO THE ER NOW.
Thank you so much for this wonderful article, it is helping towsand of woman we already have this poison in our bodies.
I was diagnosed with osteoporosis in 2006, I take Fosamax for two years and had problems with my stomach, also take Bonita for a short time and gave me stomach pain, then my Dr. recomended Reclast one infusion a year for tree years.
What a mistake, since then I have been suffering from rashes, back pain, burning in my feet and more…..
I aks my self when all this side effects going away from my body? Let’s pray for each other and maybe one day our síntomas goes away.
Mather nature has the best medicine on earth.
Thanks again.
I have had a rash on my back and neck ever since I’ve had this crap reclast. It’s horrible What do you do about this severe rash and itch that it produces!!!
I had reclasp 2 years ago and am still having bone and muscle pains. doctors have no idea why it won’t go away, stay away from reclasp, it is deadly, anyone have the same experience or know something that will help?
HAD THIS RECLASPT IN 2014 AND WAS SO SICK I TRULLY WISH I HAD DIED THE PAIN AND PROBLEMS WERE UNBEARABLE AND NOW HAVE A RETURN REACTIONS WHICH IS MUCH MUCH WORST AND ITS CLOSING MY ORGANS DOWN =I WAS A THYROID PATIENT THAT AS WE ALL KNOW IF U R PRETHYROID R THYROID OR PREGANT YOUR NEVER TO HAVE THIS MED. MY DOCTOR AT THAT TIME WHEN SEEING HOW UNBELIEVEABLE SICK I WAS DROPPED ME AS A PATIENT FOR ME TO HAVE TO FIND A NEW DOCTOR ON MY OWN. THANK GOD I DID AND HE WAS SCARED TO DEATH AT WHAT HE SEEN AND HAD ME WITH EVERY SPECIALIST U CAN IMAGINE HE SAID I WAS ON DEATHS DOORSET-I COULD WRITE A BOOK ABOUT WHAT ALL HAPPEN TO ME THE WORST WAS MY KIDNEY QUIT WORST PAIN EVER AND EMERGENCY SUGERY -SKIN ON FEET TURNED BLACK AND FELL OFF AS WELL AS MY EYE LIDS AND BROKE VESSELS IN MY EYES AND ADEMA FROM HELL AND BLOODPRESSURE WAS OFF THE MAP I COULD GO ON AND ON AND NOW HERE IAM AGAIN TODAY SO ILL I CANT HANDLE THE PAIN. EEL LIKE IM TRULLY DIEING=PILLS AN MORE PILLS =LOODWORK WERE I DONT THINK I HAVE ANY LEFT AND SO MANY TESTS I KNOW THIS IS THIS HORRILBE CRAP RECLASPT THATS CAUSING THIS AGAIN ===HAS ANYONE WENT INTO A REMISSION AND HAD IT COME BACK LIKE HOLY HELL WERE U CANT EVEN DO A DAMN THING FOR YOURSELF
Judith Ferrell: Yours is probably the worst of all the other terrible side-effects posted on this site! I do feel so much for you!
How are you now? We are 30th November 2017 and I do hope you are alive!!!
I will pray for you if you are alive and really press in. I have occasionally had some very powerful answers to prayer to the Lord Jesus over the last 43 years.
Anyway hon, you have nothing to lose.
Please let me (us) know how you are doing, I am so concerned for you.
Judith, I had my second dose of RECLAST in Oct. 2015, and got so bad thought I might die. Never got completely better but now it’s getting worse again. Am scared & yesterday my eye started to bother me. Thought I had something in it. But now think it’s due to the RECLAST. Headed to urgent care this am to see what they think. Discovered I have lesions on my lungs – could that be Recast too.??? Am scared.
Hi June,
I took the Reclast infusion February 2016 and my health has declined dramatically since. I had my suspicions that several problems were related, but now I feel certain they are. I suffer with excruciating all over body muscle cramps and bone pain. It seems I’m battling trying to keep my magnesium levels up so get yours checked too.
Geneva
I had the poison put into my vein 4 weeks ago and my jaw is killing me and my face is all swollen. Any advice?
That sounds miserable, Kathleen! Have you checked with your dentist or regular doctor about the pain and swelling? The more the medical doctors see the side effects, the better – and hopefully they can help you find some relief that fits your approach to health.
I am so happy for these reviews. My doctor has suggested I get the reclast infusion for osteoporosis …I am 58 years old. After reading these reviews there is no way in hell I will be getting this treatment. I will look into a pill form like maybe Fosomax because then I can just stop taking if experience any unbearable side effects.
Keep gathering information and asking questions, Linda. It’s commendable that you are taking that step first!
