Reclast Infusion: New Treatment, Old Story


As so often happens with new osteoporosis drugs – and Reclast infusion is a fairly new treatment – the truth becomes shrouded as pharmaceutical companies make grabs for money, power, recognition, and more money. The humble osteoporosis patient gets lost in the proverbial shuffle. She hears the doctor’s diagnosis of osteoporosis as if it were a deadly disease, and she hears the doctor’s prescription for a drug that is supposed to help. She also hears how this new drug is superior to oral bisphosphonates, because this one is delivered directly into the bloodstream in the form of an infusion. This means no gastric side effects! And now the icing on the cake: she only has to take the Reclast infusion once a year, and the procedure takes only 15 minutes!

This patient may then mistakenly think that the problem of nasty side effects of osteoporosis drugs is solved. I hope this anonymous patient finds the Save Our Bones site in time, because the unfortunate truth is that Reclast infusion is a new treatment with an old story.

Infusion Confusion

Sadly, more than one case of Reclast infusion has resulted in deadly kidney failure, leaving hurt and confusion behind. Why didn’t the doctor warn them? Those who survive the horrible side effects of Reclast infusion are also left wondering why they weren’t warned of these possible side effects. They are also left with lasting side effects from renal toxicity.

What is causing all this confusion? It’s not only a lack of information; it’s also bad information. It’s the old story of osteoporosis drugs being touted as “the” cure for this “disease,” only to find out that horrible side effects are just around the corner. Why didn’t the doctor warn you? It’s entirely possible that he or she isn’t even aware of the risks. In fact, as I pointed out in this post, the FDA was being urged to tell Novartis, the maker of Reclast, to give proper warning information to those physicians who prescribe their drug.

The Old Story

Here are some things you may not have thought about in connection with Reclast infusion, this new treatment with an old story.

  • Reclast stays in your system for at least a year (hence the annual treatment). This means that you’re stuck with the drug and its side effects for as long as it’s in your system. If you experience unpleasant side effects, there’s no way to stop taking Reclast; it’s in your body for a year, doing its damage.
  • Renal failure as a result of Reclast infusion can quickly become fatal as doctors can’t remove the drug from your bloodstream.
  • There’s no accurate way to tell just how much Reclast is in your system before you receive your second dose the following year. For some patients, the second treatment is “too much” and the renal failure results from the toxic overload.

Too Much at Stake

There’s just too much at stake to even try Reclast infusion. It’s not just a question of brittle bones and the “usual” side effects of bisphosphonates; this treatment goes farther, delving into the dangerous territory of intentional toxicity to obtain an effect. This may be a fair trade off in life-threatening diseases, but it’s simply too great a risk for osteoporosis, which isn’t even a disease! It’s just a matter of healthful balance, and Save Our Bones can get you there. There’s nothing confusing about this science-backed program, and it’s totally risk-free (I even have a 365 days Money Back Guarantee). As I said in another post, the Save Our Bones Program is not just another natural treatment – it’s the treatment! It’s the only thing that really works because it restores your body to a place of balance. Think “RESTORE,” not Reclast!

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70 comments. Leave Yours Now →
  1. Lisa September 28, 2016, 10:03 am

    I have had oestepenia for 20 years I did all I could to take care of myself with vitamins and exercise but still nothing helped, now I have osteoporosis and the pills make me so sick. I am now being scheduled for reclast after reading these stories I am terrified. I will be cancelling as well. I would like to know what is the alternative the doctor scared me about breaking a hip because that is where the osteoporosis is not sure what to do. Wondering if anyone has any suggestions so glad I saw this. Scary to know that my jaw bone can crack. Thank you for this site.

  2. Linda Bowling September 27, 2016, 9:48 pm

    I am so glad I found this site. It is very enlightening. More than forty years ago, when I was about 27 y/o, I had a tubal ligation which was followed by a hysterectomy about three years later.. Was not on anything more than Primeran (sp) for a short time and was not really informed of any side effects or conditions that might show up. Over the years I tried to maintain a healthy life style (being married to a farmer kinda took care of that). But, as I aged my life changed and I was diagnosed with osteopenia. Then, I suffered a broken wrist and my surgeon said he had never seen bones like mine except in seventy y/o women. I was not even fifty y/o at this time. I had had numerous surgeries, procedures and treatments for everything from Asthma to chronic renal failure, diabetes, copd, gallbladder removal, knee surgery and on and on. Not once did anyone suggest I needed any type of bone density procedures. That is, until this past summer when my Dr. wanted to put me on FOSAMAX. I did get the RX filled but, after considering how much pain and suffering it caused my Mother, I contacted my Dr. and told her I was not going to use it because I already had all the possible side effects it MIGHT cause. Didn’t need to add to them. Besides that, she had never discussed the drug with me before hand. Then, a few days ago I was informed by my Dr.’s assistant that she was scheduling me for a calcium blood draw and then for an, “Infusion.” Still no one has offered any information on this procedure or even what drug will be used or how it will be administered. Even when I asked at the Dr.’s office no one could tell me anything. I am seriously considering cancelling the appointment until someone will take the time to talk to me about this. I don’t think I want to take a chance on ANY drug in this arena. I know this is a long read but I felt compelled to share my story with all the others who will understand. God bless you all.