I also had reclast infusion August 25, 2016 wish I had never had it. Pain, tired, fever first couple of days. Thirty days later thought I had the flu now I believe all was from reclast iv. Never so sick, tired, weak, 103 fever, eyes burned and sore. High heart rate, shortness of breath, headache. You name it I had it. Not like any flu I had in my 67 years. Lasted three weeks and still don’t have my full energy back and it has now been five weeks. Had blood work, liver enzymes elevated, white blood count high. WARNING NEVER HAVE RECLAST IV INFUSION. They have made over three billion on this deadly drug. They need to be STOPPED. I will be calling the FDA and Novartis Pharmaceuticals Corp.
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I am 56 and was diagnosed with osteoporosis. I was prescribed Fosamax and it gave me terrible heartburn and I was told to stop taking it and have a Reclast infusion. After reading the possible side effects I asked the specialist why she wanted me to have it and she said the risk of breaking a hip is greater than the risk of the side effects of Reclast. Reluctantly I agreed to have an infusion. The first day I felt fine but in subsequent days I felt achy and feverish. I called the office and was told it should pass within a few days and it did.
Months later I broke out in a terrible rash on my torso and back. My primary care physician was stumped by it though I did mention my Reclast infusion.
She prescribed a cream for fungal infection even though it didn’t appear to her to be fungal. It did not work.
I decided to go to a dermatologist and told her of my infusion months earlier. I am not on any other medication so she looked at my rash and looked up possible side effects of Reclast and concluded that it was the cause. She took photos of my rash for the record and wrote me a script for a steroid but warned that it too has side effects. She told me my rash would go away in time with a wash called Restoreaderm. I chose the wash over the steriod.
I have not had and will never have another Reclast infusion! I haven’t had another instance of the rash thankfully.
I hope this stuff leaves my body if it hasn’t already.
Infusion in 2008 with all the horrible side effects listed in these various comments. Couldn’t lie down for two months due to ruined stomach. Sleep was also ruined and still is. Took three years to begin to feel better with recurring side effects such as the rashes. Wrote detained journal to FDA. Response: “will place on file as unsolicited comment.” One Google search stated there was a “ten-year half-life” for the drug. Lots of eye problems. At one point, University of Arkansas Medical School had a research project on effects of RECLAST on the eye. SURELY there is research somewhere!
Can you describe your eye problems? My mother had a Reclast treatment last week and she now has one eye that is swollen shut, she describes “pressure” behind the eye, and a film. The doctors say they don’t believe it’s related to the Reclast since it’s only in one eye but I think it’s too much of a coincidence.
My right knee swelled up and when they got 2 drops out of it they found calcium crystals and RECLAST. Yep it incapsuliated behind my right knee. A woman in Spain and a woman in France had the same problem. Have them check her eyes better.
I had a Reclast Infusion Wednesday around 2:00 PM. I felt great until 3:30 this morning when I awakened with deep eye socket pain and a left eyelid that is swollen and I can hardly touch it. I’m drinking lots more water to try to wash this stuff away as soon as possible. The eye pain is very weird and feels so deep back in my eye. NO more Reclast for me! I won’t forget this awkward feeling.
This is surely one of the most toxic drugs on the market. How did this get approved by the FDA!
Un the middle of a cardiac workout for arrhythmias that were not present before I took Reclast. My vision has changed and the fatigue at times leaves me unable to do anything but sit.
I am looking any class action suits.
I’ll be the first to join you. Had an infusion in December 2016, and it has about killed me. Couldn’t move for weeks. Now I itch all over and still have very little energy. This medicine needs to be removed from the market.
Can you describe your eye problems? My mother had a Reclast treatment last week and she now has one eye that is swollen shut, she describes “pressure” behind the eye, and a film. The doctors say they don’t believe it’s related to the Reclast since it’s only in one eye but I think it’s too much of a coincidence.
I had a Reclast infusion in Oct of 2017 and I found out it was NOT for me> This poison landed me in the hospital. At first I started shaking uncontrollably from my head to my feet; then this horrific pain hit me and I could not move. No matter how hard I tried I could do nothing but scream at every breath. I had never had such pain. When I finally got to the hospital there was NOTHING they could do for me because I am allergic to every narcotic known to mankind. After 48 hours I was able to go back home to write a check for that very large hospital bill. Since this Reclast ordeal I have told everybody I know not to have anything to do with Reclast. why this drug is on the market i the first place makes me think the medical field has bought in to it and making a ton of money off of it. Since the Reclast ordeal I am searching for an attorney who knows about this drug and can help me. THIS DRUG SHOULD BE TAKEN OFF OF THE MARKET IMMEDIATELY IT’S DEADLY! I am still having terrible bone and muscle pain from the Reclast infusion. The doctor’s nurse did call me a year later and ask me if I would like to schedule another infusion of Reclast. I can’t tell you what I told her!!!
I will never take Reclast again. The past 4 days since my infusion have not been good. Day one after the IV temp of 102, pain in my neck, hips & back that last for 2 days. Then yesterday I was nauseated and have had no appetite. You all know that Drs and pharmacies get kick backs from the drug companies for using all these new drugs. I will never take this stuff again, if I get over this I’ll count my blessing and be done with. I pray for each and everyone of you that have had severe and long lasting side effects.
How long does the reclast to get out of your system? I had three treatments do not want to continue, can I refuse?
I had 2 fractures pelvic Feb. 2015 and continue to have dizzy spells. How long will that last. I do not want the reclast.
Colleen
Of course you can refuse the medication, remember it’s your body, not theirs.
How long does the reclast injection stay in your body?
Don’t have anymore reclast iv infusions. It is your body just say No! Wish I had never had that poison put into my body. All they care about is money…….not your health.
Thank you so much for this website, for all of the information it contains and for the personal comments from those who have tried Reclast! My doctor has recommended this treatment because I have osteoporosis and recently suffered fractures due to a fall I had. It’s great to be able to research a treatment before you submit to it. I believe in a more natural approach to health care and let my doctor know that I would look at what information I could find about Reclast. I thank God for the honesty of the testimonies of those who have suffered adverse reactions to this drug. I won’t be going forward with this treatment because of your information.
Good for your for doing your research first, Barbara!
I started Reclast infusions 4 years ago for Paget’s disease. Have had severe thigh pains ever since. Recently tripped and broke my femur. Dr. Said it had been fractured for a couple of years before finally breaking. Now having MRI, as Dr. Thinks left femur may be fractured as well.
All problems started when I started Reclast infusions. I now have read where femur fractures may be side effects of said medicine. I will not take anymore and will encourage my Dr. not to recomnend it as well.
It is sad that these detail sales people in US continue to push Reclast on our doctors. It is our job to know these drugs are dangerous and make others aware before it’s too late.
Was given Reclast via infusion in July 2014. Within 4 months my teeth started to rot, break and fall out. I had to have tooth # 8 pulled yesterday along with some dead jaw bone. I still have more teeth that are dying and will need to be pulled. Who knows what my jaw bone will look like when I no longer have any teeth in my mouth. Right now a bridge is out of the question because of the other teeth that need to come out. The end result will be implants. Do the makers of Reclast have any idea what a mouthful of implants cost? I seriously doubt it. Also do they plan on paying for my loss? I doubt that too. I contacted the FDA and filed a complaint. Was added to the list. There are so many complaints about Reclast and Class Action Law Suits that the attorneys who handle class action suits are no longer taking any new clients. Imagine that. MY ADVICE TO ANYONE CONSIDERING RECLAST…STICK WITH A DAILY DOSE OF CALCIUM AND VITAMIN D.
This is my 3rd infusion the 1st I was very very sick buy got better. The second time not as bad but notice my hair thinning I thought it might be due to stress. Now I resently went to the dentist and having problems with my teeth. They gave another infusion after my dentist appt. and I noticed my hair thinning even more I still need to go to the dentist for 2 more procedure when my sister came over to see me July 4, 2016 she said OH MY GOD why is your hair thinning so bad I told it must be the reclast that is the only thing that is different as far as my med go She suggested I make an appt with her dermatologist ASAP. Now I read your comment and realize that calling the FDA wouldn’t help me any but I’m glad to see I’m not alone this is very depressing for me. Thank you for your info I will ban from ever taking the RECLAST ever again. I pray I’m able to save my hair…..
I have tooth loss and damage also. Oral surgeons refuse pulling teeth due to risk of necrosis of jaw……god help us
Are you kidding me????? My mother has had 3 reclast infusions as recommended by an osteoporosis clinic that she was sent to by her physician. Now, FEMUR fracture, kidney issues, swelling, uti’s, irregular heartbeat, the list goes on…. Why wasn’t this more closely monitored??? I attended these info sessions , no mention of these serious side effects and when the warning signs started, why didn’t some healthcare professional make the connection????!
Please tell me how to reverse these side effects this is miserable! Why are Physicians giving this poison? Help please!
I had my first recast injection on May 9, 2016 ever since I’ve had horrible back pain, hand pain, tingling and burning in both feet. My God I doubt I’ll ever do this dang infusion again it does not help at all why are they poisoning us with this? I’ve been to my Dr, Chiropractor, Physical therapy and also have started acupuncture. I won’t allow this pain to continue I’ll fight it but boy oh boy is it nasty!
Hello,
I have been reading this blog for days now, and all the stories of women who are suffering after reclast. My biggest regret is why I didn’t research and find this blog before I submitted to reclast infusion 6 days ago.
I am 60 years old and have severe osteoporosis as a result of cervical cancer 30 years ago, in which both my ovaries were taken and no estrogen replacement given.
After the reclast infusion, I felt tired and weak, but went to work that night. During the course of my shift, I began to have the flu like symptoms, bone and muscle pain (which the Dr had informed me might happen).