  3. Pat June 25, 2016, 9:41 pm

    I have osteopenia and I am very active. I had two fractures related to activity (toe and hairline rib fx) and because of this, I was put on Reclast. I could not tolerate oral Fosamax. My first infusion was in 2015 and complicated by mild muscle achiness. My second infusion was given on May 25, 2016. Within 5-days of the infusion, I developed intense lower back and hip pain. It started as lower back stiffness but did not prohibit engaging in activities. I am an avid golfer, bicyclist, and walk 10-12 miles/day when I am not working ( usually 2-3 days per week). Since I developed this back and hip pain, I have been unable to perform by usual 12-hour shifts as a APRN-CNP, I cannot engage in physical activities as before and have spend most of my time at physical therapy and the chiropractor. I have had a complete medical examination including hip x-ray, lumbosacral x-ray, and MRI. This is not a herniated disc issue. I am improving albeit, very slowly. Although I cannot prove it, I am convinced this is related to the Reclast infusion. I will never receive another!

    • Angie July 14, 2016, 7:45 pm

      Oh my Pat so sorry to hear this. I am an ARNP as well, and was just diagnosed with Osteoporosis. Initially prescribed Fortro right out of the gate. I refused. Saw Endo today who says no way to Forteo…that Recladt is the way to go….not feeling this either. Would love to speak with you.

  4. Mary June 8, 2016, 7:48 pm

    It has now been four years since my last injection of Reclast and whatever the drug did to me has changed my life. I had three years of injections and It was after the third that all my problems started. I had the typical side effects the first two years [aches, pains and flu-like symptoms} but the third year was different. I immediately had severe bone pain and it continued on the next few days. On the third day I woke up to what I thought was a possible bug bite near my eye because the lid was swollen. Within a week I was at the eye doctor and was told that I had a drooping lid that it would need surgery. Unfortunately, I had the surgery to only have my eye continue to get worse. I had let the Dr. know that I did have the infusion of Reclast but he did not relate the two. When I finally realized that I needed a second opinion, it had been months later. My eye was now almost diagonally from the other. I was immediately sent to a specialist and was in surgery the next week. I had an orbital mass that was pushing my eye downwards. I was the Drs.sixth patient who had taken Reclast that this type of mass had formed. They could only remove a third because of how it wrapped around my eye. Since the eye problem I have been to every kind of Dr. that is associated with bone pain. I too was a very active person as many of you have said of yourselves. I do not drive so I walked wherever I needed to go. My life today….it is a struggle just to walk. I wake up all night looking just for a comfortable position just so I can sleep. I am exhausted all the time. Through some of my most recent bloodwork, they have discovered that my immune system is compromised and I don’t have some antibodies to fight certain sicknesses. I have an appointment with an immunologist in July. I know what the cause of all my problems are from. I know that there is not enough information about this terrible drug out there and what it can do to a person. I know that my life has changed drastically. It could have been the third injection was too much for my body and now I have to endure the side effects. I regret every day that I ever put that drug into my body. For those of you that it has helped, I am happy for you. For those of you who are where I am, my prayers for you.

  5. to all June 5, 2016, 4:29 pm

    had my first reclast infusion on june 2, 2016 nausea that evening, Friday morning next day nausea and slight fever felt tired, by that evening I could hardly walk. I suffer from chronic pain and fibromyalgia everday but I was almost crippled with pain. my joint swelled within hours I could hardly walk my knees swelled my wrist and hand joints ect. I was only warned of a fever after infusion they gave me a hand out. that also told other side effects but nothing prepared me for this. I have been sick for4 days I do not see it ending anytime soon. I had kidney failure several years ago, my dr. should have not recommended this.if I knew this would make me so sick and now reading all of ur info,s would u let a rattlesnake bite u if u had a choice I think not!

  6. Michelle May 6, 2016, 11:11 pm

    I had my first (and last) reclast infusion in March 2014. Within hours I experienced full body muscle spasms, pain like I had never felt, and a sincere wish to die to just end it. And that was just the beginning. Now, I have been in and out of work for over 2 years, I have severe iron-anemia, the reaction triggered an autoimmune disorder, and I have had severe inflammation. I did not form short-term memories the first 3 or 4 months after this, and gained 70lbs within 8 weeks, and have struggled with it ever since. I can’t exercise because my body shuts down and I pass out. Even though technically out of my system, it actually has a half-life of up to 10 years.