I took advil in the morning and went to sleep. Suddenly, I was awakened with the most severe crushing substernal pain that I never before experienced in my life. I have no cardiac problems. I was sure I was having an MI. I called the endocrinologist and was told it was normal and just take motrin, but if I felt that bad, I should go to the ER. At the ER, I was given morphine IV, and EKG, labs, CXR were all normal. I was discharged with norco for the pain, and told it was a bad reaction to the reclast.
The next 4 days I spent in bed. I could barely move, and would wake after the pain med would wear off in severe pain and drenched in sweat. The pain continued throughout my body and I barely had strength to change my soaked to the skin clothing. Finally on the 5th day I woke up dry, and pain was controlled with advil. I went back to work. Yesterday, I noticed pain in my right ankle and swelling and tenderness. Im now limping.
I really don’t know what to do because my endocrinologist was completely unsympathetic and unconcerned. ER dr was great but he didn’t even know what reclast was used to treat.
I am praying that I won’t develop more severe problems. I am so empathetic to all of you on this site. It does help to know I am not being a hypochondriac or as one medical staff asked me in the ER, “did I have an anxiety disorder?”
thank you for allowing me to share and I welcome any one who would like to contact me personally and /or has any new info regarding this horrible drug.
sincerely,
joanne
Thanks for sharing this confirms my thoughts of not taking this awful medication
I received reclast infusion about 4-5 months ago. It has been hell ever since. The doctor told me, “you might feel a little achy after. If so, just take some tylenol. It will go away.” Ok, I thought. No big deal. Well, a day or two later it hit me like a ton of bricks! I almost forgot about the infusion. I thought I had a bad case of the flu! I got a fever, hurt everywhere, and was feeling terrible! I had tingling feelings in my hands, feet, face, arms, etc. It was just awful! It would NOT go away. I could not sleep, think, anything. The tingling started to dissipate after about 2 weeks or so, but I still did not feel like myself.
I had this pain in my Right foot/heel that would not go away. It still has not gone away. It hurts all of the time. It feels like hot burning nails driving into my heal. It hurts to even put it on a pillow. I told the doctor, but he told me to take tylenol. It does nothing. I have had it X-rayed, and just a couple days ago had an MRI, as I am fearful that it is avascular necrosis. I have seen that the FDA has just this month updated their site to include the the heel, femur, hip, etc to the areas of possible avascular necrosis that could be caused by reclast.
I will be seeing orthopedic doctor in another week. The other doctor was trying to say, “maybe it is a heel spur, or diabetes”. Then admitted to not knowing much about avascular necrosis.
I suggest you all do your homework, and I would never have this medication again!
I had Reclast in an IV solution over a week ago. I have so much bone pain in my hips, legs and back that I can’t walk anymore. Is there anything I can do to alleviate these side effects? I saw the doctor this week and she said I must be allergic to Reclast, told me to increase my Tylenol dosage and to increase my dosage of muscle relaxant Cyclobenzaprine. I am really tired of the constant pain.
I had my first (and LAST) Reclast infusion December 1, 2015! Within least than thirty minutes I was in so much pain I could hardly bear it. My hips, legs, back and rib cage ached severely. I developed a UTI, started having stomach problems, fever and other issues. My urinary system is still sensitive and feels as if it is blistered. I developed lower back pain and suffered through a MRI and a complete body bone scan. Today is April 2, 2016, and I still have days when I can hardly function due to hip, groin and back pain. I hope you soon begin to recover, but, my road after Reclast has been a nightmare. I called my doctor three times to see if there is some way to flush this stuff out of my system. She says there is nothing they can do. Should be a crime to administer this “poison”. Merle
Oh my gosh I’m thinking the same there has got to be something to reverse this crap out of our system. I’m in tears as well! I’m normally very active but this has taken its toll on me. I’ll never do this drug again.
I had my infusion Friday the 27th. Began vomiting Friday night- i was prepared for this. However woke up Sat morn unable to get out of bed or walk! My knees and wrists were swollen 4x the normal size! (Am recovering from knee surgery so use a walker – so knees and wrist swelling was incapacitating.) Doc said I had allergic reaction and has put me on aspirin, steroids, and benadryl. After 3 hours improvement began.
July 2, 2016 I had my first Reclast infusion and my last. On July 3rd I hurt all over, temp of 102, no appetite, that lasted for 2days. Yesterday nauseated and no appetite. This morning feeling better and pray the day stays good. To all of you have had severe reactions my prayers go out to you. I will never take this poison again.
I hope you feel better soon, Roxanne. I am so sorry to hear that this happened to you!
I just had my 1st infusion of reclast 3 days ago. Other than nausea, not too bad UNTIL last night! Pelvic bone pain on my left side, now today it’s starting on my right side, along with my right elbow.