    We have given up on pain management–it isn’t gonna happen–and we are concentrating on energy and endurance, clearing the acute depression, and eliminating the fatigue and mental fog. There is a light at the end of the tunnel–I will be able to go back to work eventually, but I will never get those 2 years back, and my health will never be the same.

    And EVERYONE went on about suing the company. Ha! 1. The Supreme Court has indemnified big pharma from suit if the drug is FDA approved and used for that approved treatment plan, and 2. no lawyer will touch it–they only want class action suits, which give them a lot of money, and the plaintiffs next to nothing, or they want to sue your doctor, which I absolutely would not do because my doctor is awesome.

    I am glad for the people it helps, and honestly, even if I had known the risks, I would have had it, because it is such a small percentage. But it would have been nice to have the choice. And I think the smaller percentage of people it kills via renal failure have families that would have liked that option, too.

  7. Begum April 28, 2016, 11:41 am

    Where we can get infuse this drug in ny queens area.

  8. Susan March 12, 2016, 4:54 pm

    I had my first reclast infusion for hip osteoporosis Feb 29. It was fast and easy. I didn’t have any pain after. However a week later I had symptoms of what I thought was a urinary tract infection. I went to GP not knowing that it could be from reclast. No infection was found so I have appointment scheduled with a urologist next week. I started looking online now and see kidney problems could be a side effect. Needless to say I am now worried about my kidneys. I called endocrinologist who prescribed it and she said to come in on Monday for lab work. She said I was tested for kidney function before and usually those problems are with people who have kidney problems. I’m still worried because I’m having discomfort during urination. Except for a bone density test I didn’t know I had osteoporosis and now I’m worried about my kidneys. I won’t have another reclast infusion. But could I have kidney damage?

  9. Lynette wyllis March 10, 2016, 5:10 pm

    I have been diagnosed with Osteopenia. I had gastric bypass surgery eight years ago. Because with this type of surgery, my body does not retain nutrients very well. My numbers have dropped rather drastically since the gastric bypass. Recast was highly recommended, so I had my first infusion last fall. I admit I did not research this and am now questioning my decision. I am not sure if I can build my bones up with nutritional eating. I have taken calcium for years, only to find out it has not done any good. Is Reclast my only option in the future?

    • Tina June 16, 2016, 8:23 am

      I also had a gastic by-pass,about a year after I became bedridden. For several years, and thousands of different meds,they finely found out what was wrong with me. Fibro,osteoarthritis and scoliosis. It’s been 30 years,since I had a hysterectomy,I wonder if the hysterectomy,was the start of it all. And also wondering,should I get checked,for Osteopenia?

  10. Wanda February 29, 2016, 8:30 pm

    I have taken reclast several years and I have limited kidney function. The first year it did put the Pagets of the bone in remission; however, if I had known about the kidney problem I wouldn’t have continued. Now I know, and it really didn’t do much good, because I broke my ankle and it was bad. I hope that my first broken bone will be my last. I am now taking 2400mg of a pure form of calcium called hydroxyapatite with collagen and magnesium. My bones healed quickly as a result with the help of 9 screws and two plates. My question is why has the drug company not been stopped as soon as the problem was discovered? Where are the lawyers with the class action law suite. I am now in treatment for my kidney/ bloodpressure problem. It seems that these the yin and yang of medicine. I will never take another treatment.

    • Michelle May 6, 2016, 11:16 pm

      Oh–and as far as suing; most class actions against reclast are closed and lawyers are unwilling to take on a single case. My research and inquiries found they only wanted to sue my doctor–but it was not anything he did. I had no pre-existing condition. On the other hand, you did, so it may be different.

      My doctor no longer offers reclast to his patients.

    • Michelle May 6, 2016, 11:13 pm

      With a known kidney issue you should not have even been a candidate for reclast–there is an established mortality rate in that population! Thank God you survived, but I would not push my luck. The minimal gains are not worth the risk to your life.

  11. Samantha davenport February 24, 2016, 8:19 am

    I am scheduled for infusions how to they give that, thru an Iv or shot. I am very concerned.

    • Samantha davenport February 24, 2016, 8:28 am

      What are some things I can do at home to help wth my bone lose? I have so many other health issues and I am only 51 and have a 10 year son at home that requires a lot of my attention. I feel like I have let him down. I need some encouragement.

      • Vivian Goldschmidt, MA February 25, 2016, 10:41 am

        Nice to see you here, Samantha. 🙂 Please don’t be discouraged – you’ve come to the right place for information about Reclast or any other osteoporosis drug you’re concerned about! Armed with knowledge, you’ll feel much more confident and in control of your bone health.

        As far as infusions go, they are given intravenously.

        Keep learning, and don’t be afraid to take your bone health into your own hands! No one can “make” you take any drug. It’s your choice.