I (thought) I did do my research on this. I’m a kidney cancer survivor and reclast was actually the “safest” drug for me and my kidneys. Of course it’s the weekend, and they did say day 3-4 could be the “worse”. Guess I’ll have to wait it out. Anybody have some GOOD NEWS to report? I’m in the middle of a disability case at the moment, if this causes more issues, how on earth do I PROVE IT? Now I’m crying from the pain. Extra strength Tylenol is what I was told to take, nothing else.
Please send your free national Bone-Building kit. Thank you.
I have severe osteoporosis & have virtually fractured every bone in my body. A test for multiple myeloma was negative. I have taken Fo samax, Forties for 2 years everyday, Bosnia And had my 5th Reclast infusion today. I have 3 compression fractures in my spine, woke up with L-1S2 fracture while sleeping and had to have a mastectomy & 32 radiation treatments followed by 5 years of hormanal thrrspy with Tamoxofen.
Dear Vivian, I had another bone scan after a 2 year period & was hoping for better results since I have been on the Save Our Bones program for 5 years. My hip went from -2.2 to -2.3 & my spine went from -3.5 to -4.0. I work out 5 times a week, lift weights with a trainer 2 times a week & do yoga once a week. I don’t want to take Reclast!!! What else can I do? I’m healthy as a horse otherwise.
Don’t worry, Christine! Remember, bone density is just one aspect of bone health, as I write in the Program. 🙂 Mainstream medicine focuses so much on density because it needs numbers (i.e. fixed parameters) to prescribe drugs. While density is an indicator of bone metabolism, the main focus of bone health is simply to prevent fractures, and less dense but healthy and renewed bones have better tensile strength than thicker, denser, older bones.
Also, please don’t forget that machines are not accurate, which means that your DEXA may not reflect a good comparison. The bottom line is that you’re not taking toxic (and often dangerous) drugs, and that you’re allowing your bones to remodel as they should. Bone health is not a density “pageant”; it’s all about not breaking bones, and so far, you’ve had great success!
So please don’t think that following the Program was for naught. Don’t give up!
I started on Reclast on July 6th. Three days in I felt like I was hit by a Mack truck.. My neck was so stiff I went to the ER and went on a muscle relaxant and a cervical collar. I the next day had severe wrist pain. Within the next week I had a vitreous tear and had floaters in my left eye. The next week I started having heart irregularities. I was told I had numerous pvc’s. The doctors all said it was the drug.
That drug goes for any weakened area in the body. it is a horrible drug. I am in PT
now for my neck. now. .
Six months ago my wife, P-Vine (Eve to y’all) was a very active 70 year old managing our 2 acre ornamental garden with several thousand plants… Then Reclast… Today she is more like a sickly 85 year old suffering from weakness, depression and confusion… The flu-like aches have subsided, thank God… I need to give her hope so how long before the side effects will subside???
BTW, her doctor refuses to accept the fact that the Reclast caused these symptoms and is blowing thru a lot of Medicare $$$ trying to find another source of her symptoms but no no avail…
She keeps asking why no one is suing the drug company???
Okay, that’s it…
Bob
Plan on calling my doctor once his office opens. After 2 years of taking Boniva, my BDS showed no improvement. I was diagnosed with osteoporosis after suffering several bone breaks with ligament damage which required expensive surgeries.
Had my first Reclast infusion one week ago. I’ve never had BP issues but after finishing the infusion, my BP skyrocketed. It finally got back to normal but I didn’t feel right. I was confused and dizzy.
A week later and I’m still having these episodes. I have to be careful if I stand too quickly as I actually stumble. It’s almost as if my BP is “bottoming out”. I’ve also experienced vision issues and have a difficult time bringing things into focus.
I just simply don’t feel “right”. I had severe muscle cramps for a few days but that has lessened.
I had 1 iv treatment of Reclast in2013. Soon after my RA had a big flare up and I was in a lot of pain. Within a few weeks of the infusion I went to the dentist with pain in my jaw. He said I had infection in one of my teeth and did a root canal. A few weeks later another root canal then weeks later another root until I had 5 root canals all on the same bottom side. I became so sick and my jaw became so infected that I had to go in daily for 12 weeks for strong IV antibiotics. When all was said and done I was diagnosed with osteonecrosis of my jaw. My teeth are now loose and I have continuing dental issues. I also have bad neck and spine pain which the Dr. thinks could be a problem caused by the reclast.