  12. Virginia Reed February 9, 2016, 8:33 pm

    I have written once, I am ready to talk to a reputable attoorney. They need to be paying my expenses I lost down to 93 pounds in one year yes I was eating I got deathly sick after my 3rd reclast infusion. I am a RN. I begged my Dr. and talked with others and they didn’t agree this was the problem. I am in and out of the hospital for TPN because medicare will not pay for me to have it at home. Now I have a J tube sewn in my jejum to tube feed my self at my expense because I can orally eat. I do not have one spot on me that I anm not in chronic pain all the time. It is time I atleast do something and every one out there that is suffering like I am speak ouk aganist these drug companies the usa does prote here and knows these S>E. I run off over 60 pages from CDC and it scared me join me please email me we can do this thank you

    • Andrea March 26, 2016, 6:57 pm

      I had a Reclast infusion 3 months ago and I was very sick the next day for 3 weeks. I had visible hair loss, dry nails and xtra dry skin. My Rheumatologist denied that these side effects had snything to do with the infusion. He told me to go to s dermatologist ! I will never take an osteoporosis medicine sgsin. I’m ready for a big pharma, class action lawsuit for sure.

      • Michelle May 6, 2016, 11:21 pm

        Good luck. I am 2 years in and still a mess. Not as bad as Virginia, but bad enough.

        When I looked into suing (at the suggestion of my doctor) I was told by several attorneys that there was a class action in progress but too late to join and that they would not take on big pharma on a single case due to a recently passed Supreme Court order that indemnified companies against damages if they had FDA approval. They would have been happy to sue my doctor, though. They may have been misleading me, purposely or no, but it is too late for me now.

        If you think you may want to sue, you need to be sure that you file before 18 months from the date of injury.

  13. Jeannie February 4, 2016, 8:36 am

    I was recently diagnosed with Mylodysplastic Syndrome, MDS. My doctors have been observing a decrease in my platelet count for 4-5 years now… I have looked at my bloodwork for the past 5 years and noticed that the big drop occurred after my first Reclast infusion… I went from counts of: 208,000 (2012) to 127,000 (2013) to 107,000 (6/14) to 87,000(7/14) to 68,000 (7/15). I have received the Reclast infusion for the past 4 years (for osteoporosis caused from taking Prednisone all my life for Asthma) I am 63 years old, have jogged and lifted weights for 40 years and eat a very healthy diet. I had no other side effects from the Reclast but I am concerned now with the low platelets/MDS. Could there be a connection? I am suppose to receive one last Reclast Infusion in August 2016 … should I even take it? Thank you for your response… my doctors are not very helpful…

    • Vivian Goldschmidt, MA February 4, 2016, 11:07 am

      Jeannie, when it comes to osteoporosis drugs (or any drugs), there can be side effects that are not warned against. Every person’s body is different, so how a drug affects it will differ significantly between individuals. For more on this topic, and to help you make your decision, here is a post about various drugs and unexpected side effects that caused them to be pulled from the market:

  14. Linda November 3, 2015, 11:40 am

    After being diagnosed with osteoporosis at the age of 56 right after my father died of stomach cancer, I refused treatment with Fosamax and was told about Reclast and decided to have it instead even if I had to pay for it myself (turned out I didn’t) I had an infusion once a year for five years. I did not have one last year and this year will not have one because my osteoporosis has become osteoporena on my hips and my spine is healthy. I never had any side effects and was otherwise quite healthy. I am such a fan of this treatment I feel bad for anyone who cancels or refuses treatment with it because of something read on the internet. Do research and find the real statistics. I walk 3-4 miles every day for bone hearth. The dental thing was the only side effect I was ever concerned about but my dentist treated me with antibiotics each time I had a procedure and then I finally needed dentures so that risk vanished. I realize it is not for everyone but it sure beat fosomax in my case. And this year for the first time in many years I broke no bones

  15. Ilene Kastner September 26, 2015, 9:54 pm

    I have gotten three Reclast infusions in the last 4 years. (Dr suggested I take one year’s vacation from it) I no longer have osteoporosis as per my bone density test three weeks ago, at the beginning of September, 2015. I now have osteopenia that is still a worry but less than osteoporosis. I will take another Reclast infusion next month. I have had absolutely no side effects from Reclast.