Omg..I’m going in my second month with excruciating neck pain..had reclast dec 2016…the rhuematologist gave me muscle relaxants which did nothing….then said he couldn’t do anything for me…I’m hoping this won’t be permanent…neurologist sent me to physical therapy…helped some but I still need neck brace to survive the remaining hours in a day…I called drug company in New Jersey…they said reaction to drug only lasts two weeks….what a joke…
I have been diagnosed with osteopenia and osteoporosis throughout my body and have tried most of the meds including forteo but due to reactions had to stop. My rheumatoid dr suggested reclast and i was afraid of the side effects but went ahead anyways. BIG MISTAKE! About 3 hrs after the infusion i started feeling very stiff and aware of it. The next morning i could barely walk. The pain was so intense in my spine lower and upper, my leg muscles cramped the pain would travel from my hips ,to my lower back up my spine to shoulders, i though i was going to scream. I couldnt stand for more than 10 mins without nearly falling down.. after 1 week of this intense pain i called my dr and was rx some pain meds. The following week, i called again and recvd 4 cortisone shots in my back which didnt help and now 5weeks later still in the same amount of pain, still can barely walk, but then had a breathing attack where i couldn’t catch my breath. Went to er was cleared and was sent to my reg dr who honestly blew me off but sent me to a pulmonary dr. He said yes this is related to reclast and gave me an inhaler and breathing exercises to do at home. Now i have this horrible feeling that something is caught in my throat and really bad gerd!! Oh and not to mention im losing my hair now also!! Really !! Was now referred to an ent. I haven’t worked in 5 weeks… this drug is horrible and it needs to be taken off the market. Im so upset this has happen not only to me but to alot of other people! And the fact that some drs are blowing it off and making us feel like we are idiots.
Ps my rheumatoid dr is wonderful and has been helping tremendously but the other drs.. well.. yea!! I hope everyone here can get the help we all need. My prayers go out to each of you! !
I also wanted to mention in addition to my last post, someone below mentioned this also and my aunt is having these problems also. A crazy fluctuation in b/p, sometimes high and sometimes 77/44 and she cant remember crap and took to much of her other meds because she couldnt remember if she took them or not (and not has help with them) and woke up in ICU. This drug almost killed her! Also people with thyroid problems are not to have Reclast, no one checked that before giving it to her, and her hair fell out also. They might as well have hooked up Red Devil lye and give it to people in IV, it would probably not be as bad, it is around 1500 or 2000.00 per injection, that is why they push it so hard, do I smell a kick back?
Melissa
My aunt whom I havent talked to in over 6mos called and said she had only one Reclast injection and it messed her up so bad. She has had kidney trouble, it messed with her mind even. She lost 30 lbs and has ongoing swelling/fluid problems. I know only one person this drug has helped. I am an RN and I would do calcium and vitamins, diet high in calcium and weight lifting, anything but this drug, it is poison. A class action lawsuit is in order. Doc’s in this area were not reporting side effects to FDA. Now if you go to them with complaints they are dismissing patients (some docs). They know!! whats coming. If they gave it, they dont want to be sued. Report your symptoms to the FDA website. Its not worth the risk, of adding more pain and possible permanent damage, you think you have problems now? It can get worse.
Melissa
I have just had my third infusion of aclasta having been on fosamax plus for some years.
I have feeling of sadness at the listings that I have seen here in this discussion. I would like to give a good news story.
My ostoeporosis runs in the females of my family. There is not much that I can do about that! Since I am active in the outdoors, I have decided to do something about my thin bones. I have had several bone fractures the latest being a triple pelvic fracture. It was not symptomatic and undiagnosed for some time. I can assure you that when it became apparent, it was very painful and disabling for a considerable time [greater than a year].
My bone mineral density is slightly increasing.
My doctors are professional in their education of adverse possibilities with the treatment, check out calcium and kidney function, have vitamin D and calcium loading and ensure adequate fluid intake for the day before and after the infusion.
I will continue to be active as in a recent ski trip for 3 weeks, but I know that I will have to be careful to minimise any traumatic event.
Please believe me when I say that I am sad to hear of the ones with side effects. I wanted to say that there are lots of people out there who have had good experiences with this medication.
I also ad my second infusion two weeks ago. The first one left me immobile the day after but this one I hardly even had side effects. I also have had very poor bone density results for over 5 years. I was told I was at a high risk for developing bone cancer. I am not getting any density improvement but it hasn’t gotten worse either. The only side effect to me us my gallbladder. I am having trouble getting my regular physician to recognize it since my gallbladder doesn’t show signs of problems but that pain is real.. So we will see where it goes but I will continue on the Reclast. I sure do not want bone cancer!
Done fine for about two yrs taking the reclast then about 6 months after the 2nd one I started having terrible joint pain in the knees, did not associate it with the med and took the third one from there on I have had one knee replaced, the other née is now bad and I need it replaced. It is bone on bone the X-ray shows I have nothing between the joint…also in this time frame I have had 3 lower back surgeries….my back pain was so severe and I could not stand up…now I suffer in pain every day..I take pain med just to get me through my days…force myself to work…but end up hurting all night…never again will I take any bone density med.
Evelyn, I am so sorry you’ve experienced that kind of pain and difficulty. I am sure you are on the path to recovery, and that you’re nurturing your bones and body with healthy foods, fresh air, and sunshine. Your body was made for health!
Also I have had my hair to come out in clumps, but since I refused anymore reclast it is doing better…still very thin but not coming out in clumps anymore…some days the pain is really debilitating and yesterday was one of those days…thought my hip and tail bone were broken…not as bad today but it will be really bad one day and after a day of taking the pain med it will let up but returns quickly…wished I had been given the stats on this …I would not have taken it…but was set up with the Hospital and no one I formed me of the information.
That’s one of the missions of this site, Evelyn – to provide the information the Medical Establishment should provide, but doesn’t. 🙁 Thankfully, you have the knowledge now, and you can begin your journey toward better health and stronger bones.
Hello Evelyn,
I am scheduled to have infusion on 9/30/15 and the more I read, the more I am thinking hell no, I have enough health problems!!! I have a thyroid problems & my doctor never said that I shouldn’t have reclast due to thyroid problems! Who can you trust!?
Diagnosed with osteopenia several years ago and took oral medication with good results. So good, in fact, the doctor took me off the oral medication. Fast forward to 2015, my bone scan shows osteopenia again. Just received my first infusion of Reclast yesterday and no side effects. I was told side effects are much minimized if you have already taken the oral medications. Keep very hydrated for at least the 72 hours drug is in your body and empty your bladder as often as possible keeping risk of kidney damage low. This drug can be used very safely and effectively by many….instead of reading on-line horror stories, talk to your doctor or nurse in detail and get all the facts. Good luck and good health!
I hate to tell you this but my side effects did not start for 3 months after the IV infusion. I actually was doing better prior to the Reclast. I took Boniva for 2 or 3 years and stopped because it was not working. It has been a couple of years since Boniva and was assured by the doctors that Reclast side effects are not that common. My grandmother and my mother both had osteoporosis and broke their hips. I am 65 years old and take care of myself but since the Reclast I am a mess. My back and neck feel like they have been cemented together and I was walking 4-5 miles approx. 4 times a week. I have had to go to physical therapy for help since the nasty infusion. They tell you not to have any dental extractions and last week a tooth broke off and part of it is still in my gums and I have no choice but to have it extracted! My jaw is hurting and I am very worried about osteonecrosis of the jaw! I am afraid to have it extracted as the oral surgeon says it could cause my jaw to freeze. I so regret taking this medication.
I was on Reclast for five years and never experienced any side effects. Guess I’m lucky. I went on a holiday for awhile and my BD declined. I’m 69 and I’ll be starting it again. Hope it will be as uneventful as before.
I had the reclast done in June 2014 and wish I would had found this site before I did it Losing weight , my feet hurt and my hip started first then it went to my lungs and I couldn’t get a breath blood pressure dropped it’s just terrible want I am going though and everyone else
My son is 23 years old. He has celiac disease and can’t have wheat gluten in any form. This autoimmune disorder caused malabsorption and he has advanced osteoporosis as a result. He had the reclast infusion a year ago. The rheumatologist is pushing for another one. He had flu like symptoms the first time. They did the infusion to avoid oral meds like fosamax that could inflame his gut. We are thinking of saying no to this second dose and just doing diet, exercise and supplements. Does anyone with celiac have any thoughts on this?
I had the reclast injection in January 2013. A month later I woke up in the middle of the night with severe head pain and my right eye was swollen. My Eye doctor sent me for a cat scan and all the muscles in my eye were inflamed. They also found aneurysms (4) which I had one clipped in June 2013, I am wondering if anyone else has had this problem when having the injection. And is there any law suits out there from it.
I had my last infusion of Reclast in Sept. of 2012. It was the third injection. I had not had any side effects with the first two so I was not prepared for what happened. Immediately the next day, I was in severe pain all over my body and within three days I noticed that my eyelid had dropped. I made an appointment with my eye doctor and was told that that muscle-tendons had let go and I needed surgery. I had surgery and the eye continued to droop. He wanted to do the surgery again but I went for a second opinion and then was sent out of state to a specialist. The diagnosis was that I had a mass growing above my eye pushing my eye downwards. i had been his 6th patient who had taken Reclast and had this happen. I had immediate surgery and only a portion could be removed. My eye is better but even after 2 years I am still experiencing bone pain. This is a terrible drug with terrible side effects. Something needs to be done. Does anyone know of any class action lawsuits that we can join?. Maybe together we can get the warnings about this drug exposed.
On Oct.16 ’13 I received RECLAST – for three weeks my hands/ feet /joints hurt & have fever,thirst and my out put of urine is low…my doctor put me on a pack of steroids and the first hour after taking it my hands started to feel better . Yesterday (11-18-14) was my best day but also the LAST day on the steroids. I’ve started swelling up again and my fluid output isn’t matching my input. I’m starting to think something isn’t right. How long does this stuff stay in ya…my research indicates about a year – The least of my concerns is the hair loss….turns out this stuff is also used as chemo..