  16. Catherine Fuller September 26, 2015, 1:59 am

    I am scheduled for a Reclast infusion this coming Tuesday, September 29, 2015. I’ve had osteoporosis since I was 40. I believed it was hereditary. My mother, my Aunt, my Grandmother. All four of my younger siblings
    Angels seem to guide me, in my Life. I finally decided to research this drug infusion, and I’m so very Grateful that I was directed to do so! I will be CANCELLING my appointment with the ” bag of pain and horror”. I have had Fosamax, and all the others shoved at me for years. I tried Fosamax for 30 days had so many very unpleasant side effects that I DC’D it. Against Dr. advisement. My Mother took Fosamax for more than 20 years. And many injections of assorted “bone building” chemicals that also contained Salmon and gold. None of which helped her. It SEEMED to, according to her “test results”. But, sadly, the last few years of her life were a living hell. Poor woman! She would bend over to pick something up, and a rib would snap. Reach up, have her collarbone fracture. Colle fracture.(wrist) Hip fracture. And before that one healed, the other hip fractured. Her bones were quite literally disintegrating. It was horrific to witness, such a horribly cruel unfair repayment for faith in her Doctor and the FDA.

    Mother had to live in a Nursing facility because she became a “lift patient”, and I could no longer care for her alone.
    Her bones, which originally appeared to be building in density actually became extremely brittle. Her bones were disintegrating. When I voiced my “theory” to her physicians, they looked at me as if I belonged in a psych ward. Facts don’t lie. And the fact was that Her pain level was way off the charts. I could not even hold her hand and softly squeeze it in reassurance because such a simple action on my part caused her excruciating pain. No quality of life whatsoever. Hospice couldn’t give her enough morphine to ease her pain. There wasn’t enough. She had to endure this for 3 yrars. Her Kidneys were greatly affected, she incurred heart damage.
    God save us ALL from the FDA and these “bone building” drugs.
    There IS a better way. I will find it, and I will begin HERE. I’ve nothing to lose, as I incurred a mid-back compression fracture a year ago, and have Spondylolisthesis, non-existent discs between 3 & 4,and a 45 year ongoing history of severe varicose veins, recurring phlebitis and DVT’s,
    I am going to immerse myself Into Viviane Goldschmidt’s Bone Building Program!
    I’ll be writing again, In a year, to.let all interested know how it’s working for me.
    Green Blessings to All!
    Catherine Fuller
    Certified Medicinal Herbalist and Nutritionist

    • Vivian Goldschmidt, MA September 26, 2015, 12:03 pm

      Thank you so much for sharing that, Catherine. I am so very sorry to hear about your mother’s experience, but impressed with your insight about what the drugs actually do – appear to build bone, but actually make it more brittle. I wish you great success on the Program and in your research!

  17. Joii September 24, 2015, 11:32 pm

    Well I was just told that I should get recast..I already refused dodo max…then tried it for about July then I read the insert n saw..if u have esophagus problems u shouldn’t take it..I stopped immediately..then I had a bone density test was like -3 I think n she said she wanted me to do the re clasp..not on there freaking dime..I have always excercized n take calcium n d…I do everything right for 40 years…will not do it…I don’t think anyone should put poison pill n there bodies…the big pharmaceutical companies DONT care

    • Joii September 24, 2015, 11:33 pm

      Sorry about the typos

  18. Sophie August 20, 2015, 4:03 pm

    I went for a 2nd opinion and a trusted physician has prescribed reclast and I’m scheduled for my first infusoin next week. I’m healthy otherwise and now am wondering if I take the chance on it?

    • Christine November 27, 2015, 2:10 am

      SOPHIE….how did your infusion go? I am still wavering on doing it. I have had 4 different docs tell me to do it. My OP doc, endo doc, Gastro doc, and Family doc all said to do it. Curious how you are doing. Thanks ahead….Christine

    • Vivian Goldschmidt, MA August 20, 2015, 4:19 pm

      The decision is yours, Sophie – but I encourage you to keep researching so you can make an informed decision about your infusion next week. 🙂

  19. NIkita July 12, 2015, 4:51 pm

    I have to step up as a success story, because the only people who leave comments on these sites are those who have negative feedback. I had a Reclast infusion because I take Arimidex for early stage ERPR+ breast cancer. I had some pain the morning after, but Tylenol relieved it and I have had no problems since. I am a runner and feel much stronger with fewer aches and pains than I had before Reclast. As a side note, I have no other health issues, and most should consider how your previous health conditions and lifestyle contribute to side effects.

    • Cheryl Furler April 21, 2016, 7:18 am

      After reading all of this I ambeside myself ! I was told to have the recast, I am 58 with RA. And now this. I have avoided taking methotrexate for the past 5 yrs. my DEXA score was -3.1. I have no clue which way to go!

  20. Sandy June 20, 2015, 1:24 pm

    I had a Reclast infusion in March of 2015 and I’ve had problems ever since then. Breathing problems, neck and back pain and internal shakes. I know it’s from the Reclast. Why do doctors recommend this. My doctor can’t believe the side effects I’m having. I’m so sorry I took the drug. It’s horrible.

  21. Brian March 30, 2015, 1:44 pm

    I’m only 52 and after breaking my foot found that I have osteporosis and my T-Scores are -3 and -3.5… I’m overwhelmed trying to find the right thing to do. I told my Doctor no Fosamax, that was the first drug they wanted me to try. Now I’m considering the reclast infusion. I want to build my bone mass back to a normal range, is that even possible? Can natural methods really help as much as medications? I’m lost in a google sea of information and dis-information but trying to inform myself as much as possible.

    • Vivian Goldschmidt, MA March 30, 2015, 3:13 pm

      Hi Brian,
      I am glad you’ve found the “Saver” community, and you’re obviously not afraid to ask questions and do your own research! You asked: “Can natural methods really help as much as medications?” Actually, the Save Our Bones approach is more along the lines of “natural methods help *instead* of medications.” You see, medications don’t really “help” the condition at all. At best, they manage symptoms; but there is always a price to pay. Keep reading the free information on this site, and keep asking questions!

      • Mila October 11, 2015, 7:47 pm

        My Dr, who I trust, tols me that naturopathic treatments definitely will not rebuild the bone density. I could not tolerate the Fosomac or Atonol. Reclast is considered safer tha Prolia but I dont know if i should take anything at all???

        • Vivian Goldschmidt, MA October 12, 2015, 11:29 am

          No one can make you take any drug you’re not comfortable taking, Mila. I encourage you to do your research, gather as much information as you can, and be confident in your decision. 🙂

  22. Marlene January 31, 2015, 10:45 am

    Just reading through these comments makes me very skeptical. I do trust my Dr. completely….he has recommended the Reclast treatment since my last DX Scan showed -6. Now reading of all the side effects I’m concerned as to what I should do. I have Celiac Disease and certainly don’t need anything to give me more complications wth that. For my age I have a fair amount of energy, work full time, and try to keep up at home. When I read about loss of jaw bone health, chills, headaches, overall aching bones…..I don’t need this. Any suggestions?

    • PJ August 15, 2016, 6:31 pm

      I have Celiac Disease also, was not diagnosed until after my second Recast treatment. Never showed any reactions from first injection. Shorty after second injection, I started getting nauseous daily, back pain, had to have my 6th jaw surgery for TMJ related problems apparently made worse by the Recast. I developed strange skin rashes, got sick everytime I eat, chronic back and joint pain, tender spots all over my body, severe brain fogs, forgetfulness, insomnia and the list goes on. Eventually I lost my job and have been unable to find anything permanent because of all the days I can’t remember how to do my job (payroll specialist/accounting)). Eventually the doctor ordered blood tests for gluten, and endoscope and was diagnosed with Celiac Disease and I was put on a gluten free diet. As you probably already know Celiac Disease and osteoporosis go hand in hand. I wish they could have diagnosed this year’s ago before my bones got so weak and thin instead of having to live with all the symptoms of the disease and being made to feel like a crazy person. As long as I follow my diet, I eat lots of fresh vegetables and organic meats, I do OK. As far as the fatigue & pain, still there, still getting worse. I am debating the 4th treatment, I really don’t think I can stand another because each treatment causes a flare up of symptoms that stay with me. If I had it to do over, I would not have started treatments. I truly believe that was the beginning of the end for me. I am 62 now and beginning to think I will never get to have a job or live a normal life again.

  23. Nancy Connor January 30, 2015, 7:07 pm

    My husband who has a family history of Osteoprosis and suffered from it himselt too the infusion for 3 years in a row with no side effects he is 81. Now the bone density test showed he no longer needs the treatment and will test him again year after next. Amazing results.

  24. Mina January 10, 2015, 2:17 pm

    I had a fracture for no apparent reason. I had the Reclast infusion 2 days ago and Have had no after affects. The nurse that gave the injection said “it goes directly into the blood stream flushes and immediately starts working, flushing out the nutracid (sp) and replacing it.” I was told to take 16 Oz of water (I drank more than that). Was warned about the kidneys, told to take pain medication for symptoms. Was told the affects would be immodestly recognized.
    I still have pain in my back, but no less or more than before. Overall I feel better.
    If I had to choose between afraid to move and the injection
    , the choice was not hard to make.