Hi –
They want me to take an IV infusion of RECLAST for Paget’s disease, which is treated like osteoporosis. But now that I am reading the terrifying side effects, I really don’t want to do it! Does anyone know of any other treatments for Paget’s disease besides these horrible bisphosphonate drugs? I would appreciate your help!
Do not get this shot I’m suffer day after day because I took it for osteoporosis . I was on it two years and now I’m so messed up from it. I feel like I’m dieing. I lost my hair , got big sores Ive been going num all over I feel weak and so much more . My name is robin Hascall u can call me 810 444 7833. I need to talk to a lawyer I’m scared .ive been off a year now and still having problems.
This message is to Robin,
Hi I have had 2 IVs of Reclast. I am losing most of my hair. Did your hair grow back? I hurt all over. I am worse now than ever. I had my last IV in December. I really feel bad. You have been off it for 1 year? and still feel bad? I am a small framed petite woman. please contact me and let me know what i can do.
Thank you
Marci
I have su much pain even the morphine I’ve been taking for a broken back does nothing to relieve the joint and muscle pain .I have an appointment today but after reading about reclast what a mind opener have 90% of the symptoms. Will the pain ever stop or will I die first?
i received iv reclast treatment first treatment
i still have some mild upperback pain , and now i get burning sensation in upper gi tract in oesophagus
why
i got iv treatment i never too pills
thanks please comment
i received iv reclast treatment first treatment
i still have some mild upperback pain , and now i get burning sensation in upper gi tract in oesophagus
why
i got iv treatment i never too pills
thanks please comment
and i feel hot and sweat a lot, please if some one can make comment or give input the experience,thank you
I had reclast infusion on 8-4-08. had all the side effects. dysphagia was terrible. now I am allergic to all antibiotics–they cause severe rash. also lost 5 teeth and havdgrinding in jaw. Is there a class-action lawsuit available?
please let me know if there is a class-action suit in the works
Have had two infusions of Reclast and was prepared to get another in two weeks, but twice blood work came back indicating renal problems, and infusions were refused because of kidney problems, GSR, Creatin, bun. Dentist also warned of bone loss in jaw.
I took my first and last Reclast IV on June of this year. Have been reading all of the comments, but found nothing about the kidneys which is my problem.
I am very tired and unable to do my usual chores.
Did anyone have a problem with kidneys?
Generally speaking, Charlene, all medication is hard on your kidneys. Here is a blog post you might like to read about the role your kidneys play in bone health:
https://saveourbones.com/for-strong-bones-keep-your-kidneys-healthy-and-your-blood-pressure-under-control/
I am 61yrs old female from Asia origin. Sufering from severe osteoporosis (that’s what my Dr. told me). After reading comments i “Our Bones Community” I had refused to take Fosamax. Recently I had dislocated my right ankle, Xray shows strain ligament no fracture. However, the doctor insisted this time I should take “Bonviva 150mg once a month
Can somebody kind enough tell me whether I should take it? Any good reason? Or is there any alternative?
I would really appreciate the help
Jenab, the decision is yours. 🙂 But, as I said in the above post, first get some facts! Here are links to several posts I’ve written on Boniva:
https://saveourbones.com/boniva-side-effects/
https://saveourbones.com/taking-evista-and-boniva/
https://saveourbones.com/boniva-what-if-sally-field-told-the-truth/
These articles should help you in making your decision! Best of luck, whatever you decide.
Had a bone scan and my doctors nurse called and said it showed osteoporosis and they were going to schedule me for a reclast IV treatment. Since I never got to consult with my doctor I did alittle research.Thank you ladies for all your real life(tragic) stories.Thanks to you all when they tried to confirm my treatment I canceled.I have since talked to a dear friend (25yr RN) who got the same diagnosis 3 years ago.She is treating hers with large doses of Calcium & D3,excercise and diet.Going on 4yrs and so far fracture free.Thank you again!
One month after receiving an infusion of RECLAST my husband took me to. The hospital with acute renal failure. It was life threatening and I was unconscious for two days. Dialysis was started immediately and I had ten treatments. It was the worst thing that ever happened to me. I am still under two doctors care, a kidney doctor and a heart doctor which is also a side effect. This happened the first week of November.
Shirley, how horrible! I am so sorry you experienced that. I wish you a full and speedy recovery!
Arthritis and Rheumatism Associates in Wash DC provides no drug information, not even the medguide.
Women should be informed so they can hydrate and pre medicate with antipyretics
I may be the only man posting. Took my 1st reclast infusion on 31 Jan 2013. Have protein M in my system and below number which may label it
multiple myeloma. Had thyroid nodule biopsy before influsion and VA took
endless blood tests. Result of biopsy was hyperplascia. I read up on
reclast before I took it and decided to let them do it. My osteoporosis is
at critical stage. So far I seem to be okay, but my heart goes out to you
ladies and what you are going thru. I have good lady doctor, a good lady
PA, excellent endrochronologist (48 years of experience). My prayers are
with you girls. God bless you all