  25. Carol S. June 4, 2014, 9:28 pm

    On June 2, 2014 I had an infusion of Reclast at 11 am. By 8pm that same evening, I started feeling bone pain followed by nausea and later vomiting to the point where I could not even keep down water. I began to feel chills and tried soaking in a bath of hot water thinking that the warmth could also make my bones feel better, but it did not. As the night progressed, the nausea got worse, and I was in such severe pain that my ribs felt bruised, and I could only take shallow breaths because the pain was so great in my chest when air enter my lungs that it felt like the muscles wear ripping off my ribs, my lower abdomen felt as if it were filled with rocks, and every joint, muscle, and bone was in pain. Needless to say I did not get any sleep and the following morning I contacted the medical professional who administered the Reclast. She instructed me to contact my doctor who ordered the Reclast, which I did do, and the doctor recommended I go to the ER. I was so weak at this point that I could not even lift my purse, and had to have a wheelchair to transport me from the car to the ER. In the ER, my blood pressure was taken and it had dropped to 81 over 57. The ER staff administered 3 IV drips, anti-nausea medicine, and pain pills. I had three preheated blankets on me, but could not stop shivering from feeling cold in my body, and at the same time burning in my head. They x-rayed my chest and abdomen, as well as administered two EKGs. After 6 hours in the ER, the ER doctor was considering admitting me, but when my blood pressure finally elevated to a normal level, she cleared me to go home, which I was happy to do so that I could warm my bones in a hot bath. I left the hospital with medicine for nausea, the same that they give to chemotherapy patients. I spent the following day in bed, in pain, unable to stand fully erect to walk to the bathroom, and needed assistance to turn in bed, and to sit up to get out of bed. It was the worst pain I have ever felt in my life. I have limited movement in my neck, my jaw hurts, my face hurts, my ribs hurt, and I am worried about what long term effects I may now have because of what I thought was a good thing to do for my bones.

    • Joan M July 1, 2015, 7:29 pm

      I had Reclast in July of 2014 and had the same experience. I went to the ER the same night as the infusion and was admitted to the hospital. No one seemed to recognize the symptoms of the infusion even after I told them I had had a Reclast infusion. They called my Dr. He said he was surprised as he had never heard of the sever side effects I was experiencing. But you and I know that Reclast is not for us! I will not be taking another infusion of any type. Hope you are feeling better now.

    • Vivian Goldschmidt, MA June 5, 2014, 8:03 am

      Carol, my heart aches for you! What a terrible experience. Remember, though, that your body is made for health, not sickness! You don’t ever have to take Reclast again, or any other osteoporosis drug for that matter! Now you can focus on nurturing your body and your bones, and giving your body what it needs to heal and, ultimately, rid itself of the Reclast. Hang in there and take care of yourself!

  26. Terese March 14, 2014, 2:13 pm

    I had Prolia six months ago and had no problem. I am in getting recast right now and am pretty sure I will do just fine. I have had a -4 on my bone density for about 4 years now and am a high risk for bone cancer. So I will do what I have to do to build my bone density. All drugs have side effects it’s the positives you never hear about. I will come back to post after my next bone density test to let you know if this did any good. If not I may not get another done.

  27. Denise March 5, 2014, 1:37 pm

    My infusion is monthly. I just completed my first one on Monday. After reading about the possible side effects, I am more than concerned about having them especially monthly. My diagnosis i metastasized breast to bone cancer. Are there other options available for me?

  28. pat rosinbaum July 9, 2013, 6:23 pm

    please advise i have serere conspitation problem and sure don’t need any more kidney problems. i have to get up at least three times a night.
    please advise what I should do.

    • Vivian Goldschmidt, MA July 10, 2013, 6:30 am

      I am so sorry you’re experiencing that issue, Pat! It sounds very uncomfortable. I suggest you talk to your doctor about this if it’s persistent.

  29. CONNIE JOSEFIK June 28, 2013, 1:58 pm

    I just had a reclast infusion and did not no of the side effects. I am not sure I will continue next year with another infusion. Thanks for the information

  30. myrna konikow June 26, 2013, 11:40 am

    i am petrified to take this medicatin my bone scan was not that bad

    • Vivian Goldschmidt, MA June 27, 2013, 6:53 am

      Remember, Myrna – it’s your health and your decision! You don’t have to take the osteoporosis drugs if you do not want to.

  31. Jackie June 18, 2013, 1:46 pm

    Recently I was diagnosed with osteopenia and osteoporosis, I was recommended to receive this IV or injection, I am very concerned and really have a bad feeling about it, I have a major medical history,, So at this time I am unsure what to do, I am sooo skeptical about the serious side affects, My neuro said I am that 1% , I don’t want fractures. What do I do?

    • Delores September 3, 2013, 4:42 am

      One of the potential side effects of Reclast is bone death in your jaw. If the bone dies in your jaw, there is no remedy and it is a nasty thing to have according to my dental hygenist. I have had two Reclast injections and will never have another. Before I had the first one, I talked to my dentist who had no info nor did my doctor re bone death. They simply did not have enough informatin to guide me. I have bad teeth with multiple crowns, and implant, etc. If I have to have an invasive procedure done, I fear this problem. When I went for the first infusion, I just went to a lab. By the time I went for the second infusion, I was directed to the oncology area where they give you chemo. I learned that, although this is a lighter dose, this is the same type drug used in chemo. This is just one more problem with the drug.

    • Vivian Goldschmidt, MA June 18, 2013, 2:00 pm

      Jackie, the decision is up to you – but you are already on the right track, because you’re here! That means you’re doing your research, and whatever decision you make will be an informed one. Please feel free to continue reading the information on this site, and if you like, sign up to receive regular newsletters and updates via e-mail. Remember, your body was made for health – you just have to give it what it needs! 🙂

  32. R Greenfield June 17, 2013, 10:24 am

    I’m scheduled for Reclast infusion and am considering cancelling appt.Am apprehensive about possible Renal damage.

    • Linda February 23, 2015, 7:10 am

      Mine is scheduled for tomorrow but I think I will cancel scared to death

  33. Barbara Filteau May 22, 2013, 8:11 am

    I bought your book 3 yrs ago and made a lot of changes in my life. I eat healthy and have been doing weight bearing exercise for 20 years now not to mention growing up I was always either on roller skates or a bicycle and walked everywhere. As an adult I hit the treadmill every morning and walk during my breaks at work. I was diagnosed with osteo penia at the age of 50 and every bone density test I’ve done since then is worse. MY doctor told me yesterday that my bones are now as bad as they can get and for a 60 yr old woman there are only 3 percent of women my age with bones as bad as mine. He doesn’t usually suggest treatment for women under 70 but with my results and the medical history of my mother her wants me to go on Reclast. I feel sick to my stomach about this. I don’t even like to take a Tylenol unless I absolutely have to! Tests show that my bone turn over is twice as fast as it should be at this point in my life. I’ve tried every thing but I refuse to take a drug that can harm me and make me worse then I am. Any suggestions? I need help!

    • Vivian Goldschmidt, MA May 23, 2013, 3:31 pm

      Barbara, just remember – it’s your decision! No one can “make” you take any drug you don’t want to take. I encourage you to develop your own “bone health philosophy” to help you in your decision. Have you seen this most recent post? It will guide you in doing just that!

  34. sidney easterling April 15, 2013, 1:08 pm

    Is there anyone out there who has had the reclast infusion that is doing well? My last DXA scan results were; -3.5 and my doctor is having a fit to put me on Prolia or Reclast. HELP!

    • Vera Hall March 29, 2016, 10:41 pm

      I took Reclast in 20012 the first time no problem . No bone ache or all the other problems some people wrote. I took Reclast again in November 2015 and again no problem. I will take it again if I have to.

    • Susan December 13, 2014, 11:07 am

      When I was 56 I was diagnosed with osteoporosis in 2011. I do not remember the number, just that the results were high risk of fracture. My gynecologist wanted me to try Prolia. While waiting for approval from my insurance company I got a personal trainer and begin weight lifting and a calcium and diet regimen. A year later, after the insurance company refused to approve Prolia, I had another dexa scan and my results were worse and my dr recommended Reclast. I had the infusion in March of 2012 and it was one of the worst experiences of my life, I was sick, headache, bone pain, chills, fever and I felt like I was 100 years old for 4 days. I swore I would NEVER do that again. I continued on my diet, calcium and exercise routine. I just had my dexa scan on Saturday and my results were shocking. All the areas of osteoporosis, hip, spine and femoral head and now borderline osteopenia -1.06 to -1.46. I will not take another infusion but I am hoping to hold my results where they are now. So that was my experience. I hope it helps.

      • Christine November 27, 2015, 2:29 am

        SUsan: do you think the Reclast infusion improved your bone density or the exercise regimen you got on? Hard to tell, huh? I am wavering on the Reclast Infusions….I read good things and bad things…..My head is spinning….

    • Gail Bollard November 4, 2014, 11:55 pm

      I had Reclast in January 2013. My only side effect was pain in my jaw, towards the back. I took a couple of pain pills and after a day or so it was fine. I had no other side effects. I have a nearly lifelong complicated medical history. I am a type one diabetic of 45 years. I have hypothyroidism, I have PAD, anemia of chronic disease and arthritis in my knees and tailbone. I am not sure if that makes a difference or not.

  35. p cunningham January 16, 2013, 7:27 pm


  36. lynn January 13, 2013, 6:41 pm

    I had the reclasp infusion done 6/12. I Was in server pain,fever,detached from life,kidney failure, was admitted to ER 24 after receiving the infusion. They didnt know how to treat me. Pain meds and much fluids to try to flush/dilute the drug. I have confusion and dizziness also til this day. I wasnt warned. I was given a side effects sheet. Cont. headaches!!!! Hope some reads this and dosent decide to get infusion.

  37. Christina January 9, 2013, 2:28 pm

    I took reclast and I now have ONJ! I don’t see how Save The Bones will help now! I researched, prayed, and decided the chances of getting ONJ WERE SO RARE! I was wrong and now I’m suffering. I am at a loss as to what to do!

    • da costa October 1, 2013, 12:47 am

      whats mean onj ?

  38. Heather August 1, 2012, 9:33 pm

    Thanks for this enlightening discussion – natural methods are always better than treatment with drugs!

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